Rock Out ALS @RockOutALS
Rock Out ALS is a nonprofit that unites the music industry and community, in efforts to raise awareness of ALS ( Lou Gehrig’s disease). 2019 R’AUCTION now LIVE! rockoutals.com Seattle and World Joined April 2010-
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Followers593
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Following661
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Likes472
Rock Out ALS retweeted
Rock Out ALS retweeted
#ALS isn't rare, it's a quick killer. We need to fight back, NOW! #rarediseaseday2020 #endals
Rock Out ALS retweeted
Thank you @TODAYshow for sharing another story of a remarkable person who refuses to let #ALS stop them! #endals #larrychallengeals
Inside the 1st high-tech smart home designed for people with ALS on.today.com/3ahY12v
Rock Out ALS retweeted
Keep an eye out for @ALSTDI on the @TODAYshow tomorrow morning at 8:20 EST!🔬🙌 . #EndALS #ALSTDI #TodayShow
Rock Out ALS retweeted
Rock Out ALS retweeted
Our children can and will change the world! #CuresForAll @iamalsorg
Thank you @jtimberlake & @TheEllenShow! 🙌🤘”Justin Timberlake Surprises Dad with ALS”: m.youtube.com/watch?v=aXjXtl… #EndALS #DefeatALS #AlsAwareness
SECRET SANTAS FOR pALS! In the spirit of The Season we’ve collected some items on the top of some ALS Patients wish lists on our Amazon Smile Account. Please join Amazon Smile and consider being a Secret Santa for a pALS by 12/15! 🎅🤘 smile.amazon.com/hz/charitylist… #endals
Rock Out ALS retweeted
Hey - during halftime. Help me out to raise money for families with ALS. Tomorrow is the #AppleCupALSChallenge - all proceeds benefit @TeamGleason - Donate on the left here - applecupalschallenge.com Let's win the day! #GoCougs x.com/SteveGleason/s…
Hey everyone, it's Apple Cup week, and my friend @pjgreen - a husky - challenged me in a battle to defeat ALS. I need your help this week in the #AppleCupALSChallenge - all proceeds benefit @TeamGleason - Donate here applecupalschallenge.com Let's win the day! #GoCougs
Rock Out ALS retweeted
A funny thing happened to me on the way to dying... I learned how to live! #LivingWithALS #LiveYourLife
Drink beer with purpose with “Ales for ALS”. Proceeds go towards all the awesome work being done to END ALS at ALS TDI. 🤘🍻 For a complete list of participating breweries nationally: a4a.als.net/participating-…
Rock Out ALS retweeted
Check out the line up of awesome establishments that have joined forces with @MillwoodBrewery to drain the keg on Black Friday weekend! 😀🚴♀️⛷🤜👍😎 #AlesForALS #community #Spokane #beer #whynotyou #supportlocal facebook.com/events/4961027…
Rock Out ALS retweeted
Eric Stevens was diagnosed with ALS at age 29. Currently there is a treatment available called NurOwn, but you can only get access if you’re part of a clinical trial. #axeALS Watch the full story here: instagram.com/teamstevensnat…
Rock Out ALS retweeted
This got me. ❤️ ❤️ ❤️ #axeALS @stevens_nation
Rock Out ALS retweeted
The 15th @ALSTDI Leadership Summit is being streamed LIVE on our Facebook page now!
Rock Out ALS retweeted
Be afraid... Look it in the eyes, recognize, and acknowledge the fear. Then proceed with courage into the abyss. #KeepExploring
Mandi @RunningMama0522
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Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 847 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for ALS.
ALS TX DAD @AlsDads
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AZ Latina ☮️🌊�... @aVoice4ALS
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ALS ACCESS @brainmatters10
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ALS Uncensored 🏴�... @ScottsFight
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Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following ALS we are coming for you. Widowed by ALS and still fighting it.
ALS TDI @ALSTDI
10K Followers 6K Following The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
Hope Loves Company @HopeLovesCo
2K Followers 3K Following HLC is the only nonprofit in the U.S. dedicated to supporting children and young adults who had or have a loved one battling #ALS. We provide Camp HLC & more.
