Millions Missing Finland @FinlandMissing
ME/CFS G93.3 hoito & diagnosointi: • 2021 Duodecim https://t.co/hPuRGVbvoF • 2021 NICE https://t.co/nVb86njKhp • 2021 Mayo Clinic Proceedings https://t.co/zXwSCfx36E sites.google.com/view/millions-… Finland Joined August 2019-
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ME support groups have written an open letter to @rcpsych challenging its defence of last month's Congress session on ME and Long Covid. A general "biopsychosocial" framework cannot rescue specific treatments the evidence has already rejected.
@JanetDafoe @JCastro_Marrero Thank you Janet. It would be interesting to hear @JCastro_Marrero’s and @EUROMEALL’s thoughts. Patients worry this logic inadvertently echoes: ‘Severely ill patients walk less, therefore we suggest walking as a possible treatment.’ Safeguards are vital for the severely ill.
@JCastro_Marrero In hospitals, severe ME/CFS patients are often subjected to bright lighting against their will, causing harm. Suggesting light exposure as a 'modifiable behavioral intervention' without caveats risks justifying this. How would you ensure clinical safety here? 2/2 @JanetDafoe
@JCastro_Marrero Thank you for sharing. Photophobia is a common and debilitating ME/CFS symptom. Given this is cross-sectional, how do you address the possibility of reverse causation—that severe symptoms (like light intolerance) cause reduced light exposure, rather than the reverse? 1/2
1) We have written an article with more background information on the €7.5 of European funding for #MECFS. 👇 While a historic achievement, one project can not undo decades of underfunding. Our goal is a long-term support for ME/CFS research. europeanmecoalition.com/e-7-5-million-…
“He was a doctor who ran marathons. Now, walking to the bathroom is harder than any marathon he ever ran. In this grade of severity ME is only invisible if people purposefully look away.” Evelien van den Brink calling for biomedical #MECFS research in European Parliament in 2019
1) We have written an article with more background information on the €7.5 of European funding for #MECFS. 👇 While a historic achievement, one project can not undo decades of underfunding. Our goal is a long-term support for ME/CFS research. europeanmecoalition.com/e-7-5-million-…
Do you know the story BEHIND the new €7.5 million EU grant for the DISCOVER-ME project? I wasn't part of the tiny group that spent years lobbying for #MECFS in Brussels, but I've followed their work closely for years. Here's a glimpse behind the scenes.⤵️ 1/
It all began with a petition to the European Parliament, submitted by Evelien van den Brink, person with #SevereME - and a dear friend - who delivered a powerful message to the Parliament. If you haven't watched the video yet, it's a must-see. 2/ youtu.be/zcPmrIqK4hs
🚨 Huge milestone for ME/CFS research. The EU is investing €7.5 million in a major international ME/CFS research project, with MedUni Vienna among the leading institutions. Congratulations to Prof. Dr. Eva Untersmayr, who also leads the WE&ME-funded ME/CFS Biobank in Vienna and serves on the Foundation's Advisory Board, and to the many other people and organizations who made this happen. May this be the first of many EU-funded ME/CFS research projects. Patients have waited far too long.
Ein starkes Signal für den Forschungsstandort Österreich: Die Expertise des österreichischen Referenzzentrums für postvirale Syndrome ist international gefragt. Prof. Eva Untersmayr-Elsenhuber leitet dieses wichtige EU-weite Forschungsprojekt. Herzliche Gratulation! 👏
this is an adolescent whose family was initially accused of munchausen by proxy. After a simple stand test and 6min walking tests I proved objective anomalies and she is now back with her parents and in my hospital for IVIG. Just read how amazing was my virtual report she did just before IVIG and how many accused families might be saved …o-clinic.thekookbitcoiner.workers.dev remember this is AI generated but I trained the agent
Bevor ich aus meiner naiven Ahnungslosigkeit in dieses Thema reingestolpert bin, hätte ich mir nie gedacht, dass es solche Missstände geben könnte. Und vor allem auch nicht, dass manche aktiv daran arbeiten könnten, dass normale Versorgung verhindert wird.
