The EsPE study @EpilepsyStudy
We're 4th year MPharm students Do you or someone you care for use epilepsy medicines? We're researching Pharmacists roles for people with epilepsy! We need you Medway School of Pharmacy Joined September 2019-
Tweets96
-
Followers145
-
Following617
-
Likes50
Happy New Year Everyone! Sorry we havent been so active on here. Our team are all busy writing up the study. A big Thank You once again to all our participants😊
Never let epilepsy hold you back. Show others the strength & courage that comes along with your fight 💜 #epilepsy
We will soon be drawing out the incentive winner, if you have entered please keep an eye out for that email. Thank you all once again.
The questionnaire is now closed. On behalf of the EsPE team, we would like to Thank everyone who has retweeted, shared and paricipated in our study.
Tomorrow at 11.59pm the questionnaire will be closed. Thank you to everyone who has participated.
ONE DAYS LEFT! Do you live in the UK and have Epilepsy or know someone who does? Please fill out our questionnaire for a chance to win a £20 Amazon Voucher. espestudy.squarespace.com Please retweet and share.
TWO DAYS LEFT! Do you live in the UK and have Epilepsy or know someone who does? Please fill out our questionnaire for a chance to win a £20 Amazon Voucher. espestudy.squarespace.com Please retweet and share.
I’m excited to announce we will be releasing the blog by @ScarlettFierce on her epilepsy tomorrow - PM me if you’d like to get the @EpilepsySparks blogs via email. #epilepsy
This @EpilepsyStudy by final year students at @Medway_Pharmacy is establishing the roles of pharmacists in supporting people with epilepsy. If you have epilepsy or care for someone with the condition then you can take the survey here (closes 27/11) espestudy.squarespace.com/?fbclid=IwAR0c…
Do you have epilepsy or do you care for someone with the condition? The @EpilepsyStudy study needs you! The research is being conducted by students at @Medway_Pharmacy and led by epilepsy specialist Dr Trudy Thomas. Take the survey here (closes 27/11): espestudy.squarespace.com/?fbclid=IwAR0c…
ONE WEEK LEFT! Do you live in the UK and have Epilepsy or know someone who does? Please fill out our questionnaire for a chance to win a £20 Amazon Voucher. espestudy.squarespace.com Please retweet and share.
An empowering talk from Fiona Scolding QC on family rights & obtaining a Educational & Healthcare Plan. “As parents of disabled children you have legal rights, don’t be afraid to use them!” #DSUKLondon19 #DravetSyndrome
Weekend of QI starting now. @Epilepsy_12 @RCPCHtweets @RCPCH_and_Us
You have less than 2 weeks to complete the #survey espestudy.squarespace.com We need your #Opinion Spread the word. Participate whilst you can #pwe #epilepsyAwarenessMonth #epilepsy @TorieRobinson10 @EpilepsySparks @Michelle_CCox @SimonPrivett @ryanmcgrath1
Are you a person with #epilepsy or care for someone who does? We need your opinions! #participate via espestudy.squarespace.com #epilepsyAwarenessMonth There's a chance to #win £20 Amazon #voucher #prize
“I Am Not Epilepsy. I Am Rebecca.” Read the guest blog by the inspiring Rebecca McGhee! She speaks of her #epilepsy challenges & how Epilepsy Connections have massively changed her life!! epilepsysparks.com/blog
People with epilepsy display a 4–5 higher rate of depression and suicide compared with the healthy population. #epilepsy #mentalhealth @ElsevierConnect (Barbara Błaszczyk & Stanisław J. Czuczwar) sciencedirect.com/science/articl…
Are you a person with #epilepsy or care for someone who does? We need your opinions! #participate via espestudy.squarespace.com #epilepsyAwarenessMonth There's a chance to #win £20 Amazon #voucher #prize
Cool blog - Georgina from @Medway_Pharmacy explains how Pharmacists 👩🏼⚕️💊 play a key part in the healthcare for those with #epilepsy - and they are doing a quick study to find out how they can help us more (take part!) - 2min read ⬇️ Pls RT! epilepsysparks.com/Pharmacists-He…
