Ashleigh's Life Foundation @AshleighLife
Mission: To provide monetary Grant Awards to those who are at or near End Stage Cystic Fibrosis. ashleighs.org Joined April 2020-
Tweets50
-
Followers73
-
Following484
-
Likes29
Working to revise the Ashleigh's Life Foundation's website, so as to be able to display expanded content. We fight as a unit to ensure Cystic Fibrosis End Stage and all CF patients receive support as they embark on their journeys. ashleighs.org/the-journey
Ashleigh's Life Foundation is now supported by Amazon! If you use smile.amazon.com when ordering from Amazon, and designate Ashleigh's Life Foundation as your charity, they will donate 0.5% of smile.amazon.com purchases to Ashleigh's. ashleighs.org/the-journey
@jilli09 @VertexPharma Hoooraaaaayyy!!!
Thanks for ordering an Ashleigh’s Life Foundation t-shirt, Maria! $20 w/FREE Shipping Sizes: M, L, XL Order at our website - ashleighs.org/shop
Thanks to the generosity of our donors who are supporting our Cystic Fibrosis Warrior, Dlamini Tengetile Nompilo, we have today reached $1,000 in donations!! Your most generous donation of $25 at the below GoFundMe site will get us to the finish line! gofundme.com/f/dlamini-teng…
Ashleigh's Life Foundation's YouTube Channel, Video #9 - Nompilo's Life Timeline: 2008 To allow everyone to become acquainted with Nompilo, I will be presenting a video timeline of her life with Cystic Fibrosis. This segment is the first in a series. youtube.com/watch?v=u7Ltb1…
We received communication today from a mother of two daughters living in Pakistan, both of whom have Cystic Fibrosis. Your generous contributions of $25 would bring brightness to so many in our CF Community from around the world. gofundme.com/f/dlamini-teng…
We received our First(!) donation from Africa in support of our Ninth Grant recipient, Dlamini Tengetile Nompilo, resident of Swaziland. Your $5 donation will greatly contribute to our mission of providing her with a Therapeutic Vest and medications. gofundme.com/f/dlamini-teng…
It was my pleasure to watch CF Warrior and Ashleigh's Life Foundation's 8th Award Recipient Mohamad EL Sayed taking his first ever dosages of TOBI and Pulmozyme. Your $5 donation to this Foundation's future 9th Grant Award Recipient would be appreciated! gofundme.com/f/nominating-m…
The medical care package for our CF Warrior and Ashleigh's Life Foundation's Eighth Grant Award Recipient Mohamad EL Sayed was delivered to him today in Lebanon. Your $5 donation to fund Ashleigh's Life Foundation's future Awards would be appreciated! - gofundme.com/f/nominating-m…
To nominate a Cystic Fibrosis Warrior who is at or near End Stage to receive Ashleigh's Life Foundation's Ninth Grant Award, see the application below. The mission of the Foundation is to provide financial assistance to a Warrior at or near End Stage CF. ashleighs.org/nominate-a-war…
A medical care package send to Mohamad EL Sayed, Ashleigh Life Foundation’s Eighth Grant Award winner, arrived in France. Your $5 donation would assist greatly in funding the grant donation for our 9th Grant Award recipient - gofundme.com/f/nominating-m… ashleighs.org/the-journey
Ashleigh's Life Foundation is having printed a run of 25 shirts designed exclusively for the Foundation. These shirts will be sold at ashleighs.org/the-journey, with proceeds to serve our mission of providing financial support for CF Warriors at or near End Stage. Stay tuned.
