EverythingALS @everything_als

A powerful moment for the future of ALS: Allen Brain Health Accelerator - a $400 million investment. EverythingALS is honored to be part of this effort. It is inspiring to hear Ed Lein share $400 Million investment into this bold vision for accelerating discoveries across neurological diseases through collaboration, data, technology, and open science at the Allen Brain Health Accelerator. EverythingALS is honored to be among the partners, alongside the National Institute on Aging, AWS, and the Bezos Family Foundation, supporting this effort to better understand and treat diseases of the brain. For too long, ALS has been hindered by fragmented data, slow research cycles, and limited access to real-world patient insights. By bringing together citizen researchers, neurologists, and neuroscientists with industry and technology partners, as part of the Brain Health Accelerator initiative we have an opportunity to fundamentally change that trajectory. The future of medicine will be driven by large-scale, longitudinal, patient-centered data combined with AI-powered analysis and collaborative innovation. This is exactly the vision that drives EverythingALS, EverythingAD, and Vision 2030. We are grateful to our partners, participants, researchers, and supporters who continue to make this work possible. #BrainHealth #ALS #Alzheimers #DigitalBiomarkers #AIforGood #OpenScience #EverythingALS #EverythingAD #Vision2030 #AllenInstitute

A landmark collaboration: EverythingALS + Allen Institute unite to accelerate ALS & brain disease breakthroughs. #OpenScience #AIforGood

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Dr. Jinsy Andrews invites you to EverythingALS' next Expert Talk, happening this week! She'll be discussing: ✨ Review of current ALS treatment options and when it may be time to consider clinical trials ✨ Break down of how to evaluate and choose the right clinical trial, including key decision factors and an overview of today’s pipeline ✨ Exploring Sava AI and how it supports trial navigation, decision-making, and continuous feedback to improve the patient experience 📅 Wednesday, April 29, 2026 ⌚ 4 PM PT / 7 PM ET 🔗 Register: rnrli.share-na2.hsforms.com/2OENWZs3LRpaFA… #everythingals #alscommunity #endals #alstrials #alsresearch #peoplelivingwithALS #als #alscaregivers #motorneurondisease

Our monthly Fireside chat is tomorrow where PALS and CALS come together to share everyday life questions and experiences. 📆 Wednesday, April 8, 2026 ⏰ 4 PM PT / 5 PM MT / 6 PM CT / 7 PM ET 💻 held on Zoom ✍🏻 register at: rnrli.share-na2.hsforms.com/20VeOFLlKTGemT… The more, the merrier! If you have friends or other people in your ALS community, please invite them! #ALSResearch #ALSJourney #ALScaregivers #livingwithals #lifewithals #ALSCommunity #ALS #CaretoCure #everythingals #motorneurondisease

We’re expanding our work. Introducing @Everything__AD, a new initiative under the Peter Cohen Foundation focused on Alzheimer’s disease and brain health. Neurodegenerative diseases share overlapping biology, and progress in one area can accelerate breakthroughs across others. This is a natural next step in our commitment to citizen-driven research and open dialogue. Join us tomorrow for our first EverythingAD Expert Talk, including live Q&A. Register: tinyurl.com/bdzzzk54 #BrainHealth #Alzheimers #Neurodegeneration #EverythingALS #EverythingAD

Join us on February 18 for the first episode of HopeUntangled! Register➡️everythingals.org ALSUntangled: alsuntangled.com ALS Hope Foundation: alshf.org #ALS #ALSResearch #ALSCommunity #LivingWithALS #ALSReversals #DrBedlack

Join our Expert Talk Series tonight, featuring Dr. Stephen Kolb on "How to Kill a Motor Neuron". 4pm PST / 7 pm EST. Register at: everythingals.org/events #ALS #ALSResearch #ALSCommunity #CareToCure

Proud to share that EverythingALS CEO Indu Navar is attending #SCCWEF26 with the @SmartCitiesCncl during the World Economic Forum in Davos (Jan 18–23). Bringing citizen-powered health data and patient voices into global conversations on the future of cities, technology, and public health. 🔗 events.smartcitiescouncil.com/SCCHereDuringW… #SCCWEF26 @SmartCitiesCncl

