Cure SMA @CureSMA
Funding groundbreaking research for SMA. Determined to find a cure & support our community as the future of SMA is ever-changing. linktr.ee/curesma National Office - Illinois Joined January 2009-
Tweets4K
-
Followers5K
-
Following587
-
Likes776
BREAKING: FDA approves Itvisma® (onasemnogene abeparvovec-brve) for treating spinal muscular atrophy (SMA) with a broad label covering all ages and types. This is a major step forward for the SMA community offering greater independence and new possibilities for those living with SMA. Learn more: curesma.org/novartis-recei… #SMA #TreatmentBreakthrough #CureSMA
Check out this story about our community member, Andrew Cherico 💜🧡
“Everything I thought I could do as a kid until now was justified by somebody at his level.” Tom Rinaldi tells the inspiring story of Andrew Cherico and how @CUBuffsFootball HC @DeionSanders helped him believe anything is possible. ❤️ @Andrew_Cherico | @UCF_Football
Are you a healthcare professional looking for educational opportunities? Check out the educational opportunities available for clinicians here! lnkd.in/gWHbYntE For an opportunity to be awarded one free registration and 3 nights hotel to the 2025 Annual SMA Research & Clinical Care Meeting, please submit your SMA education CME/CE certificates to [email protected].
This year’s Hope on the Hill event, which was held on November 19 in Washington, DC, recognized several lawmakers, including U.S. Representative Sam Graves of Missouri, U.S. Representative Pete Stauber of Minnesota, and U.S. Representative Mark DeSaulnier of California, U.S. Senator Tammy Baldwin of Wisconsin, and U.S. Senator Shelley Moore Capito of West Virginia. During the event, several SMA community members highlighted Cure SMA’s year-long advocacy efforts to help address the needs of children and adults with SMA. Individuals with spinal muscular atrophy (SMA) and their families were also recognized as congressional champions. Read more about the year’s event in our news section: curesma.org/sma-community-…
As part of our ongoing efforts to drive quality health care standardization and improvements for the SMA community, Cure SMA is pleased to announce the next publication in a series of resources designed to support healthcare professionals, and individuals with SMA, and their caregivers. “Spinal Muscular Atrophy (SMA) Update in Best Practice: Recommendations for Treatment Considerations”, published in Neurology Clinical Practice, was developed in partnership with SMA key opinion leaders, individuals with SMA, and caregivers. Learn more: curesma.org/update-in-best…
Don't miss the final episode in our 6-part panel series discussing the lates updates in spinal muscular atrophy (SMA) diagnosis. Kapil Arya, MD, Juan Francisco Vazquez Costa, MD, PhD, and Mary Schroth, MD in a presentation for the medical community. Please share this with your healthcare team. Episode 6: Monitoring Symptoms and Defining SMA Stages Stay informed on the ongoing work to refine SMA diagnosis and staging. This episode addresses how to monitor symptoms and define clinically meaningful stages for better care. neurologylive.com/roundtable-dis… To access the manuscript, click here: curesma.org/wp-content/upl…
Last week, Genentech presented positive 2-year data from the ongoing RAINBOWFISH study. The data confirm Evrysdi efficacy and safety in children first treated pre-symptomatically before 6 weeks of age, with most achieving motor milestones similar to children without SMA. All children were able to swallow and feed orally, with none requiring permanent ventilation. Learn more in our news section: curesma.org/genentech-evry…
Discover the latest advancements in Spinal Muscular Atrophy (SMA) diagnosis with leading experts Kapil Arya, MD, Juan Francisco Vazquez Costa, MD, PhD, and Mary Schroth, MD. In this in-depth 6-part series, these neurologists delve into new diagnostic guidelines, treatment access strategies, and key insights from the latest research, providing crucial information for clinicians looking to improve patient outcomes. Episode 2: The Evidence Behind New Best Practices Dive into the clinical evidence and research that shaped the latest SMA diagnosis guidelines. Learn how decades of data have led to updated best practices. neurologylive.com/sma-diagnosis-… To access the manuscript, click here: curesma.org/wp-content/upl…
Biogen today announced that data from Part B and Part C of the DEVOTE study support the clinical benefits of a higher dose regimen of nusinersen (50/28 mg) in both individuals previously treated and treatment-naïve to nusinersen. Learn more: curesma.org/new-higher-dos…
Today, Scholar Rock announced that its SAPPHIRE Phase 3 Study achieved its primary endpoint demonstrating a statistically significant and clinically meaningful improvement for apitegromab. The company plans to submit a U.S. Biologics License Application (BLA) and a European Union marketing authorisation application (MAA) in Q1 2025. Learn more in our news section: curesma.org/scholar-rock-a…
Streamers @sim_simmy and @athenahighland will be live on Twitch this afternoon for the Cure SMA annual conference! Come chat with other streamers, gaming enthusiasts, conference attendees, and SMA community members at 11:30am and 1:15pm CT. We'll see you online!