Ashleigh's Life Foundation is in the process of composing its first grant request, with the intent to collect funds that will supplement the greater than $3,000 collected and awarded since the Foundation's inception in early 2020. gofundme.com/f/nominating-m… ashleighs.org/the-journey
So much love going out to Ashleigh's Life Foundation's Eighth Grant Award Recipient, Mohamad EL Sayed, our CF Warrior living in Lebanon. Two care packages came in this past week, with two more on the way - all of which will be sent to Mohamad in Beirut. ashleighs.org/the-journey
Ashleigh's Life Foundation's YouTube Channel Video #5 -------- We have collected $1,215 and other medication and hardware to support Mohamad EL Sayed, living as a Palestinian Refugee in Lebanon, our Eighth Award Recipient. youtu.be/0bHQ26dW4bw
Ashleigh’s Life Foundation is extremely encouraged to shine a spotlight onto a beam of hope for Phoebe Lawlor, a Cystic Fibrosis Warrior, who is fighting against End Stage CF, and our Second Grant Award Recipient. Good luck, Phoebe! ashleighs.org/the-journey/f/…
Ashleigh's Life Foundation has nominated Mohamad El Sayed as our 8th Grant Award Recipient! The mission of Ashleigh’s Life Foundation, a 501(C)(3) non-profit organization, is to provide financial relief to those at or near End Stage Cystic Fibrosis. ashleighs.org/the-journey/f/…
I am so terribly sad to report that Cystic Fibrosis Warrior Kristina Jonas became an Angel yesterday. I am absolutely shocked. Ashleigh's Life Foundation provided Kristina our Seventh Grant Award just two weeks ago. But now she's gone. Rest Easy. ashleighs.org/the-journey/f/…
Ashleigh's Life Foundation celebrates Memorial Day. Thanks all of those who have served and lost for our country. Before she was diagnosed with Cystic Fibrosis, Ashleigh Suggs, the namesake of this Foundation, served proudly in the U.S. Army. ashleighs.org/the-journey
Colleen Rue @ColleenRue23198
30 Followers 465 Following
CFFSSK @cffssk
74 Followers 291 Following Fundraisers in partnership @cftrust for Surrey, Sussex & Kent #CysticFibrosis #NoOneLeftBehind
CF Nutritional Suppor... @llc_cf
116 Followers 529 Following My goal is to help CF'ers better access vitamins, probiotics & supplements they need to thrive until CF stands for #CureFound e:[email protected]
David Nannini @david_nannini
91 Followers 944 Following Interested in Medical Causes, especially Cystic Fibrosis.
Cystic-Fibrosis.com @CysticFibro_HU
254 Followers 186 Following A community for people affected by cystic fibrosis. Learn, share, and connect with peers and healthcare professionals.
Blackpool Adult Cysti... @AdultCystic
256 Followers 354 Following We are a friendly and welcoming team, aiming to provide excellence in adult CF care. We look after patients with CF from the Lancashire and South Cumbria areas.
ShilohChildren @Shiloh_children
39 Followers 190 Following https://t.co/rG2gxat2sj Donate here: https://t.co/InkqWJrBr7…
♥HEART OF ❤THE SH... @1AVintageAffair
603 Followers 4K Following 🌹Northamptons Roses of the Shires🌹****P.R.O.P.E.R HISTORY SOCIETY**** *Saving Our Public Heritage From Sale* ☮️ARA🌱V🌱&*CF-Warrior*
Aleta Gibbs @leta70
357 Followers 492 Following Mum of 4 👩🏻👱🏻♂️🐶🐶 (she/her) Animal lover Wannabe Chef 👩🏻🍳Cystic Fibrosis advocate Pro Vax 💉 Former Registered Nurse Primary Early Childhood Educator
BCM Tailor Labs @BCMTailorLabs
3K Followers 4K Following Anthony Maresso, Ph.D. Co-Founder TAILOR LABS ([email protected]) - Medicines, Microbes, Mutation, Phage, Wastewater Science, and the Search for Human Immortality
Abbi Kitsune @Abbi_Kitsune
225 Followers 2K Following T-Girl aged 50+; No place to call home. Enjoy Chinese, Japanese, Korean and Russia Music and Language. Happy to chat to folks aged 20 to 120 worldwide 👧🍸
Leah Lunsford @sewlalaleah
29 Followers 307 Following I keep hoping that one day I will stick myself with a radioactive pin and end up with super sewing powers.
Living Hope 💜 @NkhosiLa
64K Followers 19K Following End Stage Cystic Fibrosis warrior ❤😷💪 Pulmonary Hypertension https://t.co/mHsSHeezvm Blogger Health advocate
Kat @KATKaftrio
98 Followers 180 Following mom of 5 children (4 have Cystic Fibrosis,1 carrier) My eldest son Leon with CF passed away 28/08/2015. I can’t lose my other children. Fighting for #KaftrioNow
Trikafta for Kiwis @trikafta4kiwis
109 Followers 194 Following New Zealander's with Cystic Fibrosis fighting for life changing medications #trikaftaforkiwis @trikaftaforkiwis on Instagram @trikaftaforkiwis on Facebook
NICHOLA @nichrey35
139 Followers 1K Following Cf Mum 2 the most amazing little 6 year old. mum 2 a furry old girl, aquarian, borderline nutter, wine drinker. keen cyclist & organic farmer 🌷
CF Dental Study UCC @cf_ucc
111 Followers 182 Following Research Study into the Oral Health of Adults with Cystic Fibrosis
Sasha Haughian @Sweet_Sasha30
224 Followers 605 Following Old fashion housewife at heart. Candy Maker. Blogger. Mother of 3. Cystic Fibrosis advocate. Baking sweets is my hobby, a healthy lifestyle is my passion.