#Sonntag #Gedanken zu den vielen #Todesfällen 🖤🕯️🖤 Was mich ausserordentlich erschüttert, dass auch in der letzten Zeit wieder so viele verstorben sind. Es ist immer noch einfacher das Go für assistierten Suizid zu erhalten, als einen Arzt zu finden, der einem beim Überleben
📢 New funding opportunity in ME/CFS research. The WE&ME FOUNDATION has launched its first independent Call for Proposals to support research on the biological mechanisms of ME/CFS. Applications will be evaluated by an independent international expert jury. More information: weandmecfs.org/weme-projects/
🚨 Major news for ME/CFS research: WE&ME has launched a new research call worth over €1 million in total funding, supporting around 7 biomedical ME/CFS projects. What makes this especially notable, alongside the substantial funding volume from a foundation in a small country, is the degree of patient involvement. Members of the Science for ME (@s4me_info) community were heavily involved in shaping the call and will also play a major role in the review and jury process, helping guide funding decisions themselves. At the same time, the process includes internationally respected ME/CFS experts whose judgment and expertise I trust deeply. I may be wrong, but this could be one of the most patient-driven biomedical ME/CFS research funding calls of this scale to date. A huge thank you to everyone involved: the patients, patient advocates, researchers, WE&ME, the WWTF team around Benjamin Missbach, and all partners who helped make this possible. Most importantly, thank you to everyone who fundraised for or donated to WE&ME. This is where your money is going: directly into new biomedical ME/CFS research. Please share as much as possible! 🙏
📢 New funding opportunity in ME/CFS research. The WE&ME FOUNDATION has launched its first independent Call for Proposals to support research on the biological mechanisms of ME/CFS. Applications will be evaluated by an independent international expert jury. More information:
– Help! – But have you tried just ignoring the water? #longcovid #postcovid #ableism #satire
This looks good - a new (free) app for tracking PEM - links to a range of wearables and gives updates during the day (like visible but free). Developed by a university fatiguesense.com
English subtitles have been added to the care clinic for people with severe ME and very severe ME in Norway. youtube.com/watch?v=-KX12z…
What a tragedy. I didn’t know Mirjam personally and only just learned of her story on Facebook. facebook.com/share/p/1GUq4B… Rest in peace, Mirjam. My deepest condolences to her family and all who knew and loved her. #MEcfs #severeME
1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME. It is one of the only places where the sickest patients can receive specialised care. We need this everywhere!! #pwme #myalgicE #millionsmissing #severeME
ME-media @SuomenMEmedia
339 Followers 375 Following ME-media tuo esille Suomessa huonosti tunnetun ME-taudin, tunnetaan myös Suomessa nimellä krooninen ” #väsymysoireyhtymä ”. #ME #MyalginenEnkefalomyeliitti
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF
Pirta Hotulainen @PirtaHotulainen
5K Followers 602 Following Neuroscientist, cell biologist, group leader, chair of Finnish Brain Research society and FENS-KAVLI alumni. Mom. Swimming, triathlon. Dogs, horses. Covid-19.
