CF Nevada @CFNevada
The Nevada Chapter is helping to advance @CF_Foundation’s mission to find a cure for every person with cystic fibrosis. cff.org/nevada Las Vegas, NV Joined January 2012-
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Advocates from Ohio are taking on Capitol Hill! #CFAdvocacy
Way to go, Shannon, Dan, Elizabeth & Patt! We’re so proud of you for representing the #cysticfibrosis community during @CF_Foundation’s March on the Hill. Thank you for sharing your story with @SenCortezMasto to support the HELP Copays Act. #CFAdvocacy
Thank you to the @CF_Foundation for your advocacy for our Cystic Fibrosis community in Nevada. It's inspiring to hear about the real progress made in treatment and care, and I'm proud to support all of you in your continued work to find a cure.
.@RepSusieLee @SenJackyRosen @SenCortezMasto, as a constituent and someone personally affected by #cysticfibrosis, I’m calling on Congress to prioritize the needs of the CF community. I urge you to cosponsor and pass the HELP Copays Act and the PASTEUR Act. #CFadvocacy
College students and recent graduates are invited to apply for the Tomorrow’s Leaders College Program. During this free, virtual program from August 8-17 you will build leadership skills and network with like-minded peers. Learn more and apply today: on.cff.org/43Fvgck
Northrn NV Great Strides Carson City, June 10th register today t.e2ma.net/cshare/inbound…
May is Cystic Fibrosis Awareness Month!
Today, because of improved medical treatments and care, more than half of people with cystic fibrosis are 18 and older. Many people with CF can expect to live healthy, fulfilling lives into their 30s, 40s, and beyond. #CFAwarenessMonth
We recently agreed to provide up to $15.5M to Anagram Therapeutics to conduct clinical trials of a novel enzyme replacement therapy that would help improve the digestion of people with #cysticfibrosis. Anagram expects to start a Phase 1 trial this summer. on.cff.org/3U7H4A0
We are investing up to $2M in Nanite Inc. to explore a new way to deliver genetic therapies into the lungs of people with #cysticfibrosis. Polymer nanoparticles could potentially be safer and may be more versatile and stable than other delivery methods. on.cff.org/3yYhV1b
Thank you @EmilyEllis_Esq, Pat, and Dan for sharing your story with @SenCortezMasto at yesterday's March on the Hill! #CFadvocacy
Thank you, @SenCortezMasto, for meeting with our advocates today to discuss the importance of addressing antibiotic-resistant infections. #CFAdvocacy
@SenJackyRosen, on behalf of her child with #cysticfibrosis, @EmilyEllis_Esq from Nevada urges you to cosponsor the PASTEUR Act to jump start the development of new antibiotics. #CFadvocacy
@SenCortezMasto , on behalf of their child with #cysticfibrosis, @EmilyEllis_Esq from Nevada urges you ensure access to affordable, high-quality care and treatments by cosponsoring the PASTEUR Act and HELP Copays Act. #CFadvocacy
@repdinatitus, on behalf of their child with #cysticfibrosis, @EmilyEllis_Esq from Nevada urges you to ensure access to affordable, high-quality care and treatments by cosponsoring the PASTEUR Act and HELP Copays Act. #CFadvocacy
Thank you, @EmilyEllis_Esq for representing the CF Nevada community and all those living with CF at this year's #MarchontheHill! #CFadvocacy
Thank you @MarkAmodeiNV2 for always being a champion for our #CysticFibrosis community! We truly appreciate your dedication to our mission. @CF_Foundation #CFStandforCureFound
On International Women's Day, we recognize trailblazing women such as Doris Tulcin, who helped found the Cystic Fibrosis Foundation in 1955. #IWD2023
Join our Online Day of Action and tell your members of Congress: Support the PASTEUR Act.📣 #CFAdvocacy on.cff.org/Online-Day-of-…
More than 2.8 million people get an antibiotic-resistant infection in the U.S. each year. People with #cysticfibrosis face an increased risk for difficult-to-treat infections. We need new antibiotics now, and we’re asking Congress to help. #CFAdvocacy
Run, don’t walk... registration for #BreatheCon is open! Virtually gather with hundreds of adults with cystic fibrosis February 23-25 for 1-1 networking, panels, affinity groups, happy hours, and so much more. We can’t wait to see you there! Register now: on.cff.org/BreatheCon-2023
Congratulations to the winner of our #BreatheCon swag design contest, Kelly Marie McHale Talarico, a 31-year-old with #cysticfibrosis! Her custom design will be printed on this year’s swag and created into a gif for social media. Thank you to everyone who entered the contest!
