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Tweets688
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Followers174
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Following23
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Likes3
Learn all about one of the newest treatments for COPD in our latest From Our Medical Team article "Ensifentrine (Ohtuvayre™): A New Nebulized COPD Medication" now on the Subscriber Portal. Visit the Subscriber Portal: subscriber.alphanet.org/s/story/a2SPV0…
To learn more about risk factors for Alpha-1, visit bfrg.alphanet.org or the Subscriber Portal to access our Big Fat Reference Guide to Alpha-1. #alpha1awareness #alpha1antitrypsindeficiency #healthmanagement #asthma #COPD #emphysema #lungdisease #liverdisease
November is Lung Cancer Awareness Month, a crucial time to spotlight the importance of early detection and prevention. For those with Alpha-1 Antitrypsin Deficiency, the risk of lung disease is heightened, making awareness and regular screenings even more vital.
Learn about the past and future of Alpha-1 in "A Brief History of Alpha-1" now on the Subscriber Portal. Visit the Subscriber Portal: subscriber.alphanet.org/s/story/a2SPV0…
Learn more about Rodney's inspiring story and unwavering belief in "Subscriber Story: Rodney Toothman" now available on the Subscriber Portal. Visit the Subscriber Portal: subscriber.alphanet.org/s/story/a2SPV0…
Visit bfrg.alphanet.org to sign up for access to the BFRG. AlphaNet program participants can access the BFRG through the Subscriber Portal at subscriber.alphanet.org.
October is National Dental Hygiene Month. This is a time to highlight the significance of good oral health. Bacteria from tooth decay or gum disease can enter the bloodstream and harm organs like the lungs and heart. For Alphas, maintaining oral hygiene is especially important.
To learn more, visit bfrg.alphanet.org or the Subscriber Portal to access our Big Fat Reference Guide to Alpha-1. #alpha1antitrypsindeficiency #healthmanagement #asthma #COPD #emphysema #lungdisease #liverdisease
October is Healthy Lung Month, a time to prioritize lung health and learn how to best care for your lungs now and in the future. Visit the Subscriber Portal to learn more and access helpful articles and worksheets just for Alphas.
To learn more, check out "Clinical Corner: Medication Management After a Natural Disaster" available on the Subscriber Portal and AlphaNet.org. Visit AlphaNet.org: alphanet.org/blog/clinical-…
For tips on how to stay prepared for any emergency that may come your way, check out our "Emergency Preparedness Guide for Alphas" available on the Subscriber Portal and AlphaNet.org. Visit AlphaNet.org: alphanet.org/blog/emergency…
Learn more about AlphaNet subscriber Patty Haddad's experience as both an Alpha and an Alpha parent in our latest article, "Subscriber Story: Patricia "Patty" Haddad" now available on the Subscriber Portal. Visit the Subscriber Portal: subscriber.alphanet.org/s/story/a2SPV0…
World Pharmacist Day, celebrated each year on September 25th, acknowledges the vital contributions of pharmacists to global healthcare. Let's express our gratitude for their dedication and hard work. #worldpharmacistsday #alpha1antitrypsindeficiency
World Lung Day is celebrated annually on September 25th to raise awareness of lung health and promote better lung care around the world. #worldlungday #alpha1antitrypsindeficiency #healthmanagement #asthma #COPD #emphysema #lungdisease #liverdisease
To learn more, visit bfrg.alphanet.org or the Subscriber Portal to access our Big Fat Reference Guide to Alpha-1. #alpha1antitrypsindeficiency #healthmanagement #asthma #COPD #emphysema #lungdisease #liverdisease
Find out what inspired Jeannie Holder to become an AlphaNet Coordinator, learn what she loves most about working with her fellow Alphas, and discover how she spreads holiday cheer to the children in her community. subscriber.alphanet.org/s/story/a2SPV0…
To learn more, visit bfrg.alphanet.org or the Subscriber Portal to access our Big Fat Reference Guide to Alpha-1. #alpha1antitrypsindeficiency #healthmanagement #asthma #COPD #emphysema #lungdisease #liverdisease
World Patient Safety Day promotes a global commitment to improving patient safety. It’s a day for everyone involved in healthcare to come together and work towards safer healthcare systems for all. #worldpatientsafetyday #alpha1antitrypsindeficiency
Find updated immunization guidance for Alphas from AlphaNet's Medical Team, including the latest information regarding influenza, COVID-19, RSV, and pneumonia in "New Vaccines, New Questions (2024)" on the Subscriber Portal and AlphaNet.org.