I’m Dying To Tell Y... @LorrisPodcast
1K Followers 847 Following Living with ALS for 22 years. Host of I’m Dying To Tell You Podcast. Available on all Podcast platforms. Instagram at ImDyingToTellYouPodcast
Deb Paust @PaustDeb
1K Followers 679 Following Blessed mom, lover of snow, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Girl Travelin Alone @CathyStandish
4K Followers 5K Following
Nicole McCabe @NicoleALSJurney
1K Followers 614 Following 35 year old PNW girl battling #ALS I'm here to fight with all my might. My babies need me! We deserve a right to live. 💙 join me in my battle
No More Excuses ALS W... @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
Andrea Pauls Backman ... @AndreaBackman05
2K Followers 1K Following Follow me at https://t.co/iaMHiklYK1. Passionate about people w ALS/MND & fighting for cures.
Shelly Hoover @shellyhoover
4K Followers 3K Following Writer, Veteran, & ALS Warrior. Timeless Sisters available on Amazon now! #FunFact - I type with my eyes. #WritingCommunity #ReadingCommunity #Gratitude
Anthony Carbajal @carbajalphoto
13K Followers 2K Following
Lee Millard @onein300
2K Followers 893 Following 1/300 is lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. Moving over to Bluesky https://t.co/5z82GhhK69
Farmstrong @farmstronginfo
1K Followers 4K Following Fan of good UX & #techcomm. Let's work on the #ALS clock. Posts are my own. #EsriMaps #BLM #LGBTQIA
ALS News Today @alsnewstoday
3K Followers 1K Following Your source for ALS news, support, & real stories from the community. Let's raise ALS awareness together!🎗️
Bunyoro@360💖 @mayajackie9
866 Followers 3K Following I'm a true daughter of the kabalega, i love reading, listening to music, adventure dancing, and Sports.
us_Nora_ @usNora186983
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sarahmaggied @sarah_maggied
1 Followers 47 Following
Teamhighoctanejules @Juleshighoctane
24 Followers 202 Following Dad, husband, gamer ALS Warrior. Mom, wife, mystic. ALS Advocate. Podcast hosts: The Couple Shift Right Here, Right Now
Steven Diehl @StevenDiehl13
98 Followers 269 Following retired union firefighter with ALS looking to promote ALS Awareness and community involvement
wayne thomas @nwaynet
476 Followers 1K Following ALS Warrior! World Trvlr - 38 countries, Joanna.Foodie.Xmas.Fur kids:Callie & Skye. FCPHR, CMC, MBA, Sr. Leader. LIVING LIFE NOT WAITING TO DIE.🇨🇦🇺🇸🥂🍽
Jorge C. Abdalla Jr. @JorgeAbdallaJr
75 Followers 1K Following Fundador e Presidente do Conselho de Administração da Associação Pró-Cura da ELA e Presidente da UNELA “Founder and Chairman of ALS Pro-Cure Association” Brasil
StampOutMND @StampOutMnd
312 Followers 1K Following Solo Charity Fundraiser For The Motor Neurone Disease Association since 2015, Check out FB for more detailed posts.
Fight with Juan @fightwithjuan
864 Followers 343 Following Husband. Dad. Former Jai-Alai Player, Software Developer, Entrepreneur and IT Manager. Living with and Fighting ALS
Wendy Faust @wendyfaust
119 Followers 99 Following
Dave Hagen @DaveHagen19
500 Followers 1K Following
Biohaven @biohaven
2K Followers 845 Following Biohaven is a modern pharmaceutical company that is guided by science and inspired to change the lives of people with unmet medical needs.
D'Andrea Jones @wahhooscwgrl
552 Followers 5K Following I lost an Amazing Husband to the horrific disease ALS! Raise awareness to Lou Gehrig’s disease! #ALSSucks #SoulMates #ALSFindACure
Lorri Cavaliere @LorriCav
1K Followers 4K Following A mom in CT, fighting and advocating every day for the life of my 34-year old daughter, Alexandra, diagnosed with sporadic bulbar-onset ALS in July of 2020.
Lou Gehrig Day Commit... @LG4Day
3K Followers 905 Following Welcome to the Twitter home of Lou Gehrig Day committee, an annual MLB tradition on June 2, starting in 2021, to honor him and raise awareness for ALS!
