Advocate-led initiative highlighting need to improve supportive care therapies, resources & access
(Now also where the skies are blue)
#MakeCancerLessShittymakecancerlessshitty.comJoined February 2024
Oral mucositis (OM) can severely impact quality of life - we need to improve quality supportive care to help #MakeCancerLessShitty for all individuals!
Today also happens to be Oral Mucositis Awareness Day #OMAD25#MoreThanASore
Oral Mucositis (cancer mouth sores) is a side effect of cancer treatment that affects 40-75% of people receiving chemotherapy, 75-100% of those undergoing transplants, and almost 100% of people going through radiation treatment for head and neck cancers
Chemo round 164 There are so many strong emotions going through me right now and a lot of things are happening in the world today it's overwhelming at times especially on top of having cancer. What shouldn't be happening is Cancer research and funding getting cut at all
Happy 4 Year Cancerversary to me!
Cancer has taken a lot, but it’s also given me:
🏄 Surfing
🏔️ Hiking the Dolomites
⛵ Sailing in Santorini
🎤 Meeting Shania Twain (!!)
Grateful for every moment. Let’s keep making cancer less shitty. 💛 ##MakeCancerLessShitty
@lungcancerisgay@CancerSuckLess There were times I wished for diarrhea due to the severity of the constipation I had -- crazy wish.
Hoping things are as well as possible for you...
Yep, I am surprised the makers of chemo-meds have not re-marketed them as anti-obesity meds like Ozempic. 🤷♂️
#CancerSucks
A few months ago I joined @CancerSuckLess as a group to help raise awareness of the reality of the cancer experience And educate people through my experience with a focus on the reality of the side effects of treatment in effort to show the need for improved care and support
Lost 15lbs in a day—who needs a gym when you’ve got gut-wrenching constipation and a toilet marathon? 💩 Shoutout to my iron meds for the extra challenge! #toiletgains#keepinitreal#makecancerlessshitty
Through every season—holidays, hardships, and even cancer—this crew has been my rock. 💛 They make the hard days lighter & the good days sweeter. Support like this makes cancer less shitty. Grateful for love, laughter, & strength. ❤️ #MakeCancerLessShitty#SupportMatters
Sometimes all we can do is keep trying
Keep trying to be the best we can do
Keep trying to be nicer
Keep trying to be more understanding
Keep trying to love better
Keep trying to educate better
Keep trying to grow as a person
Keep trying to get through the hard days
As we enter the holiday season this year so many memories come back over the last 9 holiday seasons since I was diagnosed with colorectal cancer. Cance changes everything and not just for the patient but the caregivers the support around you friends family and more.
November is National Family Caregivers Month (NFCM) Caregivers play vital roles in lives of cancer patients & survivors, offering us emotional support, practical assistance, and encouragement. Who is part of your caregiver community? How do they help you to #makecancerlessshitty
American Society of Clinical Oncology guideline update on palliative care for patients with cancer: Addressing the reality gap Commentary on Cancer by ACS
The American Society of Clinical Oncology's recommendations for integrating palliative care into oncology are commendable
"The year after beating cancer was harder for me than the year of treatment."
Survivorship is tough and needs to be included in efforts to #MakeCancerLessShitty#SuppOnc#SurvOnc
I say this not to discourage cancer survivors but to equip them.
The year after beating cancer was harder for me than the year of treatment.
It’s a weird phenomenon.
Regardless, God is good.
@ThanksCancer
We want to #MakeCancerLessShitty for everyone!
We want to hear from all individuals as they share their stories.
We want to reduce toxicities, improve access to supportive care, and protect quality of life for everyone.
We're also on Instagram, Threads, FB, and now BlueSky!
Little things that make the cancer experience better:
👉 Those free soft hats donated to the cancer center
👉 Dozens of survivors whose names I’ll never remember who answered all my questions
👉 Friendly front desk people
👇👇👇
357 Followers 165 FollowingReal person, not a bot. Lost my dad to lung cancer. Here to support fighters and the people around them. - You are not alone. #PhuckCancer
240 Followers 904 FollowingSPROCKET LIST (Live UK) on YouTube. Not a Bot but a movie fan of big 70s/80s/90s franchises. Calling out bad entertainment journalism.
1K Followers 3K FollowingFounder @PubliWrite - making books cool again on SOL & BTC; Seed investor in : Exchange Art, Tensor, Helio, etc. - always looking for opportunities
3K Followers 5K FollowingZimbabwean in Scotland Support Scottish Independence Love sport, especially LFC ❤ & HMFC. Love all animals, especially cats. Won't tolerate racism.
2K Followers 4K FollowingWife, mom, grandmother(Katja), proud of my family of resisters, teacher, loves animals...”In a world where you can be anything, be kind”...Corey Booker.
9K Followers 8K FollowingCancer is my life. Sleep & oncology prevention researcher/zombie. Love pretty games 'n dice 'n #TTRPGs. Science nerd. She/her. Pan 🏳️🌈. All views are my own.
896 Followers 6K FollowingLicensed Psychologist | PsychoOncologist | Elisabeth Kübler Faculty member | Cancer Advocate | CoAuthor Research in Creative Arts Therapies | Travesias De Tinta
1K Followers 2K FollowingKettle corn is my jar of mixed nuts, as bad ice is my loose corn. ROC NY #NoOneFightsAlone #FCancer #LetsGoBlueJays #BillsMafia #Sabrehood #LoveDogs 🌈 Ally
3K Followers 4K FollowingBreast cancer, Lung Cancer, and Oral cancer survivor. None were related, all primary. Hard to believe I know; guess I won the cancer lottery. 3rd ACCOUNT!😡
0 Followers 14 FollowingAt Opal Paramedical Tattoo Studio, we understand the emotional and physical journey of our clients and approach each service with care, and empathy.
