ALS Crowd @ALSCrowd
ALS Awareness to empower patients and to close the gap between researchers, patients, and the community. alscrowd.org Joined June 2014-
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Will Congress Help This 36-Year-Old ALS Patient Waiting for Access to Experimental Drugs? thedailybeast.com/will-congress-… via @thedailybeast
The drug making process is too long of a process for ALS patients. Luckily the FDA has recently given orphan drug status to a drug that has already passed phase 1 and 2 and is now including ALS in its phase 3 trial. #fightals #findacure alscrowd.org/fda-grants-orp…
A Tourettes syndrome drug could help delay the progression of ALS. #ALS #ALSTREATMENT #Together alscrowd.org/pimozide-curre…
For people with Amyotrophic Lateral Sclerosis, sleeping is a stressful time. Sleep disturbances need to be recognized and treated. #sleepingwithALS #ALScrowd #ALScaregiver #fightALS #ALS #lougehrigsdisease alscrowd.org/sleep-and-als/
When I heard that senators are writing bills that can help ALS the first thing I had to do was look up this School of Rock video that teaches how a bill becomes a law. Its kinda cheesy but very helpful. -Jake youtube.com/watch?v=FFroMQ…
Two pieces of legislation are making their way through congress that could drastically improve the lives of those with ALS. #fightALS #ALSlegislation #ALScrowd #iamALS alscrowd.org/it-is-time-to-…
Join us virtually this Wednesday from 2:30-3:15 pm ET as we discuss both pieces of legislation and ways we can come together to take action to move these policies forward with urgency. Register here: bit.ly/3dXps4d
Today, the House and Senate announced bills that will create real pathways to provide faster and broader access to therapies for #ALS. This movement is working and our congressional leaders are listening, all because of you. 📖👇 bit.ly/3ccyPLw
Understanding the role proteins play in ALS progression my be the key to understanding ALS #ALScrowd #crowdcare #ALS101 #whatisALS #lifewithALS alscrowd.org/protein-mishan…
NEW RESEARCH: @ZuckermanBrain scientists have identified a gene called #TBK1 that acts as a double-edged sword in #ALS — first slowing, then accelerating ALS progression in a mouse model of the disease: zuckermaninstitute.columbia.edu/double-edged-s… 1/5
Johns Hopkins offers live, interactive map of global coronavirus cases wjhl.com/coronavirus/jo…
This is a great step for ALS research! The inconsistency and lack of reliability found in the commonly used ALS Functional Rating Scale (ALSFRS-R) makes for slow progress in curing ALS. ROADS aims to eliminate these inconsistencies and help research progress faster. #CureALS #ALS
Today's webinar recording is now available! ROADS to a better ALS outcome measure: the new Rasch-Built Overall ALS Disability Scale (ROADS) vimeo.com/392790720?ref=…
Is it time for a new self-reported ALS disability test? Many people feel that it is. A group of neurologists have developed ROADS which aims to fix problems found in the ALSFRS-R. #ALS #ALSNews #ALSFRS #endALS, #ALSCrowd #ALResearch alscrowd.org/do-we-need-a-n…
Today I spoke on the House Floor to share my concerns with patient access to groundbreaking and life-saving ALS treatments. This is a very personal issue to me as some of my close friends and neighbors have been affected by this difficult disease. #RightToTryAct Speech below:
Open Enrollment is now open! Start researching now the best options for you. Enrollment will only be open until December 15th. #OpenEnrollment alscrowd.org/2020-open-enro…
Promising Mitochondrial Treatment for ALS Shows Potential in ALS Mouse Model Studies #endALS, #ALSCrowd #ALSAdvocacy #ALSResearch #HealthTree alscrowd.org/promising-mito…
ALS is hard because there are so few treatments, but new treatments are just around the corner. Check out this article on a new drug that is moving on to Phase II. #endALS, #ALSCrowd #ALSAdvocacy #ALResearch #HealthTree alscrowd.org/a-new-oral-tre…
NurOwn Stem Cell Therapy for ALS Opens Phase 3 Clinical Trial #endALS, #ALSCrowd #ALSAdvocacy #ALResearch #HealthTree alscrowd.org/nurown-stem-ce…
New Insight into Neuronal Cell Decay May Hold Answers to Further ALS Treatment #endALS, #ALSCrowd #ALSAdvocacy #ALResearch #HealthTree alscrowd.org/new-insight-in…
@Brainstormcell convened an ALS advocacy round table discussion on Wednesday. Thanks to @alsassociation @ALSTDI @ALSKnights @ComCareALS @iamalsorg @ProjectALSorg @PVA1946 @als_now @ALSHF for joining us! #NurOwn #EndALS. 2/2
Brian Wallach @bsw5020
142K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
I AM ALS @iamalsorg
27K Followers 722 Following I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Anthony Carbajal @carbajalphoto
13K Followers 2K Following
Andrea Pauls Backman ... @AndreaBackman05
2K Followers 1K Following Follow me at https://t.co/iaMHiklYK1. Passionate about people w ALS/MND & fighting for cures.
