ISOQOL @ISOQOL
Advancing health related quality of life research. isoqol.org Global Joined June 2011-
Tweets3K
-
Followers2K
-
Following432
-
Likes2K
Help us #MovethePlane at #ISOQOL 2026! ✈️ Join us for our Registration Raffle and Silent Auction to help support patients, students and new investigators, and members from developing countries. Learn more about this year's fundraiser events at buff.ly/3xxuQbS.
0
0
0
52
0
View Details
Deadline extended! Submissions for all four of JPRO's special topical collections are now open through 31 December 2026. Submit your research today! Learn more at buff.ly/wAasoxL
Reminder! Quality of Life Research Journal seeks a new Co-Editor-in-Chief to begin a term in December 2026. Details on the position and how to apply at our website: buff.ly/Lua3kBv
Be sure to check out the half-day workshops at #ISOQOL 2026! These featured morning workshops will cover #PRO systems in #ClinicalPractice and #PeopleCentredHealth measurement. Add a ticket to your conference registration today! Learn more at buff.ly/HMgJKUj.
Last chance to submit your manuscript to the JPRO special issue "Translation and Validation of Patient-Reported Outcome Measures." Submissions are due tomorrow, 14 July! Learn more at buff.ly/f5le7Xm.
Attention, ISOQOL members! Today is the final day to cast your vote in the 2026 Board of Directors election. Make your voice heard and select your leaders! Meet the election candidates and access the ballot at buff.ly/5FtarOw.
Time's running out! Don't miss out on the chance to get the best deal & join us for #ISOQOL 2026. Early Bird Registration closes TODAY, 6 July at 6:59 pm CDT! Register now at buff.ly/PFkTo8H
Heads up: the ISOQOL office will be CLOSED tomorrow on Friday, 3 July, in observance of the U.S. holiday, Independence Day.
Only one week remains to take advantage of the Early Bird registration rate! Don't miss out on this chance to save and secure your spot at #ISOQOL 2026. Learn more: buff.ly/PFkTo8H
Have you checked out the plenary session lineup for #ISOQOL 2026? Take a look and register today! Early Bird Registration closes 6 July, so don't miss out. buff.ly/sU5ZWp7
Last call! Submissions for the QLR special issue "Quality of life in people with mental disorders – beyond global scores" close in one week on Tuesday, 30 June. Learn more at buff.ly/JTF2MAk.
Volunteer opportunity! Journal of Patient-Reported Outcomes seeks new Associate Editors to begin a three-year term. Details on the position and how to apply at our website: buff.ly/JlKRCJv
ISOQOL members can now cast their vote for the 2026 Board of Directors Election! Voting closes on Wednesday, 8 July at 11:59 pm CDT. More information and a link to vote is available here: buff.ly/F7SFKie
Great opportunity for professionals in the #QOL field! Quality of Life Research journal seeks a new Co-Editor-in-Chief. Details at: buff.ly/AcZe0Fe
Reminder: you can now register for #ISOQOL 2026. We hope you'll join us in Prague or virtually! Details at buff.ly/UcUy8Wk
Submission deadlines extended for several of JPRO's special topical collections! Now due 31 December 2026. Learn more about the calls for papers at buff.ly/NaJ7bZ5.
Take advantage of your member benefits! Access on-demand recordings for ISOQOL's past virtual symposia and select webinars for free with your membership. Visit the Education Library through your member profile or at buff.ly/x9LzXy5.
Reminder: one month remains to submit to QLR's special issue, "Quality of life in people with mental disorders – beyond global scores." Learn more at buff.ly/WEOrYmH
ICYMI: #ISOQOL 2026 registration is now open! Get started: buff.ly/RPItUb4
Don't miss out—register today for the 2026 Annual Conference! Join #ISOQOL for the premier learning and networking event in #HRQL research. Secure your spot now: buff.ly/aqDxzcR
EORTC Quality of Life... @EORTC_QLG
1K Followers 897 Following The mission of the @EORTC QLG is to develop measures of PRO in #cancer, incl. #HRQoL, and promote and coordinate studies concerning the #QoL of cancer patients.
