Expecting Health @ExpectHealthOrg
Expecting Health was founded by a group of women with a simple idea: families deserve and should expect more – more support, more guidance, better health. linktr.ee/expectinghealth Washington, DC Joined June 2016-
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Following956
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Embracing #rarediseaseDay today and every day because awareness is just the beginning. Our fight for #raredisease equity is a daily commitment, and together, we can make sure that no one feels alone on their journey. Visit @rarediseaseday to learn more! #showyourstripes
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In celebration of #InternationalWomensDay, we are hosting a webinar during which our presenters will share insights on the importance of women being included in #healthresearch while exploring the impact of diversity in #advocacy efforts. Register here: bit.ly/4bVHuSr
This month, we hosted a webinar that focused on the challenges the #BlackCommunity faces while navigating the #raredisease space and the healthcare system. Click this link to watch that recording now: bit.ly/4bIavkB #rarediseaseday #Links2Equity #TravereTherapeutics
Expecting Health retweeted
RSV is the leading cause of hospitalization for babies under age 1. Protect your baby from unnecessary risks: ➡ Sanitize surfaces ➡ Wash hands often ➡ Wash toys regularly ➡ Avoid large crowds Learn more about how to prevent #RSV ▶ bit.ly/3nBpxk6
Expecting Health retweeted
About 80% of Black women will have uterine fibroids by the age of 50. Black women tend to develop #fibroids at a younger age, have larger fibroids, and have fewer days between periods.
Expecting Health retweeted
The recording for our webinar, where we shared the results of our #familyleadership Survey, is now available! Click the link to learn what #familyleaders had to say about their journeys and the responsibilities that come with the role: bit.ly/3I4uhci #familyengagement
Expecting Health retweeted
New to advocacy? Don't worry! You don’t need to be an expert or an extravert to be an advocate. We'll have a live training for all advocates in preparation for our Advocacy Day! Register today! hubs.la/Q02lGn_B0 #maternalMentalHealth #maternalhealth #healthcareproviders
Expecting Health retweeted
#BMHW24 is on the way! A week packed with enlightening discussions, dynamic events, and meaningful connections aimed at advancing the well-being of Black Mamas and Birthing People. #BlackMaternalHealthWeek #ReproductiveJustice #BirthJustice #BirthEquity #BMHW2024
15 minutes until our webinar begins! Still need to register? Click here: bit.ly/4blrs4j #raredisease #healthequity #Blackcommunity
Happening tomorrow - join us as we dive into the unique experience of being Black with a rare disease. We will provide insights, share stories, and offer practical tips we can all use to raise awareness and further our collective pursuit of #healthequity. bit.ly/4blrs4j
To truly meet the needs of communities, we must actively engage and respect key stakeholders from those communities at every stage of the process. Check out these tips on how you and your organization can do just that! @WSUMedicine #healthjustice #healthequity
The last day of the Health Justice and Belonging Conference is underway, and we look forward to today's sessions! @WSUMedicine #HealthJustice #HealthEquity
Stephanie Courtney, founder of the Shades of Motherhood Network, shares with us the Black Birthing Bill of Rights and speaks on the importance of Black women understanding their rights during pregnancy and childbirth. #healthjustice
The 2024 Health Justice and Belonging Conference has just begun! Excited to attend thought-provoking sessions and hear from all the distinguished speakers. @WSUMedicine #healthjustice #healthequity
Mark your calendars so you don't miss out on our upcoming webinar! Still need to register? You can do that here: bit.ly/4blrs4j #healthequity #BlackHistoryMonth #Blackcommunity #raredisease
Expecting Health retweeted
#OvarianCancer is the fifth leading cause of death among women. This #WorldCancerDay, check out the SWHR ovarian #cancer fact sheet to learn your ovarian health risks and understand your cancer screening options: ow.ly/cSZf50Qxo5k #SWHRtalksCancer
Expecting Health retweeted
#BreastCancer is the 2nd leading cause of death among women. A woman's risk of developing breast cancer in her life is 1 in 8. This #WorldCancerDay, check out this fact sheet to learn your breast health risks & cancer screening options: swhr.org/swhr_resource/… #SWHRtalksCancer
Expecting Health retweeted
Happy Black History Month! Each week, we will honor an ancestral midwife like Mary Francis Hill Coley, who delivered over 3,000 babies and was featured in the film "All my Babies," a midwifery training video. Join us in March for #NBMA2024Conference ! bit.ly/NBMA2024Confer….
Join us on February 14th at 1:00 PM EST for a meaningful discussion about the unique challenges Black individuals face when navigating the #raredisease space. Discover ways we can collaborate to improve these experiences. Register here: bit.ly/4blrs4j #healthequity
Expecting Health retweeted
The Advisory Committee on Heritable Disorders in Newborns and Children voted Tuesday, January 30, 2024 to add #Krabbe to the RUSP. This recommendation will now go to the Secretary of HHS for approval. #newbornscreening #NBS #genetics
Amy Gaviglio @agavig
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Aishwarya Arjunan, MS... @aishuarjun
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Minority Genetic Prof... @minoritygenetic
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Natasha B. @Nat_Bonhomme
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313 Followers 538 Following The Western States Regional Genetics Network works to increase access to genetic services and education for medically underserved populations.
