Low Protein Connect @LowProConnect
Providing delicious recipes, education, great services and inspiration to support people with metabolic conditions. #FINDYOURPHENOMENAL linktr.ee/lowproconnect UK & IRE Joined October 2014-
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“Protein” as your first word? That’s peak PKU 😄 Meet Ty—sharing his story (starting from day one 👶) in this honest, inspiring film 💜 👉 Head to the link to watch the full film #PKU #LowProConnect #Nutricia #PKULife nutriciametabolics.com/en-gb/life-sto…
💜 Happy PKU Day! 💜 Today we're celebrating the strength, resilience, and achievements of everyone living with PKU, as well as the families, carers, and healthcare teams who support them. You're all truly phe-nomenal 😉 Learn more about PKU Day below nutriciametabolics.com/en-gb/metaboli…
Every PKU journey starts somewhere 💜✨ For many people living with PKU, that journey begins with a tiny test that makes a BIG difference 👣 💡 Early detection matters 👶 Helps families get the support they need 💜 Sets the stage for managing #PKU with confidence #LowProConnect
Hear from Ty and his godfather Chef Derek about what it’s really like living with PKU. If you’re looking for a bit of PKU inspiration this film is amino-zing! 👉 Head to the link to watch the full film nutriciametabolics.com/en-gb/life-sto… #PKU #LowProConnect #Nutricia #PKULife
Milupa LP-drink is a Food for Special Medical Purposes for the dietary management of disorders of amino acid metabolism and other conditions requiring a low protein diet and must be used under medical supervision.
This information is intended for patients, and carers of patients, who have been prescribed Milupa LP-drink by a Healthcare Professional.
PKU nutrition, but make it mobile 🚀 Milupa LP-Drink is great on the go—mix it into coffee ☕, blend it into milkshakes 🥤, and keep moving without missing a beat. Nutrition that travels with you 👏 nutriciametabolics.com/en-gb/products…
Need some low protein meal inspo? 🍽️💜 LowPro Connect is full of recipe ideas for people living with PKU — from comfort food classics to fresh new favourites ✨ Plus, create an account to save your favourite recipes and keep them all in one place 👏 nutriciametabolics.com/en-gb/ #PKU
From diagnosis to adulthood, LowPro Connect supports people living with PKU — and the carers beside them — every step of the journey 💜 💡 Guidance 🍽️ Low protein support 💬 Real stories ✨ Resources for every stage of life Discover how: nutriciametabolics.com/en-gb/
The new Nutricia Metabolics website is here 💜 Recipes 🍽️ Tips 💡 Real LowPro stories 💬 …and loads of support for life on a low protein diet. Safe to say it’s pretty amino-zing 😉 👉 Go check it out and discover your new go-to metabolic resource nutriciametabolics.com/en-gb/ #PKU
Milupa LP-drink is a low protein milk substitute that provides essential amino acids, vitamins, and minerals—designed to support your specific PKU dietary needs. It’s a big scoop of support 😉🥄 nutriciametabolics.com/en-gb/products…
The Loprofin Range are Foods for Special Medical Purposes for the dietary management of inherited metabolic disorders and other conditions requiring a low protein diet and must be used under medical supervision.
Information intended for patients, and carers of patients, who have been prescribed the Loprofin Range by a Healthcare Professional.
🍝💜 Low protein pasta. Real tradition. Real life with PKU. Loprofin pasta has been crafted in Italy for over 50 years Proof that low protein can still be full of flavour (and amore 😉) Because you deserve delicious low protein meals ✨ #PKU #LowProteinLife #PastaLaVista
All products mentioned here are Foods for Special Medical Purposes and must be used under medical supervision. Please refer to product labels for details.
Information intended for patients, and carers of patients who have been prescribed a low protein diet by a Healthcare Professional.