Bryant @bwombat24
2K Followers 3K Following Hubby to @Sixty5RosesNole, #CysticFibrosis warrior’s dad, #GoBolts, #Noles, #Saints, #Braves, #BradleysBattleBuddies 🫁 #KTimeForCysticFibrosis
McTashe @McTashe85282
77 Followers 5K Following
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Gerda Majorie @GerdaM70393
67 Followers 2K Following I need money, a lot of money. Even if I can make 1 dollar a day, I will try my best. If you have a way to make money, please tell me.
phage trial @phage_trial
18 Followers 172 Following A clinical trial to assess the safety and microbiological activity of bacteriophage product WRAIR-PAM-CF1 in people diagnosed with Cystic Fibrosis
Justin Bruce @just1nbruce
13K Followers 2K Following #LasVegas meteorologist and traffic anchor for @KTNV
JODIE MORGAN @CFCHAMP12
23 Followers 105 Following You never know how strong you are , until being strong is the only choice you have 💫
65MilesIn65Hours4CF @65HoursForCF
12 Followers 176 Following Raising $1 million for the @cf_foundation ➡️ running 6.5 miles x 6.5 hours for 65 hours. AUG 25-27, 2023 @cff_centralOH #CureCF
Kim Jacobs @Kimthebalancedr
854 Followers 2K Following The Balance Doctor/Host of https://t.co/xd9LrqDys7 Balance Life in the Midst of Chaos & on God’s terms https://t.co/nbfYJ37B8g
Markus Hänni @markushaenni
2K Followers 2K Following Passionate husband & father of 2 girls | trained businessman and author | I've #cysticfibrosis & I love to inspire and encourage people. https://t.co/JN5hufpRGJ
Angie Kinney @angiekinney311
1K Followers 1K Following Cystic Fibrosis: Parent, CFF: National Leadership Council: Volunteer Engagement Committee Chair; WPA Chapter: Board Chair
Bluebird Books @BooksAtBluebird
6K Followers 786 Following Small woman-owned bookshop fighting back against the billionaires. Shop small with us! Book recs, surprise book mail, personalized services, etc in link 👇🏽
Singing at the Top of... @SATMLfoundation
102 Followers 105 Following Singing at the Top of My Lungs (SATML) • 501 (c)(3) nonprofit organization • Dedicated to empowering hospitalized children through music, art, and play.
Chris MacLeod @macleodscanada
6K Followers 6K Following Lawyer, entrepreneur, advocate. Founding partner at @CambridgeLLP. Founder of @cfadvocacynow. Author of Beating The Odds @chrismacleodBTO
CF Nutritional Suppor... @llc_cf
116 Followers 529 Following My goal is to help CF'ers better access vitamins, probiotics & supplements they need to thrive until CF stands for #CureFound e:[email protected]
cystic_fibrosis_champ @laytoncf12
45 Followers 294 Following Cystic Fibrosis Warrior & Paediatric Stroke Survivor 💪🏻 LETS RAISE AWARENESS TOGETHER 💜💛
Cystic Fibrosis Found... @CFF_WestFlorida
131 Followers 123 Following Welcome to the official Twitter account for the Cystic Fibrosis Foundation - West Florida Chapter. https://t.co/wA7jPbhZP6
CFF Carolinas Central... @CFF_Carolinas
488 Followers 502 Following CF Foundation Carolinas Central/Eastern Chapter of the CF Foundation. Proudly serving Eastern and Coastal North Carolina. #CysticFibrosis #CureFound #FightCF
jskow @jskow
46 Followers 198 Following I am a wife, mother, sister, daughter, aunt, friend, advocate and more. I practice kindness, yoga and golf. #CF mom #CysticFibrosis
NTM Info & Research @NTMinfo
1K Followers 996 Following #NTMir Non-profit organization dedicated to patient support, medical education & research for people with nontuberculous mycobacterial lung disease (#NTM).
