Doctors with M.E. @DoctorsWithME
The global professional association for medical practitioners, scientists and researchers in the field of #MECFS, #LongCovid and related postviral disease doctorswith.me Global Joined February 2021-
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Followers5K
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Following292
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Likes2K
Doctors with M.E. retweeted
It's time that everyone stopped gaslighting ME and Long Covid patients. These are real and devastating conditions, however politically convenient it might be to deny them (and to deny benefit payments to the patients!). Those who attack and mock pile suffering upon suffering.
Myalgic encephalomyelitis: Lives devastated - and sufferers told it's made up
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Doctors with M.E. retweeted
ME Association receive apology from @OUHospitals regarding 'offensive’ job advert We have now received an apology from the Oxford University Hospitals Trust NHS Foundation Trust and Dr Shepherd will be writing to thank them for taking this action. meassociation.org.uk/6s4y
Doctors with M.E. retweeted
CONTENT WARNING: A decision made for death rather than life with myalgic encephalomyelitis (ME). My heart is with Celine's family and all those who are affected by this, particularly those who still continue to live with ME.
Dank je wel Céline Corsius! De ME-community heeft de afgelopen tijd intens meegeleefd met Céline Corsius die vandaag op 32-jarige leeftijd is overleden. Céline was open over haar euthanasiewens en deelde de fases die ze in dit proces doorliep. Een moedige stap. Haar activisme
Doctors with M.E. retweeted
My mini-review on the viral origin of ME/CFS is now available in PLOS Pathogens tinyurl.com/mskfbuzu. Special thanks to @cstroeckw and @Tempi_Stiftung for helping to fund my enterovirus research.
Doctors with M.E. retweeted
New free short module on severe ME by Dr. Nina Muirhead @DoctorsWithME mecfs-med-ed.org/2023/08/09/new…
Doctors with M.E. retweeted
📢 Join us on #SevereMEAwarenessDay and take part in our FREE educational activity featuring 5 MCQs on Severe Myalgic Encephalomyelitis (ME). Expand your understanding of this condition and receive a 0.5 Hour #CPDCertificate. 👉🏽 bit.ly/47meeCq #ClinicalKnowledge
Doctors with M.E. retweeted
This year's theme for #WorldMEDay centers around #PEM. @WorldMEAlliance co-chair and Solve M.E. CEO Oved Amitay notes, “To avoid prolonging and intensifying the suffering of millions, providers must listen to and believe those who experience PEM.” #WorldMEDay #LearnFromME
Doctors with M.E. retweeted
Amazing seeing so many buildings lit blue for #WorldMEDay and #WorldFibromyalgiaDay 💙💙💙
🌎 As an act of support for #WorldFibromyalgiaDay, #TorreGlòries will be lit up from 20h onwards to help raise awareness for this chronic condition and those affected by it. #SFCEm #SSC #SQM #EHS @ACAFssc
Doctors with M.E. retweeted
Excited to join the Cornell ME/CFS Center in examining the skeletal muscle cellular basis of chronic fatigue. Thanks to our PI @DrMaureenHanson and many collaborators in NYC and Ithaca, and to @NIH @NIAIDFunding for supporting critical research on this understudied syndrome.
A @Cornell multidisciplinary research center that studies chronic fatigue syndrome has received a $9.5M grant from @NIH – funding that will enable experts to continue work on the mysterious and debilitating condition. @NIAIDFunding @KrishnaWriter news.cornell.edu/stories/2023/0…
Doctors with M.E. retweeted
Results of a collaboration between the Cornell and Columbia NIH ME/CFS Centers have now been published in JTM. Analysis of plasma proteins and extracellular vesicle cytokines distinguishes ME/CFS from healthy at 86% accuracy. tinyurl.com/2yjjavdj
Doctors with M.E. retweeted
This evening I had the pleasure of hosting the @hope4mefibroni conf., which ended w/ an amazing joint-announcement from @QUBelfast & @UlsterUni that they will be including ME into their medicine courses. Seismic for patients who have campaigned for greater understanding of ME!