Cʟᴀᴜᴅɪᴀ S. @claudespu
2K Followers 3K Following Seit 2008 an #MECFS erkrankt | Team #MillionsMissing Deutschland @mmissinggermany | Team #SIGNforMECFS | @oeg_mecfs
Sten Helmfrid 🇺�... @StenHelmfrid
8K Followers 189 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Dt. Ges. für ME/CFS @dg_mecfs
5K Followers 243 Following ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
PwME 4 bioMEdical res... @ValeBodi
5K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/ gnarled Pacer
Dan Wyke 🦠➡️�... @Dan_Wyke
14K Followers 6K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Tuuli Ojala @ojala_tuuli
897 Followers 2K Following MSc (health science), physiotherapist, living with #LongCovid
Fatigatio e.V. - Bund... @FatigatioeV
3K Followers 502 Following Myalgische Enzephalomyelitis, Patientenorganisation Wissenschaft, Forschung, intern. Netzwerk Selbsthilfe, Info, Unterstützung #MECFS #LongCOVID #Longcovidkids
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
#MillionsMissing Deut... @MMissingGermany
3K Followers 723 Following #MillionsMissing – Wir klären auf! | Myalgische Enzephalomyelitis/Chronisches Fatigue Syndrom (ME/CFS) #MECFS
Dr. Markus Fraczek @MarekSJF
3K Followers 1K Following • Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat. • Interests: Medicine ‖ History ‖ Global Politics • https://t.co/cu9aHNmkGs • EN ‖ PL ‖ DE
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Ebidemiologi Kalmanen... @EKalmanen
3K Followers 409 Following Olen nykyään BlueSky:ssä 🦋: https://t.co/FxJ73ofilz
Martin Privec @Biwe94
2K Followers 3K Following Austria | war bettlägerig durch Aktivierung und Psychotherapie | gegen falsche Psychologisierung von organischen Erkrankungen 😀🙂 #MECFS #NoCovid
Birgit Gustke @BeeGee26168032
2K Followers 919 Following Aktiv für mehr #MECFS #Information, Forschung, Fortbildung, Menschen mit ME/CFS #LongCovid #PCS #PostVAC #MCAS #POTS #FatigatioeV
Merja Helle @merjah
2K Followers 861 Following PhD / FT Retired Head of research of Media Concepts Research Group at Aalto University . ”You don’t know the facts before you know the fiction”
RedSinner® @RedSinnerTao
2K Followers 2K Following Reach the ✨ 道 ❤️ Ricky my kitty cat 🐈 - Italian Greek in Barcelona #OlympiacosBC #LakeShow Adopting a #cat will save you!
Wayside Scribbles @waysidescribble
2K Followers 473 Following Left by the wayside. Won't give up without a scribble. #longcovid #mecfs | Also on: 🦋 BSky 📸 IG 👥 FB @waysidescribbles
Anna Wood @Annakwood
3K Followers 3K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
hiipposmile @hiipposmile
372 Followers 4K Following Es war einmal: #twittercampus #lesen #bücherwurm #leseratte #bienen #imkerei #schneeliebhaberin #sozialpädagogik und dann kam: #LongCovid #ME/CFS #PEM #POTS
elly brosius @NovaSupport
1K Followers 5K Following @RemissionBiome R50 + @RenegadeRes volunteer. Disabling ME/CFS+ OI+Long Covid. 💖 physics, pets, mindfulness, metaphors, & medicinal gratitude. Am @CFSnova.