Join streamer @sim_simmy live on Twitch NOW! At conference, stop by the Cure SMA Hub in Griffin Hall while you eat lunch. At home, chat with other community members virtually while Sim plays the sims! twitch.tv/sim_simmy
Scholar Rock is proud to be a Title Sponsor of the @CureSMA 2024 Annual SMA Conference and the Annual SMA Research & Clinical Care Meeting. We look forward to seeing the #SMA community this week in Austin! #2024SMAConference
After bringing his story to the University of California Board of Regents, Ryan Manriquez, adult with SMA and UC Berkeley student, has prompted the UC to ensure emergency evacuation chairs are in every multi-storied building in the 10-university system. Full story below
We’re happy to share our next recipient of Cure SMA’s basic research funding, Michael Tellier, PhD, at the University of Leicester! Dr. Tellier was awarded $114,000 for his research project, “Characterization of the SMN-7SK complex in the regulation of SMN1 and SMN2 expression
This weekend, the President signed into law a government funding bill that included a provision in support of new SMA research at the National Institutes of Health (NIH). Visit our news section to learn more: curesma.org/gov-funding-bi…
Cure SMA Foundation o... @curesmaindia
2K Followers 615 Following Making Spinal Muscular Atrophy treatment and cure accessible and affordable to Indians.
SMA News Today @SMANewsToday
2K Followers 10 Following Your source for spinal muscular atrophy news, support, & real stories from the community. Let’s raise SMA awareness together!🎗️
Spinal Muscular Atrop... @SMA_UK_
3K Followers 817 Following Supporting anyone living in the UK affected by Spinal Muscular Atrophy (SMA). On Twitter to raise awareness of the condition, our activity and related topics
SMA Benimle Yürü @smabenimleyuru
4K Followers 13 Following Biz bir yola çıktık, umuyoruz ki bu yolu hep beraber yürüyeceğiz...
Muscular Dystrophy As... @MDAorg
20K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Ayça Şahin @MsGeneticist
7K Followers 222 Following Koç University | Molecular Biology and Genetics BSc🎓 and now doing PhD in Neuroscience | SMA warrior 💪 and doing SMA research 🧬 | Future geneticist
TREAT-NMD® @TREAT_NMD
4K Followers 530 Following Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world.
Rare Disease Day @rarediseaseday
42K Followers 3K Following 28 February 2027 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are impacted by rare diseases. #RareDiseaseDay
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
World Muscle Society @WorldMuscleSoc
2K Followers 610 Following The WMS is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders. Join us in Vienna for #WMS2025.
Beacon for Rare Disea... @RareBeacon
12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Brunhilde Wirth @BrunhildeWirth
623 Followers 151 Following Prof. of Human Genetics, Chair of the Inst. of Human Genetics, Univ. of Cologne, Gene Hunting, Dissecting disease mechanism, Neurogenetics, Modifying genes, SMA
Simon H Parson @NEAnatomist
1K Followers 74 Following Regius Professor of Anatomy, Aberdeen University: interests in education and spinal muscular atrophy. All views my own.
MDA Advocacy (Archive... @MDA_Advocacy
2K Followers 337 Following MDA's Advocacy empowers the voice of the @MDAorg community & protects the interests of those we serve.
