Alissa Zingman MD MPH - ZebraMD @DocZing
PRISM Spine and Joint, https://t.co/xU10wz4Q5O, Research https://t.co/1kUMpVueSJ, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice. prismsj.com Silver Spring, MD Joined August 2015-
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@LeahHoustonMD Why must commenters make it adversarial? Great surgeons can't do our jobs without great nurses and support staff and equipment. And those team members can't do surgeries without us. The big companies obstructing and delaying care to profit off human suffering are the problem.
@PhDPennsylvania @NiallHarbison We don't deserve dogs. Such a beautiful soul in those eyes.
#Nurses: Trying to get in touch with @NIAIDNews (a doc) emails bouncing. Presumably, operations...affected. On website directory giant list, no clue who to reach out to - decided to just look for #RN regardless of sub-specialty. Bc an RN will figure it out. THAT is nurses. 💕
BLACK WOMEN COUNT. Are we seriously@going back to POC counting as a fraction of a person??? Is the fraction 0/3??? This is so far beyond the limits of decency. businessinsider.com/gop-senator-la…
Accountability matters. If this patient suffered a complication due to her surgery being interrupted, being sent home that same day, etc., the doctor has all of the liability. The insurance company has none. This can change. What are we waiting for??? x.com/BillAckman/sta…
Yesterday, I made a critical post about @EPotterMD and her experience with United Healthcare. I took it down when my office heard from the Clare Locke firm which represents UNH which called and stated that the doctor’s claims were not true. We have used Clare Locke and think
@DrScottHadland Love it!!
Human suffering is infinite Blame, Anger, Fear, Hatred: infinite Compassion can also be infinite Mourn each loss. Pray for each terrified/injured/hungry/sick/kidnapped/orphaned child Compassion for one need not diminish compassion for another Love & peace are not betrayals 🕊️
CP, OCD, Cancer - imagine a cardiologist's office "not taking pts w these dx". Unthinkable. #EDS : "outside scope" used by every specialty. Abdominal pain: GI "doesn't see EDS pts". Orthostatic Intolerance: Cards says same. #MedTwitter See @TheEDSociety @Dysautonomia for CME
@HHS_Health @DHSgov @PeteButtigieg @SpeakerJohnson @SouthwestAir Safety first. Over three hours. Sick, young, elderly, infirm. #Legislate #Regulate @freedomcaucus give folks freedom to exit plane to eat and drink stretch legs refresh meds or just cancel
Yesterday, I made a critical post about @EPotterMD and her experience with United Healthcare. I took it down when my office heard from the Clare Locke firm which represents UNH which called and stated that the doctor’s claims were not true. We have used Clare Locke and think
@GodsZebra Gentle hugs to you
It isn't a rare case - it is a common one. In our practice, we work hard to mitigate every possible risk factor that might prevent need for fusion of an unstable head-neck junction or upper spine. And sometimes we reach the end of that road. Sometimes we meet the patient late...
Thank you for all the support and care. Here’s her story once more, just in case. Sure hope the #HealthInsurance #CEOs ar #cigna #BCBS #UHC and others are reading. #CCI #POTS And again, @RepKimSchrier @PattyMurray @SenatorCantwell Wanna make a law?? huffpost.com/entry/brain-su…
4/ Not being able to see specialists who can really take the time to sort through the most complex cases and work collaboratively with patients on plans; Not being able to make your own choices for your own healthcare for a debilitating and life-threatening condition...
Reunited w friend from college who toured prismsj.com today! Me: when you found out I had EDS, did it make so much sense? Him: no, actually. I was shocked! Me: Don't you remember me having to be carried up and down stairs a lot? Him: that wasn't bc you were drunk?
These break my 💔 but dogs can teach us so much. A person can go through this type of transition in so many ways, too. And they might look exactly the same to us before and after. Bc we can't really see someone just by looking.
10 weeks apart. That was her daily life and the end of the road for Faith. Now she looks like a million dollars, has a lovely safe home to go to and her healthy is back. You just love to see it ❤️ (7/7)
@Dysautonomia Darn! Can we purchase replay?
@OGdukeneurosurg First thing I noticed and don't know what part of a bat this would be!