The E.WE Foundation @EveryoneIsWe
273 Followers 214 Following Global healthcare advocacy network for families affected by Trisomy 18 (Edwards Syndrome) and other rare and complex medical conditions.
National WIC Associat... @NatWICAssoc
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Natasha B, MS, MPH,CG... @nkrberman
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Mary Alison Momoh ANu... @alisonmaryn2013
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धापा\हॉ�... @RAMs60326917
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CYSHCNet - Pediatric ... @CyshcNetwork
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CACNA1A Foundation @cacna1a
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853 Followers 1K Following You can find me less often here, and most often 🦋🦋🦋 under the same name.
SarcasticFundraiser @SarcasticFund
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Lettercase @lettercaseorg
326 Followers 325 Following Lettercase is a medical outreach program under the University of Kentucky's Human Development Institute.
Tricia Hall @BiochemG_thall
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Ruthanne Sheller @Ruthanne_APHL
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Unconditional Love In... @Uncondi81938022
56 Followers 77 Following Free Rapid #HIV and Hep-C testing. HIV primary, specialty care, and case management. Hepatitis-C treatment. STD/STI screening and treatment. #PrEP #PEP
Eliza Lo Chin, MD, MP... @ElizaChinMD
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Rare-X @RareX_2024
85 Followers 323 Following Rare-X 2024, Africa's leading conference on rare disease treatment and access, will be taking place at Indaba Hotel, Johannesburg from 14-17 February 2024
Urea Cycle Disorders ... @UCDConsortium
190 Followers 78 Following The UCDC is dedicated to improving the lives of individuals affected by urea cycle disorders. An international collaboration, part of NIH RDCRN @rarediseasesnet
ThinkGenetic Foundati... @ThinkGeneticFdn
63 Followers 126 Following A Non-Profit 501(c)3 Charity Helping to Educate and Empower Those Living with Genetic Conditions #raredisease #genetics
NOAACF @noaacf
114 Followers 30 Following The mission of the National Organization of African Americans with Cystic Fibrosis is to engage, educate & raise CF awareness in the African American community.
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Amy Gaviglio @agavig
388 Followers 310 Following Founder, Connetics Consulting | Genetic Counselor | Public Health Genetics/Rare Disease Consultant. Lover of challenging discourse. Tweets are mine.
Aishwarya Arjunan, MS... @aishuarjun
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3K Followers 2K Following We are a space for racially & ethnically diverse professionals & students in genetics to connect & support increased access to services in minority communities.
Genetic Counselors @GeneticCouns
15K Followers 583 Following National Society of Genetic Counselors (NSGC) is the leading voice, authority and advocate for the genetic counseling profession. RT does not equal endorsement.
Natasha B. @Nat_Bonhomme
835 Followers 2K Following Putting families at the center of health- Founder @ExpectHealthOrg - Dir. @BabysFirstTest_ #maternalhealth #BlackInGenetics Travel and Patio time 🙌🏾 🇭🇹
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National Coordinating... @NCCRCG
985 Followers 900 Following Join us for the 5th Annual Public Health Genetics and Genomics Week from May 20-24. #PHGW #PublicHealthGenetics #PublicHealthGenomics Retweet/likes≠endorsement
Baby's First Test @BabysFirstTest_
161 Followers 258 Following Baby's First Test is the nation's newborn screening education resource center for families and health professionals.
ReproductiveHealthImp... @rhimpact__
8K Followers 2K Following Creating a world where Black communities can achieve our full potential for reproductive health, wellbeing, safety, and joy.
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EveryLife Foundation @EveryLifeOrg
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Genetics Policy Hub @GeneticsPolicy
203 Followers 141 Following Latest US genetics policy information. Information posted is for educational purposes only. Posts/follows/reposts/likes≠endorsement. Run by @nccrcg.
WSRGN @WSGSC
313 Followers 538 Following The Western States Regional Genetics Network works to increase access to genetic services and education for medically underserved populations.
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273 Followers 214 Following Global healthcare advocacy network for families affected by Trisomy 18 (Edwards Syndrome) and other rare and complex medical conditions.
MomsRising @MomsRising
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March of Dimes @MarchofDimes
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U.S. Breastfeeding Co... @USbreastfeeding
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HRSA @HRSAgov
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CDC Division of Repro... @CDC_DRH
7K Followers 138 Following This account is no longer active, and our content has moved to https://t.co/qNUjEzBZx8. Follow us there for more.
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RareDiseaseDiversityC... @rarediseasediv1
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Baebies @baebiesinc
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RUN @rareundiagnosed
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