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Muscular Dystrophy Ca... @MD_Canada
5K Followers 1K Following MDC's mission is to help people with neuromuscular disorders live life on their own terms. #WalkRollMDC #MuscularDystrophy FR: @Action_Musclee
Fundación Fundame @FundameNet
3K Followers 3K Following La atrofia muscular espinal (AME) es una enfermedad grave que causa pérdida de fuerza progresiva. FUNDAME es la Fundación nacional de afectados #StopAME
Matthew S. Alexander @Matt_Muscle_Guy
6K Followers 4K Following Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. All tweets are my own. Instagram @thealexanderlab
Avril Coelho 🏳️�... @AvrilCoelho
3K Followers 5K Following Disabled, Diversity, Equity, Inclusion & Accessibility advocate. BEA Volunteer. White Ribbon Champion. SW BCU SNB Business Rep. [email protected]
Parry_Romberg_Syndrom... @Parry_Romberg_S
17 Followers 40 Following Supporting Parry-Romberg Syndrome a rare and progressive disease by raising awareness, fundraising, sharing medical advances and Building a Community.
Kori_Twilight @Kori_Twilight
116 Followers 86 Following Hiya! My name is Kori Twilight, I'm a VTuber, content creator, and disabled livestreamer who *loves* to draw, chat, and game! Hey you! Yea you! You're amazing!
Eva's Dad ❤️ @RuslanK852287
57 Followers 110 Following “Father of Eva • SMA Type III• Fighting for her life • Donation link below”.
Deniz Toktaş @MaresalMKA1881
171 Followers 2K Following 18 | Başkent Üni Atatürk 🇹🇷 GS 💛❤️ | Vakıf 🖤💛 Ecevitçi 🕊 Climate Activist 🌍📢✊ @unicefturk Volunteer @add_genelmerkez Volunteer @Greenpeace_Med Volunteer
olive martel @olivemartel
0 Followers 20 Following 🐈 catmom to peio ♿ professional wheelchair operator ☕ powered by caffeine and poor decisions 📍 currently not allowed to leave house
rejit @rejitmr
0 Followers 20 Following
Cauy Sprankle @CauySprankle
3 Followers 159 Following I’m a joke, Jesus is not | Ohio State Alum | Cowboy Up | Founder of @connectedfools | Living life in a Wheelchair 1 day at a time!!
Bowtie Foundation @bowtiefndn
3 Followers 28 Following A 501(c)(3) public charity committed to helping families navigate the life-changing journey of cell and gene therapies.
ZickZack @zick_zack_DT
110 Followers 3K Following
STRIVE @TheStriveFuture
0 Followers 20 Following A future where no child with SMA is denied treatment! Join hands with strive and let’s strive to change lives together. Strive
Aparna Katyan @Aparna_Katyan
11 Followers 69 Following ✧ Deeply affectionate. Resolutely heartless. ✧
Calvin Hawe @calvin_hawe
137 Followers 2K Following 🟪 MSTP Student @NUFeinbergMed, '26- 🟦 Chem Research Associate @OctantBio, '24-'26 🟩 Biochem with Neuro focus @NDscience, '20-'24 🟧 https://t.co/SEE3Pzg9Lr
@MQV @MQVehling
4 Followers 57 Following
Santhosh Kalyanasamy @liveSanthos
226 Followers 2K Following Compelling Storyteller | X Ads Specialist | Transforming Brands into Trends
Dave Fuhrman @CoachFuhrman
540 Followers 951 Following Former Business Teacher & Boy’s Basketball Coach at Bradford Area High School. Current PIAA Official.
Alice Miller @AliceMillek5ad
417 Followers 1K Following I'm a non-partisan person and all reposts do not represent my personal opinion
Donate Chain @ChainDonat7068
12 Followers 112 Following Rebuilding trust in charity through blockchain transparency. Every donation tracked. Every expense verified. On-chain accountability for NGOs. 🌍⛓ donatechain.
Angela Hayes @AngelaChristyH
6 Followers 17 Following
KırmızıBeyaz @m_u_t_l_u_
328 Followers 447 Following 🇹🇷 ރ Dalgalan sen de şafaklar gibi ey şanlı hilal! Olsun artık dökülen kanlarımın hepsi helal. #DmdİçinYeniDoganTaraması başlatılsın
Jedidiah Shirley @FaithFirst0618
0 Followers 61 Following
Antibody News @antibodynewshq
257 Followers 5K Following
Teeing Off To Cure SM... @teeofftocuresma
3 Followers 47 Following Teeing Off to Cure SMA is a fundraising event to support finding a cure for this rare genetic, progressive neurodegenerative disease. #TeeingOff2026
Bolsa em Pauta: Desve... @RogeRabeFari
74 Followers 539 Following
Skinldy69🦄💕🍭... @deborah94830038
1K Followers 3K Following I am a clear-thinking, common sense Retired Boomer Dedicated to searching out real truth. I am not a Globalist. Love the British RF. LOVE AMERICA NO PORN DM
Mr Brightside @HomeCarePHB
2 Followers 61 Following Parent of 2 amazing kids. Believe in equality for all & would like more done for people with disabilities! Kindness costs nothing nonsense will be ignored.
