Neuroendocrine Tumor Southern Africa Support. NETSAS provides support for NETs patients and empowers patients with knowledgenetsas.org.za Cape Town, South AfricaJoined October 2023
➡️NETs are more common than brain, ovarian, or cervical cancer, incidences are rising
➡️We need our global community to raise awareness, improve the quality of life for NET patients to improve diagnostic times.
🗣️Easily missed. Take a closer look at neuroendocrine cancer!
📢#NETCancerDay is on November 10th.
NETs are easily missed but early diagnosis is possible. 📌Please prepare to join the global NET community to speak in one global voice.
📌Check out INCA’ campaign toolkit for guidance how to get involved in NET Cancer Day: incalliance.org/ncd-2025/campa…#LetsTalkAboutNETs
📣 Patient Perspective talk the South African Society of Nuclear Medicine Congress. Duncan Macduff bringing human side of living with NETS to the program
➡️ Patients face real challenges on a daily basis living with NETS!
netsas.org.za/sasnm-congress…#NETSAS#NETCancerDay
💻Check out our collections of video presentations by prominent NEN researchers to be abreast of the latest in NEN clinical trials: incalliance.org/researcher-ins…
🌎Available in English with captions in French, German, Italian, Portuguese and Spanish.
#LetsTalkAboutNETs#OncTwitter
📢The #SCAN2025 Global Survey of NET diagnostics and care around the world is open!
· Calling to NET patients and caregivers, and HCPs
· Available in 15 languages
Share your experience to improve NET care across the globe.
✅Take the #SCAN2025 Global Survey today:
#INCASummit2025
Stephanie Alband, INCA President and Pheo Para Alliance @PheoPara executive director, and Teodora Kolarova @TeodoraINCA, INCA executive director, made an overview of INCA strategy and projects and highlighted food for thought on where INCA wants to go.
@OncoThor Do salmon run theses rivers? Biking & salmon are the perfect petridish metaphors to finding NET solutions. Flowing, fast regular cadence. Great ears to help the hard yards, trying new flys, fishing different currents & learning a new cast that will enable one to cover new water.
Obrixtamig, a DLL3/CD3 IgG-like T-cell engager for SCLC and epNECs. Just out in JCO. Clearly efficacy in these hard-to-treat cancers and larger studies ongoing will hopefully confirm that.
ascopubs.org/doi/10.1200/JC…
#PrimaryCarePhysicians are the first to see NET patients when symptoms present. Among the repetitive diagnoses of common conditions, it is difficult to suspect the uncommon.
📌We help PCPs to detect NENs with a 60-minutes e-learning and a free CME credit.
✔️Check it out here: incalliance.org/think-nens/#LetsTalkAboutNETs
New to Neuroendocrine Cancer UK? Don’t miss Season 1 of our 'Not Just NE Cancer' podcast - real stories from patients on symptoms before diagnosis + life after. Hear from Maxine, Simon, Michelle, Debra & Sally.
▶️ Listen now: neuroendocrinecancer.org.uk/podcast/
6000 newly diagnosed NENs a year in England alone. ~ 16 a day, ~ 1 every 90 minutes. Not as rare as we keep being told they are. And these figures exclude some types. buff.ly/ffdMkp8
📌Dr. Grace Kong: “The future focus should be on performing more multicenter collaborative studies on NENs.”
☑️Learn about the latest nuclear medicine clinical trials related to NENs: incalliance.org/dr-grace-kong-…#LetsTalkAboutNETs#RadTwitter
✨A call to all patients to assist with advocacy and awareness
✅ Please share this free accredited course, endorsed by WONCA with your GP, physician, radiologist and any other medical people you come across in your NENs journey 🙏
Prof. Martyn Caplin: “NENs are more common than you think. The incidence is said to be now about between 6 or 8 per 100 000 population.”
👉If PCPs know about NENs, they can detect them.
✅Share with your PCP - the free #ThinkNENs CME-accredited e-learning:
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Ivermectin & Mebendazole in Cancer Pioneer!
110+ Papers! Top 3 substack in the world.
Email: [email protected]
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A group dedicated to improving surgical care for #NETs through collaboration and knowledge exchange.
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