NF Bot @NFBot2
Neurofibromatosis\Schwannomatosis Bot-Looking to spread new publications, news, & social media (reddit\twitter). Welcome comments\suggestions to @DrezBoston a unix box out there Joined July 2021-
Tweets19K
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Followers750
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Following2K
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Likes43
Bea has #NF1 and is wonderfully supported by her school & head teacher Amanda. For #WorldNFAwareness Day, Fyling Hall School held a special awareness & fundraising day for NTUK, with everyone dressing up in blue & green, the colours of #NF. Read more: bit.ly/3oYo6Ro
"Neurofibromatosis Ribbon (black background)" Sticker for Sale by nfgirl33 - Redbubble news.google.com/rss/articles/C…
Refractory Hypertension Due to P... news.google.com/rss/articles/C…
Why Run - Eashan lost his eyesight at the age of 5, was then diagnosed with #NF1+ immediately started 18 months chemotherapy. His mother Jen tells his story, offers advice to others in the same situation & shares her experiences in her podcast. Read more: bit.ly/3oZBc0E
Nick Gilbert, son of Cleveland ... news.google.com/rss/articles/C…
@kevin_nealon My aunt had neurofibromatosis. It was the cause of her fatal cancer, her daughter’s brain tumor and her sons cancer. Her grandchildren have the same to look foreword too. Terrible disorder.
#ESHG2023 | Our colleague Sara Juárez, Genetic Diagnosis Specialist Analyst, has presented in Glasgow a poster about a neurofibromatosis type I case: patient who carry two pathogenic variants in trans🧬 View the poster here 👉 healthincode.com/wp-content/upl…
@DPhylomena @derrick_helton @kevin_nealon Neurofibromatosis.
Cupid's Undie Run draws thousands - pantsless - for charity - KUTV 2... news.google.com/rss/articles/C…
Ohana 2023 Rowing for great causes - WJXT News4JAX news.google.com/rss/articles/C…
Home > Soft Tissue - Webpathology.com news.google.com/rss/articles/C…
Janelle Miller en LinkedIn: Advanced Neurofibromatosis Resea... news.google.com/rss/articles/C…
(PDF) Multidisciplinary Outpatient Clinic of Neurocutaneous Diseases: Five-year Experience of a Pediatric Tertiary ...... news.google.com/rss/articles/C…
Pickin' 4 NF in Denton at Harvest House - Do214 news.google.com/rss/articles/C…
Important Topics in Dermatology for NEET-PG - PrepLadder news.google.com/rss/articles/C…
@women_could @AliceSLondon @fickleskittle @DrFrancesRyan I have a son with special needs. When my wife was carrying him, the doctors did a Down’s screening. There were inexplicable abnormalities - not Down’s. We know now why. He has a genetic mutation that caused Neurofibromatosis.
@ghastlydoctor @Sthanu5 ...sarcoidosis, xanthomatosis, histiocytosis X, juvenile and adult xanthogranuloma, generalized eruptive histiocytoma, familial histiocytic dermatoarthritis, and neurofibromatosis."
What is neurofibromatosis? Learn more about this nervous system disorder that can cause tumors which impact the brain, spinal cord and nerves that send signals between the brain and other areas of the body. uoflhealth.org/articles/what-…
Cure NF2 Foundation U... @nf2biosolution1
473 Followers 452 Following Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.
Nerve Tumours UK @NervetumoursUK
2K Followers 678 Following The UK’s Voice for NF (NF1, NF2 & SWN) 💙 Support & Empowerment 🤝 Helpline & Resources 📞 Raising Awareness 🗣👥👥 Fundraising & Campaigning 🏃♀️📣🚴♂️
Brian Na, MD PhD @bnamdphd
1K Followers 784 Following pediatric/adult neuro-oncologist & NF-ologist at @ucsfhospitals @ucsfchildrens | #NF #SWN #AYA
PhiOanh "Leia" Nghiem... @Leia_N_MD
457 Followers 212 Following Neuro-oncologist; Vice Chair of Academic Affairs; Director of Neuro-Oncology Fellowship @UCLANeurology #UCLABrainTumorCenter; NF and Schwannomatosis Clinic
NF Ireland @NfIreland
440 Followers 285 Following At NF Ireland we aim to be a voice for NF patients, carers and their families. Reg Charity: CHY 6657
Vanessa L. Merker, Ph... @vlmerker
1K Followers 1K Following Health services researcher at @MGHNeurology passionate about #PatientEngagement in research, #RareDisease and the working woman. Trained @BUSPH & @VA_CHOIR.