With One Breath @WithOneBreath
687 Followers 1K Following #WithOneBreath is a non-profit started by parents passionate about finding a cure for #cysticfibrosis & providing support to families during a hospitalization.
Jarrod 😷 @ilovetobreathe
470 Followers 347 Following CF, 44 years old. 2 x Nonsense Mutations, 2 kids. Wanting to learn, share and support. Concerned about germs,its my shtick. Love life.
Easy_E_Artwork_ @easy_e_artwork_
33 Followers 51 Following I am a artist at heart with a ole hippie soul an amateur photographer a lover a fighter a natural born CF survivor/warrior
KV @KovvieB
55 Followers 458 Following Doing what makes the world a better place! Healthy living, fun, fitness and of course FOOD! Advocating for Cystic Fibrosis! Better drug therapy and healthcare!
Robert Tranchina @rtranchina
2K Followers 3K Following I am the Creator/ Producer of TV Show “Million Dollar Thrift” ( partnered with Legendary Ron Alexenburg ) & CEO of @monarch_global_ nonprofit-organization
* Kazel * @65_AngieBF
70 Followers 495 Following Wife and a Mum of a beautiful daughter living with Cystic Fibrosis. Enjoy a wine or 2, gardening and nature💜🌱🦋
Robert Gray @ResearchGray
384 Followers 397 Following Lung Disease Research, #CF, Professor of Respiratory Medicine @UofGlasgow
Transitions in Cystic... @TransitionsInCF
55 Followers 158 Following Study investigating the barriers and facilitators of the transition of care among young adults with CF and their parents in Ireland. email: [email protected]
Klyn Elsbury Motivati... @KlynElsbury
2K Followers 3K Following 🏆 Top Motivational Keynote Speaker 💵 Sales Strategist 📚 2x Author 🎙 Podcast Host- The Truth About Sales 💜#cysticfibrosis ⬇️ Ask Anything
kimgaudet @kimgaudet89
24 Followers 125 Following Mommy. Wife. Chaos Coordinator. Sour dough Master.
#UK CF campaigner Sha... @CFno1LeftBehind
1K Followers 1K Following 🇺🇦#Ukraine 🇬🇧#UK 💊 #Kaftrio 💙 #NHS #cysticFibrosis #genetherapy 🧬 Let’s find a “cure” for CF 💛 #noOneLeftBehind 💛💛@cftrust💛supporter
Lungs of Love @cfkidsbook
46 Followers 84 Following Lungs of Love: A Cystic Fibrosis Children’s Book. Message us for a free PDF copy! Double lung transplant: 12 June 2018.
Home Salt Therapy | H... @HomeSaltTherapy
2K Followers 2K Following Breathe better with salt therapy! Halosense Inc provides drug-free treatment in all breathing conditions. https://t.co/gvns1pL6Jl
Chris MacLeod @macleodscanada
6K Followers 6K Following Lawyer, entrepreneur, advocate. Founding partner at @CambridgeLLP. Founder of @cfadvocacynow. Author of Beating The Odds @chrismacleodBTO
CF & Cancer Research ... @IanMorris16
450 Followers 556 Following Proud father of Daniel Hayley Elle Cara one with the Angel's. I hate CF.38years clear of Non Hodgkin's Lymphoma .Awareness for CF Grief & Mental Health
Charles Michael Duke @Charles_MDuke
8K Followers 4K Following Actor | Singer | Creator of #DonateMate | Double Lung Transplant - May 2018 | CF | Currently - @byebyebabylive & Elton : The Story of Sir Elton John
Cassidy’s Lemonade ... @cassidylemonade
56 Followers 88 Following Bravely striving to find a cure for Cystic Fibrosis. ▫️Mobile Lemonade Truck ▫️Online Boutique
CFLF @CFLifestyle
974 Followers 673 Following Helping people with Cystic Fibrosis with Recreation Grants toward Living STROnger & LOnger #STROLO
Gemma M @MattisonGemma
192 Followers 230 Following mom of 4 & chocolate lover trying to ensure cystic fibrosis patients get fair treatment such as free prescriptions in the UK 🇬🇧
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOw9N6c
YouthActiveUnlimited @CF_ActiveYouth
498 Followers 1K Following Youth Activity Unlimited is one of the Cystic Fibrosis Trust’s Strategic Research Centres - dedicated to helping adolescents with CF to be active without limits
andreastruble @andreastruble02
596 Followers 3K Following I can be followed @andreastruble @andreastruble10 ( Andrea L Putnam Struble) Daughter of Zebedee MSUgrad1980 Jesus Freak My journey is to know CHRIST fully.