Tim Pickles @PicklesTim
1K Followers 2K Following Research Fellow in Statistics @CTRCardiffUni; @researchwales Next Steps Awardee; Rasch measurement theory, psychometrics, PROMs and Rheumatoid Arthritis
John Brazier @ProfJohnBrazier
2K Followers 151 Following Health economist, policy researcher, quality of life researcher, meditator, Director of Innovation @ScHARRSheffield @sheffielduni
Mel Calvert @drmelcalvert
1K Followers 442 Following Professor Outcomes Methodology, Director @CPROR_UoB & BHP Centre Regulatory Science & Innovation #NIHR Senior Investigator Passionate #PROs #CRSI #spiritAI #PPI
nance devlin @nancydevlin1
2K Followers 2K Following @UniMelbMDHS Professor of Health Economics and ex-twitter user. No longer active here - you can find me on @prof-nancy-devlin.bsky.social instead!
EuroQol @EuroQol
979 Followers 60 Following Research foundation committed to the development of the EQ-5D family of instruments. Led by a global network of experts. Messages by the communications team.
Andrew Bottomley @andrewbottom0
237 Followers 141 Following Psychologist and Researcher, Ph.D, Expert in Clinical Trials and PRO, Consultant, Oncology, Outcomes Researcher
Jens Lehmann @JLehmann_IBK
294 Followers 531 Following early career investigator @imed_tweets | current chair of ECI group at @EORTC_QLG & EORTC board member patient-reported outcomes | ePRO | cancer |
Prof Jill Carlton @JillCarlton1
426 Followers 350 Following Professor of Health Outcomes Research, SCHARR Outcomes, University of Sheffield
Dr Christel McMullan ... @christel_UoB
833 Followers 3K Following French, European, Qualitative Research, PROs/ePROs, Long COVID, Traumatic Brain Injury, Uni Birmingham, NVivo, Take That, Barlow, Bowie, Goldman. Views my own
Prof. Haryana Dhillon @hagsie
4K Followers 1K Following Psycho-oncology (living with cancer) researcher. Despite imminent collapse of civilisation & mass extinction, trying to help. Moving to: @hagsie.bsky.social
Samantha Sodergren @SCSodergren
413 Followers 310 Following Senior Research Fellow, Chartered Health Psychologist, University of Southampton, EORTC Quality of Life Group Member.
CPROR @CPROR_UoB
1K Followers 592 Following The Centre for Patient Reported Outcomes Research (CPROR) delivers world-class research & education, builds capacity & delivers major impact @unibirmingham
James Buchanan @jbuchanan_ox
3K Followers 2K Following Dad+husband | Health economist @QMUL_WIPH/@QMUL_WIPH_CEM (https://t.co/Sf9kyh1Hh2) | Curator @econ_genomics | Director @healtheconomics | Governor @BartonParkSch
Skye Barbic she/her/h... @skye_barbic
3K Followers 2K Following Associate Professor @UBC, Scientist @CHEOSnews passionate about #learninghealthsystems #measurementbasedcare #integratedyouthservices, #OT. All views my own.
JPatientRepOutcomes @JPRO_ISOQOL
533 Followers 51 Following The latest open access research from Journal of Patient-Reported Outcomes. An official journal of @ISOQOL, published by @SpringerOpen
Phil Powell 🦋 @phi... @philapowell
274 Followers 215 Following "Dream weaver", "Visionary", "Maverick", plus #health + #QoL researcher // @ScHARRSheffield University of Sheffield, UK
Koonal Shah @koonalshah
964 Followers 960 Following
Larissa Nekhlyudov @DrN_CancerPCP
3K Followers 2K Following Physician, researcher, educator whose mission is to improve care for those living with and beyond cancer #survonc @BrighamWomens @DanaFarber @HarvardMed