Sunrise Aurora 2.888 @70Pitcher
370 Followers 2K Following
Jeff Dannewitz @AATDJeff
23 Followers 285 Following Advocate/Patient of Alpha-1 Anti-Trypsin Deficiency (AATD) research. Currently running a GoFundMe to help become self-sufficient & empowered with this disease!
Paul Kludt @KludtPaul
54 Followers 164 Following Still trying to figure out what I want to do when I grow up
wyggiii @wygg2015
83 Followers 1K Following
Len Geiger ✈ @lengeiger
500 Followers 740 Following Mystery Diagnosis, Alpha-1 lung disease, double lung transplant at UVA, 3 fake hips, marathoner, speaker, father, brother, son and truly bad golfer
Jose Luis García @jolugarsan
44 Followers 179 Following
Alpha-1 Europe Allian... @alpha1europe
139 Followers 78 Following The voice of Alpha-1 Patient Organisations in Europe Registration number: 1001 288 636
Jean-François R. Bab... @Albertainbanff
60 Followers 1K Following Customer Service Advisor / Certificate of Ability in Animation / Always Live - Une évolution marquante ;) #K5Charter Clik Only French Sorry
Ken Chapman @kchapmanairways
206 Followers 125 Following
DARIUSZ WAMKA @Boooostek
40 Followers 176 Following
PolishBux _pl @polishbux
8 Followers 178 Following
Ghulam Murtza @Ghulam35043285
1 Followers 93 Following
Paul Ellis @DrPaulEllis
215 Followers 508 Following Respiratory SpR and Clinical Lecturer | Interests include COPD/AECOPD, asthma and AATD | #rstats
Chris Lawton @ChrisLawton3
3 Followers 51 Following
Alejandro Ibarra Psyc... @aiki29
142 Followers 1K Following #CellResearch #Molecular #MitochondrialBiology #mitochondria #MELAS #Psychiatry #Dysautonomia #variant #Endothelium #covid19 #LongCovid #Tcell #ViralImmunology
jerry @tfopers3
0 Followers 7 Following
Ronnie Ortiz-Magro @kientecher
642 Followers 449 Following
Casey Kinnamon @CaseKnowsBall
3K Followers 2K Following Co-Host of All Eyez on Cleveland / Co-Host of The Barking Browns Podcast/ Raft Guide/ Retired Emcee/ Intender of Puns
Kay Stanton @KayStan52
2 Followers 6 Following
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
Angelique 😢 Lost f... @Stollenloch
632 Followers 518 Following Loves empirical evidence. Not woke. #TeamScience
1nars @1nars__
23 Followers 184 Following Evedex - DEX & Next-Gen Web3 financial ecosystem built on its own L3 blockchain. Join the Evedex MAINNET: -Trade -Complete task -Earn points -Win rewards
Ron Ewals @RonEwals
282 Followers 607 Following expertleider zorgvragen @VGZ 💚voor: #3dochters @Mirke73 #ZinnigeZorg #Hockey @hctilburg #Voetbal #Tennis #Motorrijden
unison0017 @unison0017
2 Followers 134 Following
Coleman Smith @Coleman02480851
6 Followers 33 Following
SubjektObjekt @SubjektO
33 Followers 2K Following
Carrie Henry @CareDHenry
4 Followers 148 Following
H W @HKW_2023
4 Followers 2K Following
Jon Hagstrom @suburbanpianist
86 Followers 447 Following Board Chair of the Alpha-1 Foundation. Classical pianist by avocation. Dad of a teen.
Jackie Jacobi @JackieJacobi
222 Followers 528 Following Executive Coach to Business Builders who want a higher level of focus and performance.
JenniferMacDonald @alfa1enfermeda1
7K Followers 5K Following Coach| Estratega| Sobreviviente y trabajadora| Mercadóloga y pronto Abogada| Especialista en Enfermedades raras y desórdenes genéticos.| #Optimista y Amo Vivir
Fundación Lovexair @Lovexair
3K Followers 2K Following La Fundación Lovexair trabaja para apoyar a las personas afectadas por enfermedades respiratorias y afecciones pulmonares.
Alpha1 Advocacy @Advocacy1alpha
9 Followers 56 Following Patient advocacy company specialized for everyone, including those with lung disease and chronic illness.
Countrygal2022 @Countrygal20221
410 Followers 1K Following
Jacqueline West @jaxteroni
11 Followers 171 Following
3D-art-master- @3Dartmaster
152 Followers 4K Following Digital Artist living with Alpha-1-antitrypsin deficiency (AATD)
TruthTellerBabe @TellerBabe
29 Followers 235 Following
Rachel Eaton @RachelovesCecil
18 Followers 119 Following Water lover, chem teacher, kidney transplant owner, vegan. Passionate about evidence.
COPD Canada @COPDCanada
1K Followers 885 Following COPD Canada is a national non-profit patient advocacy association providing educational information and up-to-date medical news for people living with COPD.
