Jennifer Weaver @GracefullyJen

It’s National Volunteer Week! As a volunteer-led organization, we’re celebrating you—our past, present, & future volunteers who make everything we do possible. ❤️ If you love this field & enjoy connecting with people who feel the same way, consider submitting your interest for a volunteer role with the ACR, ARP, or @RheumResearch. DEADLINE: June 1. VOLUNTEER → acr.tw/4cxHPfg

Make the most of one powerful weekend! #SOTA26 delivers non-concurrent sessions, expert-led #rheum education, & meaningful connection—April 24–26 in Rosemont, Illinois. There’s still time to join us! ⏰ Register TODAY → acr.tw/44N127p

We’re announcing the first cohort of the @RheumResearch & @LupusResearch Empowering Lupus Research Partnership! ✅ 5 early‑career investigators ✅ $1.9M investment ✅ Advancing innovative lupus research Proud to support the scientists driving the next wave of breakthroughs. #RheumTwitter #RheumaticDisease #Lupus

🔬 Inside the Lab 🔬 There simply aren’t enough pediatric rheumatologists in the U.S., leaving families driving hours for specialized care — a gap that’s expected to grow over the next 20 years. With support from a Clinician Scholar Educator Award from the Rheumatology Research Foundation, Dr. Jay Mehta explored why trainees choose pediatric rheumatology and how we can better recruit and retain this vital workforce. By listening to fellows and residents, his research aimed to improve mentorship, training and support throughout the career pipeline. Stronger mentorship and career development pathways aren’t just good for clinicians; they mean children with autoimmune and inflammatory conditions can receive expert care closer to home. Read more on the RheumLab: rheumlab.org/inspiring-emer… #RheumLab #RheumResearch #ChooseRheum

Sometimes the bravest thing you can do is keep moving forward, one “stripe” at a time. Today we’re honoring the Rare Disease community—the fighters, the thinkers, and the dreamers who remind us that even when a journey is rare, you never have to walk it alone. @rarepatientvoic

We are looking forward to being in Boston next month at the 13th Annual PatientsasPartnersConference.com! Stop by booth #9 to hear how RPV can connect you with the patients & caregivers needed for impactful research. #PatientEngagement #ClinicalResearch #HealthcareMarketing

Oh, you thought it was just "a little bit of arthritis"? Let’s clear something up with the help of this mic-drop graphic. 🎤 RHEUMATOID DISEASE is an autoimmune condition. That means my immune system is extra. Like, "let's attack perfectly healthy tissues just for kicks" extra.

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External validation of a genetic risk score (GRS) and combined risk score for identifying risk of RA-ILD. Combining a genetic risk score with clinical risk factors performed significantly better than the GRS alone Arthritis Care & Research doi.org/10.1002/acr.25…

November is #NationalFamilyCaregiversMonth, a time to recognize and honor caregivers who provide essential support to loved ones with health needs each year. Family caregivers are a cornerstone of our healthcare system, dedicating countless hours of unpaid, life-changing care for loved ones all while balancing careers, family life, and their own personal healthcare needs at the same time. We recognize the unique challenges caregivers and their loved ones face within the rheumatology community. Their strength and commitment inspire our ongoing efforts to advance research and training to improve the health of patients living with rheumatic disease. #NFCM #Caregiving

Soup season is here — the perfect time for healthy, cozy meals that make busy days easier! This spicy chicken sweet potato stew is simple to prep ahead and packed with anti-inflammatory goodness. Sweet potatoes, lean chicken, tomatoes, peppers, and beans all work together to fight inflammation and support joint health — plus, it’s full of flavor. A warm bowl that’s good for your body and your schedule. Try the recipe here: ow.ly/rkbw50X7qAw

The Rheumatology Research Foundation is celebrating 40 years of impact! Over the past 4 decades, the Foundation has reshaped how patients are cared for, ignited scientific breakthroughs, and strengthened the future of rheumatology. While we’ve made incredible strides, there are many patients whose needs remain unmet. Our work continues—driving innovative research, training, and recruitment efforts to ensure people living with rheumatic disease receive the high-quality care they need to live happier, healthier lives.

Way to go, Carol!

CreakyJoints.org @CreakyJoints

8 months ago

At #ACR2025, patient advocate Carol Kaminski shares her inspiring message: aging well with chronic illness is possible. Living with mixed connective tissue disease for 40 years, Carol highlights why patients must be part of the research conversation — and how collaboration

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In our Spoonie world, every little piece of knowledge matters—whether it’s a tip for navigating flares, a trick for making doctor appointments easier, or simply sharing what helps you through the hardest days. When you share your light, you help someone else find their way through the darkness. ✨Your experience could be the spark someone else needs to keep going. What’s one lesson or piece of wisdom you’ve learned on your chronic illness journey that you’d pass along to another person?

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It’s with a heavy heart that I share the news that our Spoonie Sister, Melissa Marquis, is no longer with us. Melissa’s courage, warmth, and authenticity touched so many in our community. She shared her story with honesty and grace on the podcast, and her light continues to shine through the words and wisdom she left with us. Please join me in holding her loved ones close in your thoughts and prayers during this difficult time. Melissa will forever be part of our Spoonie Sisters family. 🕊️💜 youtu.be/WO6h4h3zFPg?si…

Excited to moderate the #ANRF Researcher Spotlight Series on August 27. I’ll be sharing my OA story + helping guide the conversation on osteoarthritis research. Register here: us06web.zoom.us/webinar/regist… #RSWS2025 #CureArthritis

👟✨ Lace up, Spoonies! ✨👟 We’re not just walking… we’re joining for a cause that matters. 💜 On Sunday, October 12, 2025 💌 Join Team My Spoonie Sisters today: give.autoimmune.org/fundraiser/658…

“Hearing investigators share ideas and ask questions that may change the future of rheumatology gives me great hope for a better future for patients like me.” Annastasha Parker, Impact Advisory Council member and Rheum Champion, shares her experience at the 2025 Investigators Meeting. During the meeting, 58 Foundation-funded investigators shared project updates, connected with peers, and explored the latest cutting-edge discoveries. Read more in the latest issue of the Foundation Voice. magazine.rheumresearch.org/summer-2025-fo…

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We are excited to announce Eryn Marchiolo, MPH, as the new executive director of the Rheumatology Research Foundation! Marchiolo, a long-time employee of the Foundation, brings extensive institutional knowledge, deep experience in nonprofit management, and a long-standing commitment to supporting the rheumatology community. Previously she served as Interim Executive Director, Vice President of Mission and Senior Director of Research and Training.   Learn more about Eryn Marchiolo, MPH and her new role as executive director: rheumresearch.org/1.-the-foundat…

Check out the latest issue of the Foundation Voice! The Summer 2025 issue celebrates the Foundation’s newest award recipients, whose work will accelerate groundbreaking scientific discoveries and address the workforce shortage in rheumatology. You will also: ✨ Read an inspiring story about Game of Rheums, a friendly competition among rheumatology divisions across the nation. ✨Take a look back at the 2025 Investigators Meeting. ✨Discover why companies are turning to the Rheumatology Research Foundation when it comes to investing in the future of rheumatology. 📖 Read the full issue: magazine.rheumresearch.org/summer-2025-fo…