FTDtalk @FTDtalk
We are the @jonrohrer lab @UCLIoN - our work aims to help people with frontotemporal dementia and associated disorders - we run the @GENFI1 FPI @EDoFTD studies ftdtalk.org London, England Joined December 2012-
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The EDiT-FTD programme will take place over 1 year with 2 workshops at the start and end and online meetings between. The group includes clinicians, researchers, ethicists, big data scientists and importantly members of FTD families living at risk of FTD.
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Great to be at @JPNDeurope meeting on digital technologies in frontotemporal dementia today. A jointly led meeting between @UCLIoN and Erasmus Medical Centre in Rotterdam - @rhianconvery Jackie Poos. EDiT-FTD is a 1 year programme to develop a roadmap for implementation. #endftd
FTDtalk retweeted
Check out one of our physicians on our SAB @jonrohrer bringing understanding and light to the path forward with families impacted by genetic FTD! #endftd @theftdbrothers
💙 Agnès' reaction to hearing Jordan may be able to get into clinical trials says it all for us. Investment in research brings us all hope for the future. #LoveLossAndDementia @Channel4
FTDtalk retweeted
Great to be involved in this documentary along with @jonrohrer - an exploration of the impact of dementia on families including those at risk of developing a genetic form. Anna Richardson: #LoveLossAndDementia Tune in - 2 Oct, 10pm. youtube.com/watch?v=JHsRuj…
FTDtalk retweeted
FTDtalk retweeted
Had the most fantastic time @isftd in Amsterdam, with teams @frontlabparis @InstitutCerveau and @FTDtalk @GENFI1 ♥️ Sad it’s already over & have to wait 2 years for the next!! So lovely seeing all our friends and collaborators for 4 consecutive days of #FTD-science-intense fun!
We are looking for a new postdoc to work on digital measures and trials in genetic FTD - come and talk to us at ISFTD @jonrohrer @LucyL_Russell #isftd2024
Amazing three days so far at @isftd meeting in Amsterdam - lots of great posters and presentations from the team and new collaborations made! #isftd2024
FTDtalk retweeted
It’s been an amazing few days at the @isftd conference in Amsterdam so far! 🧠 I am very excited to have the fantastic opportunity to present a poster (P372) on some preliminary work from my PhD! 🧫Come say hi if you’re around ☺️ #ISFTD2024
Please come to see the posters of our team today - some amazing clinical and biomarker science - @aitanasogorb @KeralaAdamsCarr Eve Ferry-Bolder Katie Thompson Liset de Boer #isftd2024
An exciting orchestral start to #isftd2024 - looking forward to 4 days of new FTD science.
Our team are heading to the #isftd2024 meeting tomorrow - look out for our talks and posters from our digital, imaging and fluid biomarker work @GENFI1 - we look forward to meeting other researchers and members of the FTD community during the week! #endftd
FTDtalk retweeted
Yet another fantastic fFTD support group meeting today☺️ I had the opportunity to talk about my PhD project & how we are using cerebral organoids to study fFTD 🧠🧫 as always, a fantastic session & super to hear how engaged family members are in helping us push forward research!
FTDtalk retweeted
@PhoebeFoster_ and I had the pleasure of hosting the first annual GENFI Participant Spring Webinar 💻 Big thanks to our speakers and most importantly to all participants who joined & continue to participate in the GENFI study as without you this research wouldn’t be possible ☺️
FTDtalk retweeted
First batch of organoids are underway! 🧠🧫
💙 Agnès' reaction to hearing Jordan may be able to get into clinical trials says it all for us. Investment in research brings us all hope for the future. #LoveLossAndDementia @Channel4
FTDtalk retweeted
I’m extremely excited to share that I’ve started my PhD in the @WrayLabUCL 🧠I want to say a big thank you to everyone in the Rohrer lab @FTDtalk for all their support over the last two years. I am really looking forward to this next step & can’t wait for what’s to come ☺️
FTDtalk retweeted
Alongside my amazing colleagues at @drcionucl, I am running the Hackney Half Marathon to raise money for the @BrainAppeal’s campaign to establish the world's first Centre for Rare Dementia Support. @RareDementia Any donation would be hugely appreciated! 😁 justgiving.com/page/sophie-go…
Heading to @mndresearch #alsmndsymp in Basel to speak at the joint FTD-ALS session. Looking forward to an exciting meeting. We are looking for a new research assistant to co-ordinate the @GENFI1 study at UCL - if you are interested come and talk to the team. #endftd
FTDtalk retweeted
To commemorate World FTD Awareness Week 2023, #AFTD have developed a week-long campaign of steps we can all take in this effort of raising awareness. Check out my latest blog post for @FTDtalk, where I summarise their efforts: ftdtalk.org/2023/09/aftds-…
FTDtalk retweeted
✍ Check out my latest blog post summarising the team's research highlights from #AAIC23 - lnkd.in/dcA8wB-m - covering a variety of topics such as novel biomarkers, digitalised testing, disease staging measures, advances in neuroimaging, as well as patient engagement.
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