Robin EM-powers patients @Robin_Lexi
Amb. for Rare & Chronic Disease Rare in 14225 SUNY Buffalo State BS, Multidis. Grad 2022 District and DC activist author Chronicles of Zazzle & activist. sas.buffalostate.edu Cheektowaga Joined December 2015-
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@CMerandi Pretending that it’s not a vital sign when it’s the most vital vital signs I mean it can throw off your blood pressure and just kill you that way, especially when you have something like Famial Dysautonima you just need you like I have
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@CMerandi The reason why we have pain is because it’s our body’s way of learning us to the fact that there’s something very wrong and that we may die and that’s what painting is for that’s a protection mechanism so it’s absolutely a vital sign and I’m so sick and tired of the medical
@CMerandi Pain is actually one of the vital signs because it is the most vital of all of the vital signs. It is the only vital sign which can actually change the other vital signs and make it so that somebody actually does die. It’s the most vital of all the vital signs!
@CMerandi Omg yes you can and it can be harder to be helped from than anything else.
Robin EM-powers patients retweeted
@CMerandi I could go on with the amount of damage and harm done to America over prescription medication being restricted. The financial devastation to communities is detrimental and I’m not speaking wrong or right here just facts & reality. Leaders need to be strong to do best for all.
I swear I’ve been saying this for so many years more years than I know. I honestly go around cleaning up whenever I can and I bring garbage home with me to throw away so you know my place is in the cleanest. I still make sure that I don’t treat that earth like a garbage can.
Robin EM-powers patients retweeted
wake up.
I can’t believe they brought the children before the public and made the children apologizes. As if they had something that they apologize for. They did probably had no idea what they were even apologizing for. It’s like apologizing for white privilege. #nomorepronouns!
Why is OxyContin still so often the opening line of addiction conversations in 2026? The drug is effectively gone. The company is bankrupt. The Sacklers have been dragged through every courtroom, documentary, congressional hearing, and prime-time news story available. Millions
As a disabled person in New York, I’ve been shocked that since 2014 I’ve struggled to access hospitals and now even doctors for worsening chronic conditions. #rarepeoplemattertoo
@AmerMommaBear @CMerandi @supportprop I promise you that I’ll do anything and I can to prevent you from losing this dog as well. I’m a pretty good advocate for people so I just don’t see why I couldn’t transduce that into advocating for animals since I care for them so much I’m in tears 7164952036
@CMerandi @supportprop If you need help, still tell me send me a direct message and I will advocate on your behalf via virtual for the animal and no problem for free or in any way that you need. Just send me a private message if you need me I’m here for you and your animal anytime day or night
@CMerandi What is he putting in it?
@AlaskanNative49 @CMerandi So embarrassing that I let the ball drop in any area of my health care.
@AlaskanNative49 @CMerandi well, honestly, we don’t hear but tell me about it and I can look it up and maybe I could have the dental clinics here do what they do there for what happened to my teeth here I’ll put a picture but it’s very embarrassing but honestly it’s not my fault…
@AlaskanNative49 @CMerandi Omg I need a dentist so bad! How did you get one to help you with the decay from the Suboxone because I was on the pain management form but it’s still caused dental decay with other factors, making my teeth bend like rubber bracking in half.
@AlaskanNative49 @CMerandi I wish they had pulled mine!
@CMerandi Belbucca took mine!
@GenuineSuccess4 @ibdgirl76 @Darkmdd @CMerandi @DavidESmitty It is unfortunately an example of part of the socio-economical reasons as to what circumstances can take place to limit ones access to full antagonist opiate pain medication. Yes, it sadly plays both sides of the field per say.
@CMerandi I think those use it to bully people. I would love to collaborate with you because of what you expressed today.
@CMerandi I couldn’t be more disgusted with our country. I forgot that in the scoring for risk assessment, they deny those who have had to endore the most severe “acute” pain possible as it’s the very essence of what makes someone who they are. It’s such a big part of one’s health.
