R&G Disease Network @RAGDNetwork
Non Profit. Connecting Researchers, Caregivers, Patients, Policy Makers & Industry in Healthcare. One World -Better Health. https://t.co/pc8m9RLNNU grdresearchnetwork.in India Joined February 2016-
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Han har Clival Cordoma. En sällsynt och svår att behandla hjärncancer. Behandlingen är mycket dyr. Det är dödligt om det inte behandlas. Din ekonomiska hjälp kan hjälpa hans behandling och möjligen rädda hans liv. RT om möjligt. milaap.org/fundraisers/su…
Tiene Clival Cordoma. Un cáncer de cerebro raro y difícil de tratar. El tratamiento es muy caro. Es letal si no se trata. Su ayuda financiera puede ayudar a su tratamiento y posiblemente salvarle la vida. RT si es posible. milaap.org/fundraisers/su…
Han har Clival Cordoma. En sjelden og vanskelig å behandle hjernekreft. Behandling er veldig dyrt. Det er dødelig hvis ikke behandlet. Din økonomiske hjelp kan hjelpe hans behandling og muligens redde livet hans. RT hvis mulig. milaap.org/fundraisers/su…
Ha Clival Cordoma. Un cancro al cervello raro e difficile da trattare. Il trattamento è molto costoso. È letale se non trattata. Il tuo aiuto finanziario può aiutare il suo trattamento e possibilmente salvargli la vita. RT se possibile. milaap.org/fundraisers/su…
יש לו את קליבל קורדומה. נדיר וקשה לטיפול בסרטן המוח. הטיפול יקר מאוד. זה קטלני אם לא מטפלים בו. העזרה הכספית שלך יכולה לעזור לטיפול שלו ואולי להציל את חייו. RT אם אפשר. milaap.org/fundraisers/su…
Il a Clival Cordoma. Un cancer du cerveau rare et difficile à traiter. Le traitement coûte très cher. Il est mortel s'il n'est pas traité. Votre aide financière peut aider à son traitement et peut-être lui sauver la vie. RT si possible. milaap.org/fundraisers/su…
Hänellä on Clival Cordoma. Harvinainen ja vaikea hoitaa aivosyöpää. Hoito on erittäin kallista. Se on tappavaa, ellei sitä hoideta. Taloudellinen apu voi auttaa häntä hoidossa ja mahdollisesti pelastaa hänen henkensä. RT, jos mahdollista. milaap.org/fundraisers/su…
Hij heeft Clival Cordoma. Een zeldzame en moeilijk te behandelen hersenkanker. Behandeling is erg duur. Het is dodelijk als het niet wordt behandeld. Uw financiële hulp kan zijn behandeling helpen en mogelijk zijn leven redden. RT als het kan. milaap.org/fundraisers/su…
Han har Clival Carcinoma. En sjælden og vanskelig at behandle hjernekræft. Behandling er meget dyrt. Det er dødbringende, hvis det ikke behandles. Din økonomiske hjælp kan hjælpe ham med at få behandling og muligvis redde sit liv. RT, hvis det er muligt. milaap.org/fundraisers/su…
He is having Clival Carcinoma. A Rare and Difficult to Treat Brain Cancer. Treatment is very expensive. It is usually lethal if not treated. Your financial assistance can help him avail treatment and possibly save his life. RT if possible. milaap.org/fundraisers/su…
O a besoin d'un traitement pour la boue clivable, un cancer du cerveau rare et très difficile et coûteux. Votre aide 2 appréciée. "Help my cousin fight Brain Cancer. Please donate milaap.org/fundraisers/su…
O a besoin d'un traitement pour la boue clivable, un cancer du cerveau rare et très difficile et coûteux. Votre aide 2 appréciée. "My Son has CLIVAL CHORDAMA CANCER. Save him !!! ketto.org/fundraiser/my-…
O heeft behandeling nodig voor aanpasbare modder, een zeldzame hersenkanker en zeer moeilijk en duur. Uw hulp 2 gewaardeerd. "My Son has CLIVAL CHORDAMA CANCER. Save him !!! ketto.org/fundraiser/my-…
O Behandling for hevbar gjørme, en hjerne sjelden kreft og veldig vanskelig og dyrt. Din hjelp 2 verdsatt. "My Son has CLIVAL CHORDAMA CANCER. Save him !!! ketto.org/fundraiser/my-…
Oクレバブルマッド、脳のまれな癌、非常に困難で高価な治療が必要です。あなたの助け2に感謝します。 "My Son has CLIVAL CHORDAMA CANCER. Save him !!! ketto.org/fundraiser/my-…
O ha bisogno di cure per fango sensibile, un cancro al cervello raro e molto difficile e costoso. Il tuo aiuto 2 apprezzato. "My Son has CLIVAL CHORDAMA CANCER. Save him !!! ketto.org/fundraiser/my-…
O behöver behandling för höjbar lera, en hjärna sällsynt cancer och mycket svår och dyr. Din hjälp 2 uppskattas. "My Son has CLIVAL CHORDAMA CANCER. Save him !!! ketto.org/fundraiser/my-…
O Necesita tratamiento para el barro limpiable, un cáncer cerebral raro y muy difícil y caro. Su ayuda 2 apreciada. My Son has CLIVAL CHORDAMA CANCER. Save him !!! ketto.org/fundraiser/my-…
O Necesita tratamiento para el barro limpiable, un cáncer cerebral raro y muy difícil y caro. Su ayuda 2 apreciada. "Help my cousin fight Brain Cancer. Please donate milaap.org/fundraisers/su…
O Behandling for hevbar gjørme, en hjerne sjelden kreft og veldig vanskelig og dyrt. Din hjelp 2 verdsatt. "Help my cousin fight Brain Cancer. Please donate milaap.org/fundraisers/su…
The Journal of Inheri... @JIMD_Editors
3K Followers 813 Following At a recent Council meeting a decision was made that the SSIEM will no longer interact with X. Please find us on any other Social Media channel.
