Justin @ALD_Daily

36 year old with Adrenoleukodystrophy and Addison's Disease. Tweeting about my illness to show others they are not alone. m.facebook.com/adrenoleukodys… England Joined April 2014

Tweets

460
Followers

116
Following

193
Likes

90

Justin @ALD_Daily

2 years ago

Prohibit Michael Oliver from Refereeing any Arsenal Matches - Sign the Petition! chng.it/Q84XPFMNRD via @UKChange

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Sometimes living with a chronic illness feels like you're that lightbulb in your house that flickers some of time and you know one day, sooner or later it will go out before all the others. #chronicillness Sorry if that's a little dark (pun intended?)

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BladeoftheSun @BladeoftheS

4 years ago

Ofgem will increase energy bills by 20% to £3,000 in April even though prices will have been falling for 9 months straight and will have been less than before the Ukraine war (when bills were £1200) for 4 months. It is theft.

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Justin @ALD_Daily

4 years ago

@alexTLCsupport @tojo5440 Maybe I could arrange phone call to chat to someone in next week or so?

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Justin @ALD_Daily

4 years ago

Addenbrookes rang tonight, MRI result showed an area of white matter damage from ALD. They couldn't ever be sure on previous scans if it was the ALD or normal aging process but now they seem sure it's ALD. Need to have another MRI with contrast dye and go from there.

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Justin @ALD_Daily

4 years ago

@tojo5440 @alexTLCsupport Thanks appreciate it, I was thinking I should soon get in touch with @alexTLCsupport again for a chat. Perhaps after next mri. X

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Justin @ALD_Daily

4 years ago

@Hillary2956 @TCFcharityUK So sorry for your loss. Wonderful that you always celebrate his birthday. I found reading your tweet emotional on many levels. ❤️

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Justin @ALD_Daily

4 years ago

@CharlotteNut1 @BPNA_org @answ_shu Not sure how I feel myself or what comes next but have asked team at addenbrookes to give me a call to discuss a few things. Guess I always knew this would happen eventually

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Justin @ALD_Daily

4 years ago

@CharlotteNut1 @BPNA_org @answ_shu Not the same I know but I was diagnosed with adult onset ald about 20 years ago. Had MRI few weeks ago and heard this week they can now see for sure ald impact on one area of the brain. Having a follow up MRI with contrast dye soon. Think my parents are very worried, the unknown.

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Justin @ALD_Daily

4 years ago

468 months old. Turned 39 on Wednesday. Yikes. Life comes at you fast. We have a two year old!

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Justin @ALD_Daily

4 years ago

Any of my twitter guys used Lions Mane for anxiety or know anyone that has? Thinking about giving it a try after a recommendation

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Justin @ALD_Daily

6 years ago

@antkingmobiles Thanks for the block on my other account! SCAM, SCAM, SCAM!!!!! LOSER.

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Justin @ALD_Daily

6 years ago

Need to apply before midnight tonight, we are into our second year with Octopus and they have been excellent. £100 free and you can do what you like with it, take it out and spend it if you want ☺️

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Justin @ALD_Daily

6 years ago

£100 credit when you switch to Octopus Energy share.octopus.energy/happy-jewel-878 #OctopusEnergy

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Justin @ALD_Daily

6 years ago

On Monday 28th at 3:31am I became a dad. I am still in awe. ❤️Freya❤️ you are our 🌍

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Justin @ALD_Daily

6 years ago

To my Addisons twitter people Does anyone take anything like this to help with pain, anxiety or otherwise? Wondering what affect it could have on me positive or negative as was recommended product by a friend. lindens.co.uk/hempseed-oil-1…