@isabelunraveled Marry the person you'd want making decisions if you were on ventilator or your child had cancer. If the person you're with doesn't meet that bar, then they're not your person. If you don't meet that bar, make a plan to become someone who does (therapy, mindset, perspective).
S Blitshteyn MD, FAAN... @dysclinic
23K Followers 2K Following Neurologist/Researcher, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic. Tweets🚫med advice. Opinions my own.
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Dysautonomia Intl. @Dysautonomia
26K Followers 352 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Candace D. @DiaryofaSickGrl
17K Followers 2K Following Wife. Mother. Dog mom. Chronicling chronic illness ✍️🥄#hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Jeannie Di Bon @jdibon
11K Followers 1K Following Hypermobility Specialist | Movement Educator | Author of "Hypermobility Without Tears" | https://t.co/apnb28QjwY | Founder & CEO of The Zebra Club
Hypermobility MD: Dr ... @BluesteinLinda
9K Followers 697 Following 🦓 Mayo Clinic trained EDS, HSD, MCAS & Pain expert🎙Host Bendy Bodies Podcast 🩺Information, not medical advice.
Renuka Dhinakaran @renudhinakaran
6K Followers 654 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid Focusing on marriage, parenting & chronic illness
Karen Lubell @karenlubell
3K Followers 2K Following ME/CFS is a connective tissue weakening caused/worsened by a virus. This can lead to Craniocervical Instability, Venous Compressions, CSF leaks and more.
Putrino Lab @PutrinoLab
36K Followers 406 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
OhTWIST.bsky.social n... @H2OhTwist
8K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
Dr. Alice 💕 @calirunnerdoc
27K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
The Ehlers-Danlos Soc... @TheEDSociety
24K Followers 5K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 4K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine ONLY POSTING ON UPSCROLLED NOW
Monica Verduzco-Gutie... @MVGutierrezMD
26K Followers 7K Following Professor & Chair of Rehabilitation Medicine in SATX | #Physiatry #LongCovid | brain doc, mom, runner | my ideas
Jennifer Brea🦒 @jenbrea
36K Followers 2K Following Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
Jeffrey Lubell (EDS, ... @JeffLubell_C19
4K Followers 570 Following I am exploring treatments for my daughter's EDS & ME/CFS & implications for people with #EDS, #MECFS, and #LongCOVID. Not an MD or professional scientist.
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 6K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Keri C @KeriRc84
354 Followers 916 Following I’m an RN & a patient; dealing with Chiari, Syringomyelia, EDS, & Chronic Pain. Interested in social change, political activism & making life better for others.
Princess, The Tower @APainPrincess
29K Followers 28K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
James Hayward @atomimage
7 Followers 1K Following
Nakesha Callahan @just_nakesha
19 Followers 185 Following
Dr Emma Sarah Janes @DrEmmaJanes
0 Followers 94 Following
IA @sunsetjmj
366 Followers 2K Following
Maggie Barton 🐝 @maggiehbarton
245 Followers 663 Following Investor, artist, entrepreneur. Just be & create. 💗 Art linked below 👇👇👇
Spine & Pain Centre @SpinePainCentre
227 Followers 407 Following
BeeBaked @BrenticusBaked
95 Followers 1K Following Disabled Cannabis Connoisseur ♿🍃 | Living with Ehlers-Danlos 🦓 | Creating Cannabis Digital Art 🎨 | Dabbling in Crypto 🪙 Honey Bee Money 🍯 🐝 💰