Thanks @TorieRobinson10 for your work in raising awareness of #raredisease #epilespy #DravetSyndrome! Looking forward to seeing you at the #Dravet conference on 15th Nov globalgenes.org/2019/11/07/rar…
This is so inspirational, its mind blowing how far we as society have come in terms of HIV care and management and its so good to see so much support there is all around the world- imagine what we can achieve in the next coming years- lets keep going 💪💪💪 #HIVHasChanged
Katelyn Mann @kate_mann97
11 Followers 401 Following
Darja Montague @DarjaMontague
2 Followers 83 Following
Dr Chandandeep Kaur @DrChandandeep
565 Followers 5K Following Science Communicator | Cancer Biology | Molecular Biology | Epigenetics | Gene Sequencing | Future of Health @ Happiest Health. Instagram - scihealthfacts
NPRL3 Gene Duplicatio... @NPRL3_Gene
349 Followers 1K Following Familial NPRL3 gene (C16orf35 ) mutations. Son diagnosed w/ #Epilepsy, #ASD, #ADHD & others. Proud Campbell’s Crusaders. aka @goggles_pi007 #EpilepsyAwareness
Caoimhe Twohig-Bennet... @CaoimheBennett
824 Followers 1K Following Director of Research at the Centre for Global Epilepsy, @WolfsonCollege @UniofOxford. Pronounced Kwee-va. Views my own. @caoimhebennett.bsky.social
#Every1EndingEpilepsy @Every1Epilepsy
279 Followers 573 Following A national epilepsy research collaborative, funded and led by the Epilepsy Research Institute @EpilepsyInst.
Bernadette Booysen @BernadetteBooy0
499 Followers 3K Following I am a person with epilepsy and author of books about epilepsy! Spreading epilepsy awareness!🌹
Laura Scislo @UnderDeadOHSky
16 Followers 2K Following #StargazedNConfused #CapriquariusCusp #CLE_Libras #UnderADeadOhioSky
Drew @drewids2015
31 Followers 997 Following
The Training Pharmaci... @thetpharmacist
213 Followers 368 Following FREE GPhC Style Trainee Pharmacist Revision Platform 🌐 📱 Supporting the next generation of Pharmacists 💊 One question at a time 📚 Sign up today 👇🏽
Marina Yurik @YurikMarina
1 Followers 15 Following
Jennifer Walkup @JennWalkup
3K Followers 2K Following Optimist. Author. Artist. Lover of Life. Young Adult & nonfiction books: SECOND VERSE, THIS ORDINARY LIFE, 365 DAYS OF POSITIVITY (out 10/2021).
Chris @GuyWithEpilepsy
1K Followers 5K Following Hi I'm a friendly guy with epilepsy wanting to help others by raising awareness,sharing my experiences and learning from others with epilepsy.
Alyssa M. Twine @Alyssamtwine1
884 Followers 4K Following proud epilepsy warrior, advocating for other people with epilepsy, Austin Peay student, catholic, love to write as a hobby.
Denise @PugMomma4Life
426 Followers 4K Following #pugmom #specialneedsfamily #pug #pugchat #pugs #puglife #puglove #doglife #dogsoftwitter #dogfriendly
Leighjr 🏴�... @Leighjr
547 Followers 598 Following Loves Europe, Hates EU, Epileptic, Left Handed Taurus 👍 I will use your pro-nouns after you tattoo them on your forehead 😉
🅹🅴🆂🆂🅸�... @Jessica_97696
26 Followers 2K Following Hi, I’m bored!I want to meet new people.Follow me, I´ll send you my sexiest photo! 😚🍑👅
Richard Tsuma @RichardTsuma
425 Followers 2K Following A network of like minded persons from different backgrounds will always have solutions to common challenges hence success. #ClimateAction
Paparazzi @real_zakx
223 Followers 3K Following
Epilepsy Wales @epilepsy_wales
342 Followers 329 Following Working to ensure that people affected by epilepsy can access information and support to minimise the impact and risks associated with the condition.
The Voice for Epileps... @voice4epilepsy
1K Followers 679 Following Every family affected by epilepsy deserves a voice. Join us in raising awareness and fundraising to support those who need it most. 💜👇
SCN1B @b_scn1
935 Followers 5K Following Sodium channel 🧬 Epilepsy 🧬 Scn1b news & awareness 🧬 Sharing and re-tweeting SCN1B info 🧬
What’s Shakin’?! ... @whatsshakinpod
122 Followers 120 Following The honest epilepsy podcast. @epilepsysocal and @epileptic_grace host this podcast that takes a real-life look into lives of those living with epilepsy.