The Sick Dick @thesickdick
31 Followers 231 Following MEDICAL SHITSHOW #sarcasm #chronicillness #MECFS
Helga Edwardsdóttir @Helga_Edwards
78 Followers 150 Following Chair and payroll office at The ME Society of Iceland
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 7K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Tiina Jääskeläinen @TiiinaJ
1 Followers 14 Following
mimmoth tea party @TeaBeforeCake
37 Followers 1K Following Fragile coolhouse flower. Professional dog pillow. Tea fiend. #UglyDogs #ME
Markku Partinen @MarkkuPartinen
297 Followers 182 Following Professori, unilääkäri, unitutkija, neurologi. #väsymys, #longcovid, #unettomuus, #liikenne, #CFS, #sleepiness, #fatigue, #kuorsaus, #uniapnea
Priscilla Falcao @PriscillaVoando
4 Followers 51 Following
Wowam @Wowam940218
22 Followers 976 Following
Blepal @Blepal235075
56 Followers 1K Following
Hillary Johnson Autho... @oslersweb
4K Followers 1K Following Investigating ME for 40 years. The Why "Indispensable" Osler's Web “A relentless, highly persuasive expose" "Groundbreaking" "A major documentary account"
Gleeper @Gleeper581
3 Followers 164 Following
Irfeaqo @Irfeaqo2576378
31 Followers 584 Following
SoeMac @SoeMac_
1K Followers 4K Following SoeMac is a wellness product that increases blood flow & tissue oxygenation for people with CFS, ME, Long Covid, COPD, Asthma, and many other conditions
JPT @JPT86725815
0 Followers 837 Following
numerosarja @numerosarja246
105 Followers 826 Following
Joe Connolly @joec_chicago
606 Followers 8K Following
Alisontomyradioooo @arisonsned
3K Followers 5K Following @arisonsned.bsky.social Cat and Dog botherer. YP counsellor retired. Want my bike and my health back 🩵
it's ME Ingrid @MElotje99
636 Followers 3K Following Carpe diem and take no shit 👊 One of the #MillionsMissing due to #MEcfs #PAIS
AloneLonghaulLady @LadyLonghaul
1K Followers 7K Following severe ME • needs more 🥄 • LC 2020 • prefers clean air • some adult language • #ADHD #HSD #pwME #FBLC #MCAS A MESS is GRIEVING https://t.co/w5DtMNfLbn
jibé @jibe_jeybee
600 Followers 7K Following
MillionsMissingNL @MMissingHolland
2K Followers 975 Following #Actiegroep #MillionsMissing Holland wil betere #zorg & sociale #gelijkheid voor #ME-#patienten.
66joq2d1j @66joq2d1j69351
7 Followers 155 Following Pioneer Wealth: Prof. Matthew’s AI + finance pros boost profits! Free 1st month. AI scans data, experts guide stocks/crypto. Click to join now!
Lutare @LutareMy7
90 Followers 4K Following
Choaleeth @ChoaleethfwQ
72 Followers 2K Following
Denise @denise_myron
215 Followers 3K Following
Theerear @Theerearlgk
107 Followers 3K Following
Smare @SmareU5033oZ
16 Followers 784 Following
Peter Hope @IPeterHope
501 Followers 1K Following Saving people with ME/CFS time, money, and sanity on the cure-chasing treadmill. Helping them improve QoL and survive the ride.
WACM @_VFK_DAA
765 Followers 1K Following LC is unique due to its chronic inflammation of the vessels (vasculitis). Just because some symptoms are shared, it doesn't mean the conditions are the same.
Andrea Fighting for #... @MECFSNanoneedle
2K Followers 4K Following Severe #MECFS Patient #Novid Bedridden. No energy to speak. #MECFSBiomarkers #WomensImmunoBiologicalHealth
Kendra @AthenaCFS
360 Followers 481 Following Disabled advocate with #mecfs. I’m sharing my experience living in a nursing home at 31 years old to raise awareness. Welcome to the inner circle.
carolinelongcovid @carolinelo81755
467 Followers 4K Following
Geausurt @GeausurtADYZ
20 Followers 538 Following
miriamkrügerdejong @miriamkrgerdej1
0 Followers 19 Following
Long Covid & ME/CFS R... @LCMECFS
2K Followers 2K Following Sharing the latest research on ME/CFS and Long COVID (post-viral syndromes). Posts are based on peer-reviewed papers, preprints, and trusted sources.
Gary Anderson @G_A_grandsong
2K Followers 7K Following #LongCovid #MECFS - Another Long Covidian pursuing science in service of the ‘heart.’ 🫶🏼🌹
🌈Akuma 愛💙 (hi... @AkumaAi38
396 Followers 3K Following #GTTO #Humanist #AuDHD, 24/7 caregiver of #MECFS She/her, UK, 30+. Currently obsessed with 2D anime men. RT-heavy of 「Obey Me」 fanart.