Lea @LeaLeaOz
245 Followers 869 Following Life long learner. Health, Mind, Music. Wisdom borne of pain, let's stop the pain.
Miamaya @Vidjhaya
49 Followers 244 Following Orthotherapist, mama bear, and nerd at heart. (I/me) =^.^=
Dr Richard Hirschson @richardhirschs1
18K Followers 18K Following Physician, Intensive Care, pandemics, economics, libertarian, gambler. No financial/medical advice here. #H5N1 #BirdFlu #MPOX #DiseaseX #Stagflation #Gold
Suzy McNulty, MD ☮�... @socrdoc
1K Followers 3K Following Gen Peds • Sports Med • Concussion • Dyslexia • Long COVID • 🦋 Suicide awareness 🦋 • Youth Mental Health • Proud @appstate and @UTAMavsSB mom
Cynthia Andrews @Cynthia31259673
3 Followers 223 Following
NurturingZebras @NurturingZebras
2 Followers 140 Following Your trusted resource for living actively with hypermobility and EDS. Free pacing ebook now available from https://t.co/1RnlEB6cgQ
DFW EDS & HSD Support... @dfwedsgroup
10 Followers 70 Following Support group for those with Ehlers-Danlos Syndrome (EDS) or Hypermobile Spectrum Disorder (HSD) in DFW, TX and surrounding areas.
B for Beatrice @ThatHoneyBea
240 Followers 735 Following Just a kind heart trying to do kind things. 💛 Support your fellow man, your teachers and your libraries!!! 📙🏫 Keep yourself human, movin' & groovin'! 💃🌻✨
Iequnorm @Iequnorm458496
29 Followers 2K Following
Kylie With a Why @kyliewithawhy
258 Followers 511 Following Passionate about health and truth. Make Australia Great 🇦🇺 Jesus is Lord.
Nowornever @ronipowell417
220 Followers 1K Following Wife, Mother of three, got ADHD Blue girl in a Red state survivor
Jenny Johnson @ospreyfan27
2 Followers 39 Following
Solomon @Solomon1267048c
1 Followers 20 Following community operations volunteer and advocate volunteer at SEDSConnective
crystaphaze @crystaphaze
156 Followers 437 Following new account because my old one was hacked - EDS Advocate, Mastiff Mom, Influencer, Norwex Consultant, Zionist
rosemarie filley @rsvoo7
7 Followers 417 Following
Brad @Brad44023394
13 Followers 834 Following FYI not looking for followers... just keeping up with the outside world and others thoughts/opinions
Ghost @ghostgirlliving
0 Followers 44 Following
Melissa Hogan @NursingTheTruth
798 Followers 4K Following 🌟 RN navigating life with Long Covid | Passionate about politics & true crime 🕵️♀️.
Nicole @hapatite
422 Followers 339 Following I have a focused passion for web design & development & food: restaurants, recipes, o-bento, cookbooks, cocktails, and tea | publisher for Hapa-tite!
SH @ladybugred838
0 Followers 614 Following
Lumia Health @wearlumia
1K Followers 448 Following Meet Lumia Smart Earrings. Next-gen health sensing in a form you actually want to wear. Reserve Yours Now
Plague Lesbian @thschei
81 Followers 3K Following You are here to stay and burn with me ❤️🔥 • 28 yrs • They/them • Vent acct • RT heavy
Renegade Research @RenegadeRes
3K Followers 3K Following Patient-led 501(c)(3) nonprofit working on #MECFS & #LongCovid💙 Runs project @remissionbiome • https://t.co/W0iQqqSYY2
Jamie Reed @LocalCelebr1ty
915 Followers 3K Following
Michael Lebednik Jr �... @MLebednik
1K Followers 2K Following God, Family, Trump and Constitution Pro 1A, 2A... 🚩No DM's if your selling something, are porn related, looking for money etc.🚩 THETHREEPERCENTERSdotORG
Mary Cahir @ChangeResponses
606 Followers 2K Following Online psychotherapist & supervisor. Equipping you with the mental health tools to live & work-better & happier. Real person, real therapy, real change!
Yvette Clemens @rm6per3yf145814
5 Followers 151 Following Pioneer Wealth: Prof. Matthew’s AI + finance pros boost profits! Free 1st month. AI scans data, experts guide stocks/crypto. Click to join now!
Denae1981 @Denae19811
10 Followers 460 Following
Mary Neumayer @UPGIRL4299
48 Followers 104 Following Servant of Jesus Christ, Homesteader and Rural Living Enthusiast. Ehlers-Danlos Syndrome, MCAS, POTS, IBS, etc... finally getting effective treatment. amen
Sunshine Girl @sunshi35152
103 Followers 527 Following me:grew up Animal House,Porkys,John Huges,mosh pits, Freestyle,Hair bands, sailboats,tattoos,soca butterfly, medicinal marijuana. chronic pain and hippie vibes
PearlyMay17 @PearlyMayJSqrl
345 Followers 2K Following MAGA patriot, dork, animal lover, Buckeye, Sjogren's\ Ehlers-Danlos\MCAS\ POTS warrior. NCSWIC!