Ashley Scott @EpilepsyWtf
646 Followers 2K Following I'm 34 with epilepsy and fibro trying to raise a family. Like, WTF?! https://t.co/gGZZRfScLh
SMC1A Foundation @cure_smc1a
211 Followers 552 Following X-linked variants in the #SMC1A gene cause developmental and epileptic disorder.
Mickie's Miracles @mickiesmiracles
7K Followers 6K Following A nonprofit dedicated to global Pediatric Epilepsy awareness, education and advocacy to help families get an urgent diagnosis and the highest level of care.
Brain Ablaze @BrainAblaze
10K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog
MeathEpilepsyCharity @MeathCharity
2K Followers 2K Following If you or someone you care for is living with complex #Epilepsy, then we are here to help. We also fundraise through not to be missed charity events!
Erik's Own @eriksown
7K Followers 7K Following I am a #musician, #Filmmaker @edafilmsuk @beingindeseries & #Radio owner @edamusicradio http://t.co/Zwk4yde8Hd http://t.co/W9eurlaLSI
The Advocate @organicnut68
1K Followers 2K Following Advocate for epilepsy, stroke & mental health, disability discrimination, education, Americans with disabilities.
Infact - Independant ... @Infactuk
334 Followers 322 Following Infact are the registered Trust & National Campaign Group representing every affected person in the UK harmed by Sodium Valproate and other AEDs in Pregnancy
Angels Of Epilepsy, I... @AOEpilepsy
6K Followers 4K Following A 501(c)(3) Charity & Advocacy | Atlanta, GA | Join Our #iAmME Campaign | Get #TheSeizureDiary | Your Support Matters | Contact Us: [email protected]
Ramon @Rabno122
133 Followers 2K Following Doing what I can to get my family back....Lets do it🤝 Tik Tok: @nycdaddy89
TheEpilepsyNetwork @TENofficial
8K Followers 3K Following Our mission is to provide better epilepsy awareness and education to all! #FearlesslyFightingEpilepsy
Leon Legge @leonlegge32
10K Followers 2K Following Proud Husband/Father. Professional Football Player Brentford, Gillingham, Cambridge, Port Vale. @epilepsyballer MediaEnquiries: [email protected]
Charlie @charlesasteward
1K Followers 4K Following Classical music, Jazz, House; All things ancient; Christian; 70s Chelsea FC fan; Where Eagles Dare; MMA, Muay Thai.
fjohn @MulkeyFred
194 Followers 2K Following Sports NFL NBA NASCAR College Basketball Golf College Football Sports Commentary Fitness Olympics News Weather Political News Opinion News Hip-Hop/Rap R&B/Soul
👑Ashley👑 @legallynotedash
15K Followers 12K Following Contract Paralegal•Mobile Notary Public•Motivational Speaker•Member of the Texas State Bar•Author
MaríaEugeniaQuiuan @maria_quiuan
104 Followers 1K Following
Epilepsy Positivity @epilepsyposi
15K Followers 13K Following Hopjng to support people living with and affected by epilepsy and educate the general public. Mental Health Project: @mindsofepilepsy
ꏳꂦꀷꌩ ꏳꍏ�... @CMCannon321
45 Followers 940 Following proud, young, black, African, American, healthcare provider, high off ADHD, living with epilepsy and always above the 🚧 construction 🚧 and yes I smoke weed!
International Epileps... @IntEpilepsyDay
3K Followers 1K Following International Epilepsy Day is a global event celebrated annually on the second Monday in February, to promote awareness on epilepsy right around the world.
Seasalter Sounds @SeasalterSounds
276 Followers 2K Following The face of the musical underbelly. The home of Gentleman Amateur Rock 'n' Roll. Music from the marshes. Lo fi, No fi and Some fi. May also be Alex Williams.
War On Epilepsy @waronepilepsy
1K Followers 5K Following #Empowering #Epilepsy & #InterRelated Communities #Tech4Good #DoMore #BeMore #Achievemore #GoPurple, Talk about #Epilepsy #waronepilepsy #PurpleDayEveryday
R.A @mypointsview
1K Followers 3K Following These are all my personal views and opinions, what’s yours?