Maikki Sutela @malisu83
64 Followers 542 Following
NickyProctor @NickyProctor
2K Followers 5K Following Writing up my #PhD a realist evaluation of coach learning & development programme @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Tuulikki @TuulikkiIng
624 Followers 1K Following Severe long covid since 12/22. Using a wheelchair because lc. Dogs, books, plants, music, textiles, arts and crafts.
Bhupesh K Prusty @BhupeshPrusty
16K Followers 65 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Janet Dafoe @JanetDafoe
17K Followers 223 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Carmen Scheibenbogen @C_Scheibenbogen
14K Followers 74 Following Immunologist and ME/CFS researcher MD @ChariteBerlin
Christoph Ströck @cstroeckw
9K Followers 781 Following Soon, people will look back in disbelief at what happened to patients with ME/CFS | Co-founder @weandmecfs | Godspeed 🙇🏼
Tom Kindlon @TomKindlon
16K Followers 618 Following With ME 37 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
ME-media @SuomenMEmedia
339 Followers 375 Following ME-media tuo esille Suomessa huonosti tunnetun ME-taudin, tunnetaan myös Suomessa nimellä krooninen ” #väsymysoireyhtymä ”. #ME #MyalginenEnkefalomyeliitti
Anil van der Zee © @AnilvanderZee
10K Followers 895 Following Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
Michael Stingl @neurostingl
17K Followers 1K Following Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin Ordination @cereprax
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF
Eric Topol @EricTopol
804K Followers 677 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Pirta Hotulainen @PirtaHotulainen
5K Followers 602 Following Neuroscientist, cell biologist, group leader, chair of Finnish Brain Research society and FENS-KAVLI alumni. Mom. Swimming, triathlon. Dogs, horses. Covid-19.
European ME Coalition... @EMEC_advocacy
1K Followers 69 Following Advocacy organization for ME/CFS patients and their carers in Europe
Cʟᴀᴜᴅɪᴀ S. @claudespu
2K Followers 3K Following Seit 2008 an #MECFS erkrankt | Team #MillionsMissing Deutschland @mmissinggermany | Team #SIGNforMECFS | @oeg_mecfs
ME/CFS News @MECFSNews
14K Followers 672 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Sten Helmfrid 🇺�... @StenHelmfrid
8K Followers 189 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Dr. Sabine Hermisson ... @SabineHermisson
6K Followers 4K Following PD Dr. (empirical education research, religion) mother of Mila who suffers from very severe ME/CFS (Bell 0) #LearnAboutME
Dt. Ges. für ME/CFS @dg_mecfs
5K Followers 243 Following ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
Stephen Fortuna @stephentuna
376 Followers 1K Following Life on pause while I take care of my wife with severe ME/CFS, POTS, Neuropathy, etc.
Birch Brother 🪓 @BjorkBrodern
15K Followers 664 Following 15th generation osthrobotnian https://t.co/1SAFZ4xqZt
paddy monahan @paddy_monahan
493 Followers 150 Following Co-Founder @vindarahealth | #LongCOVID since 2020 | Building for complex illness
Vindara Health @vindarahealth
166 Followers 21 Following Vindara Health is a virtual clinic for Long COVID, ME/CFS, MCAS, POTS and more. Patient-led and co-founded with Dr. David Kaufman.
RedSinner® @RedSinnerTao
2K Followers 2K Following Reach the ✨ 道 ❤️ Ricky my kitty cat 🐈 - Italian Greek in Barcelona #OlympiacosBC #LakeShow Adopting a #cat will save you!
Wayside Scribbles @waysidescribble
2K Followers 473 Following Left by the wayside. Won't give up without a scribble. #longcovid #mecfs | Also on: 🦋 BSky 📸 IG 👥 FB @waysidescribbles
Anna Wood @Annakwood
3K Followers 3K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
Dr. Pankaj Royal @drpankajroyal
3K Followers 652 Following Consultant Physician | MBBS, MD Internal Medicine | Sharing real clinical cases & insights | Tweets ≠ medical advice
Minnie @saintdutchess
29K Followers 3K Following I am as the poets say a bit devoted to words, film and clothes and I like writing about it. Email: [email protected]
Joshua Leisk @joshual_tm
6K Followers 67 Following Author, researcher. Currently focused on unifying theory for ME/CFS, Long Covid and Post Vaccine Syndrome.