James Brown @JimboCFwarrior
1K Followers 1K Following Musician #ALLMUSIC, FULL TIME FIGHTER OF CYSTIC FIBROSIS ΔF508 #CFwarriors #COYS ☠️#HORRORFAN🤡 #Moviefan #BadJokes #AnimalsAreBetterThanHumans
Ash @ashbergh
760 Followers 858 Following I buy fitteds and Jordans that are cooler than I can ever be. Amateur Pulmonalogist.
elizabeth @eli3abeth12
305 Followers 203 Following Manc down south. Scientist. Eleven yr old son w/ CF; my brave little superhero.
CFF Washington/Alaska @CFF_Washington
725 Followers 439 Following The Cystic Fibrosis Foundation Washington/Alaska Chapter is helping to advance @CF_Foundation’s mission to find a cure for every person with cystic fibrosis.
Neena Bratt @beany_bratt
47 Followers 222 Following
Living Hope 💜 @NkhosiLa
64K Followers 19K Following End Stage Cystic Fibrosis warrior ❤😷💪 Pulmonary Hypertension https://t.co/mHsSHeezvm Blogger Health advocate
Jarrod 😷 @ilovetobreathe
470 Followers 347 Following CF, 44 years old. 2 x Nonsense Mutations, 2 kids. Wanting to learn, share and support. Concerned about germs,its my shtick. Love life.
CFF Southern Californ... @CFFOrangeCounty
787 Followers 696 Following THIS ACCOUNT IS NO LONGER ACTIVE. PLEASE FOLLOW US AT @CFF_SoCal 👋😎
Marion Ferguson @Marion_Super
361 Followers 248 Following 'Mum to 4 great people and granny to eight little people. I raise awareness for CF & campaign for access to life saving medicines.
Sharon Chase @SharonC45209195
9 Followers 8 Following
NICHOLA @nichrey35
139 Followers 1K Following Cf Mum 2 the most amazing little 6 year old. mum 2 a furry old girl, aquarian, borderline nutter, wine drinker. keen cyclist & organic farmer 🌷
Kat @KATKaftrio
98 Followers 180 Following mom of 5 children (4 have Cystic Fibrosis,1 carrier) My eldest son Leon with CF passed away 28/08/2015. I can’t lose my other children. Fighting for #KaftrioNow
Nicole Kelly @colescfjourney
13 Followers 99 Following I tweet about my own experience with living with#cysticfibrosis #Breastcancer survivor when my parents were told I wouldn’t live past 10 Dr said No God saidYes!
Charlotte Francis @charfra
391 Followers 472 Following @CLCHNHSTrust Clinical Operations Manager- Wandsworth Specialist Respiratory Services & HOS-AR || Physiotherapist || @Air_Physio || She/Her
DuckDuckGo @DuckDuckGo
2.7M Followers 5 Following Independent online privacy company with browser, search engine, and optional AI.
Kirsty Gillard-Daly @kirsty1412
19 Followers 105 Following
Ryan's Funeral Funds @FundsForRyan
46 Followers 435 Following Ryan lost his battle with Cystic Fibrosis 13/09/17. Help us give Ryan a funeral 💜 https://t.co/DZlfWAG57s
Samantha Henman @samantha_henman
94 Followers 89 Following Lead Nurse for Cystic Fibrosis. Royal Papworth Hospital NHS Foundation Trust.
CF Dental Study UCC @cf_ucc
111 Followers 182 Following Research Study into the Oral Health of Adults with Cystic Fibrosis
Robert Tranchina @rtranchina
2K Followers 3K Following I am the Creator/ Producer of TV Show “Million Dollar Thrift” ( partnered with Legendary Ron Alexenburg ) & CEO of @monarch_global_ nonprofit-organization
Cystic Fibrosis Found... @CFF_STL
894 Followers 575 Following The @CF_Foundation Gateway Chapter serves the #CysticFibrosis community, which includes people with CF and their families and volunteers, in MO and Southern IL.
CFF Chicago @CFF_Chicago
764 Followers 801 Following @CFF_Chicago supports the search for a cure for cystic fibrosis by fundraising, promoting awareness & providing community support.