Marco @marcojonker15
221 Followers 1K Following I have #epilepsy and #Asperger's and #ADHD and I'm a bit of a historian also i have always wanted to be a pilot and I love cars
jlocastro @jlocastro
349 Followers 2K Following
Leila Shields @lzorzie
192 Followers 461 Following • Lee-lah • School Counselor • Epilepsy advocate • A mix of Leslie Knope and April Ludgate •
Sheila Kaur @SheilaSunder
38 Followers 2 Following
h o p e @hope_orke
37 Followers 97 Following
Mel Williams @MelWill72
107 Followers 147 Following
PriceMyPills @PriceMyPills
1K Followers 2K Following PriceMyPills not only connects you with the right, cost-effective pharmacy for your medication but also helps to connect you directly with pharmacies.
Epilepsy Research Ins... @EpilepsyInst
15K Followers 2K Following Radically advancing epilepsy research. Join the #Onein100 campaign today to help raise the profile of epilepsy and drive research forward. @ResearchNetERI
Things To Draw When B... @thingsdrawbored
874 Followers 4K Following Things To Draw When Bored is all about you! Yes, you! When you are feeling down, whether bored or anxious or even depressed, DOODLE! You will feel better!
EPIC LI @EPICLongIsland
6K Followers 5K Following 💙Extraordinary People In Care ❤️Supporting individuals with I/DD, epilepsy & mental health challenges 🌟Empowering every journey, every day.
Gabriele Lignani @gabrilignani
957 Followers 583 Following Professor of Translational Neuroscience at UCL developing innovative gene therapy treatments for intractable neurological diseases
Stephanie Schorge @s_schorge
197 Followers 27 Following A London Neuroscientist working to understand the causes of epilepsy, and to develop new treatments, including gene therapy
Lignani Lab @LignaniLab_UCL
1K Followers 636 Following Neuroscience/ Epilepsy/ Gene therapy/ Dravet Syndrome/ CRISPR/ Homeostatic plasticity/ @DceeLab / @UCLIoN
ResearchNet ERI @ResearchNetERI
942 Followers 1K Following Researcher Network of @EpilepsyInst. Radically advancing research into epilepsy. For #epilepsyresearch funding and capacity building opportunities join The Hub
Epilepsy 2021 Confere... @Epilepsy2021
789 Followers 2K Following 7th International Conference on Epilepsy & Treatment | July 26-27, 2021 | Webinar #Epilepsy #Neurology #COVID_19 #EpilepsySurgery #BrainDisorders #Dementia
Rajiv Mohanraj @neuro_manc
910 Followers 608 Following Neurologist / epileptologist @MCCNatSRFT Honorary Senior Lecturer @DNS_UOM
Carolyn Fahm @CarolynFahm
4K Followers 2K Following Retired biochemist, Physics aficionado, One remaining amygdala after laser brain surgery for epilepsy, Bereaved Mother. @ucsf, @UniSurreyBioSci, @RI_Science
Simon Shorvon @SShorvon
241 Followers 20 Following Neurologist and epilepsy specialist @StatusEpilepti1
Global Epilepsy Excha... @globalepilepsy
886 Followers 469 Following Our approach is designed to unite us all in the fight against epilepsy and help deliver promising results to the global community.
Epilepsy Prayer @charliechanfan1
13 Followers 16 Following
Hendrik Venter @HendrikVenter5
15 Followers 10 Following I'm an epileptic I'm 1.85m tall 60kg anything else can be asked I'll awnser honestly
Seize the day! @AlexisDaquila
25 Followers 6 Following Raising awareness for seizure disorders/epilepsy • Follow and share you or someone you knows story to be featured ☔️
The Epilepsy Blog @epilepsy_blog
33 Followers 58 Following I have #epilepsy and This is my blog. I want to give tips and spread epilepsy awareness
ICTALS2019 @ictals2019
51 Followers 35 Following ICTALS conference 2-5 September 2019 will be held at the University of Exeter. The theme is The Epilepsy Journey: from first seizure to treatment and beyond.
Epilepsy Aware @EpilepsyAware3
229 Followers 381 Following When snatched from the jaws of death, tooth marks are to be expected.
Epilepsy Fighter @FighterEpilepsy
47 Followers 26 Following
beccajourney2018 @beccajourney201
338 Followers 194 Following Born with epilepsy and mild cerebral palsy I want to educate as much as I can. trying to pass a new law. thanks for following my page
Annie B @Missanniebean
5K Followers 703 Following Creator of award-winning travel & fitness blog 🌍🙌 Triathlete + Adventure Epileptic💜 IRONMAN Kona World Championships 🤙 https://t.co/i9ZpUVscYQ
Caryn Jory RN, RSCN, ... @Caryn212
73 Followers 139 Following Epilepsy Specialist Nurse, for adults with learning disabilities, PHE Physical Activities Nurse Champion.