Stop ALS @Activis27264978
1 Followers 40 Following ALS is a very serious disease. My aim is to update people around the world about ALS, it's symptoms, and treatment breakthroughs.
MStu @Mstu44996686
4 Followers 48 Following conservative, father, intent on leaving a better United States the next generation.
Author Kris Francoeur... @KFAnnaBelleRose
6K Followers 6K Following I'm Kris Francoeur - author, ghostwriter, educator, wife of an ALS warrior. Four published romance novels, one coming soon, and a memoir on grief. No DMs.
Irene Shapiro @irene_shapiro1
341 Followers 271 Following Passionate advocate for people living with ALS & personal empowerment in healthcare.
JamieRoseBerryy @JamieRoseBerryy
1K Followers 1K Following Fierce Freespirit fighting for ALS freedom & ALS rights "We’re simply asking for a fighting chance to live the lives that we were meant to live" #ALSLivesMatter
Prof.Dr İdrisoglu @HAidrisoglu
237 Followers 2K Following
Auntie 𝓠 @AuntieQsews
491 Followers 1K Following Call me Quinn! ❀ A little bit of everything! ✁ Masks, Totes, Potholders, Aprons, Bibs and more! ♥ •Shipping US only• Familial ALS ~
Scott Smith @ScottFightsALS
7K Followers 467 Following Father, husband, gym owner, ALS warrior and storyteller. Founder of BodySmith and Flex On ALS. 💪
alsFIGHTeurope @alsfighteurope
340 Followers 1K Following We're not going down without a fight! Join https://t.co/5w78nBPUsN?amp=1
Heather Barlog @HPunchy06
52 Followers 274 Following
Deane Gorsline @DeaneGorsline
273 Followers 880 Following Former 1CER Combat Diver and soldier @1CMBG_1GBMC - Husband to @Dani_petes - In the Fight Against ALS advocating for my brethren @ALSAction @ALSBurpee
Robert Luongo ALS Fun... @wefightals
312 Followers 871 Following Our Mission: To alleviate the financial burden of individuals and their families that have been victimized by ALS including assistance and research.
Lightsaver Accessory @KarinaB39326240
9 Followers 127 Following I don't annoyingly tweet about this amazing new accessory so, please follow. Help rally behind a single mom, working in a small town as an entrepreneur.
GayValimont #GetGaetz... @GValimont
8K Followers 3K Following Widow to Brian, who had #ALS, mom to 9yo son Eli who died of #DIPG brain cancer, six months apart. Now, I am running for Congress. @gayforcongress
Herbwurm @HerbWurm
581 Followers 1K Following PopGrungeDoomRock. Message us for booking info. Visit the website link below to...
Christopher F. Scanda... @ChrisScandaglia
2K Followers 6K Following 2003 #Yankees Media assistant 2004 Rubenstein Associates. 2004 Allstate Insurance / Chevrolet. ALS Foundation 2023! Fundraising since 2006.
Hope ALS Portugal - E... @AlsPortugal
532 Followers 2K Following The ALS patients need #Nurown they want to live Os doentes de ELA - Esclerose Lateral Amiotrófica precisam de #Nurown , pelo direito à vida.
khloud @k_alshemmery
178 Followers 672 Following
DEBOUT.for.ALS @VanessaVerstap2
32 Followers 170 Following Pièce de théâtre DEBOUT. 🎭 #sensibilisationSLA #SLAawareness #soutenonsDEBOUT #dons #supportculture https://t.co/N6MfRb2NAA https://t.co/wJubsd3w1q…
Amy Carraway @amychelle69
1K Followers 3K Following Music lover, college football fanatic. good intentions. Committed to saving the monarch butterflies. ink pen hoarder. Fight to end ALS. #hookem
CenterforChronicIllne... @CciSeattle
627 Followers 2K Following This account is no longer active. For the latest updates and to stay connected, follow the Center for Chronic Illness on Instagram or LinkedIn!
