EPSET Project @EPSETproject
The EPSET Project. Working with patients, researchers and health professionals to find the most important outcomes to measure for adults with epilepsy. epsetproject.org International Joined September 2021-
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Round 2 of EPSET Project Survey is open, and will close on 9th December 2022! For those that have completed Round 1 please check your email inboxes. Many thanks for sharing your views and shaping future epilepsy treatment studies by defining the critical outcomes to capture.
.@_JWMitchell presenting the first results of our worlwide @EPSETproject of development of core outcome set for adult epilepsy treatment trials - more to follow ! @AmEpilepsySoc #aes2022
For: 1. Adults with #epilepsy (18 years & older) 2. Advocates for adults with epilepsy (inc. family members & caregivers) 3. Healthcare professionals who regularly assess & treat adults with epilepsy 4. Researchers assessing effectiveness of epilepsy treatments
The EPSET Project Survey has been extended to 14th September! The ILAE Big Data Commission want to hear your views on which outcomes should be prioritised in future research testing whether treatments for #epilepsy are effective and safe. Survey open now delphimanager.liv.ac.uk/EPSET/
Survey available in English, Français, Italiano, Español, Deutsch, Dansk, & Русский! Visit epsetproject.org
@JaneBea5 @_JWMitchell @mindsofepilepsy @EpilepsyRUK @IlaeWeb @epilepsy_fdn @BCEpilepsy @rkalviainen @COMETinitiative @frenchja @wiebe_ilae @epilepsyaction Hi @JaneBea5 many thanks for your interest in completing the EPSET survey. Please visit delphimanager.liv.ac.uk/EPSET If possible, this is easier to complete on a computer rather than a mobile device for functionality reasons. Any issues please email [email protected].
Do you have epilepsy, or treat people who have epilepsy? Take part in a 10-minute survey and tell us what's important to measure when deciding if epilepsy treatments work. Shape the future of clinical trials by sharing your views @EPSETproject delphimanager.liv.ac.uk/EPSET
Queremos saber de 1) adultos con epilepsia y sus representantes 2) profesionales de la salud y 3) investigadores. ¡La encuesta está abierta ahora! delphimanager.liv.ac.uk/EPSET-ES/ (2/2) #epilepsy
Nous voulons entendre 1) les adultes atteints d'#épilepsie et leurs représentants 2) les professionnels de la santé et 3) les chercheurs. Enquête ouverte dès maintenant ! delphimanager.liv.ac.uk/EPSET-FR/ #epilepsy
@drcolindunkley @IlaeWeb The @CASTLE_Epilepsy group have developed and published Core Health Outcomes In Childhood Epilepsy (CHOICE) recently, using COMET methodology: doi.org/10.1111/epi.14… The @EPSETproject builds on this work for adults with epilepsy. Survey open now: epsetproject.org
The #ILAE Big Data Commission asks you to share your views to inform a Core Outcome Set for future #epilepsy clinical trials. We want to hear from 1) adults w/epilepsy & their representatives 2) healthcare professionals & 3) researchers. Survey open now! delphimanager.liv.ac.uk/EPSET/
Please visit epsetproject.org/how-to-take-pa… to complete the survey and contribute to the Core Outcome Set, to ensure future research is relevant to people with #epilepsy, and to reduce research waste in clinical trials.
The EPSET Survey is still open, to complete in English, Français, Italiano, Español, Deutsch, Dansk, & Русский! Please share your views and shape the content of the Core Outcome Set: delphimanager.liv.ac.uk/EPSET
Thanks @EpilepsyRUK. Share your views and help us decide what should be measured to determine if treatments for epilepsy work. Survey open now! delphimanager.liv.ac.uk/EPSET
We are proud to be supporting the @EPSETproject, which is developing the first-ever Core Outcome Set (COS) for adults with epilepsy to ensure issues important to patients are considered in clinical research. Read more and see how you can get involved here: epilepsyresearch.org.uk/epset-survey-c…
Really important - what should be prioritised in #epilepsy research? Have your say - patients, carers, clinicians and researchers. 👇🏻
Researchers at the University of Liverpool are interested to hear your views on which outcomes should be prioritised in future research testing whether treatments for #epilepsy are effective and safe. Survey open now delphimanager.liv.ac.uk/EPSET/
Thanks @JMGraglia and to @EpilepsyFdn for the opportunity to talk about Core Outcome Sets for epilepsy trials. @EPSETProject online Delphi now open in 8 languages, share your views and help shape the final Core Outcome Set for adult effectiveness studies. epsetproject.org
@_JWMitchell and team @LivUni are working on a #CoreOutcomeSet #COS for phase III adult #epilepsy studies. These do need yet exist but are needed. 40 metrics are identified and you can opine here: epsetproject.org/how-to-take-pa… #clinicaltrialdesign
An important project that needs the support of all the epilepsy community to make lasting and meaningful change to epilepsy trials given it is International Clinical Trial Day - no better time to complete it! #InternationalClinicalTrialsDay2022 #WhyWeDoResearch
Have your say to help develop a Core Outcome Set for future epilepsy clinical trials. We want to hear from 1) adults with epilepsy & their representatives 2) healthcare professionals and 3) researchers. Survey open now! delphimanager.liv.ac.uk/EPSET/
Survey now live! Please share your views to shape future epilepsy research trials. @theABN_Info funded research @_JWMitchell. @IlaeWeb @yesILAE @ILAEBRITISH @epilepsyaction @ResearchNetERUK @ep_professional @COMETinitiative
Have your say to help develop a Core Outcome Set for future epilepsy clinical trials. We want to hear from 1) adults with epilepsy & their representatives 2) healthcare professionals and 3) researchers. Survey open now! delphimanager.liv.ac.uk/EPSET/
Have your say to help develop a Core Outcome Set for #epilepsy clinical trials. We want to hear from 1) adults with epilepsy & their representatives 2) healthcare professionals 3) researchers Survey open: delphimanager.liv.ac.uk/EPSET/ @_JWMitchell @epilepsy_liv @livuniHLS
@AmEpilepsySoc Thanks @AmEpilepsySoc. For more information please visit epsetproject.org @epilepsy_liv
Have your say to help develop a Core Outcome Set for future #epilepsy clinical trials. We want to hear from 1) adults with epilepsy & their representatives 2) healthcare professionals 3) researchers Survey open now: delphimanager.liv.ac.uk/EPSET/ @_JWMitchell
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