🚨 Tonight! Our first Expert Talk of 2026 🚨 What if viruses play a role in ALS? Join us this evening as Dr. Gary Pattee explores emerging research in 🧬 “Chloroviruses in ALS” - a fascinating look at a lesser-known area of investigation that’s sparking important scientific questions. 📆 January 7 ⏲️ 4 PM PT / 7 PM ET 🔗 everythingals.org/events Curious minds welcome. Come learn with us. #ALS

As the year comes to a close, thank you for being part of this community. The spark at the center of our work comes from people - your participation, curiosity, and shared commitment. Together, that light guides what comes next. Grateful for all we’ve built and hopeful for 2026. #ALS #ALSCommunity #CareToCure #ALSResearch

Join us Wednesday for our final Fireside Chat of 2025! A welcoming space to share practical tips for daily life with #ALS — or simply show up and be part of the community. 📅 Dec 17 | 🕓 4pm PT / 7pm ET 🔗 everythingals.org/firesidechats #EverythingALS #ALSCommunity #CareToCure

Every 90 minutes, someone is diagnosed with ALS. Progress doesn’t happen all at once — but it does happen when collaboration is intentional, hope is present, and voices are centered. That’s how we move research forward. 💙 everythingals.org #ALS #ALSResearch #ALSCommunity

Next week is an all new episode in our Expert Talk Series, featuring Dr. Suma Babu, Co-Director, Neurological Research Institute, Massachusetts General Brigham and Associate Professor of Neurology at Harvard Medical School. "Healey ALS MyMatch Overview & Updates" Wednesday, December 10, 2025 4 pm PST | 7 pm EST register for the zoom event at everythingals.org/events We hope you will join us! Please like, comment, and share this post to help spread the word. #ALS #ALSCommunity #ALSFamily #ALSEducation #everythingals #CareToCure #ALStrials #ALSResearch

Today’s Pathfinder Spotlight: Tony. 💙 A retired LA Firefighter and proud husband, father & grandfather, Tony brings deep compassion and lived experience to the ALS community. His message: “As a PALS, I understand what others are going through and therefore want to help them.” Thank you, Tony, for all you do. Connect with our Pathfinders in the EverythingALS app or at everythingals.org. #ALS #ALSCommunity #CareToCure #PathfinderSpotlight

Join us next Wednesday for Giving Thanks with EverythingALS, a relaxed, drop-in Zoom gathering to connect, reflect, and share gratitude. 💛 Hosted by staff + Pathfinders. Everyone is welcome. 🗓 Nov 26 🕓 4pm PST | 7pm EST 🔗 everythingals.org/firesidechats #EverythingALS #ALSCommunity #ALS #GivingThanksTogether #CareToCure

In honor of National Family Caregivers Month, we’re spotlighting Faith - a Pathfinder and caregiver whose compassion strengthens the ALS community. 💙 “ALS affects the whole family… no one should feel alone.” Thank you, Faith. #ALS #CaregiversMonth #ALSCommunity #EverythingALS #CareToCure #PathfinderSpotlight

Welcome to EverythingALS, a community of hope, science, and support. 💙 4 ways to get involved ⬇️ 📱 Download the App 🧬 Join Studies & Trials 📧 Subscribe to Emails 🗓️ Attend Online Events Your voice and experience matter. 🔗 everythingals.org #ALS #ALSCommunity #EverythingALS #CareToCure

Are you living with ALS or caring for someone who is? You’re not alone. Join our monthly Fireside Chat hosted by the EverythingALS Pathfinders - leaders who understand the ALS journey firsthand. A space to listen, share, and connect. ❤️‍🔥 🗓️ Nov 19, 2025 ⌚ 4pm PT | 7pm ET 🔗 everythingals.org/events All impacted by ALS are welcome. #ALS #ALSCommunity #CareToCure #EverythingALS