ALS TX DAD @AlsDads
2K Followers 818 Following
Maceo Carter @MaceoCarter
938 Followers 619 Following Father, UNC Tar heels Fan, Sibling, Living with ALS.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 847 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for ALS.
Live Like Lou @LiveLikeLou4
1K Followers 489 Following Leaving ALS better than we found it #Onward #LiveLikeLou
Shelly Hoover @shellyhoover
4K Followers 3K Following Writer, Veteran, & ALS Warrior. Timeless Sisters available on Amazon now! #FunFact - I type with my eyes. #WritingCommunity #ReadingCommunity #Gratitude
Sadhvi Mayuri Om @Mayuri_Saxena
9K Followers 561 Following 40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
BrainStorm @BrainstormCell
5K Followers 761 Following BrainStorm Cell Therapeutics, Inc. (NASDAQ: BCLI) is a clinical-stage biotechnology company developing autologous cell therapies for neurodegenerative diseases.
ALS CURE Project @alscureproject
725 Followers 462 Following The purpose of the ALS CURE Project is to provide laser focused leadership and sponsor scientific research leading to a cure for ALS (aka. Lou Gehrig’s Disease)
Davina Rivers @DavinaRivers
3K Followers 5K Following My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
ALS TDI @ALSTDI
10K Followers 6K Following The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
Karolina Nowak @CarolineBartAna
1 Followers 93 Following
Sunsut51 @yonatan_miamifl
83 Followers 727 Following #eat_sleep_hustle_repeat #logistics The World is yours
M8competition @M8competit79731
0 Followers 11 Following
ALS News Today @alsnewstoday
3K Followers 1K Following Your source for ALS news, support, & real stories from the community. Let's raise ALS awareness together!🎗️
Brandon @BrandonBakerLBK
23 Followers 693 Following
freshstyleshirts @SahanaPOD
664 Followers 3K Following Welcome to my world of creativity! VISIT MY REDBUBBLE STORE FOR MORE UPDATE. https://t.co/SIiMm6lREn
kim prather @kimpratherthom1
80 Followers 295 Following
C Lewis @cml86
2 Followers 3K Following
NeuroSense Therapeuti... @NeurosenseT
745 Followers 260 Following A Clinical stage Biotech company. Advancing novel therapy for ALS and neurodegenerative diseases. Nasdaq: NRSN $nrsn
Teamhighoctanejules @Juleshighoctane
24 Followers 202 Following Dad, husband, gamer ALS Warrior. Mom, wife, mystic. ALS Advocate. Podcast hosts: The Couple Shift Right Here, Right Now
ALS ONE @alsone_official
1K Followers 598 Following United in ALS Research, Care + Community. #EndALS
Nate Methot @a_life_derailed
2K Followers 717 Following Author of "A Life Derailed: My Journey with ALS", a memoir 40 y/o living with #ALS since 2011. #EndALS #empathy Memoir and blog at https://t.co/lSqWxLqUXm
I’m Dying To Tell Y... @LorrisPodcast
1K Followers 847 Following Living with ALS for 22 years. Host of I’m Dying To Tell You Podcast. Available on all Podcast platforms. Instagram at ImDyingToTellYouPodcast
水镜 @shuijin128
3 Followers 207 Following
Loverins Law, an Onta... @loverinslaw
160 Followers 725 Following An Act to proclaim Abuse Prevention Week and establish an Abuse Prevention Framework Advisory Committee to give recommendations to the Minister of Education
GIL BASHE @Gil_Bashe
14K Followers 10K Following Connecting the dots to uncover and cultivate cognitive connections that ignite life-saving transformations. Championing #lifescience #climatetech #digitalhealth