Say Re @RosyBlue129
0 Followers 24 Following
Truth, Love & Strengt... @RNof35yrs
271 Followers 467 Following Be your authentic self. Show unwavering honesty & consistant moral courageousness. Above all value integrity,honesty, accountability and humility.
Sue @suehere6
226 Followers 2K Following
Shannon Zakaib @ShannonZakaib
146 Followers 2K Following
S Blitshteyn MD, FAAN... @dysclinic
23K Followers 2K Following Neurologist/Researcher, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic. Tweets🚫med advice. Opinions my own.
Dysautonomia Intl. @Dysautonomia
26K Followers 352 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Jeannie Di Bon @jdibon
11K Followers 1K Following Hypermobility Specialist | Movement Educator | Author of "Hypermobility Without Tears" | https://t.co/apnb28QjwY | Founder & CEO of The Zebra Club
Hypermobility MD: Dr ... @BluesteinLinda
9K Followers 697 Following 🦓 Mayo Clinic trained EDS, HSD, MCAS & Pain expert🎙Host Bendy Bodies Podcast 🩺Information, not medical advice.
Renuka Dhinakaran @renudhinakaran
6K Followers 654 Following International Labour Lawyer Patient Advocate for #hEDS #POTS #LongCovid Focusing on marriage, parenting & chronic illness
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
OhTWIST.bsky.social n... @H2OhTwist
8K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
The Ehlers-Danlos Soc... @TheEDSociety
24K Followers 5K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Monica Verduzco-Gutie... @MVGutierrezMD
26K Followers 7K Following Professor & Chair of Rehabilitation Medicine in SATX | #Physiatry #LongCovid | brain doc, mom, runner | my ideas
ME/CFS News @MECFSNews
14K Followers 672 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Jennifer Brea🦒 @jenbrea
36K Followers 2K Following Filmmaker @4mmfilm @unrestfilm @longroadhomedoc. @MEActNet co-founder. Dropped out Harvard Poli Sci/Stats Ph.D after virus. #MECFS, #longCOVID
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 6K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Julie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Erin C. Sanders, MSN,... @ErinSandersNP
18K Followers 8K Following Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT/Stanford | Connector | Healing in my Garden | #JusticeAccomplice
Meghan O'Rourke megha... @meghanor
21K Followers 2K Following Author of NY Times Bestseller THE INVISIBLE KINGDOM: REIMAGINING CHRONIC ILLNESS, a finalist for the National Book Awards. Editor, The Yale Review.
🕸️Dr.T, PhD @chydorina
18K Followers 6K Following PhD in Biology (not an MD). Cognitive health and chronic disease recovery.
angela mv/p 💁🏻�... @ItsAngInLA
3K Followers 2K Following 🦠 personal #LongCOVID clinical research social acct | she.he.ella.èl| Los Angeles 🐦🙋🏻♀️ #NEISvoid #MCAS #hEDS #HyperPots #MECFS #UCTD #MigraineChat
Amy Proal, PhD @microbeminded2
30K Followers 5K Following Microbiologist at @polybioRF: studying how persistent pathogens drive inflammaging, mitochondrial dysfunction & cognitive decline #longcovid #lyme #alzheimers
Beth Swanson @write4chocolate
329 Followers 1K Following #writer #PT - chronic illness, health, parenting ❤️ mountains, summer, sun and Ivie 🐾 #hEDS 🦓 Healthcare is a human right 📧 [email protected]
Jane Green MBE FCCT c... @JGjanegreenMBE
6K Followers 4K Following Chair @SEDSConnective Volunteer NeurodivergenceHypermobility MA Ed. exAHT/NED FELLOW Autodidact Adviser PCAG CDC Parent/Carer Disabled often discombobulated 😶
JeanneWrites @JeanneMcArdle
805 Followers 1K Following Cornell MPS Communication. Narrative Medicine CPA. Chronic dynamic illness/Disability: cEDS, Graves’, hyperPOTS. #Writer.
