TMAPrecisionHealth @HealthTma
On a mission to improve healthcare delivery for rare and complex disease patients around the globe. Joined January 2021-
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Super proud to be featured as a 2021 Top 10 Precision Medicine solution provider - AND the only company focused on #RareDiseases …on-medicine.healthcaretechoutlook.com/vendor/tma-pre…
@2lr @kimaventures Do you fund healthtech in the rare disease space?
ALS will likely take away my ability to talk. Likely take away my ability to walk. But as long as I breathe it will never take away my ability to fight. Good night moon.
Proud today!! First data out of #Medellin showing a 95% success rate for our platform in identifying treatments for #RareDisease patients. TY @Promedan for being our partner in #IONHealth and bringing #precisionhealthcare to #LATAM medrxiv.org/content/10.110…
Preach! This is why our case reports can be so helpful to let patients and their doctors understand their options and manage their care.
When you have a chronic illness, you face two battles. One being the illness itself. And the other, living in a world where so few people understand what you are up against.
We were founded to help patients, BECAUSE we are patients. @Linawilliamson shares her story w @PatientWorthy patientworthy.com/2021/05/24/a-p… #rarediseases #patientsmatter
If you're fully vaccinated, you can now go mask-less in most settings. But remember: it’s going to take time for everyone who wants to get vaccinated to get their shots, and some vaccinated people prefer masks. So please, if you see someone with a mask, treat them with kindness.
🔊 This is a great initiative by PTC Therapeutics: patients diagnosed with cerebral palsy without a clear cause could have a genetic condition. They offer a no-cost genetic test to those cases in the US to help find their gene: genomemedical.com/programs/ptc/
Do you want to be a cure sherpa guiding families and foundations up the mountain? Looking for PhD scientists to work hand in hand with families, develop cure roadmaps, and project manage R&D virtually from preclinical POC to single-patient IND. 100% remote. Part-time at first.
The Special Fathers Network is hosting a virtual conference on May 15th for dads who have a child with a unique health condition. #raredisease #specialneedsdad #zebradad #rarediseasetruth Learn from speakers, and connect with other dads! Sign up here: 21stcenturydads.org/dads-virtual-c…
@DisorderRare this is amazing! Would love to see if we can help your audience - can we talk?
@Micabubby @DrNadz @ProximieAR Inspirational story and viewpoint!
@lukebrosen So sorry for your loss. We - modern medicine - need to do better.
@PatientWorthy would love to work together - can we talk?
@AMPorterfield just came across your 2015 Global Genes article - would love to talk about making rare disease solutions easier to access for patients everywhere
Proud to announce our partnership with @Geneyx2 to bring #geneticdiagnostics to our network, and bring their 80,000+ cases onto our #raredisease database to power the next generation of #precisioncare bit.ly/3a3Mjeg
Looking forward to attending this webinar - we're always making sure we're staying at the #cuttingedgeofmedicine to deliver #personalizedcare for #RareDisease patients
When you have a chronic illness, you face two battles. One being the illness itself. And the other, living in a world where so few people understand what you are up against.
Identifying #unrealizedmedicine for #rarecases IS what gets us out of bed. Good morning!