Ani Sarkar @jefesarkar
35 Followers 216 Following Neuroscientist, NARSAD YInvestigator, Ma of a toddler, Twitter novice, Camerawoman
sm @svrg72
15 Followers 125 Following Husband, part time engineer, full time ALS patient. Still hopeful about the future.
Guardian Biosciences @GuardianBioLLC
2 Followers 74 Following
wayne thomas @nwaynet
476 Followers 1K Following ALS Warrior! World Trvlr - 38 countries, Joanna.Foodie.Xmas.Fur kids:Callie & Skye. FCPHR, CMC, MBA, Sr. Leader. LIVING LIFE NOT WAITING TO DIE.🇨🇦🇺🇸🥂🍽
Jorge C. Abdalla Jr. @JorgeAbdallaJr
75 Followers 1K Following Fundador e Presidente do Conselho de Administração da Associação Pró-Cura da ELA e Presidente da UNELA “Founder and Chairman of ALS Pro-Cure Association” Brasil
A pALS Journey @berttyih_als
527 Followers 359 Following ALS Warrior & LIFE student as a father, a son, a brother and a husband to my beloved caregiver !
StampOutMND @StampOutMnd
311 Followers 1K Following Solo Charity Fundraiser For The Motor Neurone Disease Association since 2015, Check out FB for more detailed posts.
biggMoe_effALS @biggMoe_effALS
500 Followers 458 Following NOT TODAY ALS.. NOT TODAY. brother diagnosed with ALS at 27. ADVOCATING&FIGHTING for all pALs
Wendy Faust @wendyfaust
119 Followers 99 Following
fazemedicines @fazemedicines
236 Followers 194 Following Writing biology’s new story by harnessing the groundbreaking science of biomolecular condensates
Wes Stansberry @WesStans_
289 Followers 575 Following Clinical Laboratorian | Ph.D. Medical Neuroscience @IUMedSchool 🧠 | Laboratory Genetics and Genomics Fellow (ABMGG) @CUAnschutz 🧬| https://t.co/IR5aCs9jAM
Biohaven @biohaven
2K Followers 845 Following Biohaven is a modern pharmaceutical company that is guided by science and inspired to change the lives of people with unmet medical needs.
D'Andrea Jones @wahhooscwgrl
552 Followers 5K Following I lost an Amazing Husband to the horrific disease ALS! Raise awareness to Lou Gehrig’s disease! #ALSSucks #SoulMates #ALSFindACure
Angel @healingchaos
125 Followers 1K Following Mother of 2 beautiful daughters,wife of a retired Army Aviator & pug momma to 2 sweet pugs & 1 puggle. Living with Multiple Myeloma & ALS. I Love 80’s music!
Lorri Cavaliere @LorriCav
1K Followers 4K Following A mom in CT, fighting and advocating every day for the life of my 34-year old daughter, Alexandra, diagnosed with sporadic bulbar-onset ALS in July of 2020.
Florie @flrbrl
447 Followers 415 Following Scientist at Arbor Bio helping to bring genomic medicines to the clinic #GeneTherapy #GeneEditing | Opinions shared are my own
Amylyx @AmylyxPharma
3K Followers 429 Following Ushering in a new era for treating diseases with high unmet needs. See our community guidelines here: https://t.co/YXkRZv1vsx
ALS St. Louis Region @ALS_STLRegion
522 Followers 954 Following The St. Louis Regional Chapter serves the needs of those living with Amyotrophic Lateral Sclerosis, also known as Lou Gehrig's Disease, and their caregivers.
EverythingALS @everything_als
2K Followers 790 Following We are a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS.