Grace Turner @gracemturner
592 Followers 546 Following Stroke/TIA researcher at @unibirmingham Primary Care Department.
Ibrahim Alabbadi @ibrahimabbadi60
9 Followers 18 Following
Jojo JR @flask_in
0 Followers 115 Following
Dr Bijoy Kar @BKBijoy7
45 Followers 741 Following Gynecologic Oncologist, Maverick, Egalitarian & Yoga Enthusiast.
Meagan Cloutier @meagancloutier
1K Followers 2K Following Lead - Survey Projects, Health Quality Alberta | phd from ucalgary dept of political science | tweets/reposts are my own
NIHR Applied Research... @NIHRARCs
5K Followers 2K Following We are the network of 15 @NIHRresearch Applied Research Collaborations. ARCs support applied health & care research across the country https://t.co/3vPO6R4cYW
Pierfrancesco Franco @Pier_Franco_MD
824 Followers 534 Following Associate Professor at the Department of Translational Medicine of the University of Eastern Piedmont, Italy
CIBMTR @CIBMTR
6K Followers 467 Following Research organization, collaborating with the global scientific community to increase survival and enrich quality of life for patients needing cellular therapy.
Jared Leff @Jared_Leff
413 Followers 1K Following @WCMPopHealthSci @CHERISHresearch | graduate of @UWMadEngr and @DuluthMarshall | avid reader, long walker, and par taker of civ 6 🌈
Phyllis Lun @phyllis_lun
80 Followers 868 Following Sr. Research & Data Analyst @ElectionsON | Behavioural Science, Population Well-being & Civic Participation | PhD Psych Epi | @HKUMed @BU_CAS @Cal alum |
Pratik Choudhary @drpratikc
10K Followers 2K Following Prof of Diabetes at Leicester Diabetes Centre. Focussed on all things Type 1; Education, Psychology, Hypoglycaemia and technology. Ex-chair of @DTN-UK
Adesola Odole @AOdole1586
0 Followers 2 Following
Angie Rodday @AngieRodday
294 Followers 1K Following Associate Professor, Health Services Researcher, #biostatistics, #hemeonc #TuftsWIMS @TuftsMedicalCtr, @tufts_icrhps, @tuftsctsi, @TuftsGSBS #RecHockeyPlayer
Rerne @Rerne7250064
34 Followers 1K Following
Awvrarmor @Awvrarmor89078
32 Followers 1K Following
Karwat Zenon (still 1... @zenjk0
3K Followers 8K Following Slavic slav. Slowly...Trying to be HUMAN nowadays. Think free and be great! #TBI Recovering Adm Master. Retweet ≠ endorsement. Like = left for later
Alflaldgou @Alflaldgou059
27 Followers 602 Following
Elias David Lundereng @EliasLundereng
77 Followers 342 Following Oncology nurse and PhD fellow at Oslo university hospital, and University of Oslo. Mostly tweeting about my PhD journey.
Beth Witham @BethAliceWitham
28 Followers 69 Following Graduate research assistant at Galen Research Ltd. First class graduate from the University of Liverpool🧠📝 @livunipsyc
Kaswija @kaswija
128 Followers 5K Following
UTMB Oral and Maxillo... @UTMB_OMFS
2K Followers 2K Following Official Twitter account for the division of Oral and Maxillofacial Surgery at University of Texas Medical Branch
Clair Le Boutillier @CLe_Boutillier
395 Followers 1K Following Occupational Therapist | @This_Institute Research Fellow @KingsNursing | Creative Methods | Healthcare Improvement
Donald A Buskirk @dbuzmkt
47 Followers 297 Following Biotech commercial strategy, new product planning in early, mid-stage drug development
Dr. Karan Sood @QuantumOnc
1K Followers 7K Following Stoic | Molecular Oncology | Medical Oncology | Manchester United | Metallica | CR7 | Schumacher | Federer | Bryant | Views are my own
philippos klonizakis @philklon
8 Followers 95 Following
Gushooni @gushooni18857
3 Followers 148 Following
Naomi Bell @naomi_bell97
169 Followers 231 Following PhD Researcher @UlsterUniPhD - Investigating PA levels in children with CHD @SHAPEStudyNI. AFHEA. Sports Nutritionist. UKAD Clean Sport Advisor.
TabithaGibbon @UXEL9p37B9jn58f
73 Followers 7K Following
Pierre Beauchant @R4nd0mUs3rN6m3
0 Followers 3 Following
Caitlin Wilson @999_Caitlin
1K Followers 873 Following Senior Research Fellow @YASResearch @UH_HSK. Recently completed my PhD on #prehospitalfeedback. Associate Editor @_theBPJ_. she/her
Richard @LondonOntariooo
503 Followers 5K Following Builder of many things, food critic, active lifestyle, novice marketer, many occupations and many interests.