Tinku (Modi Ka Pariva... @abtinku
56 Followers 606 Following
Spoonie Pawprints @sarclusion
5 Followers 47 Following Deep-listening hacker-panda Bumbly wheels through karaoke labs, crisis pivots and weighted-blanket stake-outs to prove disability is no plot twist.
Share4Rare @Share4Rare
3K Followers 2K Following 💻🌍 Plataforma que promueve la #investigacióncolaborativa en #EnfermedadesRaras | Platform that promotes #collabrativeresearch in #RareDisease 🚀 | @IRSJD_info
Jasmine ♿️ | Disa... @My_WheelLife
23 Followers 27 Following Mom of two. Building my future in real time. Faith, finances, freedom, and the daily discipline.
Hosein @Hosein674194
1 Followers 32 Following
土贼 @sheng_hu77936
10 Followers 77 Following
Gail Hutchcraft @GailHutchcraft
0 Followers 20 Following
Hussein Saleh @HusseinSal1994
2 Followers 72 Following
Marie Yambo @MarieYambo
165 Followers 89 Following Award Winning Journalist | 3 Time AJE Award Winner | 2013 Global Health Workforce Alliance Awardee in Recife, Brazil | News Anchor, Host - Health and Lifestyle
arun tiwari @aruntiwari39235
0 Followers 4 Following
Sepanta Haghdoost @SepantaXAccount
171 Followers 4K Following Please donate blood and encourage others to donate blood!!!!🩸🩸🩸🩸Thank You!!!!
Chinapharmapulse @CNpharmapulse
0 Followers 73 Following Independent Researcher | Ex-MNC Med Affairs (13y). Unlocking China's "Ground Truth" via RWE & Social Listening. 🇨🇳 Focus: Digital Health, Access & Strategy.
Marcelo Lopez @malopez1975
17K Followers 342 Following L2 Capital. Tweets are not investment advice. Catholic guy
Breelagh D’Agostino @realBreeDags
1K Followers 862 Following Former Lib/Agnostic/Hippy turned Jesus-loving Patriot. ✝️🇺🇸 | 💍 @realNickDags | Co-Founder of @thecapablecrew
ibtihel Assil @IAssil15593
0 Followers 19 Following
KannaGuruvayurappaLOT... @KGuruvayurappa
129 Followers 2K Following No Paid Hype,Not into any Political Party,As all are my SERVANTS,since I have elected them & have the democratic Right to Question/Critic them. ROUTED SANATANI.
Heather Viano @hav12
45 Followers 159 Following
Mathieu baudin @Mathieubau38260
1 Followers 97 Following
Jamilsaqeb @Jamilsaqeb8
9 Followers 160 Following
Cure SMA Foundation o... @curesmaindia
2K Followers 615 Following Making Spinal Muscular Atrophy treatment and cure accessible and affordable to Indians.
SMA News Today @SMANewsToday
2K Followers 10 Following Your source for spinal muscular atrophy news, support, & real stories from the community. Let’s raise SMA awareness together!🎗️
Spinal Muscular Atrop... @SMA_UK_
3K Followers 817 Following Supporting anyone living in the UK affected by Spinal Muscular Atrophy (SMA). On Twitter to raise awareness of the condition, our activity and related topics
Muscular Dystrophy As... @MDAorg
20K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Ayça Şahin @MsGeneticist
7K Followers 222 Following Koç University | Molecular Biology and Genetics BSc🎓 and now doing PhD in Neuroscience | SMA warrior 💪 and doing SMA research 🧬 | Future geneticist
Rare Disease Day @rarediseaseday
42K Followers 3K Following 28 February 2027 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are impacted by rare diseases. #RareDiseaseDay
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
Beacon for Rare Disea... @RareBeacon
12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Simon H Parson @NEAnatomist
1K Followers 74 Following Regius Professor of Anatomy, Aberdeen University: interests in education and spinal muscular atrophy. All views my own.
