Roman-Ulrich Müller @MuellerRom
scientist and MD, aiming to bring novel strategies to fight kidney disease from basic research to the clinic with a focus on dietary and metabolic interventions Joined April 2021-
Tweets453
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Followers575
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Following86
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Likes2K
Thanks @gunnar_heine …and your channel continues to spread the word on the most important news. This is great teamwork. And so important for the kidney disease field.
@MuellerRom @hjanders_hans @NDTsocial Indeed you contributed substantially, @MuellerRom! youtu.be/RzupTGtHs8g?is… youtu.be/9e-UFBnIyDI?is…
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@gunnar_heine @hjanders_hans @NDTsocial Congratulations @hjanders_hans and the entire @NDTsocial team.
Roman-Ulrich Müller retweeted
🧵 🧬 KDIGO 2025 ADPKD Guideline | Vascular manifestations 📄 Read the full article: academic.oup.com/ndt/advance-ar… #KDIGO2025 #ADPKD #PKDInternational @ERAkidney
A recent survey study performed by the @ERAkidney WG Genes&Kidney addresses this question and highlights how current recommendations are implemented in real-world care. academic.oup.com/ckj/advance-ar…
The fact that primary hyperoxaluria is the first kidney disease for which an RNA therapeutic has become available is a milestone for the field. How does this change the treatment landscape? 🧵
Roman-Ulrich Müller retweeted
🧵🧪 STOP-PKD study | Expanding recruitment across Europe : stop-pkd.de/en The STOP-PKD study continues to expand, marking an important step forward for ADPKD research in Europe.
I usually think twice before posting preprints. But this time it’s different. MEDA-PKD is the essence of our work over more than a decade — and, to me, one of the most meaningful contributions I’ve been able to make to biomedical research. 🧵
Huge thanks to all collaborators, clinicians, study nurses, researchers, data scientists — and especially the patients contributing to this effort. @UKKoeln @UniCologne @CECAD_ @PKD_Int
More broadly, MEDA points toward: ➡️continuously learning health systems ➡️real-time translational research ➡️scalable precision medicine infrastructures 📄Preprint: doi.org/10.21203/rs.3.… 🖥️ Live dashboard: shiny.cecad.uni-koeln.de/ADPKD_registry/
First results of the growing interaction between the Nephrology Research Units at Uniklinik Köln and Universitätsklinikum Düsseldorf. Urine Proteomics as a Source of Biological Information and Outcome Pre... sciencedirect.com/science/articl…
Roman-Ulrich Müller retweeted
🧵 We are pleased to announce that the UMCG Universitair Medisch Centrum Groningen in the Netherlands is now officially accredited as a trial site for the STOP-PKD Study.
Roman-Ulrich Müller retweeted
🧵 4/4 Help shape the future of #ADPKD research in Europe 🔬 - make your voice count! 📲 Take part now: survey.uni-koeln.de/index.php/3111… 🗣️ Every response strengthens the patient voice. Thank you! 💛 @FLAVIAZH @MuellerRom @UKKoeln
@ArevaloGoJairo @UKKoeln @UniCologne Essentially we do not know yet if carb restriction works. The ketogenic diet-adpkd study was promising… but we lack a large phase 3 like trial and are currently trying to obtain funding for this
Thanks for the support. More info at stop-PKD.de @UKKoeln @UniCologne
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