Ailsa Jane 🐝 @AilsaJanePodMed
2K Followers 2K Following No longer active on Twitter. I am now on 🦋 - ailsajanepodmed
Eczema RDC @RdcEczema4128
52 Followers 566 Following Nous sommes une organisation sans but lucratif des malades de le peau : ECZEMA RDC, asbl
Gabrielle Gilbert @Gilbert_Gabbi
78 Followers 962 Following
هلال @HelalElham42547
36 Followers 813 Following
Dr. Suresh Jungari @SureshJungari
269 Followers 1K Following Demographer, Social Scientist, GBV Researcher, Teacher and Social Worker Assistant Professor, International Institute for Population Sciences, Mumbai, India
@DrJackieMcRae @drjackiem
4K Followers 2K Following PhD Dysphagia FHEA FRCSLT• Associate Professor• NIHR DSE awardee & Rehab Researcher• Speech & Language Therapist•Associate Editor•Mentor/Supervisor
Hideki Sato @hidekis_psych
351 Followers 239 Following Assistant Prof at Fukushima Medical University | CBT, depression, rumination, patient‐reported outcome | Find me on Bluesky
Lazist @se8070
97 Followers 148 Following
University of Utah Va... @UofUVascular
2K Followers 443 Following News and information from the Division of Vascular Surgery, University of Utah School of Medicine.
Birgith Grove @Birgith78
1 Followers 8 Following
Mazie Tsang, MD, MAS,... @MazieTsangMD
2K Followers 2K Following Asst Prof Lymphoma Mayo AZ | Alum: @UCSFCancer @UMichMedicine @MayoMN_IMRES @uhmedjabsom | 🚺 in med, decision-making, #pallonc #geriheme | posts my own
luis seija, md, mshp ... @leseija
1K Followers 3K Following texan looking to change the world & make mom proud | clinical research fellow @mgh_gi | medpeds hepatocyte
Ortrun Schulenburg @OrtrunSchulenb1
853 Followers 6K Following I like visual arts, photography, interior design, healthy living & happy aging, inspirational quotes and Jazz. I'm a professional healthcare researcher.
Nneka N. Ufere, MD MS... @NnekaUfereMD
4K Followers 920 Following Hepatologist @MGH_GI Alum @MGHChiefs|@MGHMedicine|@WashUMedicine. Goal: Increase healthcare system empathy for patients with cirrhosis #palliativehepatology
RACHEL WISE @a_wise_rachel
3 Followers 160 Following
Andrew Bottomley @andrewbottom0
237 Followers 141 Following Psychologist and Researcher, Ph.D, Expert in Clinical Trials and PRO, Consultant, Oncology, Outcomes Researcher
Prof. Haryana Dhillon @hagsie
4K Followers 1K Following Psycho-oncology (living with cancer) researcher. Despite imminent collapse of civilisation & mass extinction, trying to help. Moving to: @hagsie.bsky.social
CPROR @CPROR_UoB
1K Followers 592 Following The Centre for Patient Reported Outcomes Research (CPROR) delivers world-class research & education, builds capacity & delivers major impact @unibirmingham
James Buchanan @jbuchanan_ox
3K Followers 2K Following Dad+husband | Health economist @QMUL_WIPH/@QMUL_WIPH_CEM (https://t.co/Sf9kyh1Hh2) | Curator @econ_genomics | Director @healtheconomics | Governor @BartonParkSch
Skye Barbic she/her/h... @skye_barbic
3K Followers 2K Following Associate Professor @UBC, Scientist @CHEOSnews passionate about #learninghealthsystems #measurementbasedcare #integratedyouthservices, #OT. All views my own.
JPatientRepOutcomes @JPRO_ISOQOL
533 Followers 51 Following The latest open access research from Journal of Patient-Reported Outcomes. An official journal of @ISOQOL, published by @SpringerOpen
The Lancet @TheLancet
754K Followers 456 Following Welcome to The Lancet, one of the world’s leading medical journals, published weekly since 1823.