✈️ John Jetson @ganggreen82
2K Followers 5K Following Family man & life-long, die-hard Jets fan✈️#TakeFlight #JetUp RU🏈🏀#CHOP🪓NYY⚾️ #RepBX 🎸🎼🗽🇺🇸Here for sports, entertainment, & anything interesting #EndALS
Www.secretaireamondom... @ninoulyon
820 Followers 6K Following L'informatique vous dépasse ? Confiez vos tâches administratives à une secrétaire à domicile ! secretaireamondomicile.fr
ASpiritInFlightMovie @ASpirit_Movie
69 Followers 129 Following "A Spirit in Flight" is the inspiring documentary portrait of Eric Jurado-Diaz, a 58-year old gay man, army veteran and father of three and his battle with ALS
Brian Wallach @bsw5020
142K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
I AM ALS @iamalsorg
27K Followers 722 Following I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Mandi @RunningMama0522
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ALS TX DAD @AlsDads
2K Followers 818 Following
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier. Animals are my Love!!
ALS Uncensored 🏴�... @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI #IWriteALS
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following ALS we are coming for you. Widowed by ALS and still fighting it.
ALS TDI @ALSTDI
10K Followers 6K Following The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
Hope Loves Company @HopeLovesCo
2K Followers 3K Following HLC is the only nonprofit in the U.S. dedicated to supporting children and young adults who had or have a loved one battling #ALS. We provide Camp HLC & more.
Deb Paust @PaustDeb
1K Followers 679 Following Blessed mom, lover of snow, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Girl Travelin Alone @CathyStandish
4K Followers 5K Following
Steve Gleason - "Live... @SteveGleason
181K Followers 291 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
Nicole McCabe @NicoleALSJurney
1K Followers 614 Following 35 year old PNW girl battling #ALS I'm here to fight with all my might. My babies need me! We deserve a right to live. 💙 join me in my battle
No More Excuses ALS W... @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
Andrea Pauls Backman ... @AndreaBackman05
2K Followers 1K Following Follow me at https://t.co/iaMHiklYK1. Passionate about people w ALS/MND & fighting for cures.
Shelly Hoover @shellyhoover
4K Followers 3K Following Writer, Veteran, & ALS Warrior. Timeless Sisters available on Amazon now! #FunFact - I type with my eyes. #WritingCommunity #ReadingCommunity #Gratitude
Anthony Carbajal @carbajalphoto
13K Followers 2K Following
Lee Millard @onein300
2K Followers 893 Following 1/300 is lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. Moving over to Bluesky https://t.co/5z82GhhK69
Larry Falivena @lfchallengeals
236 Followers 57 Following Husband and father of two teenage boys. Challenging ALS by making the most of this life and living by faith.
Cure MND @CureMND
1K Followers 3K Following Six people a day die with Motor Neurone Disease (#MND) / UK. @MHRAgovuk & @NICEcomms should conduct an Accelerated Review for existing treatments.
Debra @beaches5050
23 Followers 97 Following Nurse Practitioner Living with ALS will not let it define me
Susan R. Hairston @susanhairston02
79 Followers 718 Following
Gracie Campbell @GracieMomSoup
56 Followers 142 Following
Hope4Cure @Hope4Curenow
257 Followers 978 Following Bring awareness & support to Prion Diseases GSS, CJD, FFI & other prion-like diseases - ALS, AD, PD, HD
Moonbeam Ninja @MoonbeamNinja
454 Followers 1K Following While we research for a cure, let's approve #NurOwn, T-regs and Cu-tsum for ALS patients.
Big Chaim פרודי�... @LebovitsChaim
157 Followers 971 Following Changing the treatment of ALS one patient at at a time (for profit). Literally, a single patient. Parody. CEO of $BCLI. #EndALS #CuresForAll
JessCo @JessicaC76
69 Followers 517 Following
PixieDust4Caregivers @PixieD4Caring
1K Followers 2K Following #Disney means pixie dust, whimsy & inspiration! A Disney fan(atic) reflects on #caregiving & life. https://t.co/5jnm7gpL3S. #WDW #ALS #grief
Egg Chasers @EggChasersXV
1K Followers 3K Following Invitational men’s & women’s charity rugby supporting those living with and affected by #MND @MNDAssoc @PainInTheALS #WeAreEggChasers #ForCrispy
🏔️ Paul @ Munros... @Munros4MND
2K Followers 3K Following 🌟 Doddie Champion 🌟 Attempting to climb Scotland's 282 highest mountains (Munros) & raising money for @MNDoddie5 🏔 £110,000 & counting... #DoingItForDad 💔
Jeremy Schreiber @JeremySchreiber
886 Followers 1K Following #Author, #Entrepreneur, #ALS Warrior Jeremy has passed away, but his message lives on. Posts by family and allies.