I Am British 🇬🇧 @IAmBritishReal
51K Followers 2K Following I Am British stands for British values, traditions and democracy. #IAmBritish🇬🇧 UNITE THE KINGDOM 🇬🇧
Jack | amatica health @JackHadfield14
7K Followers 1K Following Aerospace engineer by training, ME/CFS & Long COVID researcher & patient, cofounder @amaticahealth. DMs open, rarely check follows - https://t.co/BvmsOvcOPX
Erika Keski-Korhonen @ErikaKeskiK
6K Followers 381 Following Tradenomi, turvallisuus ja riskienhallinta. Kiinnostuksen kohteena on huumekorruptio ja sidonnaisuuksien eturistiriidat.
Stella Chadwick | Fun... @stella_chadwick
5K Followers 673 Following Founder of Brainstorm Health | Functional Medicine & Nutrition Expert | Specialist in #Autism, #PANDAS, #PANS, #ADHD | No stone left unturned
David Sinclair @davidasinclair
643K Followers 1K Following Professor researching why we age & how to reverse it. Author & host of Lifespan. Mission: Extend healthy life for all. Views are entirely his own. @joinlifespan
Hiroshi Yasuda (保�... @Yash25571056
40K Followers 597 Following Scientist & Professor (科学者&教授). Tweet is a soliloquy based on my personal views (ツィートは個人の見解に基づく独り言です).
Jeroen den Dunnen @DrDenDunnen
2K Followers 296 Following Principal Investigator at the Amsterdam UMC. Studying antibody-dependent inflammation during infection, arthritis, and (long) covid.
Bettina Grande @GrandeBettina
9K Followers 759 Following Psychologische Psychotherapeutin Charité Berlin & Heidelberg Psychotherapie-Netzwerk ME/CFS Aufklärung, Schutz & Versorgung #MECFS #PEM #PEMistnotnegotiable
Keith Siau @drkeithsiau
215K Followers 5K Following GI doctor with interests in endoscopy, gut health, liver & medicine. 💜 #GITwitter #LiverTwitter #MedEd. Occasional silliness. Siau rhymes with meow 😺
Tomas Paulenda @tompaulenda
165 Followers 330 Following
Maxim Artyomov @maxim_artyomov
2K Followers 191 Following
Brian Fog @useless_priest
9K Followers 5K Following LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Michael R Scoma MD @DrMichaelScoma
9K Followers 121 Following Infectious Disease Immunology physician specializing in complex chronic diseases. Views are my own; no medical advice given. https://t.co/HkQt5xQJwh
Outi Salovaara @OutiSalovaara
2K Followers 2K Following Freelancetoimittaja. Journalismi, parasta mitä voi tehdä housut jalassa.
Anil Seth @anilkseth
61K Followers 950 Following Neuroscientist: consciousness, perception, & dreamachines. TED speaker, & author: Being You - A New Science of Consciousness.
Manuel Ruiz @manruipa
6K Followers 232 Following 🔬Diving deep into #MECFS, #LongCOVID, #LongEBV & post-vaccine syndrome research. Dual role:Researcher and EBV ME/CFS patient. Seeking answers. #Antivirals #HLA
Long Covid & ME/CFS R... @LCMECFS
2K Followers 2K Following Sharing the latest research on ME/CFS and Long COVID (post-viral syndromes). Posts are based on peer-reviewed papers, preprints, and trusted sources.