Bev Schechtman🇮�... @ibdgirl76
14K Followers 5K Following Wife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, advocate for survivors of sexual abuse, chronic pain/opioid educator. VP of The Doctor Patient Forum
Angie B @quinky_dink
5K Followers 3K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.
BilkedToTheBrink @Bilked2TheBrink
6K Followers 4K Following ■STOP•WEALTH•HOARDING: MORE Money, in fewer hands than ANY TIME IN HISTORY is à threat to all! Rich $idiots$ need food, h2O, Oxygen, TOO. https://t.co/Ta0925IdHc
Justice 4 Dr. Norris @Justice4Norris
4K Followers 4K Following Advocate 4 Drs - #ChronicPain - #SUD - #EndTheDrugWar - Repeal the 70s Substance Abuse Act Lo💘e's the only 🏠 big enough for all the pain in this 🌎
Gene W…🆘🙏⛪�... @GeneW22614687
3K Followers 4K Following Give me Liberty or Give me Death. Patrick Henry...1775. Wowren polymath multi-Cultural. (Intractable Pain Patient) Convert to Catholicism in 2020.🙏
SomeWoundsAreNotVisib... @PTSDAdvocate
5K Followers 3K Following #Married #ChronicPain #SA #PTSD #Survivor #NotAllWoundsAreVisable #SuicidePrevention #FightForYourLife #YouAreWorthIt #SUPERFAMILY Politics🤷♀️ 🚫DMs
advocatefight @chattyknana
3K Followers 4K Following nana professor activist author. army wife #eds #chiari #cpp love life family friends ocean travel art dance music ancestry #resistance #suicideduetopain
Stefan Kertesz, MD, M... @StefanKertesz
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Kelly L.⭐⭐ @Irishbrat1966
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Terri Me3 @TerriMe3
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KᗩTᗩᗰᗩᑕ �... @Katamac1967
8K Followers 6K Following Pain pts deserve access to safe, FDA-approved opioids. MDs & PharmD should be able to treat pts w/o fear of legal consequences. DEA out of medicine…NOW!
🦋🌼𝕂𝕖𝕣�... @ladiekerrie
42K Followers 11K Following Evolving soul with an unquenchable thirst for knowledge. ✨Spark of the Divine. Voracious reader📚. 🐈⬛mom. 🇺🇸 🧸❤️🧡💛💚🩵💙💜 ♊🧘🏼♀️🕉️🦋☯️🙏🏻☮️
Beth Steckler (she/he... @purplemamabear
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Jonelle Elgaway @JonelleElgaway
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karen nelson @karenandbowz
955 Followers 3K Following Liberal | Wisconsin Badgers | Soft Coated Wheaten Terriers | Cavaliers | stop puppy mills | Graphic Designer | #ChronicPain
Anne Fuqua @PainPtFightBack
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PeopleInPain @SpeakPain2Power
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ZoomRx HCP Community @Zoomrxhcp
67 Followers 581 Following ZoomRx HCP Community is a medical community where healthcare professionals stay informed, engaged, and get rewarded through surveys, podcasts, and more.
PETEY PIE ✨😻✨ @AlaskanNative49
4K Followers 7K Following Bee🐝kind! You don’t know who I know 🎸🤘#SeattleGrunge #CRPS #PudendalNeuralgia #ClimateCrisis MeMyself&I ❤️#Animals! 🐋🐬🦀🦭🐧🐝🐻🦦🐻❄️🦅🦫🐺🦢🌲🫐🌊. 🚫DM
Francis @FrancisG1334
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まどか @9Sc9Kdq3108tIs7
39 Followers 2K Following 153cm。胸と血液型はB。カワイイものが好きです。成人してます。カフェでアルバイトしています。こういうことに興味あります
Amanda Groombridge - ... @FortyII
158 Followers 6K Following Proud Mother to the brightest star in our Universe.Home Ed,Design,Art,Space, STEAM,Horticulture.Caring for a 'Rare Zebra',trying to make all her days Happy ones
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International Autoimm... @ae_society
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23 Followers 610 Following Found different beauties from all US states 😳 Ready for private meetings Some have naked profile photos! Watching this https://t.co/4YswvlnbEc
NERVEmber® @NERVEmberProj
1K Followers 1K Following The @iPainOfficial hosts #NERVEmber project each Nov since 2009 - NERVEmber® brings awareness to 150+Conditions that have nerve pain involvement including #CRPS
YawningSquash @yawning_squash
311 Followers 5K Following “if somebody causes you to question whether or not you are worthy of love, then that person does NOT deserve to be loved by YOU.” @BiancaSparacino
nerdynurse @nerdynurse
934 Followers 1K Following Wife, Mom, Christian, Fibro/CFS/ME etc., Disabled, Retired Nurse, Teacher; Technophile, Love to learn. Love the Lord, my family, my country, the Constitution.
