Northwoods NETS - MN Neuroendocrine Cancer Support @NorthwoodsNETS
Dawn Marie | 18 year #PNET #RN #MSN #PHN #neuroendocrinecancer #Basel #BadBerka #pancancer #thriver #livertransplant #NETCancer #PRRT #lu177 #y90 #ac225 linktr.ee/northwoodsnets Twin Cities, MN Joined May 2014-
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I had to update my bio. I realized I'd missed the anniversary of my 18th year of living with pancreatic neuroendocrine tumors. Treatments have been vast, but I'm doing ok. Given my 3 - 5 year timestamp when I was first diagnosed, I'd say I've outlived the odds. #pnet #netcancer
Northwoods NETS - MN Neuroendocrine Cancer Support retweeted
No need to "lug the jug" anymore... One of my favorite sayings of the late Dr. Eugene Woltering, one of the most passionate NET colleague I ever met. This excellent study by @HansHofland1 shows an excellent correlation between serum 5-HIAA and 24-urine 5-HIAA in patients with carcinoid syndrome. We made this change at Mayo Clinic several years ago and having a reliable 5-HIAA blood test with fast turnaround time makes a big difference. academic.oup.com/jcem/article/1…
Northwoods NETS - MN Neuroendocrine Cancer Support retweeted
Incidental tumors found in > 1800 appendectomy specimens foll (those with pre-op suspicion of a mass excluded). Incidental neoplasm was detected in 1.3% and more often in those who were older. Not surprisingly, a third of the detected neoplasms were NETs. Not the first study of this kind but very nicely done... sciencedirect.com/science/articl…
Northwoods NETS - MN Neuroendocrine Cancer Support retweeted
More on bone metastases in patients with NENs... 320 patients from 18 Italian centers, mostly well/mod diff NETs. Interestingly, bone was the first site of mets in 41%. mOS was 62 months and SREs observed in 22% and 31% of patients received antiresorptive therapy. Primary lung site, Ki-67 ≥55% versus ≤20%, >10 BMs, mixed pattern (osteoblastic/osteolytic) vs osteoblastic, prior lung mets and SREs were found to be significant poor prognosis factors. onlinelibrary.wiley.com/doi/full/10.11… @FRANCES88189587 @cives_mauro @saramassironi
In person support is this Sunday, November 16 at 1 pm. Click for more details. - mailchi.mp/836e9efc1a69/f…
Medicare open enrollment resources, living a life of purpose, and Zoom Support on 10/19 - mailchi.mp/a5e7c771374e/f…
Neuroendocrine tumor patient support at Lunds and Byerlys in Plymouth on Sunday, September 21 from 1 pm - 3 pm - mailchi.mp/fa02ae0eb896/f…
@honeyglowoman Honestly, I'm not sure if insurance would cover the test or not. I'm not sure if having that diagnosis really changes the course of treatment. Are you seeing a specialist? They would be able to answer that question for you. 🌠
In memory of Pete Fuglestad - mailchi.mp/3a33ff414722/i…
REMINDER: July Picnic and two valuable upcoming webinars - mailchi.mp/34e4a2ce1072/f…
July Picnic and two valuable upcoming webinars - mailchi.mp/8db928d21cad/f…
June Zoom Cancelled. In-person conference in Minneapolis this Saturday! - mailchi.mp/0ff3aaabb7c5/f…
June Zoom Update and Two Other Events This Month! This amazing photo is titled "Zebras and Flamingos in Ngoro Ngoro," in Tanzania, 2008 © carlo matta - mailchi.mp/8cbea2c54d1a/f…
*|FNAME|*, Join Us on Sunday For Our In-person Support Group & information about upcoming events - mailchi.mp/344b0192c70c/f…
Springtime is a season for reflection, renewal, and self care. - mailchi.mp/56ed9db2940a/f…
QUICK REMINDER: Our in-person support meeting is tomorrow at a new location! It will be at the Minnetonka Community Center, Shady Oak Room, at 1 p.m. 14600 Minnetonka Blvd., Minnetonka MN 55345- mailchi.mp/95aaa0fad963/f…
Happy Spring! Updates for our new meeting space this month! - mailchi.mp/771043c4d3a5/f…
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