Such a lovely time at NSPKU this year 💜 Connecting with the PKU community, hearing real stories, and being reminded just how inspiring this community is—truly amino-zing 😉 Thanks to everyone who made it so special ✨ #PKU #LowProConnect #LowProtein #PKULife #NSPKU
💜 What’s your PKU “why”? The reason behind every measured choice, every low pro win, every label check 👀 Big or small — your why matters ✨ So don’t keep it bottled up… share it! 👇 Tell us using #FindYourWhy 💜 #PKU #LowProteinLife
🐣 Happy Easter to everyone living with PKU! 💜 May your day be extra sweet, low-pro friendly, and full of phe-nomenal moments. Proof that even with limits, we still crack life wide open 🐰✨ #LowProteinLife #PKU #Nutricia #LowProConnect
Brendan’s got it down—keeping up with your #PKU doesn’t have to be a hassle. It’s all about finding your groove and what works best for you. ✈️ Information intended for patients, and carers of patients, who have been prescribed PKU Lophlex Sensation by a Healthcare Professional.
Anita MacDonald @macdonj
2K Followers 633 Following All tweets discuss low protein foods to help children on low protein diets. All views are my own.
NSPKU @NSPKU
3K Followers 1K Following The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see https://t.co/f9QHejwhkW
Kate Learoyd @PKUFamily
1K Followers 1K Following Mum, charity trustee, ask awkward questions, trying to cope with this icky platform: support @NSPKU for better future for #RareDisease #pku, tweeting own views
Bernadette Sheehan Gi... @sheehangilroy
1K Followers 5K Following Lecturer Researcher Advocate #PKU #LowProtein #BrainHealth #RareDisease "Ní neart go cur le chéile" The views and opinions expressed here are solely my own
Clair W 🧡 @ClairBear42
645 Followers 813 Following Ginger #PKU Adult & Mumma. She/Her. Blogger.👩💻🍓 Expert on films, ice cream, cats and tea. 🎮🌜#ADHD 🏳️🌈
Alvaro Hermida @Info_Rares
2K Followers 1K Following Specialist on Metabolic Diseases and always looking on the bright side of life.
𝔸𝕝𝕖𝕩𝕚�... @mrs_martin_2012
289 Followers 301 Following Wife, mum to an 16 year old with phenylketonuria (PKU), new dog mum, ELCE in Clacks
Promin Metabolics @ProminMetabolic
1K Followers 168 Following Family run company supplying low protein foods and meal solutions for people with #PKU
Chloë Ormerod @OrmerodChloe
377 Followers 219 Following
Jessica Brown @jess_brown10
270 Followers 290 Following
Caroline Graham @CarolinePKU
406 Followers 642 Following Mum, Designer, Artist, NSPKU volunteer, 3 kids 2 with #PKU all views my own
Pauline O'Connor @poconnor
304 Followers 186 Following Author & Advocate. Subscribe for updates, as not here often. Books #TheRedHatStories #LivingWithPKU #LivingWithMildBrainInjury #RareDisease #BrainInjury #PKU
HCU Network America @HCUAmerica
720 Followers 949 Following The mission of HCU Network America is to help patients with #Homocystinuria and related disorders manage their disease and to find a cure. #HCUNetworkAmerica
NPKUA @NPKUA_Info
1K Followers 450 Following The mission of the National PKU Alliance is to improve the lives of individuals with PKU and pursue a cure.
PKU News @howmuchphe
1K Followers 296 Following National PKU News provides support & resources to the PKU community. Phenylketonuria (PKU) is a rare genetic metabolic disorder that requires a low-protein diet
ACIMET | Asociación ... @ACIMET_MMA
681 Followers 1K Following Asociación de afectados y familiares con acidemia metilmalonica. #Enfermedadrara #metabólica #genética 🧬. 1/60.000 nacidos 👶 48 casos. 🗺️https://t.co/hxtLUmdb9P
Ajinomoto Cambrooke M... @Aji_Cambrooke
784 Followers 145 Following Ajinomoto Cambrooke is committed to changing the way people, who require clinical nutrition, experience their diet.