Aadel Chaudhuri, MD P... @aadel_chaudhuri
3K Followers 835 Following Professor & Vice Chair for Translational Research @MayoRadOnc | Co-Director of Cancer Precision Medicine @MayoClinic | Co-Founder @liquidcelldx & @DropletBiosci
Yuan Pan @YuanPan3
2K Followers 2K Following Cancer Neuroscience, NF1, Neuron-glial interactions, Assistant Professor at MD Anderson, CPRIT scholar
Taylor Sundby, MD �... @rtsundby
513 Followers 783 Following 🎗️Ped-onc |#NF1, #cancerpredisposition, #raretumors, #EarlyDetection, #cfDNA & biomarkers|Proud dad|Opinions=own|#Nemours|PI@CancerInterception&TumorEvolution
Andrés Lessing ⭐�... @DrezBoston
380 Followers 1K Following 🇦🇷🇺🇲 Trying to navigate the craziness. Neurofibromatosis/Schwanomatosis advocate & Patient Representative. Sarcoma Survivor.
NF1 Project @Nf1Project
197 Followers 384 Following An international research project aimed at improving understanding of how genetics affects the number of skin neurofibromas a person with NF1 may develop.
Rakie Ayola💜 Still... @RakieAyola
13K Followers 2K Following Bafta Award Winner next in #MomHowDidYouMeetTheBeatles @ChichesterFT Patron @childhoodtt Trustee @actorschildren
💙 shelley herniman @insanemum1
678 Followers 474 Following mother of boys..train guard ..parent of a child living with an inoperable brain tumour,we need a cure .Dedicating my time to highlight awareness of NF #endnf
Melanie Saavedra @BFKCB
605 Followers 1K Following Our mission is raise awareness of NF1 and help Emilio be everything he wants to be. “ it’s not about seeing, it’s about feeling” said Emilio! ❤️
Andrea wadeson @mamawadey
378 Followers 681 Following Clinical Nurse Specialist #CNS for skull base tumours and conditions @MCRskullbase @MCCN_UK. Mum to 3 boys.
MBNF Support Group @MBNFSupportGrp
4 Followers 69 Following Manitoba Neurofibromatosis Support Group empowers their friends with NF and raises awareness. 1 in 3000 affected; tumour growth and other symptoms. 🇨🇦
fk the mindless drone... @kyladanielle78
127 Followers 309 Following Voting BLUE no matter who! Save Democracy! Dont let the Tangerine Palpatine ever grace the White House again!
HumanFirst @Humanistplanet
305 Followers 5K Following Virtual Nomad. Techie. Encyclopedia. Philonoist. Humanity. Peace. Save Nature. Brain Tumor(Meningioma) Survivor/ScarEpilepsy. - Opinions/Retweets are personal.