Nicole Kohr @cystic4real
2K Followers 2K Following new lungs, who dis ♻️🫁 6/14/19 • creator of @fallriskmusical and @coliecreations 🎭📚 • award-winning writer and advocate 🏆
CFF Tennessee Chapter @CFFTennessee
567 Followers 521 Following official account for the Nashville + Knoxville Offices helping to advance @CF_Foundation’s mission to find a cure for every person with cystic fibrosis.
kbridges3 @kbridges3
220 Followers 1K Following
Cure4CF Foundation @Cure4CFF
770 Followers 942 Following Cure4CF Foundation supports scientific research to find a cure for cystic fibrosis. http://t.co/Q7k8Gl8CVA
Gray Hair CF Club @GrayHairCFClub
2K Followers 4K Following A simple site for CFers with gray hair, CFers who plan to have gray hair, or those who love CFers with gray hair. http://t.co/Rt9N5u9G
CFF North Texas @CFF_NorthTexas
560 Followers 317 Following Our local chapter puts on multiple events a year to raise money to fund research to find a cure for cystic fibrosis. Help us make CF stand for cure found!
Cal @caroline_cal
360 Followers 653 Following Proud mum, son Matthew pwCF born 11/02/12 *DF508/R560T* 💜 #curecf
CFRoundtable @CFRoundtable
872 Followers 324 Following We’re a community of adults with CF providing support, info, and encouragement since 1990. Sign up for our free biannual magazine!
Linda Bowman @LindaBowmanL
475 Followers 946 Following Advocate for @CF_Foundation Speaker~ Intrigued by humans ~Giving grace ~ say no to group think ♥️ https://t.co/06So8lm1Sj
M @MehreyED
46 Followers 242 Following
CFF Western NY @CFF_Western_NY
369 Followers 469 Following The @CF_Foundation Western New York Chapter supports the search for a cure for CF by fundraising, promoting awareness & providing community support.
Clark County Environm... @ClarkCountyDES
2K Followers 564 Following We are the air pollution control agency and administer the Desert Conservation Program and All-In Clark County climate action initiative for Southern Nevada.
Cystic Fibrosis Non-P... @CureToLive
2K Followers 885 Following Tweet us your stories, news, events ect. CF = CURE FOUND. @Misscaley gained angel wings June 13, 2014 at 7:03 pm. 💜 #CureCysticFibrosis Follow @BreatheForCaley
CFF Central/Western O... @CFF_OKC
234 Followers 241 Following The @CF_Foundation Central/Western Oklahoma Chapter supports the search for a cure for CF by fundraising, promoting awareness & providing community support.
Project CF Spouse @ProjectCFSpouse
108 Followers 249 Following Are you the spouse or partner of someone with cystic fibrosis? Have you been looking to connect with other CF spouses and partners? Well, look no further!!
With One Breath @WithOneBreath
687 Followers 1K Following #WithOneBreath is a non-profit started by parents passionate about finding a cure for #cysticfibrosis & providing support to families during a hospitalization.
Ralph Fusco @ralph_fusco
285 Followers 837 Following President of the Richard S. fusco Foundation inc. can be reached at [email protected] to provide I Pads to kids with Cystic Fibrosis.
Total Care Rx @TotalCareRx
127 Followers 907 Following We’re committed to the long-term health & well being of our patients in the communities we service including CF, Epilepsy, Organ Transplant, HIV, PanCan & LTC.
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Rebecca Bobbitt @CureCF4Caroline
196 Followers 795 Following Christ Follower; Wife & Mom; Cystic Fibrosis Advocate, Fighter, & Fundraiser; Hiker; Health Enthusiast; Reader; Coffee Lover; Teacher-Librarian
Robin Womack @Robin_L_Womack
42 Followers 70 Following
CFF Memphis @CFF_Memphis
169 Followers 73 Following The West Tennessee Chapter serves the CF community in Memphis, Jackson, all of West Tennessee, and DeSoto County, MS.
mfraser @rickmaurfraser
39 Followers 238 Following
Fundraiser.TV @Fundraiser_TV
290 Followers 3K Following Follow me on my YouTube channel as I attempt a range of challenges in order to raise funds for worthy charities.
Bean Tree @4beantree
183 Followers 2K Following
CFF North Central FL @CFF_NCFLORIDA
31 Followers 80 Following The @CF_Foundation North Central Florida Chapter supports the search for a cure for CF by fundraising, promoting awareness & providing community support.