CFF Delaware Valley @CFF_DelValley
547 Followers 930 Following Cystic Fibrosis Foundation - Delaware Valley Chapter. RT or Favoriting does not imply endorsement.
Colleen Rue @ColleenRue6
17 Followers 139 Following My name is Colleen.Proud pet parent.Greatful for the fellowship of Alcoholics Anonymous.Cystic Fibrosis awareness and advocacy. ❤
SaltedIceCream @SaltedIceCream
18 Followers 5 Following We are the Rochon family, our 12-year-old daughter has Cystic Fibrosis. This is our fundraising team name.
Will Boyes @CF_Cyclist
53 Followers 23 Following Cyclist with Cystic Fibrosis; staying healthy and raising awareness through racing, sportives and just riding me bike!
nicole @nikkidublin
106 Followers 318 Following
Diane Byram @dbyram1
98 Followers 178 Following Development Director for Cystic Fibrosis Foundation in NW Arkansas
Aussie CF'ers @AussieCFers
33 Followers 14 Following
CFF - Western Carolin... @CFF_CLT
412 Followers 136 Following The Western Carolinas - Charlotte Chapter is helping to advance @CF_Foundation’s mission to find a cure for every person with cystic fibrosis.
Iowa CF Foundation @IowaCFF
533 Followers 174 Following Advancing the search for a cure for cystic fibrosis by funding research, promoting awareness and providing support to patients and families.
KV @KovvieB
55 Followers 458 Following Doing what makes the world a better place! Healthy living, fun, fitness and of course FOOD! Advocating for Cystic Fibrosis! Better drug therapy and healthcare!
Sophie @sophie1_xox
32 Followers 120 Following CF•Uni•🇧🇸•🇬🇧•She/her• https://t.co/kdUbG3MfwH Embroidery Insta: @stitchingbysoph
Daisy Board CF @BoardCf
15 Followers 34 Following Works at Cystic Fibrosis Trust as the In-memory Officer
alison orr @AlisonOrr71
67 Followers 88 Following CF Physiotherapist at Manchester Adult CF centre, Mum of 4
Tom Tobin @beardedCFphysio
205 Followers 72 Following Specialist Physiotherapist in Cystic Fibrosis @RBandH. Own a beard.
Sarah Simmons @SarahSimmons85
109 Followers 172 Following Mummy to my midget and Respiratory Physio. All views are my own.
Charlotte Hardaker @CharlieHardaker
743 Followers 798 Following Ventilation & Respiratory Physiotherapist. Interests: NIV, NMP, tracheotomies, cough augmentation & all things respiratory 🩺 she/her
Klyn Elsbury Motivati... @KlynElsbury
2K Followers 3K Following 🏆 Top Motivational Keynote Speaker 💵 Sales Strategist 📚 2x Author 🎙 Podcast Host- The Truth About Sales 💜#cysticfibrosis ⬇️ Ask Anything
Joey Hobbs 💙 @JoeyHobbs6
63 Followers 103 Following Respiratory physio at OUH NHS Trust- CF and bronchiectasis. Interests: ACT, CF, non CF bronchiectasis, dysfunctional breathing,Long Covid
claire @tehclaire
10 Followers 36 Following I am not the person from the profile picture nor Claire Wineland. #CysticFibrosis #CF
Lina Khrais @KhraisLina
15 Followers 53 Following A mother from Jordan seeks to heal her son and keep him alive, I already lost two sons for CF. Cystic fibrosis is my war I well fight to the end.
Canadians for Trikaft... @trikaftacanada
28 Followers 24 Following Advocating for life changing drugs to. e available to all Canadians living with CF
UHB CF Dietitians @CF_dietitians
717 Followers 249 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Johns Hopkins Pediatr... @HopkinsPedPulm
516 Followers 718 Following The Eudowood Division of Pediatric Respiratory Sciences provides expert care for children with acute and chronic respiratory problems.
Lucinda Fisher @Lucewheelsmoke
74 Followers 207 Following Nascar Fan, CFFvolunteer, love going to the track, cars/hotrods, Grandkids are AWESOME ! --- CountryMusic
Stephanie Landez @loveFAITHcure
75 Followers 67 Following I don't need your attitude, I have enough of my own - Woman of Faith, CF advocate, wife and mother to daughters #cureCF
Amy Dillon @AmyDottDillon
86 Followers 124 Following Mom*CF Mom*Patient Advocate by Default*On a Mission to CURE CF *Wife*Runner*Wine*Philadelphia*Trends for United States
You might like