Charles Marques Loure... @CharlesLourenco
67 Followers 472 Following Clinical Geneticist Neurogenetics and Hereditary Metabolic Disorders Specialist
熊佳佳 @BearBigger888
2 Followers 179 Following
Astrolog Cavidan Üns... @cavidanunsal
411 Followers 215 Following #astrolog #astroloji #karmaastroloji #oguzhanceyhanekolu #astrology
Gul Kaya @GulKaya12785119
0 Followers 6 Following
Flora Rivera @FloraRiver56734
274 Followers 2K Following
Sidney Glasshoff @Sidneysnfstory
4 Followers 43 Following
Smesflo @Smesflo9iew
27 Followers 2K Following
Seasaunawn @Seasaunawnqb0b
38 Followers 2K Following
C. Boone Pickens @C_J_J_
203 Followers 855 Following
@_unspokenword @__unspokenword
35 Followers 59 Following
呃呃 @ee3109856275
6 Followers 223 Following
Catherine NFTs @Catherine__NFTs
52 Followers 143 Following
P S @nextsummer246
5 Followers 332 Following
k. @magerancok
358 Followers 776 Following independent artist/designer. learner of classical astrology. 💫 they/them.
german cordoba @cordobita36
212 Followers 1K Following
Yöly C 🇺🇸✝�... @YolsterC
2K Followers 7K Following Flo-Grown☀️305➡️407 . wife, mom of 3, teacher ❤️ Mötley ,beer, tacos, tattoos , Roman Reigns, horror. Sarcastic, easily amused . IFBAP and ignore DMs #HorrorFam
Margaret Sullivan @Margaret09961
223 Followers 4K Following INTERPOL Global Cyber Programme aims to reduce the global impact of cybercrimes and protect communities.
maryam karaminia @maryam1988k
87 Followers 494 Following Board-certified neurologist, Neuro-immunology fellow at Mayo Clinic, interested in, Multiple sclerosis, Autoimmune encephalitis, Paraneoplastic syndrome🧠
Beth Cordiero @BethCordie28820
42 Followers 2K Following
JITENDRA DEV @Jitendradev01
4 Followers 145 Following 🌼 Embracing little moments & spreading positivity! 🌈 Let's grow together in kindness & simplicity. 💖 #GoodVibes #Gratitude #Growth
Rui @_Rui_Mu_
9 Followers 41 Following
Dympna G @dympna19
116 Followers 452 Following Neuro Research nurse. ☘️ Tyrone girl 🇮🇪 living in Wales 🏴 @CAV_Epilepsy
Hector Kroes 🐀 @DeadMouseMD
305 Followers 2K Following Physician-scientist at @FMUSPoficial • Tissue engineering, bioinformatics and genetics • Rock collector and #OpenScience enthusiast
Noely Larios Aguero @NoelyLarios9
72 Followers 450 Following MD-IMG 🇭🇳 //Radiologist 🧑⚕️🤓 God, family, gym & music. 🙇🏻♀️♥️ 🏋🏻♀️🎷Faith, discipline and consistency are the key.
Dr Jaya Krishna Reddy @iamdrjaykrishna
404 Followers 3K Following Consult us for any Orthopedics related issues. Shoulder, Hip, Knee - Replacement, Complex Trauma, Sports Medicine, Knee & Shoulder Arthroscopy, etc.
Laura Hogan @hoganl2
24 Followers 56 Following
John Roach @JREncore
218 Followers 525 Following I don't like to commit myself about heaven and hell - you see, I have friends in both places. -Mark Twain. Down to debate Music, Fantasy Football, and Tech
Shyenne guardado @Shyshy2122
17 Followers 380 Following Mommy Of 2 Beautiful Girls 💖🥺 Bina 10/21💚💙 Sammy 11/22💖💗 #endnf #shinealightnfwalk
Cure NF2 Foundation @NF2BioSolutions
378 Followers 391 Following Cure NF2 Foundation is a patient-led nonprofit dedicated to funding research and supporting those affected by NF2-related schwannomatosis
Da-Daa @v28626632
47 Followers 293 Following
Keri @Gray36Keri
432 Followers 2K Following Murrayfield Primary, Simply Play. Passion for making a positive impact and difference in the lives of our children. 💙💛
Samuel @SamuelBharti
41 Followers 237 Following Researcing NF1 and Breast Cancer associations | P.hD. student at @uabbme | President @club_uab
Kirsty Birney @BirneyKirsty
9 Followers 256 Following
asd asd @dnannajy1
8 Followers 355 Following
Razo @RazoGlobal
60 Followers 263 Following
Alicia Baumgartner @AliciaBmgrtnr
137 Followers 379 Following Physician Scientist @DanaFarber @harvardmed @broadinstitute | Postdoc in Neuro-Oncology Research @ Filbin Lab | Pediatric Resident @Meduni_Wien
Nicholas Pytel @DrNickPytel
22 Followers 90 Following
VillaTilliDie @VillaTil1Die
39K Followers 27K Following Independent Villa App & Website 📲🟣 | 🔔 Set notifications | Follow for daily #AVFC news, updates, opinions & photos | Enquiries 👉 [email protected]
Story Time With Jason @storytimewj
58 Followers 1K Following An uplifting and positive children's story time podcast featuring improvised stories, loved classics, and historical documents. New episodes weekday mornings!