NIH @NIH
1.7M Followers 221 Following Official account of the National Institutes of Health. NIH...Turning Discovery Into Health®. Privacy Policy: https://t.co/wOGwZ3gX1M Engagement ≠ endorsement
Lewis Black @TheLewisBlack
313K Followers 342 Following I'm only here because Kathleen Madigan shamed me into it.
Genentech @genentech
123K Followers 225 Following Official Twitter for Genentech. See our community guidelines here: https://t.co/yas51FOJVm
Novartis @Novartis
287K Followers 513 Following An innovative medicines company working to reimagine medicine. See our community guidelines: https://t.co/wolzG1zLye
AbbVie @abbvie
79K Followers 464 Following Official global handle sharing the latest news about our company, science & people. Review our guidelines: https://t.co/pvWvxd2VWF
Vertex Pharmaceutical... @VertexPharma
70K Followers 83 Following The official channel for Vertex Pharmaceuticals. https://t.co/RRKBue0YQ9
Nonprofit Tech for Go... @nonprofitorgs
723K Followers 351K Following Nonprofit Tech for Good shares useful digital marketing and fundraising resources. We follow nonprofits, charities, NGOs, and activists worldwide. 🌐
Congresswoman Susie L... @RepSusieLee
38K Followers 3K Following Proudly serving the folks in Nevada's 3rd District. Bipartisan Leader. Education Advocate. Mom to two great kids.
Jacky Rosen @RosenforNevada
36K Followers 607 Following First former computer programmer & synagogue president in the U.S. Senate. Mom, bipartisan problem solver, and fighter for Nevadans. Official campaign account.
Nevada Independent @TheNVIndy
49K Followers 36 Following Nonprofit news outlet reporting on Nevada politics, policy and people since 2017 | Your State. Your News. Your Voice. | [email protected]
Ed Owen @Ed_Owen
3K Followers 2K Following Political strategist for @ThinkLabour. Non-resident fellow at @ACEurope & @ThirdWayTweet & founder @NoCowsPod. Ex-UK Govt spad, always @mancity 🇬🇧🇺🇸🇩🇪
MassBio @MassBio
47K Followers 2K Following MassBio is committed to advancing MA's leadership in the life sciences to grow the industry, add value to the healthcare system & improve patient lives.
Benjamin Kopp, MD/MPH @KidsLungDoc
2K Followers 1K Following Christian, Pediatric Cystic Fibrosis and Sickle Cell Lung Disease, Researcher, Father, husband, & lover of all Buckeyes! @EmoryUniversity, Co-Director CF-AIR
Ron Keel @ronkeel
12K Followers 836 Following The Metal Cowboy - Entertainment Entrepreneur, million-selling frontman/singer/player/songwriter/radio host/author - owner: https://t.co/znKOmtMgug
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Boomer Esiason Founda... @cysticfibrosis
10K Followers 929 Following Fighting Cystic Fibrosis - Advocacy - Education - Fundraising
Cystic Fibrosis Canad... @CFCanada
6K Followers 1K Following National health charity working to help Canadians with cystic fibrosis live longer, healthier lives. En français : @fkcanada
CFF Southern Californ... @CFF_SoCal
1K Followers 2K Following The SoCal Chapter is helping to advance @CF_Foundation’s mission to find a cure for every person with cystic fibrosis.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
DRudd @CF_Dad
950 Followers 910 Following Just cure CF. Three beautiful daughters...two have Cystic Fibrosis and they are winning the daily battle!
Jerry Cahill @jcahillYCF
4K Followers 4K Following Director Team Boomer, CF/Organ Donor Advocate. Recipient of Lung, Liver, Kidney Transplants.Public Speaker/Author, Founder YOU CANNOT FAIL. Pole Vault Coach
Nicki Zeller Perkins @NickiMPerkins
856 Followers 1K Following Nicki Perkins-52 y.o. I am allergic to stupidity, I break out in sarcasm. lungsofanarchy 🫁 CF warrior
Gray Hair CF Club @GrayHairCFClub
2K Followers 4K Following A simple site for CFers with gray hair, CFers who plan to have gray hair, or those who love CFers with gray hair. http://t.co/Rt9N5u9G
Jason Kempen @Jkemp34
307 Followers 1K Following Travel, Movies and Sports, Creator of Awesome Events. Love the STL. #MovieNerd
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Linda Bowman @LindaBowmanL
475 Followers 946 Following Advocate for @CF_Foundation Speaker~ Intrigued by humans ~Giving grace ~ say no to group think ♥️ https://t.co/06So8lm1Sj
abi halstead @abihalstead
584 Followers 927 Following CF patient on the hunt for phage therapy for my chronic burkholderia gladioli infection. Also Lead Governor @royalpapworth
Cystic Fibrosis Found... @CFF_WestFlorida
131 Followers 123 Following Welcome to the official Twitter account for the Cystic Fibrosis Foundation - West Florida Chapter. https://t.co/wA7jPbhZP6
Cystic Fibrosis Found... @CFFUtahIdaho
597 Followers 341 Following The @CF_Foundation Utah Idaho Chapter supports the search for a cure for CF by fundraising, promoting awareness & providing community support.