Merciless Mojo @EpilepsyDadTx
280 Followers 1K Following 2003 and 2006 Time Magazine Person of the Year.
Brooke H Cooley @Moon_Shine21
114 Followers 199 Following SAHM. Epileptic warrior. Official badass 😎
jennyme306 @Jennife97632390
63 Followers 25 Following I am an Epilepsy Advocate! I enjoy helping educate my peers. I have 3 FB support groups and one page https://t.co/Io7V675krT
Sharron Duff Mckenna @EpilepsyGroup
93 Followers 258 Following Join us on facebook , a place to talk , a fantastic support group 💜💜💜💜
War On Epilepsy @waronepilepsy
1K Followers 5K Following #Empowering #Epilepsy & #InterRelated Communities #Tech4Good #DoMore #BeMore #Achievemore #GoPurple, Talk about #Epilepsy #waronepilepsy #PurpleDayEveryday
Young Epilepsy @youngepilepsy
17K Followers 2K Following Epilepsy can be one of the most frightening and isolating conditions a child can experience. With your help, we can change that. Together we create possible.
Burt's Pharmacy @burtspharmacy
2K Followers 2K Following Serving our Conejo Valley community with a smiling face, great prices, medical equipment, fine gifts and much more! #Pharmacy #Compounding
Bradannii @Bradannii
2K Followers 2K Following NDIS Support services and more! Where there is love, there is life....where there is life, there is hope!
AngelWingsFoundation @AngelWingsFdn
670 Followers 502 Following AWF's purpose is to enhance the lives of those affected by epilepsy and allow them to reach their full potential by living independently in the community.
Michael Lynch @EpilepsySoldier
248 Followers 329 Following Guitar player from Texas dealing with Dravet Syndrome and Tonic-Clonic Epilepsy with Occipital Neuralgia.Down but never out.
Patty Livengood @LivengoodPatty
179 Followers 413 Following Epilepsy for 44 years. Been President of Neurology Awareness Fair,.Charity until Ramsey Hunt Syndrome came over Me a few years ago.Donated funds to USF Charity.
Gina Wolf Spirit @GinaWolfSpirit
299 Followers 348 Following Rune and Oracle Reader Epilepsy Advocate Young Living Distributor Team Member at Kokoro in Elmira Heights
Purple Service @PurpleEpilepsy
61 Followers 19 Following the Purple Service is a fully funded specialist therapy service for under 5s with #epilepsy conditions.With or without ASD diagnosis.Branch of @earlyasd #london
The Purple Butterfly @The_PB_projects
105 Followers 90 Following Welcome to the Purple Butterfly Project, a place where we can open up the conversation about epilepsy and mental health through humour and creativity 🦋
Michelle Barker @EpilepsyMB
218 Followers 285 Following I’m Michelle Barker and I have epilepsy but that doesn't slow me down!! Keto OS has changed my life 💎https://t.co/xvKuPmqcZd💎
Epileptic Explorer @epilepsyexplore
271 Followers 82 Following There's too much info on what people with epilepsy can't do and too little on what we can These are stories about what anyone with epilepsy can accomplish.
Mike Knox @MikeKnoxComedy
6K Followers 7K Following Not to brag but I once found a mouse in a beer bottle in Isla Vista. VNS Therapy Advocate
YourMeds @burdenofmedici1
82 Followers 326 Following Research on HIV stigma + medication experience, #UequalU #CantPassItOn #breakHIVstigma Participate in the link below https://t.co/L7dNjdHERW
secretGPPharmacist @GPpharmacist1
869 Followers 490 Following Sharing working as a CHEMICAL pharmacist AKA GP pharmacist/clinical pharmacist. ICB side-role *Intelligence based medicine*
CPMH Uni of Exeter @CPMH_UoE
209 Followers 193 Following EPSRC Centre for Predictive Modelling in Healthcare - we seek to develop methods for managing and treating chronic health conditions using mathematical models
Chris Maguire @chris_magz
2K Followers 2K Following #pharmacist and now #GlobalDirector in industry. HIV focus. Craft beer/whiskey enthusiast. ⚽️ #MUFC Irish/N.Irish living in England. All views my ownTrends for United States
You might like