kirsty thornton @bonitobunny
961 Followers 1K Following Love rabbits & Chinese crested dogs especially my beau! Been a zoo keeper since 2002. Been on BBC bargain hunt, love counting cars, Counts77
BCH Metabolics @MetabolicsBCH
3K Followers 2K Following At Birmingham Children's Hospital we care for children with inherited metabolic disorders on low protein diets. We strive to give them the best diets possible
Elena D @ElenaDF75
4K Followers 3K Following Atareada. Endocrinología y Nutrición. Dedicada a lo raro #TCA Errores innatos metabolismo #Hipófisis. Tutora #MIR con ilusión @EndocrinoHUVR @HospitalUVRocio
Dr Dana Hisham @DanaAbuOmar2
167 Followers 634 Following Assistant Professor in MA Inclusive Education at Bethlehem University and a member at Reach research group/ DMHRCG lead
MiKaiL3.1 @4Mikail3n1
0 Followers 88 Following
hiddenwhispers @bibliyofil_vibe
2 Followers 8 Following
Bekir ALDAS @Bekiraldass
2 Followers 45 Following
Cycle Pharmaceuticals @CyclePharma
302 Followers 194 Following Passionate about providing quality treatments & services. Everything we do is with patients & caregivers’ best interests at heart. Every single patient matters.
Dr. Lida @NiaMajidi29495
5 Followers 37 Following PhD pharmaceutical scientist | pharmacy brain 💊💉 Food science heart 👩🏻🔬🧪🧫 Lost in books 📚 Powered by ☕️ 🥐🍕 Full time purple lover 💜
P. @P3442347257977
0 Followers 16 Following
Lic.Agush11 @agustinadducci
312 Followers 551 Following
pao @paomungbeans
0 Followers 985 Following have a faith and trust, my love. pelan-pelan, emangnya apa yang mau dikejar? Alhamdulillah always!
Adrian lis @AdrianL15029
0 Followers 30 Following
Dies solis @Percysfolly17
56 Followers 1K Following
Stephen Sanderson @Stephen57261080
0 Followers 13 Following
anna lad @ladjoeanna
7 Followers 108 Following
S U L A I M A. @Sulayma_
515 Followers 784 Following أَنْتَ وَلِيِّي فِي الدُّنْيَا وَالْآخِرَةِ ۖ تَوَفَّنِي مُسْلِمًا وَأَلْحِقْنِي بِالصَّالِحِينَ
Tara @TazS1984
0 Followers 32 Following Living my best life,finally free from the hell i was living.
Richelle Flanagan �... @RichelleFlan
6K Followers 5K Following Family, Friends, Dietitian, Coeliac/Parkinson’s/ADHD advocate, Life too precious not to smell the🌹Past President INDI; WPC Ambassador Alumni. Own Views.
Transit @TrustTransit
2K Followers 3K Following Cinema, photography, technology, online privacy and global health. I share my take and reviews on these topics.
Beth Wylie @Be_Wylie
0 Followers 20 Following
martin fitzpatrick @murtfitz85
143 Followers 449 Following
Galilo @celil_001
18 Followers 230 Following
Rainbow Sally @MyGalSalSJ
1K Followers 6K Following Here for current events and astute observations. Grounded.
Billy @Billy2897717525
2 Followers 16 Following
Dorothy Garcia @Dorothy49973305
149 Followers 850 Following
Angela Tanner @TannerAnge89048
122 Followers 4K Following
Becky Antonucci @antonucci_becky
3 Followers 58 Following
David McMullan @DavidMcMullan7
300 Followers 1K Following My Ulster Blood is my most Priceless Heritage! Man Utd🇾🇪 Glentoran💚❤🖤 Rangers 🇬🇧⚽️
Zaw Myaw. N @ZawmyawNyi
25 Followers 706 Following B. ed: Bachelor Education. You can get the news from my Twitter channel about education motivation, violence motivation and politics motivations.