Denise Wilson @denisedwilson
286 Followers 475 Following LPT Realty | REALTOR | CRS | SRES | GRLA | GRI | ABR selling Little Rock and surrounding areas. Travel Planner-Let’s Travel Away
Deane Gorsline @DeaneGorsline
273 Followers 880 Following Former 1CER Combat Diver and soldier @1CMBG_1GBMC - Husband to @Dani_petes - In the Fight Against ALS advocating for my brethren @ALSAction @ALSBurpee
Julie Spechler @JulieSpechler
465 Followers 1K Following Lover of all animals. Like to follow the # real news and the Florida Gators. Love the ocean and mountains. Hate ALS and will advocate until there is a cure.
Robert Luongo ALS Fun... @wefightals
312 Followers 871 Following Our Mission: To alleviate the financial burden of individuals and their families that have been victimized by ALS including assistance and research.
No More Excuses ALS W... @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
Maria Berger @MariaBe89361394
12 Followers 36 Following
Alexis Valentine @alexisrvalen
96 Followers 199 Following
Steve Gleason - "Live... @SteveGleason
181K Followers 291 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
I AM ALS @iamalsorg
27K Followers 722 Following I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
Team Gleason @TeamGleason
6K Followers 474 Following Nonprofit founded by former New Orleans Saints player, @SteveGleason, after his diagnosis with Amyotrophic Lateral Sclerosis (ALS) in 2011. NO WHITE FLAGS
Maceo Carter @MaceoCarter
938 Followers 619 Following Father, UNC Tar heels Fan, Sibling, Living with ALS.
Mandi @RunningMama0522
2K Followers 1K Following
Shelly Hoover @shellyhoover
4K Followers 3K Following Writer, Veteran, & ALS Warrior. Timeless Sisters available on Amazon now! #FunFact - I type with my eyes. #WritingCommunity #ReadingCommunity #Gratitude
Sadhvi Mayuri Om @Mayuri_Saxena
9K Followers 561 Following 40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
axeALSFoundation @stevens_nation
3K Followers 694 Following On a mission to #axeALS Instagram: @teamstevensnation Facebook Group: Team Stevens Nation
NEALS Consortium @NEALSConsortium
3K Followers 99 Following The NEALS Consortium is an international, independent, non-profit group of researchers who collaboratively conduct clinical research in ALS
ALS TDI @ALSTDI
10K Followers 6K Following The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
lori andre @loriandre3
1K Followers 319 Following Mother of 3 boys, wife of Brian Andre who was diagnosed with ALS in 2016.
Brittany Mroczek 💜 @cherise77
1K Followers 909 Following My Dad was diagnosed with #ALS in July 2018. Please join me in the fight to bring awareness to this disease and #EndALS @ALSAction
Tim McDaniel @TimTMcDaniel
215 Followers 129 Following Like Lou Gehrig I am the luckiest man alive with great family and friends - enjoy my career - Christ follower - Suffering Cleveland fan and now an ALS Warrior.
mleist @leist77
108 Followers 218 Following Husband, father of 3. Christian. Independent. Former government and history teacher, and IT professional. Now disabled due to ALS.
Kyle Blake @KyleB_91
164 Followers 178 Following ALS Warrior dx Bulbar Feb 2018. Husband and father of three great kids. Texas Aggie!
Brian Andre @BrianAn83164142
105 Followers 24 Following Living with ALS. Father of three, husband to one. Grandfather of Dylan. Wicked backhand.
Andy Leighty @andy_leighty
48 Followers 22 Following kicking ALS to the curb! My family and God are all I need.
Phil Green @pjgreen
3K Followers 1K Following Father to 4. Husband to 1. Right-brained.. 2x Rose Bowler. 1x Nat'l Champ. ALS Advocate. PLWALS. Type with my eyes.. #PurpleReign #NoWhiteFlags #NotTodayALS
Sandy Morris @sandymorris333
5K Followers 2K Following Incredibly blessed wife, mother, ALS warrior, and necessary troublemaker.
