The Genesis Foundation for Children @TheGenFound
The Genesis Foundation for Children funds clinical care and therapy for children born with complex genetic disorders and rare diseases. thegenesisfoundation.org Boston, MA Joined April 2014-
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Equine-Assisted Therapy Helps Fourth Grader with Rare Disease Improve Spacial Awareness, Strength, and Self-Confidence. Neve is not your average ten-year-old fourth grader... ow.ly/AUlE50I4PHn
Gaining control with gratitude. "You will truly understand what it means to not take a single moment, a single smile, a giggle, one bite of food, or a single step for granted,” and I rolled my eyes in disbelief. Caring for a chronically ill child can... ow.ly/tIYX50I4OEI
We cannot avoid life’s hardships and pain; nonetheless, compassion unlocks the power to change the way we relate to the moments of suffering. When we approach behavior change with a caring attitude... ow.ly/HcYf50I4MGR
After our infant son was diagnosed with a rare brain malformation, I had an identity crisis. The title of Mom had an unbidden qualifier – a ‘rare’ mom. No longer just-a-mom, I enlisted as a family caregiver. The 4 states of the caregiver's identity: ow.ly/77pc50I4Mls
Is cultivating flexible hope in the face of chronic illness possible? While stretching out my toddler’s stiff hamstrings, his physical therapist looked up at me and gently said... ow.ly/pvkx50I4LZi
Is cultivating flexible hope in the face of chronic illness possible? While stretching out my toddler’s stiff hamstrings, his physical therapist looked up at me and gently said... ow.ly/qpNE50I4LZj
300 million people worldwide are living with a rare disease. That is almost as many people who live in the U.S. If all 300 million people with a rare disease lived in the U.S., 9 out of 10 people would have a rare disease. ow.ly/kEVe50I4JEj
Is "gluten-free" soap a thing? If you have celiac disease and don't eat soap, does it really matter if it's gluten-free? Marketing hype or helpful? Dr. Dascha Weir, associate director of the Celiac Disease Program at Boston Children’s Hospital weighs in. thedailybeast.com/celiac-or-not-…
"our genes not only cause many diseases, but also hold potential cures. But that wasn’t always the case. It wasn’t until 1949 that scientists first found the molecular culprit of a disease — its roots in the genetic code." ow.ly/BIJV50HWCO4
If you're pregnant and need info about the potential risks of exposure before and during pregnancy, contact a confidential, free info service dedicated to providing women with reliable information as recommended by the CDC. youtu.be/sULcy7R8g3A
7 ways to help young kids cope if a parent has to isolate or quarantine according to Boston Children's Hospital. The good news - when handled with sensitivity, it's very unlikely that it will have a long-term negative impact for most children. ow.ly/cNNe50HPViG
7 ways to help young kids cope if a parent has to isolate or quarantine according to Boston Children's Hospital. The good news - when handled with sensitivity, it's very unlikely that it will have a long-term negative impact for most children. ow.ly/cNNe50HPViG
Where did Omicron come from? 1. It silently spread in a region of the world that has limited testing. 2. From a person with a chronic infection, giving it time to develop. 3. From from an animal like a mouse, chicken or turkey. More from... ow.ly/QiK050HIse5
Where did Omicron come from? 1. It silently spread in a region of the world that has limited testing. 2. From a person with a chronic infection, giving it time to develop. 3. From from an animal like a mouse, chicken or turkey. More from... ow.ly/QiK050HIse5
How families can safely manage Omicron and keep their children in school and socially active. 6 tips from an infectious disease doctor at Boston's Children's Hospital. ow.ly/LMZZ50HxnZe
Don’t let frigid temperatures, snow and ice, and fewer hours of sunlight prevent your child from being active says Cara Ebbeling, co-director of the New Balance Foundation Obesity Prevention Center at Boston Children’s Hospital.ow.ly/G2pb50HBzjE
How families can safely manage Omicron and keep their children in school and socially active. 6 tips from an infectious disease doctor at Boston's Children's Hospital. ow.ly/Z3H150HxnZc
We exceeded our 2021 year-end campaign goal of $100,000! We couldn’t have done it without such a remarkable donor base. Although the pandemic continues, 2021 saw a return of in-person visits and program attendance... Read more: thegenesisfoundation.org/we-exceeded-ou…
We saw family friends two days ago, and now one of them has Covid. Should I isolate or quarantine - what is the difference anyway? Boston Children's Hospital answers your COVID questions. answers.childrenshospital.org/covid-quaranti…
We saw family friends two days ago, and now one of them has Covid. Should I isolate or quarantine - what is the difference anyway? Boston Children's Hospital answers your COVID questions. answers.childrenshospital.org/covid-quaranti…
Malan Syndrome Founda... @MalanSyndrome
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