Filip Kollert @KollertFilip
142 Followers 190 Following Co-Founder & COO at @swipelux_, Fiat to crypto processing, startup advisor
100ⓧ 观察 @100XInsight
5K Followers 6K Following 👨👩👦 丈夫|🍼父亲|⛏️矿工| 💎猎人 2021顶峰入坑,FIL XCH BZZ ETH 负债400万,卖房补窟窿 ... 2023谷底爬起:KAS100X OCTA500X NPT100X QTC100X ... 这里是写给自己的成长日记 看我推买币=替我接盘|人终有一死,币迟早归零
Justin Starbird @justin_starbird
343 Followers 298 Following Focused Execution - High Powered Network - Respected Expertise
Jordan Henry @Jhenry2112
192 Followers 1K Following #AIEthics ⚽️⚾️🎥☄️☀️ #LGM #RepBX #AllForTx #RepDetroit #SFGiants #FCBayern #ChelseaFC #NYCFC #PortlandHOP #NJDevils #JetUp #76ers #SunsUp #Onepride #RaiseHail
Mike Graglia 🌻 @JMGraglia
7K Followers 2K Following CEO @cureSYNGAP1 🧬 Pod https://t.co/9jkDkMg5R8 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Jim Burtoft @JBurtoft
4 Followers 68 Following
Stacy Hurt (she/her)�... @stacy_hurt
10K Followers 2K Following Chief Patient Officer @Parexel 🫶 Cancer survivor, Rare disease mom/caregiver, Advocate for the unseen/unheard in healthcare 📣 Opinions are my own
TaleSplash @TaleSplash
179 Followers 3K Following We build PR programs for brands (like @houzz @okeeffescompany @highwireinc) who make life easier, healthier and safer.
Denisse Hernandez N. @DenisseNieva
42 Followers 458 Following Mamá de un pequeño con Discinecia Ciliar Primaria. Busco información, personas, tratamiento!!! ER.
Yvo @Yvo45079696
15 Followers 458 Following
StartUp Health @startuphealth
57K Followers 1K Following Collaborating with mission-aligned champions and founders (#HealthTransformers) to create and sustain a global ecosystem of Health Moonshot Communities.
Matthieu Abbou @Matthieu_Abbou
54 Followers 2K Following Interested in systems thinking, health systems outcomes, drug development, and transplant and renal disease. Here by the grace of homeostasis. He/him
Xander Kerman @xander__kerman
283 Followers 1K Following Ski bum turned health tech nerd | Growth @UbieGlobal | Advisor @Syntegra_
thelibellule @aridamt
19 Followers 304 Following
Allisonelstoppa @allisonelstoppa
217 Followers 1K Following page to share my love of life!I LOVE TO SURF,ski,skate,Softball,fashion,🍑🍆❤️🌳🌳MMJ patient!♍️love my 🦀we always get along
Pro Bono Omics @ProBonoOmics
327 Followers 1K Following A journey to assist with rare disease challenges offering nil cost advice using computational modeling targeting personalized medicine for those in need.
I-Ally @iallyinc
2K Followers 4K Following Are you a millennial family caregiver in need of support? We are the app that saves you time, reduces stress, and enables informed decisions.
Rare Advocacy Movemen... @RareAdvocacy
3K Followers 1K Following Network of people with #RareDisease #LivedExperiences dedicated to evolving the #LivingRare experience into opportunities for the global community to thrive.
CSNK2A1 Foundation @csnk2a1org
581 Followers 268 Following We are focused on finding a cure for OCNDS & ensuring affected individuals have the opportunities and supports necessary for happy & full lives #ocnds #csnk2a1
Hear Your Song @HearYourSongHYS
244 Followers 1K Following Hear Your Song empowers kids with serious illnesses and complex health needs to make their voices heard through collaborative songwriting. Click for event tix!
DrugOrphanisation @orphanisation
98 Followers 626 Following @WellcomeTrust #OrphanDrugs: High prices, access to medicines and the transformation of #biopharmaceutical #innovation @sheffielduni @ihumansheff #raredisease
Naheed Kurji (he/him) @NaheedKurji
847 Followers 689 Following Founder & Entrepreneur. Global Tourist. Wine and Car Enthusiast. Miles Davis Fab. Girl Dad. AI and TechBio
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Glendalee deRuiter @gleederuiter
107 Followers 1K Following I’m a supporter of limb girdle muscular dystrophy also in all disabilities and those in need of any support from our community centers.
PA Rare Disease Advis... @PARareDisease
783 Followers 627 Following To improve the quality of life for all those affected by rare diseases in Pennsylvania.
Perlara @PerlaraPBC
5K Followers 2K Following The first biotech public benefit corporation (est. 2014) now developing medicines for inherited metabolic diseases (MITO, CDG).