Provide Aimovig for m... @PutAimovigOnNHS
844 Followers 1K Following Group of migraine patients calling for 'life changing' new medicine Aimovig to be provided on the NHS -- Emphasis now on 'provided' as many trusts still won't
Rebecca Ryan @DrRebeccaRyan
7K Followers 888 Following Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS, hEDS.
SuttonStracke @SuttonBStracke
191K Followers 330 Following Official Cast member of #RHOBH, Owner/Founder SUTTON and SUTTON Brands @bravotv. press opportunities please contact [email protected]
Scott Hadland, MD @DrScottHadland
52K Followers 2K Following Pediatrician 👨🏻⚕️ • Chief of Adolescent Med at MassGeneral • Associate Prof at Harvard Med • NIH researcher • Husband & dad of 2 kiddos • 🇨🇦 in 🇺🇸 & 🌈
Israel ישראל @Israel
1.9M Followers 5K Following Israel’s official X account. Run by @IsraelMFA team.
Avi Mayer אבי מא... @AviMayer
343K Followers 9K Following Founder, https://t.co/904G6eDonQ / Former Editor-in-Chief, The Jerusalem Post / 🇺🇸🇮🇱 / Pretty Jewish. No big whoop. / [email protected]
U.S. Embassy Jerusale... @usembassyjlm
142K Followers 195 Following This is the official account of U.S. Embassy Jerusalem. 🇺🇸🇮🇱 Terms of Use: https://t.co/jHse6ERdsl
Ministry of Defense @Israel_MOD
178K Followers 53 Following Official X account of the Israel Ministry of Defense
The Jerusalem Post @Jerusalem_Post
893K Followers 956 Following Israel's English-language paper. Delivering the need to know since 1932. Newsletter: https://t.co/IykJV8iwgL
The Times of Israel @TimesofIsrael
656K Followers 184 Following The one-stop news site for Israel, the region & the Jewish world.
Israel Defense Forces @IDF
3.3M Followers 35 Following Official IDF X account. We post real-time information and updates from the field.
Israel War Room @IsraelWarRoom
465K Followers 7K Following Israel’s enemies do not sleep. Neither do we.
Dr. Sabine Hermisson ... @SabineHermisson
6K Followers 4K Following PD Dr. (empirical education research, religion) mother of Mila who suffers from very severe ME/CFS (Bell 0) #LearnAboutME
Beth Shelburne @bshelburne
30K Followers 5K Following Journalist, writer, investigative reporter, podcaster. Heart attack survivor, pal to assorted humans. Mostly brave except with roaches.
Evan @evan7257
24K Followers 20K Following Houston Chronicle editor of opinion and community engagement. Dad. Husband. Constant gardener. I no longer love our technodystopian future. Build the Ike Dike.
Keri Blakinger @keribla
59K Followers 2K Following Reporter @propublica. Fellow @newamerica. Priors: @marshallproj @latimes @HoustonChron. Author: Corrections in Ink. Journalist, felon. (I promise I don't bite)
Russell Norris @Norrisra502
95 Followers 145 Following
Marat Fudim, MD MHS @FudimMarat
5K Followers 953 Following Duke Cardiology, 🇺🇦+🇩🇪+🇺🇸, #HeartFailure. Views expressed are my own and do not reflect the views or opinions of my employer.