:) @nereabugallo
38 Followers 118 Following
Audrea P @Auddyone1983
11 Followers 175 Following
Charles Marques Loure... @CharlesLourenco
69 Followers 473 Following Clinical Geneticist Neurogenetics and Hereditary Metabolic Disorders Specialist
Artur Chrzasciel @ArturChrzasciel
1 Followers 22 Following
jakub @jakubrudnic
12 Followers 87 Following
Miriam Edwards @Charliemim1
9 Followers 18 Following
Kyler Mazerolle @KylerMazerolle
8 Followers 15 Following
handenizim♥️tek o... @HANDEK3410
13 Followers 325 Following ßen sana ilaç😷🤒🤕olurumda sen ßenim yan etkiLeriMe daYanamassıN🚑
Claire Evans @EvansClair80708
0 Followers 9 Following
AudreyMYeoman🌻 @yeoman_audrey
517 Followers 725 Following
Alex Moss @AlexanderJMoss
818 Followers 2K Following Leaving this place until it becomes less hateful. Other socials as AlexJMoss 👍
Nutricia HCP UK @NutriciaHCPUK
1K Followers 202 Following FOR HEALTHCARE PROFESSIONALS ONLY: Delivering pioneering nutritional solutions that help people live longer, healthier lives.
jemma williets @williets_j9694
0 Followers 7 Following
Billy @Billy4204971754
0 Followers 6 Following sweet loving indvidual with pku and am doing great on current meds love to cook and entertain with food
The Mule @The_Mule_
231 Followers 1K Following
Christopher Cassidy @chrisk_1986
17 Followers 47 Following
Molly @mariekelly1111
2 Followers 25 Following
PABLO SILVA @PABLONUTSOCIAL
312 Followers 2K Following BÚSQUEDA DE LA REAL PROSPERIDAD SOCIAL. ESTUDIANDO LA ELIMINACION DE LA POBREZA. NUTRICIONISTA SOCIAL, ESPECIALISTA EN GERENCIA DE LA SEGURIDAD SOCIAL.
Anita MacDonald @macdonj
2K Followers 633 Following All tweets discuss low protein foods to help children on low protein diets. All views are my own.
NSPKU @NSPKU
3K Followers 1K Following The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see https://t.co/f9QHejwhkW
Kate Learoyd @PKUFamily
1K Followers 1K Following Mum, charity trustee, ask awkward questions, trying to cope with this icky platform: support @NSPKU for better future for #RareDisease #pku, tweeting own views
Bernadette Sheehan Gi... @sheehangilroy
1K Followers 5K Following Lecturer Researcher Advocate #PKU #LowProtein #BrainHealth #RareDisease "Ní neart go cur le chéile" The views and opinions expressed here are solely my own
Clair W 🧡 @ClairBear42
645 Followers 813 Following Ginger #PKU Adult & Mumma. She/Her. Blogger.👩💻🍓 Expert on films, ice cream, cats and tea. 🎮🌜#ADHD 🏳️🌈
Chloë Ormerod @OrmerodChloe
377 Followers 219 Following
Pauline O'Connor @poconnor
304 Followers 186 Following Author & Advocate. Subscribe for updates, as not here often. Books #TheRedHatStories #LivingWithPKU #LivingWithMildBrainInjury #RareDisease #BrainInjury #PKU
British Dietetic Asso... @BDA_Dietitians
40K Followers 2K Following The professional association & trade union for UK dietitians. This account is no longer actively used or monitored. Please follow us on our other channels.
NPKUA @NPKUA_Info
1K Followers 450 Following The mission of the National PKU Alliance is to improve the lives of individuals with PKU and pursue a cure.
PKU News @howmuchphe
1K Followers 296 Following National PKU News provides support & resources to the PKU community. Phenylketonuria (PKU) is a rare genetic metabolic disorder that requires a low-protein diet
ESPKU @official_espku
1K Followers 38 Following Official Account of the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria
BCH Metabolics @MetabolicsBCH
3K Followers 2K Following At Birmingham Children's Hospital we care for children with inherited metabolic disorders on low protein diets. We strive to give them the best diets possible
Rare Disease Day @rarediseaseday
42K Followers 3K Following 28 February 2027 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are impacted by rare diseases. #RareDiseaseDay
PKU Association IE @PKU_Ireland
1K Followers 3K Following PKU Association of Ireland #SUPPORTINGPKU #LowProtein PKU Awareness in Ireland Registered Charity Number (RCN) 20202487
PKUhub @PKUhub
1K Followers 437 Following PKUhub... The virtual meeting point for PKU's...such a big part of a small number of peoples' lives...Est'd 2004. It's all in our genes! 🧬
Orla Walsh Dietitian @OrlaCWalsh
7K Followers 381 Following BA Physiology, MSc Clinical Nutrition, PgDip Dietetics, PgDip Sports & Exercise Nutrition, MA Physiology. Instagram: OrlaWalshNutrition W: https://t.co/loR2PWcgNZ
James Nurse @DrJNurse
1K Followers 356 Following Father. Consultant paediatrician. Hockey player. Interested in IMD and Medical Education. Social Media editor at @JIMD_Editors
CanPKU+ @canpku
892 Followers 252 Following CanPKU is a non-profit association, dedicated to providing information and support dealing with low protein metabolic disorders such as HCU, MSUD, PKU and UCDs.