Tina Katsaros @tinakatsaros
1K Followers 246 Following PhD candidate researching ME/CFS at La Trobe University
NickyProctor @NickyProctor
2K Followers 5K Following Writing up my #PhD a realist evaluation of coach learning & development programme @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Oonagh Cousins @oonagh_cousins
3K Followers 955 Following Communications and Policy @visible_health | @long_covid | @ThereForME_UK Anti-Recovery Activist 👀
M. and S. Shaw @twoShaws
2K Followers 3K Following Person w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) #POTS #MCAS & her ME advocate spouse/caregiver. Before: Architect, software interaction designer.
@JohnVsJonVsME @JohnVsJonVsME
519 Followers 78 Following #JohnVsJonVsME campaign to get Oliver and/or Stewart to bring the awful history of #MyalgicEncephalomyelitis #GreatestMEdicalScandal to light. Same on IG/BSky
Long Covid Moonshot @LCMoonshot
3K Followers 320 Following 18 million Americans suffering with Long Covid. ZERO treatments. We need a moonshot for Long Covid research funding!
Ziyad Al-Aly, MD @zalaly
32K Followers 937 Following Physician-Scientist | TIME100 Health https://t.co/AXG4WotuRc Profile: https://t.co/ywweQn5DHA…
Fiona Hamilton @Fhamiltontimes
20K Followers 3K Following Chief Reporter, The Times. [email protected]
Scott Daniska @scott_scientist
3K Followers 575 Following Former ME/CFS researcher and current patient advocating for how environmental factors are driving these Complex Chronic Illnesses
Beate Biesenbach @BeateBiesenbach
566 Followers 315 Following Pediatrician, ped. diabetology, nephrology and autoimmune diseases, rehabilitation medicine, long covid, me/cfs, hEDS
Tinja @Tinjatoi
560 Followers 964 Following Finnish veterinarian, tweets mostly in Finnish 🇫🇮 Interests: nature, animal welfare, politics, LC 🐾🦠🌱🌍📰🩺🌡️
Minghao Gong @MinghaoGongD960
382 Followers 1K Following Musically-inspired Postdoc @ Jackson laboratory for Genomic Medicine - Pains sharpen the mind and channel the spirit to the utmost heights!
Rob Wüst @RobWust
8K Followers 739 Following Associate Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease
Jon Douglas @atranscendedman
8K Followers 919 Following Transparent to the transcendent. https://t.co/CWYWYqGwm3
Senator Jordon Steele... @SenatorJordon
24K Followers 1K Following 💚 Australian @Greens Senator for WA 🦽 Disabled and Proud ✊ Health, Mental Health, Disability Inclusion, the NDIS and Youth.
XingJian @tis_xingjian
126 Followers 55 Following #MECFS from #longCOVID | three pill bottles in a trench coat | YEG
The Bureau of Investi... @TBIJ
58K Followers 4K Following We’re the Bureau of Investigative Journalism – exposing injustice and sparking change for more than a decade 🔥 Support us now 🔗 https://t.co/U8wOfBV9rm
Rachel Schraer @rachelschraer
11K Followers 4K Following Global Health Correspondent for The Independent 🌎 Before: The Bureau of Investigative Journalism, BBC News + World Service ✍️ 📻 📺
James Fridman @fjamie013
2.1M Followers 1 Following Do not submit any personal photos that you do not want to be made public. Terms and conditions apply. https://t.co/WWtgLUgpub
Billboards for LC/MEC... @LCMEBillboards
2K Followers 443 Following DM @alexsprackland @aaronca11 for enquiries. Research and treatments for Long Covid/ME/CFS now. https://t.co/zppTxZjTK8
#NotJustFatigue @njfatigue
1K Followers 725 Following We’re a bipartisan 501(c)(3) sounding the alarm on ME/CFS with digestible, creative content, and advocating for people with the disease. This is #NotJustFatigue
Peter Judodihardjo @PeteJudo
2K Followers 391 Following YouTuber (Pete Judo) | Behavioural Science Auditor at NatWestGroup | Habit Specialist | Decent MusclesYou might like