Milis @miswojo1
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M-ahem @MahemApophthegm
382 Followers 1K Following ‘Old Leftie from way back’. Fulton County GA voter, grateful 4 the chance to be part of the change #WhitePeopleAgainstWhiteSupremacy #WhitePeopleAgainstRacism
GraceBase Virtual Ent... @oge_ni
27 Followers 212 Following Virtual Workspace Manager Author of Securing the Client Base ebook on Amazon & Selar Teacher
Jan P @jan_misz
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Jenni Young, PhD (she... @JenniYoungPhD
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Keeping faith organiz... @Keepingorg
134 Followers 363 Following (Proverbs 22:6 train up a child in the way he should go….we are the leaders of tomorrow ,🇺🇬🇺🇬🇺🇬you can donate for a better tomorrow 👇👇👇
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World of Women Wellne... @PatientWorldNet
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Painrelief Plusplus @PlusPainrelief
32 Followers 195 Following Pain relief Assistance, Medicine, Oils, Hemp, CBD, Health Related Vitamins and Supplements.
Roger Ebach @RogerEbach
277 Followers 505 Following CPP trying to survive this nightmare. Wish someone would get off there asses and look at the science. I have been dealing this pain for almost 30 year now. WTF
undu method @undumethod
121 Followers 287 Following NFL Alumni USATF Masters NATIONAL CHAMPION Chronic Pain Biohacker Flexibility Expert https://t.co/MQ2nhQel4F
CRPS Awareness @CRPS_Awarness
332 Followers 1K Following CRPS RSD Warrior and I love designing notebooks and T-shirts. If you need one I can get it for you from Amazon
Rare Diseases & Disab... @raddafoundation
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El Sheff @outofthebredbin
47 Followers 242 Following Anti-mag/CIDP, VVS, FND. The lines blur. Making memories while 'icing the cake'
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Bev Schechtman🇮�... @ibdgirl76
14K Followers 5K Following Wife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, advocate for survivors of sexual abuse, chronic pain/opioid educator. VP of The Doctor Patient Forum
Claudia A. Merandi @CMerandi
17K Followers 488 Following Founder - Doctor Patient Forum/Don’t Punish Pain (opinions are my own)
Joe Newman @JoeAllenNewman
10K Followers 1K Following A Dr said he could not see, measure, or prescribe for pain because it is invisible. Wrong, Doc, pain looks like me & millions more who die if u are blind. #IPP
Illicit fentanyl is k... @JSG_54
10K Followers 3K Following Advocate for individualized treatment of high impact Chronic pain. Seeking to discredit PROP'S,CDC guidelines,CDC & CDC Foundation.
Angie B @quinky_dink
5K Followers 3K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.