Virginia Torres @vcalvo24
76 Followers 199 Following
Paula @Paula3265857670
2 Followers 148 Following
Children's Tumor Fdn @ChildrensTumor
7K Followers 800 Following The Children's Tumor Foundation is the drug discovery engine pioneering more solutions, better options, faster for all NF patients.
Cure NF2 Foundation U... @nf2biosolution1
473 Followers 452 Following Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.
Gutmann Laboratory @GutmannLab
4K Followers 677 Following Studying the genetic, cellular and molecular causes for #braintumors and #neurodevelopmental deficits in #children
Nerve Tumours UK @NervetumoursUK
2K Followers 678 Following The UK’s Voice for NF (NF1, NF2 & SWN) 💙 Support & Empowerment 🤝 Helpline & Resources 📞 Raising Awareness 🗣👥👥 Fundraising & Campaigning 🏃♀️📣🚴♂️
Brian Na, MD PhD @bnamdphd
1K Followers 784 Following pediatric/adult neuro-oncologist & NF-ologist at @ucsfhospitals @ucsfchildrens | #NF #SWN #AYA
PhiOanh "Leia" Nghiem... @Leia_N_MD
457 Followers 212 Following Neuro-oncologist; Vice Chair of Academic Affairs; Director of Neuro-Oncology Fellowship @UCLANeurology #UCLABrainTumorCenter; NF and Schwannomatosis Clinic
NF Ireland @NfIreland
440 Followers 285 Following At NF Ireland we aim to be a voice for NF patients, carers and their families. Reg Charity: CHY 6657
Vanessa L. Merker, Ph... @vlmerker
1K Followers 1K Following Health services researcher at @MGHNeurology passionate about #PatientEngagement in research, #RareDisease and the working woman. Trained @BUSPH & @VA_CHOIR.
Neurofibromatosis Net... @nfnetwork
4K Followers 142 Following Neurofibromatosis (NF) Network is the national non-profit serving individuals affected by neurofibromatosis. Leading NF Advocacy, Building NF Community.
Nf2UK @Nf2UK
321 Followers 89 Following Dog-eared advocates still hoping for a cure for NF2 related Schwannomatosis
Journal of Neurosurge... @TheJNS
46K Followers 716 Following Journal of Neurosurgery (JNS), the world's leading journal in #neurosurgery & the official journal of the @AANSNeuro
Aadel Chaudhuri, MD P... @aadel_chaudhuri
3K Followers 835 Following Professor & Vice Chair for Translational Research @MayoRadOnc | Co-Director of Cancer Precision Medicine @MayoClinic | Co-Founder @liquidcelldx & @DropletBiosci
Grace Gregory @GraceGregory_
222 Followers 163 Following Postdoc in Computational Biology • Investigating the tumour microenvironment of vestibular schwannoma and meningioma.
Jennie Taylor @JennieWTaylor
841 Followers 105 Following Division Neuro-Oncology Associtate Professor Neurology and Neurological Surgery
Yuan Pan @YuanPan3
2K Followers 2K Following Cancer Neuroscience, NF1, Neuron-glial interactions, Assistant Professor at MD Anderson, CPRIT scholar
Taylor Sundby, MD �... @rtsundby
513 Followers 783 Following 🎗️Ped-onc |#NF1, #cancerpredisposition, #raretumors, #EarlyDetection, #cfDNA & biomarkers|Proud dad|Opinions=own|#Nemours|PI@CancerInterception&TumorEvolution
Adam Pearson @Adam_Pearson
43K Followers 4K Following Presenter / Actor / Campaigner. Bookings - . [email protected] #ADifferentMan
SNO @NeuroOnc
11K Followers 471 Following A multidisciplinary society of healthcare professionals dedicated to promoting advances in neuro-oncology through research and education.