Ellis Michaels @EllisMichaels9
13K Followers 12K Following Writer/Musician/Comedian https://t.co/vooyfAp7Hw I write unquestionably-human books and music. Living with Behcet's disease #behcets - memoir out now!
CDH Research Internat... @cdhintl
2K Followers 4K Following The world's oldest, largest & leading Congenital Diaphragmatic Hernia charity.
JOSHUA RESNIKOFF @ResnikoffJoshua
15 Followers 46 Following Focused on changing medicine through Precision Health
T4L @t4lme
159 Followers 1K Following All-inclusive electric vehicle membership subscription company, committed to both the environment and to providing the highest quality customer experience.
Rare Epilepsy Network @RareEpilepsy
2K Followers 603 Following Rare Epilepsy Network (REN) is working with urgency to collaboratively improve outcomes of rare epilepsy patients & families via research and advocacy.
Monica Dudley-Weldon @mlweldon5
3K Followers 3K Following VA Governor Youngkin Appointee | Biotech | Applied Legal Pro | Strategist | Life Sciences | DOD | Complex Problem Solver | Author | KOL | 🎤 | SME | VAMO
Whitney Lavender ♿�... @WhItscomplex
3K Followers 6K Following ✨Ms. Wheelchair TN 2026 ✨ ADAPTIVE MARTIAL ARTS FOR ALL ✨ Attitude MMA Business Manager, Post-Fight Interviews, Author, Motivational Speaker, Double Amputee
dazzle4rare @dazzle4rare
1K Followers 1K Following Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 https://t.co/bS5LyCTiZ5
Marni Cartelli @Purrfectly_Rare
3K Followers 2K Following Rare Disease Patient, mom, & advocate. Danny's Dose Alliance Board Member. Know who you are & live a way you can be proud of.
Beacon for Rare Disea... @RareBeacon
12K Followers 10K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Swapna Kakani, MPH @SwapnaSpeaks
1K Followers 2K Following #ptexp #raredisease Spkr|Expert|Advocate. @TEDx Spkr. #ShortBowelSyndrome Warrior. #SmallIntestineTx Recipient.Founder of the gutsy perspective
GIL BASHE @Gil_Bashe
14K Followers 10K Following Connecting the dots to uncover and cultivate cognitive connections that ignite life-saving transformations. Championing #lifescience #climatetech #digitalhealth
PrecisionLife @precisionlifeAI
2K Followers 2K Following Solving chronic disease with the world’s leading precision medicine AI
Effie Parks @OnceUponAGene
7K Followers 4K Following Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
orphanwriter @orphanwriter
998 Followers 972 Following Senior Advisor, National Organization for Rare Disorders. Honored to work with amazing #raredisease patients, caregivers, researchers & clinicians.
Davesh Chauhan @DaveshCh
389 Followers 1K Following Building in biotech. Prev: BD & Partnerships @HyasynthBio, Marketing Strategist @Cyclica. Med Chem @GunningLabUofT.
Frankzeng @Frankzeng17
10 Followers 709 Following
Cyclica @Cyclica
1K Followers 602 Following Cyclica has been acquired! Please follow @RecursionPharma on Twitter and LinkedIn to receive updates on our next chapter.
𝐓𝐢𝐟𝐟𝐚�... @TiffanyKairos
7K Followers 4K Following Founder @tenofficial | Epilepsy Advocate | Blogger | Content Creator | All views are my own
Perlara @PerlaraPBC
5K Followers 2K Following The first biotech public benefit corporation (est. 2014) now developing medicines for inherited metabolic diseases (MITO, CDG).
Ethan Perlstein 1-to-... @eperlste
19K Followers 2K Following ceo @1000cures, ceo @PerlaraPBC (w16 @ycombinator), founder @epalrestat, founder @endrarediseases, founder @smer28rapa
CRMO @Fight_CRMO
1K Followers 3K Following Information on chronic recurrent multifocal osteomyelitis (CRMO) and CNO from a patient advocate.