BilkedToTheBrink @Bilked2TheBrink
6K Followers 4K Following ■STOP•WEALTH•HOARDING: MORE Money, in fewer hands than ANY TIME IN HISTORY is à threat to all! Rich $idiots$ need food, h2O, Oxygen, TOO. https://t.co/Ta0925IdHc
Life Is Art Carrie�... @life_is_art___
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Justice 4 Dr. Norris @Justice4Norris
4K Followers 4K Following Advocate 4 Drs - #ChronicPain - #SUD - #EndTheDrugWar - Repeal the 70s Substance Abuse Act Lo💘e's the only 🏠 big enough for all the pain in this 🌎
Gene W…🆘🙏⛪�... @GeneW22614687
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SomeWoundsAreNotVisib... @PTSDAdvocate
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Arianne @ravensspirit68
16K Followers 8K Following Old soul, creating, hoping, learning. ME/cfs C-spine injury Chronic pain Adenomyosis survivor Married Underestimate me, that'll be fun.🌸💞🌸
advocatefight @chattyknana
3K Followers 4K Following nana professor activist author. army wife #eds #chiari #cpp love life family friends ocean travel art dance music ancestry #resistance #suicideduetopain
Stefan Kertesz, MD, M... @StefanKertesz
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Mary Cremer @cremer_mary
4K Followers 2K Following Chronic Pain Patient. I work full time. I believe in restoring dr/patient relationship to allow pain control rights. Married with family.
🇺🇸🌵Shelley �... @shelley_bean60
5K Followers 4K Following Mom & Nana~Conservative Libertarian~Passion 4 historical architecture~archeology~old houses~antiques~art #CPP Advocate #Fibro #MECFS
KᗩTᗩᗰᗩᑕ �... @Katamac1967
8K Followers 6K Following Pain pts deserve access to safe, FDA-approved opioids. MDs & PharmD should be able to treat pts w/o fear of legal consequences. DEA out of medicine…NOW!
💜Angel💜 @Angel2bme
2K Followers 1K Following 🙏✝️ #CRPP trying to survive FAKE Rx opioid crisis. Here to help #CRPPs & learn. Christ is my Savior🙏 Won’t follow bk protected accts . No flirt DMs plz.
Check Your Tube Stati... @GhanaboyPharmd
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Freecash.com @freecashcom
909K Followers 143 Following The Highest Paying Rewards App 💸 Use Code X26 at Sign-Up for a $10 Welcome Bonus
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Paul Hamilton @pham1717
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WBEN NewsRadio 930AM @WBEN
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975 Followers 991 Following Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health
M-ahem @MahemApophthegm
382 Followers 1K Following ‘Old Leftie from way back’. Fulton County GA voter, grateful 4 the chance to be part of the change #WhitePeopleAgainstWhiteSupremacy #WhitePeopleAgainstRacism
Milis @miswojo1
2K Followers 2K Following Advocate; Animal Lover; Former D1/Prof. Tennis Player 🇺🇸 🎾🐴🐶🇺🇸
Jenni Young, PhD (she... @JenniYoungPhD
328 Followers 498 Following Assistant Prof @NUFeinbergMed @NUFeinbergMSS @NUGeneticMed, family scientist living in a genetic counseling world @NUGCprogram
Jan P @jan_misz
393 Followers 3K Following She is part of me,mom to a miracle girl, PTSD,chronic pain,physical emotional abuse survivor,artist, fighting for justice, let abused kids speak out!
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Roger Ebach @RogerEbach
277 Followers 505 Following CPP trying to survive this nightmare. Wish someone would get off there asses and look at the science. I have been dealing this pain for almost 30 year now. WTF
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3 Followers 67 Following
Benish (bee•nish) S... @benishshah
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Women's Heart Allianc... @WHA
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MMAPA @mmapapr
3K Followers 154 Following MMAPA is a not-for-profit association composed of the leading Medicaid and Medicare Advantage organizations in Puerto Rico.
undu method @undumethod
121 Followers 287 Following NFL Alumni USATF Masters NATIONAL CHAMPION Chronic Pain Biohacker Flexibility Expert https://t.co/MQ2nhQel4F
𝑹𝑶𝑵 𝑲𝑰... @Ronking_Apex
10K Followers 407 Following 🐺I Help Male Managers & Biz Owners Lose 8-30kgs Efficiently & w/ Zero Disruption. ⚜️Become The ROCK For Your Loved Ones
Fordham Institute @educationgadfly
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beth Vanstone @bethdenniss
440 Followers 235 Following Podcast Producer @TheBonnellFoundation Liaison @UofT Pharmacology Dep Former Director @CFGetLoud , Advocate for Cystic Fibrosis and the rare disease community.You might like
Michelle
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