Albert H. Kim @AlbertHKimMDPhD
3K Followers 968 Following Director, The Brain Tumor Center, @WashUBTC @WashUNeurosurg @WUSTLmed @BarnesJewish @SitemanCenter WashU Medicine
Andrés Lessing ⭐�... @DrezBoston
380 Followers 1K Following 🇦🇷🇺🇲 Trying to navigate the craziness. Neurofibromatosis/Schwanomatosis advocate & Patient Representative. Sarcoma Survivor.
Andre Heisler @andreheisler
11 Followers 248 Following Biology Engineer 🧬| Science enthusiast 🧫🔬 | Plant lover 🪴 | Cooking aficionado 🧑🏼🍳 | Seeking knowledge & sharing discoveries | 🏳️🌈🇫🇷🇧🇷 🇪🇺
🇨🇦Lise🇨🇦 @lise121967
997 Followers 1K Following just a happy Grandmother raising a chromo cutie and making custom cakes !! no dm’s
Papa's Bull @papasbull
315 Followers 162 Following I like talking shit, but I ❤ $SAFEMOON. I like hos, but I ❤ $SAFEMOON. I like stupid shit, but I ❤ $SAFEMOON. Don't follow me... #notfinancialadvice
(((Thay-Lee)))😼�... @SirRianna
399 Followers 264 Following Geek. Scientist. Vegetarian. Atheist. Metalhead. Ailurophile. Antifascist.
Chris Chapman @ChrisChapman81
11K Followers 918 Following BAFTA-nominated, 6-time RTS-winning documentary-maker, Big Finish writer, geek. Boss of Moon Balloon Productions.
𝙉𝙖𝙩𝙚 @Hamilton_DPOY
9K Followers 6K Following James 4:11-12🙏🏻✝️ | Ravens fan | Weather fanatic | @Hamilton_DPOY2
Nikoli Scharin 🟧 @MidNikalee
17 Followers 157 Following dance teacher, choreographer, home chef(ish), and ardent lover of wine, fuzzy critters, and travel.
Holly Pec 🌞🌴�... @SandraButtocks2
1K Followers 2K Following #BillsMafia #CrohnsWarrior Likes nice people, loves my dog & kids.
Luís Camargo @_lfmc
21 Followers 194 Following Medical student at Federal University of Santa Maria interested in psychiatry and psychedelics
Dermapixel @dermapixel
9K Followers 8 Following Intento que éste sea el Twitter de mi versión dermatológica, pero no me sale. De momento todos mis tuits en @rosataberner
@Kannavico @kannavico
4K Followers 5K Following CBD al 10 %. CBD al 5% ND. Fórmula 10 A 1. Fórmula 1 A 1. Sueños relajantes. CBD Uso Veterinario Vapeadores CBD y CBN. Línea cosmética. WhatsApp 313 4165911
Dr. Luis A. Cruz @luiscruzrd
4K Followers 226 Following Subdirector General de Clínica Cruz Jiminián & Fundación Cruz Jiminián Gerente Médico de Atención Primaria de Salud (UNISAF) / Director de CEOM (Oncología).
César Rodríguez @cesarielrp
2K Followers 2K Following Cambiando la Cultura de Don { a } cción 🩸• IT • Software Engineer • Co-Founder of @donantescomdo • Cibaeño • Certified Barista ☕️ • Instagram: @cesarielrp
Dr. AP | Action Poten... @action_ap
15K Followers 5K Following Vascular Surgeon - I help med students crush the USMLE, get research pubs, and match into their goal specialty. Tweets = personal opinions
Shari Eberts @sharieberts
5K Followers 3K Following Advocate, Author, Speaker, Yogi Founder: https://t.co/62xPDNKwGA Exec Producer: @WeHearYou_Doc Book: https://t.co/jSkAxys8xE
Frontiers - Neurology @FrontNeurol
12K Followers 835 Following Research and updates from all @FrontiersIn journals in the field of neurology. #openaccess
Lexx @GalexieTweets
397 Followers 2K Following // TTV Affiliate // Trans Woman with ADHD and Dyslexia // 🏳️⚧️ she/her 🏳️⚧️ // Soon-to-be Cosplayer //
Rosa Taberner @rosataberner
23K Followers 1K Following En el fondo soy buena dermatóloga, por eso me paso el día buceando. Vegetariana consorte. Una vez gané un premio.