Alissa🕸hEDS manage... @badelastic
714 Followers 235 Following multimedia director 💻🎨| this is my alt acct for sharing research & ideas re: managing #EDS #hEDS #HSD #POTS #MCAS #TMD + dynamic disabilities. she/her 🖤
Tae Chung @TaeHChungMD
60 Followers 60 Following Director, Johns Hopkins POTS Program Johns Hopkins University
Gabriel Bosslet @gbosslet
31K Followers 7K Following No longer here You can find me on bluesky with the same handle
Dania Palanker @DaniaPal
2K Followers 633 Following Georgetown Ctr on Health Insurance Reforms, private insurance, pain policy, women's health. https://t.co/AyuTelFHi0 & https://t.co/Lj1YToY2cZ
RemissionBiome MECFS/... @remissionbiome
10K Followers 979 Following Project run by @renegaderes, a non-profit 501c3 focused on #MECFS & #LongCovid • https://t.co/kbmqa2yImN • https://t.co/IkTfALVBWC💙 Donate now ▶️ https://t.co/yNyiFapV80
hEDStogether @hEDStogether
3K Followers 158 Following Putting our #hEDStogether to co-create research with academics, health professionals, third sector, family & people with #HSD #EDS #POTS (& related conditions)
Dr. Nicole LePera @Theholisticpsyc
1.2M Followers 321 Following Join my private healing community @selfhealerscirc 👇🏼
How Things Are Manufa... @fastworkers6
791K Followers 9K Following This is official Twitter account for How Things Are Manufactured. Stay with us
Summer Dashe @SummerDashe
5K Followers 1K Following TV Journalist → Chronic Illness Plot Twist → Biotech ✨ Still telling stories, just with more science. 🧬 Head of MarCom at @ChronicleBioAI
Asha Rangappa @AshaRangappa_
728K Followers 653 Following Fmr FBI Special Agent, lawyer, @JacksonYale. Tiger(ish) mom. @abc legal contributor. Editor @just_security. Steam mop influencer. Views mine.
Dalia M. @DCCancerDoc
86 Followers 381 Following Cancer Doctor in Washington, D.C. Sherlock loving Hematologist Oncologist. Data science and informatics lover. Reality 🧜♀️ 🎹 🎤⚽️
Anne Veir @AnneVeir84
12 Followers 69 Following
Nila Jones @NilaJones3
382 Followers 1K Following Mastodon (@[email protected]) Same name, without the number, on many sites Still sorting out where I will spend most of my time
Dr Philip A McMillan @philamillan
3K Followers 1K Following Physician, COVID-19 Autoimmunity, Everything COVID-19 https://t.co/p9RVyyKAA5, Long Covid Analysed https://t.co/MP7tucQBHM, Dementia Authority
Georgia Elle @_memyselfandwhy
1K Followers 294 Following 26, world champion gymnast turned sick person w/ #MyalgicEncephalomyelitis. The account where I accept it + vent, thank you for listening 😇 #mecfs #pwme
Ivy Gabriel @IvyGabriel15
474 Followers 1K Following
Alicia Boynton @Alicia_Boynton
37 Followers 70 Following PhD candidate researching human biomechanics
lisa sigell @LisaSigell
9K Followers 4K Following Journalist Emmy/Murrow award winning Anchor/Reporter/Producer - Frmr. CBSLA/KCAL9 /Medical-Health-People Making A Difference
Michal Tal, PhD @ImmunoFever
15K Followers 10K Following Immunoengineer @MITdeptofBE finding new ways to MEASURE and interpret #inflammation #SexDifferences #ChronicLyme #LongCOVID. Mom of 2. prev/ @Yale, @Stanford.
Jennifer L. || Health... @jennlagemann
686 Followers 795 Following Personalized marketing consultant and cmo for healthcare and health tech brands | operations + recruitment + training expert
Sarah Schafer MD MPH @SarahSchaferMD
4K Followers 2K Following MD-patient dedicated to improving timely diagnosis and comprehensive care for Sjogren's disease, a common, serious, multi-system disease, NOT a sicca syndrome
Sarah Cohen Solomon, ... @TheBendyPedMD
1K Followers 669 Following Pediatrician, healthcare & disability advocate, writer, artist. #hEDS and friends. Good medicine starts with #empathy. Opinions my own. She/her.
Gigi Robinson® M.S.,... @itsgigirobinson
1K Followers 2K Following 👑 building @hostsofinfluence® @creatoretiquette™ 🐶 @zekeandtrixie 💌 [email protected] 🎤 speaker & creator 💻 writing book 2, author @dkbooksus
connectivetissuemd @dr_irman
1K Followers 326 Following Clinical geneticist. Expert in connective tissue disorders and adult complex diseases