Amsterdam UMC @amsterdamumc
22K Followers 911 Following Wij zijn Amsterdam UMC. We reiken de hand aan Amsterdam & omstreken en aan iedereen die met ons een gezond leven wil bevorderen. #amsterdamumc
Kathrin Fischer @ResearchRock
12 Followers 33 Following Passionate researcher trying to make a difference in health care!
Angela M. Stover, PhD @Angela_M_Stover
696 Followers 2K Following #patientreportedoutcomes (PROs) and #impsci researcher. Opinions are my own; facts are just facts. #steelersfan #goheels #ISOQOL #CPSIG #GenX #FirstGen
Melanie Hawkins @4MelanieHawkins
78 Followers 281 Following
Kevin Weinfurt @KevinWeinfurt
213 Followers 126 Following I do work in patient-reported outcomes research, empirical bioethics, sexual medicine, and the art of giving scientific presentations.
Rick Sawatzky @RickSawatzky1
134 Followers 50 Following I'm no longer using X so won't see any mentions or posts. Please email me to stay in touch or follow our work on the https://t.co/VsaGRd51wQ website.
The PROTEUS Consortiu... @proteuspros
250 Followers 247 Following Helping you navigate the use of Patient Reported Outcomes (PRO) in clinical trials and clinical practice. RTs ≠ endorsements.
Jan R. Boehnke is on ... @jrboehnke
1K Followers 2K Following @UoDHealthSci Active on 🟦 🐘 Psychological Assessment, Psychometrics, Research Ethics #NightshiftEditor #MentalHealth #HRQL #Multimorbidity Views my own
Lori Frank @LoriBethFrank
1K Followers 4K Following President, Women’s Health Access Matters (WHAM) @WHAMnow. @loribfrank/Threads
Claudia Rutherford @claudia_ruthers
172 Followers 48 Following Associate Professor, Sydney Quality of Life Office & à Beckett Senior Research Fellow. Interests: Health outcomes, PRO/QOL, symptom burden, cancer survivorship.
Richard L. Skolasky, ... @RSkolaskyScD
296 Followers 201 Following Health services researcher @HopkinsOrtho committed to high quality #research to improve #health and #patientreportedoutcome at #JohnsHopkins #spine #orthopedics
Antoine Regnault @A_Regnault_PhD
88 Followers 76 Following Global Lead Statistics Modus Outcomes (https://t.co/ok4R3EGK3k)
Sydney Office of Qual... @SydneyQOLO
176 Followers 31 Following SOQOL aims to optimize use of patient-reported outcomes in clinical trials & routine care ensuring the patient perspective is part of research & decision-making
RePROM @re_prom
46 Followers 101 Following RePROM is a pilot trial in which patients with chronic kidney disease will use an online system to send monthly health reports to their health care team.
SciLine @RealSciLine
5K Followers 10K Following Reporters, need an expert to add science to your story? Scientists, need to improve your media-communication skills? We can help!
News from Science @NewsfromScience
731K Followers 638 Following The latest stories in science, brought to you by the @ScienceMagazine news team.
National Academy of S... @theNASciences
59K Followers 1K Following As advisors to the nation, we recognize and advance outstanding science for the benefit of society. Journals: @PNASNexus, @PNASNews | President: @NeilShubin
Scientific American @sciam
4.3M Followers 788 Following Awesome discoveries. Expert insights. Science that shapes the world.
EurekAlert! @EurekAlert
43K Followers 330 Following Daily trending science news, images, videos, & more. Operated by @AAAS, the world’s largest general science society.
AAAS @aaas
139K Followers 465 Following Updates from AAAS, the American Association for the Advancement of Science. Join us: https://t.co/iUvdZveVpd
Professor Zoe Winters @drzoewinters
666 Followers 818 Following Consultant Breast Cancer Surgeon and Breast Specialist. .......(London Breast Health)
PRO News @PRONews2
146 Followers 11 Following Tweeting about Patient Reported Outcomes news and opportunities from industry and academia
ISPORJournals @ISPORJournals
4K Followers 164 Following The official Twitter account for Value in Health, Value in Health Regional Issues, and Value & Outcomes Spotlight. Retweets do not equal endorsements.
Executive Director @EDI_ExecInc
122 Followers 67 Following Executive Director Inc. (EDI) is a top company in association management in U.S. Offering full-service management for medical & scientific associations.