Suzanne Ford @SuzanneFord19
201 Followers 163 Following Dietitian working with people who have Inherited Metabolic Disorders.... Tweeting own views
EURORDIS-Rare Disease... @eurordis
31K Followers 1K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Metabolic Support @MetabSupport
405 Followers 402 Following The leading patient organisation for inherited metabolic disorders supporting thousands of patients worldwide to live well today, tomorrow
Sandra Wilkinson @SWilkinsonRD
118 Followers 400 Following
INDI @trust_indi
6K Followers 2K Following Founded in 1958, the Irish Nutrition & Dietetic Institute (INDI) is the professional organisation for registered dietitians in Ireland
C&G Baby Club @cgbabyclub
73 Followers 2 Following
Alltech Ireland @AlltechIreland
3K Followers 2K Following Alltech Ireland is part of a global animal health company that helps farmers feed the world, raise healthy animals and protect the environment @Alltech
Children's Health Fou... @CHFIreland
9K Followers 3K Following Supporting @CHI_Ireland giving every sick child the best chance. All the latest news from Children Health Foundation. CHY 13534 | RCN 20042462 | CRO No. 328920
Epilepsy Ireland @epilepsyireland
5K Followers 1K Following Working to achieve a society where no person's life is limited by epilepsy. Registered Charity No: 20010553 CHY Number: 6170
CORD @raredisorders
5K Followers 687 Following CORD Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.#Canada4Rare
Sarah Keogh RD @Dietitianbytes
5K Followers 1K Following Dietitian, founder of Eatwell. Find me on Instagram @sarahkeoghrd
Mater Hospital @MaterDublin
1K Followers 0 Following
Nutricia España @Nutricia_es
3K Followers 2K Following Información corporativa sobre la empresa Nutricia España. Ningún contenido debe ser entendido como recomendación de carácter médico.
Nutricia HCP UK @NutriciaHCPUK
1K Followers 202 Following FOR HEALTHCARE PROFESSIONALS ONLY: Delivering pioneering nutritional solutions that help people live longer, healthier lives.
Nutricia @Nutricia
4K Followers 3 Following Building on a century of research and innovation, Nutricia pioneers nutritional solutions that help people live longer, more joyful and healthier lives.
NutriciaHCP - Ireland @NutriciaHCP_IE
856 Followers 746 Following Nutricia have been pioneering nutritional solutions since 1896. This page is to support our Healthcare Professionals in Ireland. Content for HCPs only.
Rare Diseases Ireland @RareDiseasesIE
4K Followers 1K Following Equitable access to healthcare and opportunity for all! RDI - A united voice for people living with rare diseases in Ireland RCN 20044633
UK Health Security Ag... @UKHSA
466K Followers 790 Following Official feed of the UK Health Security Agency (UKHSA) providing regular news updates on the work of the organisation.
Carol @PKUlicious
191 Followers 265 Following I am a mother of 4 children but 3 with PKU, this is my page of foods I have made - past and present. I would love to share and see what other people have made.
Margaret Allan @magsAllan
85 Followers 307 Following Chester based English Literature and German graduate working in the charity sector. Passion for writing and travel. Founder of Ebb & Flow blog.