Chris Tschupp @CTschupp
385 Followers 612 Following Former Pro Hockey Player, Screenwriter, Actor, Band Manager, Jersey Strong... dreamer!
minna @minnadillard
903 Followers 3K Following I lost my loving husband to ALS in 2016. I'm fighting for treatments that should have been available to him and NOW should be available to ALL ALS warriors.
Connecting ALS @ConnectingALS
268 Followers 279 Following Connecting ALS is a weekly podcast produced by @alsassociation. #endALS #AIRster
Brady Scott PhD RRT @JBradyScott
3K Followers 3K Following #Girldad. Hubster. Respiratory Therapist. PhD. Professor (Full). Kentuckian. Peloton'r. Views expressed are my own. https://t.co/PRndoVzqxx
Damon Medek @DamonMedekAlt
127 Followers 943 Following Professional Pop-Punk Band | Frontman @DamonMedek Drummer @CyrusZerbe Bassist @_GavinMichaels Guitarist @DavidXiong07
Paula F Freund @freund_paula
289 Followers 27 Following I Have ALS/Lou Gehrig's Disease. I Fight Every day and Push Forward. I may have ALS---But I am NOT giving up or giving in to this Monster !! #ScrewYouALS
Robert Daniels @rpd628
761 Followers 503 Following Blessed husband, father & grandfather and ALS warrior. I want to make a difference in the fight for a cure, if not for me but for those that follow me.
Greg Bauer @GJBest1982
668 Followers 458 Following Devoted father and husband to the best girls on earth. Penn State Football alum. ALS advocate and warrior.
Brenda Cruz @lneedthesun
334 Followers 207 Following Mom of two amazing teens and wife of an ALS warrior. #liveinthemoment
Todd Vitale @ArtForALS
167 Followers 143 Following Lover of Life, Art & Music - ALS forced me into retirement from Real Estate (my job), Singing (my passion and earlier career) and Art (my hobby).
Mandi Sonnenfeld, PhD... @SonnenfeldOT
468 Followers 2K Following Instructor of Medicine, BCM | Research Health Science Specialist, MEDVAMC | Occupational Therapist “My views do not reflect those of my institution.”
CHAD RAAB @ChadRaab73
59 Followers 87 Following Living with ALS & Cardiomyopthy/Autoimmune Hepatitis & COPD
essay @AlsEssay
1 Followers 0 Following
Art Marzok @art_marzok
220 Followers 429 Following PhD Candidate @McMasterU in the Miller lab Immunology - Viruses - Neurodegenerative Diseases #EndALS
Nancy Meres @NancyMeres
3 Followers 28 Following
Norman MacIsaac @NormanMacIsaac
1K Followers 1K Following #ALS / #MND ambassador, writer, advocate, TEDx speaker ... fighting for access to treatment and services. Author of "The Best of the Worst News"
Lisa VandenBerg @lisav2006
292 Followers 346 Following Mother and wife. Father diagnosed with ALS October 2017.
David @drdoane08
110 Followers 102 Following ALS warrior recently diagnosed (12/18).Loves his big horses!
Brian Taylor @coachbrian6262
244 Followers 356 Following Hi I’m Brian...dad, husband, nice guy, als warrior
Jdub @Jdub60620283
15 Followers 17 Following
Khrystal K. Davis, JD @KhrystalKDavis
19K Followers 18K Following Founder @txrare Dedicated to Improving Access for the Rare Disease Community. Hunter’s (SMA Type 1) Zebra Mom 🦓. Patient Advocate. Speaker. Author. 👦 🧬🦓
My ALS World @myalsworld
517 Followers 520 Following I was diagnosed with ALS / MND in May 2019. I'm 44. he/him. Now part time Software Developer due to #ALS #MND
Outside Thinc @OutsideThinc
504 Followers 537 Following We believe that creativity and imagination cannot be contained inside a box. We provide Video, Photo, Design and Digital Marketing Services.
Dr. Allison Quintanil... @alliplattsmier
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