Corey Polen 🧑🏽�... @CoreyPolen
1K Followers 224 Following Very Blessed husband and father. Rolling w/ #ALS. #LetItBe #PromisingPathwayAct @venmo: ALSfund Tweets expire. Get'em while hot. (King/My Royal Majesty)
ALS Warriors - Glynis @ALS_Warriors
508 Followers 222 Following Widow due to ALS. Fighter because of ALS. Three words for ALS, WE WILL WIN! All thoughts are my own. #EndALS
Ryan Tofteland @ryantofteland
177 Followers 287 Following Husband. Father. Fighting ALS one day at a time.
Gwen Petersen @gwenpetersen7
956 Followers 423 Following wife, puppy parent, sister, traveler, wanderer on wheels- dx #ALS
Iris Broce @BroceIris
96 Followers 83 Following Genetics, neuroscience, ALS, FTD, neurodegeneration, clinical trials, precision medicine
Brian Taylor @coachbrian6262
244 Followers 356 Following Hi I’m Brian...dad, husband, nice guy, als warrior
Jason Clement @jclement1971
235 Followers 477 Following I may have ALS, but ALS doesn't have me! #StrongerThanILook
TT @TaraT924
15 Followers 143 Following
Tom Stocky @tstocky
4K Followers 251 Following SVP, Lab & Data Platform @insitro. Previously #DenaliTherapeutics, @ChanZuckerberg, @Facebook, @Google, @MIT. Dad, audiobookworm, todo list enthusiast.
Amy VanVels⚡️F @amyvanvels
110 Followers 906 Following Widow of #ALS husband, Mom of 3 amazing adults, I LOVE #Switchfoot! God is my refuge and strength
Michael Buttress @mbuttress
33 Followers 204 Following Born in Zimbabwe. Retired CPAg agronomist after 23 years, living in CA. Living with ALS since June 21st 2017. Actively involved in walks to defeat ALS.
Sarah McClintock Embr... @EmbroSarah
14 Followers 102 Following Executive Director of ALS United of Georgia
Steve Haberstroh @stevehaberstroh
590 Followers 417 Following wife. son. family. dog. wealth management. golf. fishing. wake forest. cure ALS. https://t.co/hI7YQDJP8v
Cambridge Healthcare ... @CambridgeHCR
3K Followers 38 Following We are no longer tweeting. Please visit our LinkedIn page: https://t.co/YO1qsdUXPH to keep in touch and find out more!
cstanford67 @cstanford67
1K Followers 1K Following ALS didn't want me to turn wrenches and haul cattle anymore.
ALS LIVES MATTER@Susa... @AlsLives
120 Followers 90 Following ALS is very near and dear to my heart as my brother is suffering with this debilitating disease as are so many others.
christine larock @christi82838002
2K Followers 3K Following conservative. Nurse 36 years. I was Caregiver to my mate who had ALS for 5 years. I really miss him NO DIRECT MESSAGES OR I WILL BLOCK YOU.
Roger Brannon @ALS_USMC4Life
245 Followers 583 Following Husband, Father, Retired Marine with ALS! Advocate for Veteran’s with ALS.
Robert Daniels @rpd628
761 Followers 503 Following Blessed husband, father & grandfather and ALS warrior. I want to make a difference in the fight for a cure, if not for me but for those that follow me.
FreeAtLast @dreny367
83 Followers 132 Following Still there. Still here. Still alive. #livigwithALS #ALSsurviver
Jimbo @jimbosacaday
86 Followers 304 Following Royals fan, animal fan, gambling fan. I guess I also have ALS.
Farmstrong @farmstronginfo
1K Followers 4K Following Fan of good UX & #techcomm. Let's work on the #ALS clock. Posts are my own. #EsriMaps #BLM #LGBTQIA
Eddie Hackelton @Roushpony06
316 Followers 684 Following Father of 3-EPAW to 5 grandchildren 31yr NASCAR fan. ALS changed my body but not who I am. I tweet/speak with my eyes now. Never Stop Believing-NEEDFORSPEED!
NeuroNetwork for Emer... @umich_NeuroNet
316 Followers 855 Following With the brightest minds working together, the NeuroNetwork for Emerging Therapies is where where scientists create cures. Follow our director @EvaFeldmanMDPhD
Denise Cifu @house2home4you
722 Followers 4K Following At FosterDouglas we give a portion of our commission to the ALS Association. This program is Nationwide, Please shareYou might like