MedicsforRareDisease @MedicsForRare
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Patient Worthy @PatientWorthy
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Bernadette Sheehan Gi... @sheehangilroy
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Rareminds @RaremindsUK
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Aishwarya Ravindran, ... @aravindranmd
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Corinna @corinnabee
170 Followers 124 Following Paediatric nurse, nature lover and mum. views are my own…..
Rare Patient Voice @rarepatientvoic
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Lorri Cavaliere @LorriCav
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TrishaW @trisha_work
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Nevus Netwerk Nederla... @NevusN
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Christa @doichas3
137 Followers 322 Following Wife/Spoonie/Artist/ Beaty Influencer Loving life! Come support me! I follow back! https://t.co/RfYQblqhe5
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Sara’s Acts of Kind... @SarasKindness
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The Syndrome document... @TheSyndromeFilm
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33 Followers 314 Following 5th International Conference on Digestive Education, which is to be held during November 23-24, 2020 in London, Uk
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2 Followers 33 Following 30 year old who has just been diagnosed with MRKH. Looking to Twitter for the MRKH support community.
heather mclaughlin @Heaven_on_2011
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Deepika [K]atti @deepikakatti
20 Followers 90 Following I like to be a free spirit. Some don't like, but that's the way I am.
MSA Angel @InMemoriamMSA
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HDYO @HDYOFeed
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37 Followers 65 Following Postdoctoral Researcher at Medical University of Graz and Technical University of Munich
life of Amy Turner Sy... @aturnersyndrome
559 Followers 4K Following TURNER SYNDROME YOUTUBER!!! SUBSCRIBE! facebook- https://t.co/2Gf7juyXpx check out the podcast ! https://t.co/BcdxhdQ8U4
HOPE MSA @MSAhope
839 Followers 4K Following
EuropaColon Italia AP... @EuropaColonITA
512 Followers 3K Following @Dice_europe ITA official Partner. Patient Advocacy Group Raising Awareness on #CRC
Ontario Caregiver Org... @CaregiverON
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Elephants and Tea @ElephantsTea
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Relapsing Polychondri... @RP_Organization
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S&E Leeds GP Group @selgpgroup
350 Followers 73 Following We are a GP federation. A company that has been formed by 30 GP practices in South and East Leeds covering over 220,000 patients.
Epidemiology Meet 201... @2019_meet
193 Followers 1K Following We are pleased to invite all to attend the “7th Epidemiology and Public Health Conference”, will be held from June 17-18, 2019 Dubai, UAE.
Bethan @Bethan79878351
111 Followers 433 Following Research & Evidence Officer @UKTSA. BSc Genetics 🔬
Stievodevivo Oʆʆici... @stievodevivo
102 Followers 227 Following Fan of Gadgets & TechNews || AppleInc || Samsung || Thuisopeen
Jennie Harman @jennie_harman
98 Followers 508 Following Hi guys, I'm Jen, I have Turner's Syndrome. I am an advocate for the support for girls and women with Turners Syndrome. I am here to help in any I can. Jen x
PNOC Foundation @PNOCFoundation
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Melissa Arakaki @melissaarakaki
55 Followers 135 Following Operations Coodinator by day, wife and supermom by night.
Leber's Congenital Am... @renata_szyszka
108 Followers 840 Following Chief Visionary Officer, PhD. LCA is an inherited retinal disease that causes severe visual impairment in infancy or early childhood. © https://t.co/DDt8xnipJS
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86 Followers 294 Following Finding strength with an undiagnosed, chronic illness. Follow me as I navigate through our country's broken healthcare system to find my diagnosis.
James Ennis @JamesEnnis90
128 Followers 581 Following Northern Ireland Rep for Cystinosis Ireland / Cystinosis Network Europe (CNE). Rare disease advocate, Cystinosis & Kidney transplant patient. Views are my own
Boomers Assistance @BoomersAssistan
690 Followers 699 Following https://t.co/PWUJgKMylQ We cater to the #babyboomer age population, and we aim to #inform, #educate and #reportnews, #information and #awareness.
Precision Medicine Fo... @precisionforum
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The Journal of Inheri... @JIMD_Editors
3K Followers 813 Following At a recent Council meeting a decision was made that the SSIEM will no longer interact with X. Please find us on any other Social Media channel.
MedicsforRareDisease @MedicsForRare
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Patient Worthy @PatientWorthy
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Daniella GW ❤️ Me... @Danimgw
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Mary @nez1971
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M!chael @Normal_Ultra
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INmune Bio Inc. @INmuneBio
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adel habib @adelhabib1961
16 Followers 272 Following any one have any major problem mail me to solve it specially health case ----
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International Society... @isliquidbiopsy
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🍁gamesloverzone⚕... @gamesloverzone
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ADR Canada🍁 @adr_canada
875 Followers 807 Following Educating about the need to prevent one of Canada's leading causes of death - adverse drug reactions, via #pharmacogenomics & data collection🧬