Racing4Research™ @Racing4Research
932 Followers 640 Following
Don Draper @MadPlotkin
5 Followers 35 Following
Kevin Hussey @KevinHussey23
100 Followers 312 Following
Linda Yew @LyewYew
14 Followers 289 Following
david anstee @endingnf
181 Followers 753 Following
Neurofi. Info @neurofi_info
14 Followers 98 Following info scientifiques et sur les maladies rares pour plus d'informations sur la Neurofibromatose 1 et 2 voir : https://t.co/n4peOAAK2h
Cindy Hahn @hahnc15
25 Followers 57 Following
Alyssa Reddy @5Reddys
332 Followers 376 Following Pediatric Neuro-Oncologist. Passionate about helping sick kids get well. Mom to 3 amazing people. Married to the best. Tweets are my own.
Gautam Mehta, MD @GautamMehtaMD
1K Followers 647 Following Clinical Policy @FDAoncology | #trailrunning (when not injured) | Tweets = my own. Retweets/Likes/Follows ≠ endorsement.
Silvilizumab @DelgadilloSd
196 Followers 898 Following Oncóloga pediatra, melómana, chica Ye-Ye, caothic good, ciencia, playas, vinos y sarcasmo. En reparación disculpe las molestias. 🎗
Adam Goodkind @adamgreatkind
514 Followers 689 Following Postdoctoral Research Fellow @IRPatNIH. Interested in HCI, UX, NLP, and the social dynamics of dialogue.
Heather Marsden @MarsdenHeather
14 Followers 318 Following
Tim Berger @itstimberger
213 Followers 138 Following I Help Folks Build 1 Person Empires From Home. No previous experience required. Inquire via DM.
Aidan Pidgeon @patch1895
36 Followers 109 Following Following Shelbourne fc a long time, Celtic fc and the Dubs
Julieta Roxana @Julietaroxan
229 Followers 2K Following Soy una chica trans Tgirl 🏳️⚧️. Twitter personal. +18⚠️. Me gustan las Poesías, las historias de miedo.
John T. McDonald III ... @johnmcdonald108
6K Followers 1K Following Assemblymember for the 108th District in the NYS Assembly; Former Mayor of the City of Cohoes; Pharmacist - Marra’s Pharmacy.
Senator Jim Tedisco @JamesTedisco
8K Followers 2K Following New York State Senator -- A Strong Voice for NY
nature @Nature
2.7M Followers 3K Following Research, News, and Commentary from Nature, the international science journal For daily science news, get Nature Briefing: https://t.co/wGmQlQ8a4D
ERASEnf @ERASEnf
10 Followers 5 Following Elisabeth Raab Accelerator of Science to End Neurofibromatosis - dedicated to building collaborative teams to focus on research in neurofibromatosis
U of T Department of ... @UofTSurgery
4K Followers 337 Following The Department contributes to 3 core missions: excellent clinical care, outstanding research productivity & delivery of state-of-the art educational programs
Princess Margaret Can... @PMResearch_UHN
3K Followers 548 Following Research arm of @pmcancercentre—the largest integrated #cancer research, teaching and treatment centre in Canada. @UHN
Synterex, Inc. @synterex
29 Followers 65 Following A woman- and disability-owned business that provides solutions for clinical research. We've moved to Bluesky: https://t.co/Bh2e7mC5C9
ISID2023Tokyo @ISID2023Tokyo
473 Followers 267 Following 1st International Societies for Investigative Dermatology Meeting, 10-13 May 2023 (Tokyo, Japan). Join us at the “Olympics” of skin science!

