Rada Choate, PhD, MPH @RadaEpi
71 Followers 508 Following
Lesley Valle @LesleyValle3
8 Followers 256 Following
Alpha-1 Foundation @AlphaFriend
3K Followers 913 Following Our mission is to increase awareness of and find a cure for Alpha-1 Antitrypsin Deficiency. Facebook (Alpha-1 Foundation) & Instagram (Alpha1Foundation).
Cindy Ward @CindyWa51366232
1 Followers 108 Following
City of Miami @CityofMiami
218K Followers 318 Following The Official Twitter for the City of Miami. Retweets are not endorsements. Account NOT monitored 24/7. For Emergencies call 911. #CityOfMiami
Alpha-1 Organisation ... @1_organisation
101 Followers 375 Following Together making a difference for alpha-1 antitrypsin deficiency
Jenni Nankervis @jenninankervis
154 Followers 168 Following Raising Awareness of Alpha-1 Antitrypsin Deficiency in Australia. Rotarian with the Rotary Club of Canterbury.
Len Geiger ✈ @lengeiger
500 Followers 740 Following Mystery Diagnosis, Alpha-1 lung disease, double lung transplant at UVA, 3 fake hips, marathoner, speaker, father, brother, son and truly bad golfer
Fundación Lovexair @Lovexair
3K Followers 2K Following La Fundación Lovexair trabaja para apoyar a las personas afectadas por enfermedades respiratorias y afecciones pulmonares.
Alpha1 Cdn Registry @alpha1cdnreg
88 Followers 156 Following The Alpha1 Canadian Registry is a database of individuals diagnosed with Alpha1 Antitrypsin Deficiency to facilitate research initiatives and improve treatment.
Alpha-1 ANZ @alpha1ANZ
280 Followers 54 Following alpha1ANZ on X is intended to compliment discussion and news emanating from Australia and New Zealand relating to Alpha-1 Antitrypsin Deficiency.
Komodo Health @KomodoHealth
2K Followers 658 Following Komodo Health is an AI company that turns complex healthcare questions into transparent, verifiable answers – fast enough to make the decisions that matter for
Alpha-1 Foundation Ir... @Alpha1_Ireland
609 Followers 165 Following Dedicated to improving the lives of people with Alpha-1. Find us at https://t.co/uHMc9iOsAr or on Facebook (@alpha1ireland). CHY22304. #Alpha1Awareness
Alfa-1 España @Alfa1Espana
2K Followers 2K Following Asociación Alfa-1 de España, de pacientes y familiares con Déficit de Alfa-1 Antitripsina #DAAT #EERR #Alpha1Awareness #EnfermedadesRaras #RareDisease
CSL Behring @CSLBehring
9K Followers 488 Following We are driven by our promise to help patients lead full lives. See our community guidelines: https://t.co/kApe7qvO6t
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
Alpha-1 Global @Alpha1_Global
721 Followers 606 Following Our mission is to develop a collaborative global network of Alpha-1 organisations and patients to increase awareness, detection and access to care.
Alpha-1 UK @Alpha1UK
515 Followers 331 Following Alpha-1 UK is a patient group charity formed by those diagnosed with the genetic condition Alpha 1 Antitrypsin Deficiency.
Kentucky Alphas @KyAlphas
20 Followers 105 Following
Scott Cerreta @ScottCerreta
55 Followers 21 Following Director of Education for the COPD Foundation. I am responsible for healthcare professional education about COPD, Tobacco Intervention Skills, and Spirometry.
Switchboard @SwitchboardMIA
1K Followers 649 Following Crisis counseling | Suicide prevention | Information and Referral Services | Follow us on Instagram @SwitchboardMiami
Vote 2 Cure Alpha-1 @vote2curea1
32 Followers 29 Following The official Twitter account of Richard Johnson for the 2013 Betty Jane France Humanitarian Award.
Ssandhaus @Ssandhaus
38 Followers 26 Following
COPD Foundation @COPDFoundation
19K Followers 3K Following We educate, engage, and empower those with #COPD, bronchiectasis and NTM lung disease. Follow us to learn more about your lung health!
Alpha-1 Foundation @AlphaFriend
3K Followers 913 Following Our mission is to increase awareness of and find a cure for Alpha-1 Antitrypsin Deficiency. Facebook (Alpha-1 Foundation) & Instagram (Alpha1Foundation).Trends for United States
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