23K Followers 1K FollowingDo what you can with what you have and above all else, minimize harm.
EMT-B ➡️ NR-P ➡️ BSN, RN ➡️ OMS-II
Stage IIIB cancer
@[email protected]
624 Followers 2K FollowingSalubrista mental y mentalista. 🏳️🌈🇨🇴🇲🇽 donante de órganos, en contra de las terapias de conversión, pro aborto. #FuckCancer
6K Followers 4K FollowingAuthor of “A Breast Cancer Journey: Living it One Step at a Time.” Breast cancer patient advocate, #dcis, #bcsm, wife, mom, francofile.
879 Followers 669 FollowingLife is short & so am I - do what makes you happy ! Music, theatre & tea drinker. CAR-T patient consultant, cancer survivor, chimera #staygrey 🦊#leukaemia #ALL
1K Followers 2K FollowingStage 3a ovarian cancer now NED 🎉 Campaigner & raising awareness of ovarian cancer symptoms. Ex-Ostomate. Adjusting to & loving life after cancer
5K Followers 4K FollowingI build community, brand, and courage at scale. Chief of Community @intention_ly | Host 🎙️ In The Suite + Lung Cancer Strong Podcast & YouTube | Stage 4 NSCLC
2K Followers 1K FollowingThoracic Medical Oncologist @MSKCancercenter Passionate about #PatientNavigation , #clinicaltrials access #PRO #PatientEd tweets/views are my own
1K Followers 909 FollowingComms professional. Mum to twin sons & a dog. Living w stage 4 ALK+ #lungcancer. Co-founder @OncogeneCancer. Board Member @ALKPositiveInc #ResearchMatters #LCSM
2K Followers 863 FollowingHi, I'm Jen!
Got osteosarcoma in my upper jaw. Then the bitch came back and took some more.
But I'm still here and still writing about it all.
8K Followers 8K FollowingBreast Cancer 💗Eagles 🦅frm army medic, adult critical care PICU/NICU Resp #PTSD#resister 🌈Ally#BLM #SlavaUkranii. no DM unless we already interact 💙💙💙💙
9K Followers 2K FollowingIncurable Colorectal Cancer 9/4/15
@fightcrc @coloncancercoal @cracking_cancer @CancerSuckLess @stupidcancer
Cancer Patient Advocate
Never Tell Me The Odds
2K Followers 2K FollowingHighly caffeinated Community College #Copyright and #OER Librarian. Johns Hopkins EdD candidate. #AYAcancer Low ER+ Breast Cancer SURVIVOR and Advocate.
247 Followers 295 FollowingRN, PHN, Pt Advocate, Autodidact, Lifetime Progressive, Information Junky, Audible Book Lover, Childless, Cat Lady, CA Native, In tx for MBC since 03/2023.
591 Followers 873 FollowingStill here after breast cancer (ER+/HER2+) | Love my Seattle Mariners ⚾⚾ | Humom to Jarvis 😺 | Threads: paulajane711 | Bluesky: paulajwilson
635 Followers 951 FollowingPro-choice, runner, cognitive psychologist, Human Factors Specialist @ Canadian Nuclear Safety Commission & mom to EM Doctor #womeninnuclear #womeninSTEM
1K Followers 2K FollowingPoet, watercolourist, and intrepid local adventurer. I dabble in Drupal and advocate for patients with lung and breast cancer, both of which I have.
1K Followers 436 FollowingAmplifying voices, sharing realities. Our MBC Life explores life with metastatic breast cancer from the perspective of us, people living with the disease.
37K Followers 39K FollowingEast-coaster in CA. 15yrs in Tech, now a #CancerCoach/#EndofLife Guide looking to help make a shift in our death-denying society. #hpm #Grief #BLM #BillsMafia
1K Followers 1K FollowingAdvocacy, education and awareness of Invasive Lobular Breast Disease with
Patients, Researchers and Clinicians
#InItTogether #ILC
#LobularBreastCancerIRL
4K Followers 3K FollowingStage IV Breast Cancer Survivor & Advocate treated at Johns Hopkins #BCSM. Extroverted introvert who loves nature & traveling. Co-founder of GRASP @grasptweets
5K Followers 5K FollowingWriting my post-cancer life! Hospitalist physician. Mom. Author of #BravingChemo: https://t.co/encT9rVmLn She/Her. LosQuijotes medical mission to Oaxaca
14K Followers 5K FollowingStage IV kidney cancer (metastatic oncocytoma) | Technologist | Founder of COA | Obsessed w/podcasts, medical science & nonfiction | Memoir 👇 | Views own
17K Followers 749 Following#RadOnc. Reformed Artist. Cancer Widow. I study #FinancialToxicity #Access #Equity @MDAndersonNews 📲me COI https://t.co/NoevEyYBhy
24K Followers 117 FollowingProfessional association of more than 35,000 members committed to promoting excellence in oncology nursing and the transformation of cancer care.
3K Followers 496 FollowingMom, Lawyer, Lung Cancer Activist, Stage IV Lung Cancer, ALK +, MET amplification. Co-founder of ALKFusion and MET group, plus others. #beatlungcancer
83 Followers 2K FollowingGrieving mom that lost her baby daughter two weeks before she turned 25. Stage 3C Ovarian Cancer Survivor. Working FT. Grandma (JoJo) to the love of my life.