Children's Hospital C... @ChildrensColo
25K Followers 889 Following Named a top hospital in the nation for children, we see, treat and heal more kids than any other in the Rocky Mountain area.
Jose M Valderas @josemvalderas
643 Followers 240 Following Family Physician & Health Systems Researcher disseminating, discussing and making sense of #HealthServices #PROs #multimorbidity #PrimaryCare for healthy lives
Child Health USA @ChildHealthUSA
21K Followers 14K Following Working to improve child health & pediatrics through public policy change in the United States. Proud initiative of @First_Focus and @Campaign4Kids.
Brown EvSynth Health @BrownEvSynth
470 Followers 349 Following #CESH Center for Evidence Synthesis in Health solves complex problems using #MetaAnalysis #SystematicReview #DataScience #MachineLearning #SoftwareDevelopment
UNC Public Health @UNCpublichealth
204K Followers 1K Following This account is no longer monitored & remains as an archive of past posts. Connect with the Gillings School on Instagram, LinkedIn & Facebook — see link below.
ASA @AmstatNews
20K Followers 1K Following The American Statistical Association, the world’s largest community of statisticians and second oldest, continuously operating professional society in the US.
ISUH @IS_UrbanHealth
2K Followers 2K Following ISUH is the first global NGO dedicated to building healthier & more #equitable #urban futures worldwide + leading the field of #UrbanHealth.
Diabetes Research Ins... @Diabetes_DRI
41K Followers 5K Following The DRI and Foundation’s sole focus is to #CureDiabetes. We love research, science & the d-community. Join our mission: https://t.co/E5OSUGeM5O!
Arthritis & Implement... @Arthritis_UBC
2K Followers 705 Following Arthritis & Implementation Science Lab, led by @LLi_1. #arthritis #eHealth #hcsm #patientengagement On Mastodon @[email protected]
SCHARR Knowledge Exch... @SCHARR_KE
571 Followers 423 Following Transforming health and social care research into real world solutions
International Society... @ISQOLS_org
1K Followers 3K Following The International Society for Quality-of-Life Studies (ISQOLS) promotes research in the field of quality-of-Life, happiness, and wellbeing studies.
Neuro Research LTHT @Research_Neuro
457 Followers 332 Following Research teams based in the Centre for Neurosciences at Leeds Teaching Hospitals Trust, clinical research in Neuro, stroke, Neuromod, spines and neurosurgery
Novartis Cancer @NovartisCancer
28K Followers 345 Following Join the conversation as we work to improve the lives of those with cancer. See our community guidelines: https://t.co/KWTwKv5451
John Chaplin @JohnEChaplin
84 Followers 232 Following
Dr Susan Bartlett @Susanbartlett12
766 Followers 628 Following MARP, Professor of Medicine, clin psychol, researcher, mom; passionate about patient centered research & care and measuring what matters; views r my own
OOEC @OOEC_Oxford
11K Followers 12K Following @NDORMS @UniofOxford employing engineering to improve joint replacement. #orthotwitter Oxford Unicompartmental Knee Replacement @ooec-oxford.bsky.social
U.S. Surgeon General @Surgeon_General
1.2M Followers 167 Following Official X account for the U.S. Surgeon General. Tweets before 01/20/25 are from prior federal officials. Privacy: https://t.co/SrVlrTW1gb
Patiëntenfederatie @PatientenNL
16K Followers 840 Following Lees hier alles over onze onderzoeken, standpunten, nieuws en inzet in de politiek over hoe de zorg beter aan kan sluiten bij wat patiënten vinden en vragen.
ACRP - Assoc. of Clin... @ACRPDC
8K Followers 2K Following The Association of Clinical Research Professionals (ACRP) Marks 50 Years of Advancing Excellence in Clinical Research
FierceBiotech @FierceBiotech
102K Followers 626 Following The dominant B2B news brand for biotech. Delivering news, revealing insights straight to your inbox.
You might like
JPatientRepOutcomes
@JPRO_ISOQOL
533 Followers
EORTC Quality of Life...
@EORTC_QLG
1K Followers
IMI_SISAQOL
@sisaqol
251 Followers
EuroQol
@EuroQol
979 Followers
Ron Hays
@RonDHays
422 Followers