Nutritools @Nutritools_org
220 Followers 13 Following Improving quality of dietary assessment in health research
Mundo Metabólico @MundoMetabolico
972 Followers 173 Following Bienvenidos #MundoMetabolico, la cuenta desde la que podrás encontrar todo lo que necesitas respecto a las enfermedades relacionadas con el metabolismo
Virgin Media Televisi... @VirginMedia_TV
117K Followers 605 Following All the latest news, entertainment & more from Virgin Media Television. The home of #GuinnessSixNations #ImACeleb #IrelandAM #LoveIsland #TonightVMTV
Ireland AM @IrelandAMVMTV
76K Followers 3K Following Monday-Friday from 7.00am to 10.00am & weekends from 9.00am to 12:00pm on Virgin Media One. Email: [email protected] #IrelandAM
Marianne McGovern RD @MMcGovernRD
44 Followers 47 Following Dietitian- BSc(hons) physiology, MSc Pg/dip dietetics. Interest in inherited metabolic disease, IBS, FODMAPS and Gastro The views expressed are my own.
Una Hendroff RD @UnaHendroff
438 Followers 393 Following Coru Reg Dietitian. MSc Clin Research. mINDI. Coeliac.♥️Outdoors, Hiking, Food, Family & Friends. Views my own.
LauraLynn, Ireland's ... @LauraLynnHouse
11K Followers 421 Following Providing palliative care and support for children with life-limiting conditions and their families. RCN: 20154844
BIMDG @BIMDG
1K Followers 313 Following Twitter account for British Inherited Metabolic Disease Group. Tweets by Dr James Nurse (@drjnurse) and Dr Rachel Carling (@rachblacklabel).
Loughzal Mériam @Loughzou
9 Followers 16 Following
James Betts @DrBSteamjets
4K Followers 96 Following Professor at University of Bath Editor-in-Chief @IJSNEMJournal
Ben Green @DrBen_Green
870 Followers 581 Following Head of Science @holland_barrett | PhD in Nutrition & Metabolism | RNutr | All views are my own.
Simply Measured @simplymeasured
291K Followers 7K Following This profile is no longer active. Follow along on the journey at @SproutSocial. https://t.co/UXdPGCmlQl
ANPAD @azpku
127 Followers 132 Following To help individuals with PKU and Allied Disorders to adhere to treatment, inform families of the latest research, raise public awareness of and create support.
Katy Drewitt @pkusleever
110 Followers 31 Following Come on my journey to a better me. I am having gastric sleeve surgery. I also have PKU (Phenylketonuria) so I will be following a Low Pro diet. Enjoy the ride!
Kelly Nestler @MyCharmedStory
77 Followers 114 Following SAHM to 4 kiddos, PKU mom, My Charmed Story Homeschool Teacher PKU Blog
BDA Events @BDA_Events
7K Followers 1K Following This account is no longer in use. For all your British Dietetic Association events & CED Courses follow @BDA_Dietitians. 🗓️ create. excite. innovate.
@RDUKChat @rdukchat
6K Followers 4K Following Award-winning #RDUK Tweet Chat co-founded in 2011 run by 3 UK Dietitians @azminanutrition @emmacarderrd @drfrankiep Supported by @BDA_Dietitians
Network Health Dietit... @NHDmagazine
6K Followers 6K Following Network Health Dietitians - the Magazine for Dietitians, Nutritionists and Healthcare Professionals.
Blogger @phedupcampaign
397 Followers 573 Following Phedup is a patient action group campaigning for access to new treatments for the #RareDisease #PKU. Hope is strength.
Nat Boyson @NatBoysonPKU
451 Followers 306 Following Amateur photographer, surfer & foodie i also have a rare disease called #PKU. insta:@natboysonPKU
Niamh O'Shaughnessy R... @shauccers
654 Followers 972 Following CORU Registered Dietitian working in Palliative Care👩⚕️ MSc. Human Nutrition 🍕🍓 BSc. Food Science 🧪 Pat's fan 🔴⚪️
PKU @pkuawareness
1K Followers 159 Following PKU is a place where you can get information about PKU and connect with others in the PKU community. This page is sponsored by BioMarin Pharmaceutical Inc.