Catherine Cortez Mast... @CortezMasto
53K Followers 780 Following Senator from the great state of Nevada. Former Attorney General. Third generation Nevadan fighting for families, workers, and all Nevadans.
Senator Cortez Masto @SenCortezMasto
78K Followers 924 Following U.S. Senator from the great state of Nevada.
Crownful @CrownfulUS
7K Followers 0 Following Home to finest quality, top-notch kitchen & home products worldwide. Making family life easier, happier, & comfortable. get 20% coupon in link below. #crownful
UNLV NSMH @unlvNSMH
211 Followers 83 Following The National Society of Minorities in Hospitality at the University of Nevada, Las Vegas.
Stacey Leasca @SLeasca
8K Followers 3K Following Freelance journalist tweeting about freelance opportunities. Work: @travelleisure, @foodandwine, @goodhousemag, etc. Previous: @latimes @globalpost
CFF Central/Western O... @CFF_OKC
234 Followers 241 Following The @CF_Foundation Central/Western Oklahoma Chapter supports the search for a cure for CF by fundraising, promoting awareness & providing community support.
Sin City Sinners @SinCitySinners
5K Followers 2K Following The Sin City Sinners are Las Vegas' #1 Headlining Rock Band! The Sinners are more than just a band, it's an experience...
Cal @caroline_cal
360 Followers 653 Following Proud mum, son Matthew pwCF born 11/02/12 *DF508/R560T* 💜 #curecf
Margarete Cassalina @MargCassalina
3K Followers 3K Following Just a grandma standing before #X trying to make friends. I’m a speaker & author of 4 books. See my website for more ⬇️ Also, I advocate for @CF_Foundation
CFF-Alabama Chapter @Alabamacff
444 Followers 40 Following The @Alabamacff supports the search for a cure for CF by fundraising, promoting awareness & providing community support.
Black Gold Golf Club @BlackGoldGolf
2K Followers 786 Following Black Gold Golf Club is one of Orange County's premier public golfing destinations and venue for special events. Rated 4 1/2 stars by Golf Digest.
8 News Now @8NewsNow
282K Followers 524 Following LIVE. LOCAL. NOW. https://t.co/iLeWc8jsdV @CBS affiliate in Las Vegas. Nevada's first television station. #8NN
Team Sean @TeamSean1
158 Followers 1 Following Extinguishing Cystic Fibrosis Since 2001 through fundraising, volunteerism & spreading awareness. Also 2019 Winner of the AbbVie CF Scholarship.
Sue Klug @sue_klug
16 Followers 32 Following
Charley Rettig @charlesdrettig
517 Followers 2K Following 🏆 Award-Winning Photographer | ViewBug Triple Winner ✨ Turning landscapes & moments into digital wall art 🎨 Quarry cliffs • Rustic barns • Dramatic skies
Brittney @Brittness88
109 Followers 276 Following Lifes not about waiting for the storm to pass, its learning how to dance in the rain. 💙
CFF - VA Chapter @CFF_VA
436 Followers 220 Following We are the VA Chapter of the #CysticFibrosisFoundation. As part of our mission, we work to raise funds to make #cysticfibrosis stand for Cure Found.
Las Vegas Review-Jour... @reviewjournal
301K Followers 257 Following Nevada’s largest newspaper and the most reliable source for news in Southern Nevada. Send news tips to [email protected].
Matt Butler @matt_j_butler
191 Followers 243 Following Follower of Jesus, Husband of @daniellepbutler, Daddy of 4You might like