Rare Autoinflammatory... @RACC_UK
2K Followers 3K Following A Registered Charity (1184846) for Patients and families affected by Autoinflammatory Conditions, in the UK. Members of @EURORDIS @_ERNRITA @NationalVoices
PA Rare Disease Advis... @PARareDisease
783 Followers 627 Following To improve the quality of life for all those affected by rare diseases in Pennsylvania.
Ellis Michaels @EllisMichaels9
13K Followers 12K Following Writer/Musician/Comedian https://t.co/vooyfAp7Hw I write unquestionably-human books and music. Living with Behcet's disease #behcets - memoir out now!
CDH Research Internat... @cdhintl
2K Followers 4K Following The world's oldest, largest & leading Congenital Diaphragmatic Hernia charity.
AllStripes @_allstripes
3K Followers 1K Following Our mission is to unlock new treatments for people affected by rare disease.🚀
Cambridge Rare Diseas... @camraredisease
8K Followers 6K Following Improving outcomes for those living with rare conditions. Also find us at: https://t.co/kZWskP9Ojj
Alliance for Science @ScienceAlly
14K Followers 920 Following A global communications initiative working to improve understanding of science-based agricultural innovations and challenge misinformation.
Geneyx @Geneyx2
48 Followers 54 Following A revolutionary, integrated genomic and clinical data-source
Blue Ventures @BlueVentures
9K Followers 335 Following We're not currently active on X. You can find us on Instagram @_blueventures for now
Centene @Centene
6K Followers 75 Following Transforming the health of the communities we serve, one person at a time.
Republic @joinrepublic
67K Followers 842 Following Access global investment opportunities across growth stage ventures, AI, crypto, and real world assets, all from one platform.
MicroVentures @microventures
6K Followers 1K Following We invest in early and late stage Pre-IPO companies. Sign up if you want to diversify your portfolio: https://t.co/614hzztXPw
SeedInvest @SeedInvest
20K Followers 5K Following StartEngine has officially acquired SeedInvest, and together we aim to take startup investing further than ever before.
Fonz ᵍᵐ @FonzGm
22K Followers 4K Following Head of Strategy @crossmint // Founded @tokenproof and other stuff // 🇺🇸🇲🇽
. Subhash kumar @Subhash44690696
5K Followers 7K Following 🏥 Founder – Him Rare Care Foundation 🧬 Rare Disease Advocate 🌐 Policy | Health | Humanity समाज सेवा | पॉलिसी | हेल्थ एडवोकेसी
Dalai Lama @DalaiLama
16.6M Followers 0 Following Welcome to the official twitter page of the Office of His Holiness the 14th Dalai Lama®️.
Whitney Lavender ♿�... @WhItscomplex
3K Followers 6K Following ✨Ms. Wheelchair TN 2026 ✨ ADAPTIVE MARTIAL ARTS FOR ALL ✨ Attitude MMA Business Manager, Post-Fight Interviews, Author, Motivational Speaker, Double Amputee
Monica Dudley-Weldon @mlweldon5
3K Followers 3K Following VA Governor Youngkin Appointee | Biotech | Applied Legal Pro | Strategist | Life Sciences | DOD | Complex Problem Solver | Author | KOL | 🎤 | SME | VAMO
PPALS @PPALSorg
991 Followers 2K Following (PPALS) is a non-profit organization committed to supporting the function of Patient Advocacy within the biotech and pharmaceutical industries.
Rachelle Dixon @RachelleM_Dixon
976 Followers 1K Following President/Co-Founder of HSAN1E Society / Rare Disease Advocate / Speaker @hsan1esociety #raredisease #theother50percent
Alpana Sharma @alpanaS16
1K Followers 177 Following #RareDisease #PatientAdvocate #SpinalMuscularAtrophy, Co Founder Director CureSMA Foundation India @curesmaindia & Mom fightin 4 life saving treatment 4 son
Mindy Youngs @MindyYoungs
335 Followers 226 Following Secretary Helping Hands for GAND * Rare Disease Advocate * Vice President Walters Family Foundation * Sr. Manager, Customer Marketing Procore Technologies
Cure SMA Foundation o... @curesmaindia
2K Followers 615 Following Making Spinal Muscular Atrophy treatment and cure accessible and affordable to Indians.
