Lisa S @LisaQuilt4
Daughter w/sclerosing mesenteritis /mesenteric panniculitis diag at 14/ now 21 abd surgeries later. PM me for priv med grp info to add you if diag facebook.com/lisa.schwartz4 Tulsa, Oklahoma Joined March 2013-
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Pls take 30 seconds & text info below for rare disease #sclerosingmesenteritis @GlobalGenes @RareAdvocates @OrphanConf @RARE_Science
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Thank you @OrphanConf x.com/OrphanConf/sta…
Thanks to my top interactors! @LisaQuilt4 @sclerosingmesen via socialjukebox.com/thankyou
3 members just added to SM private med grp from ID, CA,& Australia (331 total) #sclerosingmesenteritis @RareAdvocates @OrphanConf @Nord @nih
Tomorrow is the day MTG @ our State Capitol for #RareDiseaseDay & spkng on #sclerosingmesenteritis (SM) @RareAdvocates @Nord @GlobalGenes
@Nano7even my Facebook is under Lisa Schwart in Tulsa Oklahoma. Pls send me a friend request there as well. Thx
@Nano7even please PM me. Our group is private and can get u go from you so I can add you over. 😀
3 more people diag w/#mesentericpanniculitis & #sclerosingmesenteritis added frm CA, FL, & MD. @OrphanConf @RareDiseases @RareAdvocates @NIH
Thanks again orphan drugs. @sclerosingmesen do appreciate it and all that you do! x.com/OrphanConf/sta…
@Africa_Rare have anyone you're involved with #mesentericpanniculitis or #sclerosingmesenteritis ? We hv 1 member in med grp from S. Africa.
@NIH @EveryLifeOrg @RareDxResearch @RareAdvocates @PSRorphan @indusradiology x.com/LisaQuilt4/sta…
Member 302 added to priv med grp diag w/ #mesentericpanniculitis from Canada. @GlobalGenes @RareDiseases @RareDxResearch @RareDiseasesnet
Member 302 added to priv med grp diag w/ #mesentericpanniculitis from Canada. @GlobalGenes @RareDiseases @RareDxResearch @RareDiseasesnet
Thanks so much @OrphanConf 😀 x.com/OrphanConf/sta…
Thanks to my top interactors! @SeqComplete @ataxiaandme @LisaQuilt4 @mighttuss via socialjukebox.com/thankyou
@GlobalGenes @RareDiseases @EveryLifeOrg @NIH @RareDiseasesnet @RareAdvocates @PSRorphan @d x.com/LisaQuilt4/sta…
Sad to say that we lost a member of our grp w/#sclerosingmesenteritis this week frm Bolivia, recently diag.disease very aggressive at onset.
Sad to say that we lost a member of our grp w/#sclerosingmesenteritis this week frm Bolivia, recently diag.disease very aggressive at onset.
Member 300 added to priv med grp from Michigan w/#mesentericpanniculitis. @GlobalGenes @RareDiseases @EveryLifeOrg @RareDiseasesnet
@OrphanConf thank you again for the mention and shout out #sclerosingmesenteritis #mesentericpanniculitis x.com/OrphanConf/sta…
Thanks to my top interactors! @alanROYGBIV @ataxiaandme @LisaQuilt4 via socialjukebox.com/thankyou
@mighttuss @OrphanConf @RareDiseases @EveryLifeOrg - & Ireland, Scotland, Guam & others. All diag w MP or SM.
@mighttuss @OrphanConf @RareDiseases @EveryLifeOrg @RareDiseasesnet @NIH - pts all over USA, S Africa, Canada, Germany, Syria, Israel, UK
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