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Muscular Dystrophy Ca... @MD_Canada
5K Followers 1K Following MDC's mission is to help people with neuromuscular disorders live life on their own terms. #WalkRollMDC #MuscularDystrophy FR: @Action_Musclee
Fundación Fundame @FundameNet
3K Followers 3K Following La atrofia muscular espinal (AME) es una enfermedad grave que causa pérdida de fuerza progresiva. FUNDAME es la Fundación nacional de afectados #StopAME
Biogen @biogen
45K Followers 240 Following Official global newsroom account for Biogen, a leading biotech company pioneering innovative science since 1978. Community guidelines: https://t.co/56frPQHf74
Global Genes @GlobalGenes
29K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
Robert Muní Lofra @r... @rmunil
617 Followers 922 Following PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
Madison (Kendall's WW... @princessmadiro
2K Followers 3K Following I LOVE Big Time Rush & Shawn Mendes! Kendall's WWG 8/12/25. I LOVE Disney! I have Spinal Muscular Atrophy type 1 & I'm trying to raise awareness & funds 4 SMA!
Ionis @ionispharma
5K Followers 460 Following Delivering innovative medicines to patients where no others have proven effective or existed. See our community guidelines: https://t.co/HWH9JQRBR2
Teeing Off To Cure SM... @teeofftocuresma
3 Followers 47 Following Teeing Off to Cure SMA is a fundraising event to support finding a cure for this rare genetic, progressive neurodegenerative disease. #TeeingOff2026
dermRounds @dermatology
36K Followers 17K Following dermRounds Dermatology Network is a professional & social networking site for #dermatologists, skincare professionals, & anyone interested in #dermatology!
Your HHRS News @YourHHRSnews
57 Followers 122 Following New Jersey Health, Medical, Fitness, Nutrition News and Events
Mike Belcher @MikeBelcher4
2K Followers 325 Following SVP, Business Development & Partnerships @ T-Mobile. Co-creator T-Mobile Tuesdays. Golf is my happy place.
My Gene Counsel @MyGeneCounsel
5K Followers 4K Following Digital genetic counseling reports for patients and providers that keep you up-to-date.
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
LifeWorks Wellness Ce... @LifeWorksWC
365 Followers 32 Following One of the foremost Integrative health clinics in the US. Established in Clearwater, FL, in 1997, and now renowned for its wide range of cutting-edge protocols.
Revvity for Diagnosti... @RevvityDX
67 Followers 2 Following Expanding the boundaries of human potential through science. Learn more at https://t.co/AHnnVr9zyf
Sarah Wilson @auntierarer
1K Followers 1K Following Single mum to Sam and Alex who have type 2 spinal muscular atrophy 👩👦👦Twin mum 😺 cat mum ❤
Permobil Americas @PermobilAMR
3K Followers 77 Following Permobil is the world leader in developing and manufacturing powered wheelchairs.
Performance Home Medi... @PerformanceHom1
19 Followers 67 Following We specialize in Sleep Therapy, Home Oxygen Equipment, Respiratory Ventilator Services, and Continuous Glucose Monitoring (CGM).
Permobil Foundation @PermobilCares
654 Followers 78 Following The Permobil Foundation is dedicated to enhancing the quality of life by empowering strength and independence through community support. #PermobilCares
Neotech Products @neotechproducts
2K Followers 2K Following Innovative Neonatal & Pediatric Medical Device Manufacturer Helping Clinicians World-Wide | RT & Follow ≠ Endorsement
MobilityWorks @mobilityworks
1K Followers 261 Following MobilityWorks is dedicated to satisfying the transportation needs of mobility-restricted individuals. #bethere
Marsi Bionics @MarsiBionics
2K Followers 2K Following #StepsIntoTheFuture · Fabricamos exoesqueletos y ayudamos a cambiar vidas 🤖 ATLAS 2030 🦿 MAK-Active Knee
Ultragenyx @ultragenyx
850 Followers 39 Following At Ultragenyx, our vision is to lead the future of rare disease medicine. Community Guidelines at: https://t.co/SmbtrpYkpS
DonorDrive @DonorDrive
16K Followers 3K Following DonorDrive is the fundraising platform that turns everyday people into powerful fundraisers for your cause.