Doctors with M.E. retweeted
@PutrinoLab Whitney Dafoe. Sick with Severe ME since 2008
Doctors with M.E. retweeted
ME/CFS is a highly debilitating neurological disease affecting systems throughout the body. 25% of people with ME are housebound or bedbound, and only ~13% are able to work full-time. People with severe ME are often forced to exist in their beds in isolation for years. #SevereME
Doctors with M.E. retweeted
[TW: story about severe ME/CFS] Some time ago, a person with severe #MECFS requested that I visit with them. It has been a while since I was there and I’m still working through everything I heard and saw that day. This person had been unwell for many years and their (1/)
Doctors with M.E. retweeted
May 12 is #MECFS International Awareness Day. We stand together with the millions of people who suffer from ME/CFS & other chronic illnesses. Learn more about ME/CFS bit.ly/3p2bng6 #MECFSAwarenessDay
Doctors with M.E. retweeted
Nice to see this from the prestigious US Centers for Disease Control & Prevention "On May 12, 2023, CDC will “light up” its Atlanta campus in blue in recognition of ME/CFS International Awareness Day". Also has its own CDC page cdc.gov/me-cfs/resourc… #WorldMEDay #MEcfs #PwME
Doctors with M.E. retweeted
Really excellent resource from @LongCOVIDPhysio @WHO On SAFE #Rehab post #Covid #LongCovid #MedTwitter #PhysioTwitter Safe Long COVID Rehabilitation — Long COVID Physio longcovid.physio/long-covid-vid…
Doctors with M.E. retweeted
Come and join me tomorrow to learn more about #EDS #hEDS/#HSD #MCAS and the risk of being falsely accused of #FII. It will be recorded and available later if you are busy! #FIIAwarenessWeek2023 @ehlersdanlosuk @TheTroubleClub @HMSACharity @MastCellAction @Andy_Bilson @DrHannahBB
Doctors with M.E. retweeted
Janet Dafoe @JanetDafoe
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Adam @ABrokenBattery
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Sten Helmfrid 🇺�... @StenHelmfrid
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Dr Asad Khan FRCP FRA... @doctorasadkhan
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Carole Bruce @CaroleBruce17
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Katy B @KatyBruce108
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Sibylle Dahrendorf �... @sibylle_berlin
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Lara @lara64390
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Anita White. 😷 @RealAnitaWhite
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Lauren Deleon @LaurenDel40537
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S @S1m681155011
171 Followers 748 Following
Rachel_LC @LongCovidRehab
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Jacqui, by kind permi... @JacquiL83810712
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Peter Hope @IPeterHope
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Emily @emily_3391
38 Followers 516 Following 🇨🇦 Canadian. 33 yo. Bedbound w severe long covid since '23. suspected POTS. prior social media manager. living w parents who don't understand this illness
James Pipes @james_pipes
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Adam @ABrokenBattery
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Sten Helmfrid 🇺�... @StenHelmfrid
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Dr Asad Khan FRCP FRA... @doctorasadkhan
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S Blitshteyn MD, FAAN... @dysclinic
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Michael VanElzakker @MBVanElzakker
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#MEAction Network @MEActNet
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ME Advocacy Network A... @MEAdvNetAu
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Steve Gardner @showcasebio
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Daniel Missailidis, P... @DanMissailidis
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Dr Siobhan O'Dwyer @Siobhan_ODwyer
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Virginia Buysse, PhD ... @VirginiaBuysse
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Lesley Macniven ✍�... @lesleymacniven
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European ME Alliance ... @EUROMEALL
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DocValerie @Doc_Valerie
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Ravi Veriah Jacques @RaviHVJ
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Charlotte Blease, PhD @crblease
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Monica Verduzco-Gutie... @MVGutierrezMD
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RTHM @RTHM_Health
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Stanford Healthcare I... @StanfordHIL
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qaz @bikerun22
57 Followers 249 Following Undergrad at Johns Hopkins, 1991; MD at Baylor College of Medicine, 1995
intuition @intuiti46845507
19 Followers 40 Following Horror film buff, ME/CFS and dysautonomia battler, out-of-action consultant doctor/researcher (MBBS, PhD), basement dweller. Not necessarily in that order.You might like
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