Marni Cartelli @Purrfectly_Rare
3K Followers 2K Following Rare Disease Patient, mom, & advocate. Danny's Dose Alliance Board Member. Know who you are & live a way you can be proud of.
Luke Rosen @lukebrosen
2K Followers 421 Following Founder of https://t.co/GkrwXhfkoy and https://t.co/eWtcezWeJc. Firefighter. Works with families affected by neurological diseases and cancer. Baseball and hockey. Proud dad.
HSAN1E Society @Hsan1eSociety
533 Followers 563 Following Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease
Probably Genetic @ProbGenetic
596 Followers 751 Following Rare genetic conditions can take years for doctors to diagnose. #ProbablyGenetic is a personalized healthcare company working to help you find answers.
Andra Stratton @livinlavidalopo
1K Followers 517 Following Co-Founder of Lipodystrophy United Program Associate for #RareAsOne @CZIScience. Always hungry. Sometimes funny. Opinions are my own.
Our Odyssey @_OurOdyssey_
927 Followers 475 Following Connecting young adults impacted by a rare or chronic condition with social and emotional support in hope of improving quality of life. #ourodyssey
KIF1A.ORG @KIF1A
1K Followers 578 Following We connect families affected by KIF1A and relentlessly work to accelerate research. We need to find treatment for this rare neurodegenerative disease. Fast.
Project 8p @chromosome8p
525 Followers 369 Following Project 8p is a non profit committed to finding treatment with translational research, advocacy and data sharing for Chromosome 8p disorders.
RARE-X @RARE_X_
1K Followers 198 Following PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases. More to come.............
FOXG1 Research @Foxg1Research
963 Followers 544 Following Parent-led global foundation driving the FOXG1 gene therapy to children worldwide, while accelerating rare disease drug development at large.
SYNGAP1 Global Networ... @SyngapNetwork
3K Followers 2K Following Global #SYNGAP1 @cureSYNGAP1 🇺🇸🇬🇧🇪🇺 @Syngap1A 🇦🇷 @SyngapAus 🇦🇺 @OSyngap1 🇨🇦🇫🇷 @syngap1Germany 🇩🇪🇦🇹@syngap1italia 🇮🇹 & 🇪🇸🇮🇳🇯🇵🇸🇪🇨🇭
Rare Epilepsy Network @RareEpilepsy
2K Followers 603 Following Rare Epilepsy Network (REN) is working with urgency to collaboratively improve outcomes of rare epilepsy patients & families via research and advocacy.
CACNA1A Foundation @cacna1a
2K Followers 2K Following Nonprofit dedicated to a brighter future for those with CACNA1A variants. On a mission to fund life changing research while supporting families along the way.
CSNK2A1 Foundation @csnk2a1org
581 Followers 268 Following We are focused on finding a cure for OCNDS & ensuring affected individuals have the opportunities and supports necessary for happy & full lives #ocnds #csnk2a1
dazzle4rare @dazzle4rare
1K Followers 1K Following Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 https://t.co/bS5LyCTiZ5
Rare Action Florida @RareActionFL
331 Followers 250 Following Advocating for the rare community in Florida.
CAL RARE @CalRare
511 Followers 123 Following Non-profit dedicated to improving the lives of rare disease patients in California.
Hope the Zebra @hopethezebra
491 Followers 404 Following Bringing the rare disease community together by sharing Hope, laughter and support. [email protected]
rareLife solutions @rarelifetalks
686 Followers 522 Following building custom communities with integrated knowledge libraries
TheRareFair @therarefair
728 Followers 754 Following Powered by @tda4rare, The Rare Fair is the original virtual event designed for all members of the rare disease community. https://t.co/m4Ar9Fuzkl