Sibs @Sibs_uk
9K Followers 3K Following UK charity for brothers and sisters of disabled children and adults. This page is no longer active. Please find us at https://t.co/ooExgDIq8N
World Health Organiza... @WHO
12.7M Followers 2K Following We are the @UN’s health agency working for #HealthForAll Always check our latest tweets for updated advice/information.
Hannah Shorrock @DrHKShorrock
256 Followers 344 Following Postdoctoral researcher at the RNA Institute - University at Albany. European living and working in the USA 🇪🇺
Reilly Allison, PhD @reillylallison
44 Followers 75 Following Researching glial cells and neurodegeneration. Happy to be here!
Neuromuscular Disease... @NMD4Canada
1K Followers 475 Following Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
rareLife solutions @rarelifetalks
686 Followers 522 Following building custom communities with integrated knowledge libraries
INFORM RARE @INFORMRARE
244 Followers 93 Following INFORM RARE is a Canadian research network that provides evidence to improve outcomes and health care for children with rare genetic diseases.
Gene Therapy @GeneTherapy_SN
3K Followers 841 Following Scientific journal providing peer-reviewed research and commentaries on gene and cell therapies
We Carry Kevan @WeCarryKevan
417 Followers 29 Following Believing in the inherent value of all people, we are redefining accessibility as a cooperative effort.
Beyond the Diagnosis @BeyondtheDx
8K Followers 5K Following Beyond the Diagnosis unites art and science to raise awareness for children living with life-altering diseases.
Journal of Neuromuscu... @journal_nd
2K Followers 538 Following JND | Dedicated to expediting our understanding & improving treatments of neuromuscular diseases | Editors: Carsten G. Bönnemann & Hanns Lochmüller
Scholar Rock @ScholarRock
714 Followers 107 Following Biopharma leader in the biology of the #TGFbeta superfamily of protein growth factors. Community Guidelines: https://t.co/VU9mLWhMUH
SanfordCoRDS @SanfordCoRDS
4K Followers 2K Following CoRDS is the world's only cost-free, international #RareDisease #PatientRegistry - Enroll today and share your #data! https://t.co/DOIhiNxbbF
Rare Disease Report @RareDR
15K Followers 1K Following Breaking news, patient stories & FDA updates within the rare disease community. Listen to our podcast: https://t.co/xUkFDfCDUV, hosted by @GiulianaGrossi
StoryMD @StoryMDHealth
3K Followers 986 Following StoryMD weaves your medical data into a contextualized, all-encompassing story that empowers you to track, understand, and reclaim control of your health.
Powerchair Football M... @PowerchairMx
2K Followers 5K Following Cuenta Oficial de Powerchair Football México A.C. / Official Account of Powerchair Football Mexico
Wahooie @Wahooooooooooie
583 Followers 819 Following Dad, Husband, Wastelander, Builder, VP, Running, awful twitch streamer, Baseball, Football, Cleveland. https://t.co/FESiVILXmY
Biohaven @biohaven
2K Followers 846 Following Biohaven is a modern pharmaceutical company that is guided by science and inspired to change the lives of people with unmet medical needs.
Anna Kerr @DrAnnaKerr
227 Followers 379 Following Healthcare Communication Scientist | Vascular Anomalies | Pediatric Cancer | she/her
Roche @Roche
237K Followers 220 Following We advance science so that we all have more time with the people we love. Read our community guidelines: https://t.co/7k1HdbdrYL
Arkansas Children's @archildrens
17K Followers 1K Following Arkansas Children's is the state's only health system just for kids. ⭐ Ranked in 7 specialties by USNWR 📍 7 locations statewide
Lurie Children's @LurieChildrens
23K Followers 3K Following Ann & Robert H. Lurie Children's Hospital of Chicago is ranked nationally in all 10 pediatric specialities by U.S. News & World Report. We Tweet for the kids.
Alight Solutions @AlightSolutions
7K Followers 178 Following Alight is a leading benefits administration provider of health, wealth, leave and point solutions.
UKSMArec @UKSMArec
123 Followers 54 Following UK SMA Research Conference, organised by a network of ECRs working on and related to SMA, September 10-11th, 1-5pm BST #UKSMAREC2020
PraveenaFightsSMA @praveena_mano
11 Followers 124 Following 🤺21 months old SMA Warrior 💭Have big dreams to live healthy normal life 🦠Diagnosed with SMA Type2 ⏱Waiting on Zolgensma https://t.co/e52zrI375OYou might like
