Indian Prader-Willi Syndrome Association @IPWSA_
Indian Prader-Willi Syndrome Association(IPWSA) is a non-profit trust founded & run by parents of PWS angels. Connect with us at [email protected] ipwsa.com India Joined July 2021-
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Great Initiative by @pfizer #Pfizer's Project AASTHA Crosses 10 Lakh Patients Milestone in #India thecsruniverse.com/articles/pfize…
Other states to follow #Bengal diabetes model | #Kolkata News - The Times of India timesofindia.indiatimes.com/city/kolkata/o… @timesofindia
Heartfelt congratulations to @SuvenduWB @BJP4India @PMOIndia @pmo_office @AmitShahOffice @TVKVijayHQ We sincerely urge for smooth implementation of National RareDisease Policy & UDID in #Chennai #Bengal @MoHFW_INDIA @DpcABPMJAY @socialpwds @Office_of_CCPD Rare lives matter🙏
Research shows that a significant percentage of individuals with PWS display autism spectrum traits, such as: • Social communication difficulties • Repetitive behaviours • Sensory sensitivities • Rigidity in routines • Anxiety and emotional regulation challenges #Autism
India has almost 70 million Rare Disease patients #RareLivesMatter Parents are already drowning with the financial burden of treatment and here our children are deprived of basic medical insurance even for common illness hospitalisations @irdaindia @raghav_chadha @healthtimeszim
@raghav_chadha Sir,you are the voice of common people in India.On @rarediseaseday & awareness month,please support our community. Leave alone any medical help..In our country a basic medical insurance policy is also denied to our #Raredisease #warriors @irdaindia
What is The Rare Disease Challenge? Join us as @ap_mittal speaks to an extraordinary panel of #RareDisease patient advocates: @Prasannashirol Cofounder @ORDIndia Shikha Metharamani CoFounder @IPWSA_ Ms. Purva Mittal, Patient Advocate Spinal Muscular Atrophy #LivedAndLeading
Thank you Tata Institute of Genetic Sciences @tigs We couldn't have achieved this event so flawlessly without your support.
Recently we hosted a one day conference on Prader–Willi syndrome with @IPWSA_ at @BLiSC_India campus Expert insights spanned sleep & pulmonology, endocrinology, psychology, education & genetics Thank you to all participants for attending! Read more: tigs.res.in/advancing-care…
@TIGS_India @BLiSC_India Thank you for the kind support ,we are truly grateful for this event 🙏
Our hero, Aryan got featured in @timesofindia for #RareDisease awareness month @rarediseaseday #PraderWilliSyndrome
Inside India’s Funding Failure in Rare Genetic Disease Care | Global Health NOW globalhealthnow.org/2025-11/inside… #MUMBAI -the most progressive metro city but the worst possible scenario for all our #PWS patients, awaiting treatment! @KEMHOSPITAL @RupsaChak @MoHFW_INDIA @healthtimeszim
@MSDESkillIndia @jayantrld Sir @PMOIndia @airnewsalerts @NITIAayog @PIB_India Thank you for talking about inclusivity for PwD🙏 Sir,please explain what is being implemented to bring about this change?
Thank you to the Endo department at #IPGMER for their constant support and interest in #PWS #Kolkata #india
As May Prader-Willi Syndrome Awareness Month winds down,its important to understand these children and adolescents growing into adulthood to provide effective care #PraderWilliSyndrome #raredisease
This May, we raise awareness for Prader-Willi Syndrome, a rare genetic disorder affecting hunger, growth, hormones & behaviour. Connect with our Pediatric Endo team to know more: forms.gle/MgKrdFBHxUpp85… #PWSAwarenessMonth #RareDisease #HopeForPWS #AsterHospitals #DeptOfPedEndo
@asterbangalore Thank you for spreading the much needed awareness on Prader Willi Sydrome🧡
Soleno Therapeutics Announces U.S. FDA Approval of VYKAT™ XR to Treat Hyperphagia in Prader-Willi Syndrome – Soleno Therapeutics Inc. investors.soleno.life/news-releases/…
#hope 🙏
🧬Could genetic therapy change the future of PWS? Researchers are working to develop treatments that target the root causes of the condition, offering new hope for individuals with #PWS and their families. Learn more about the progress being made: hubs.la/Q038Rd0w0
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Nayum Pasha lost his life because of the blatant negligence and self absorption of #AutismAshram Instead of the well being of the child,who was entrusted in their care by trusting parents.Many more victims are voicing out @DisabilityIndia @socialpwds @mansukhmandviya #Gujarat
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