Treacle Health @TreacleHealth
A community for #InvisibleIllnesses alicianorton.typeform.com/to/u7KHt1 London, England Joined November 2019-
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Following523
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As the US and many other countries brace for an uptick in new infections, hospitalizations, and deaths due to #COVID-19, here is one other problem almost no one is talking about: long-term chronic illness.
Next up I want Kate Winslet’s advice on surviving a shipwreck and erasing all your memories after a bad relationship
Kate Winslet starred in the film Contagion about a hypothetical virus outbreak and gives tips on how to keep safe during the #coronavirus pandemic. Get the latest #COVID19 news here: trib.al/8wQG3tb
Some sound and thoroughly researched suggestions for #immunesupport from @mollymaloofmd docs.google.com/spreadsheets/d… #covid19 #coronavirus #coronavirusQA #ImmuneSystem #ImmunityBoosters #immunocompromised
Buy Us Time to Fight the Coronavirus and Save Millions of Lives with a Hammer-and-Dance Suppression Strategy petitions.whitehouse.gov/petition/buy-u…
The struggles of getting #healthinsurance with a #chroniccondition. teenvogue.com/story/health-i… #invisibleillness #RareDiseaseDay
Want to see #healthcare systems change to better support people with #Invisibleillnesses? Have your say alicianorton.typeform.com/to/u7KHt1 #ChronicPain #Fibromyalgia #CFSME #Invisibleillnesses
#ChronicPain is causing a widening gap between healthcare practitioners and patients. @guardian have written a great piece on what patients can do to treat #chronicbackpain theguardian.com/society/commen…
Deep sleep is thought to have a positive impact on #CFSME prognosis. Here’s how to get more restorative #sleep. prohealth.com/library/deep-s… #deepsleep #chronicfatigue #chronicpain #fibromyalgia
NIH funds Chicago-based study of #chronicfatiguesyndrome and #mono in college age students newswise.com/articles/nih-f… #cfsme #mecfs #chronicfatigue #chronicpain @NIH
Justin Bieber is soon to release a YouTube video about his experience with #chronicillness buzzfeed.com/stephenlaconte… @justinbieber @BuzzFeedNewsUK #chronicpain #LymeDisease #chronicfatigue #mentalhealth
Great to see support for #LymeDisease 🙌🏻
Thank you @haileybieber for your kind words. So sorry to hear about @justinbieber having to go through this awful disease. The fact that it’s hard to diagnose and is so debilitating was something I suffered through also
2.5 million Americans have #CFSME - why are these communities so underserved? nytimes.com/aponline/2020/… #chronicfatigue #chronicpain
We hope @justinbieber makes a speedy recovery. Thank you for sharing your story @justinbieber 🙏🏻
Justin Bieber confirms Lyme disease diagnosis on Instagram ahead of new docu-series: “While a lot of people kept saying Bieber looks like shit, on meth, etc. they failed to realize I’ve been recently diagnosed with Lyme disease.”
“I’m perfectly imperfect, we all are” @ladygaga discusses living with #chronicpain with @Oprah harpersbazaar.com/celebrity/late… @BazaarUK #fibromyalgia #ladygaga #mentalhealth #TuesdayTruths
So great to see @ladygaga speak openly about her struggles with #Fibromyalgia and #mentalhealth on @TeenVogue teenvogue.com/story/lady-gag… #anxiety #depression #chronicpain
Kudos to Nobel laureate Dr. Frances Arnold for being forthright about non-reproducible research. When will the #PACEtrial team and The Lancet find the courage to admit that the study design of PACE was flawed and that the results are not reliable? #MECFS x.com/francesarnold/…
For my first work-related tweet of 2020, I am totally bummed to announce that we have retracted last year's paper on enzymatic synthesis of beta-lactams. The work has not been reproducible. science.sciencemag.org/content/364/64…
What limiting beliefs can you let go of for the next decade? #newyear #2020 #2019in5words #ChronicPain #chronicillness #fibromyalgia
A recent preprint reported perturbation of effector and regulatory T cell subsets in patients with #MECFS. The significance of the finding and plans for follow-up articles are discussed in a blog post on The Jackson Laboratory ME/CFS page. jaxmecfs.com/2019/12/27/jax…
How is this allowed to happen? dailyrecord.co.uk/news/scottish-… #nhs #chronicpain #chronicfatigue #cfsme #mecfs
Pruiawwer @Pruiawwer7469
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Smirtot @SmirtotZHP
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Sonia @Hawkins65S
4K Followers 4K Following Kicking ass to keep going and not giving in NO DM’s please #Fibromyalgia
Stratford Fibro Frien... @friends_fibro
22 Followers 42 Following Stratford Fibro Friends is a peer-led support group affiliated to FMAUK. We are here to offer support and share experiences with others who walk a similar path.
Beckey Barton @BeckeyBarton
47 Followers 104 Following Battle severe Fibromyalgia | Chronic Fatigue | M.E. | Scoliosis |Autism/ADHD ☆ Christian | YouTube vlogger | Stratford on Avon |
IWO Magazine @ImagineMagazin2
620 Followers 2K Following Imagine the World as One (IWO) Magazine was founded as a means to elevate the disability experience through innovative stories, experiences and interviews.
DolceGibana™️ @DolceisGibana
110 Followers 1K Following Your source for Ecommerce Beauty Products and Digital Marketing. We are partnered with AustinMarketingMoguls™️, MONAT, Avon, GoDaddy, and Nowsite.
dSavannah = #disabled... @dSavannahCreate
3K Followers 3K Following #spoonie FT sick since 12/2014 #ChronicFatigue #ChronicPain When brain & body behave: #blogger & #advocate #DogCatTurtleWrangler #wife #feminist she / her
NewFrame @NewFrameThePain
866 Followers 3K Following NewFrame is a digital health platform that supports physical therapist's care for patients with chronic pain 🔬 🧘♀️💤🥑🏃♀️🩺
Claire 🧠🔥 #pwME... @Naylor007
2K Followers 5K Following ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
Butterfly Chained to ... @butterflystone_
70 Followers 95 Following Bedbound with severe M.E. Incapacitated for 43 years and counting. Illustration by Emma in Norway, age 9 https://t.co/rLvW7BQZ4W…
Phoenix Rising @aboutmecfs
6K Followers 3K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!
Ashley Scott @EpilepsyWtf
647 Followers 2K Following I'm 34 with epilepsy and fibro trying to raise a family. Like, WTF?! https://t.co/gGZZRfScLh
Susan - M.E/Fibromyal... @mefibromyalgia1
2K Followers 4K Following ME/FM patient since 2006, I hope some info helpful to those unaware of them you can also gain an insight. Advocate & sufferer invisible illnesses/chronic pain
i am ME @MyalgicME
692 Followers 1K Following Staying positive with the negative stuff. Obsessive thinker living with ME/CFS/FM. Just reaching out there...
S J @MissFlowerPixie
2K Followers 4K Following Opinions are mine alone. Retweets do not necessarily imply an endorsement. Sharing things others may find interesting.
Beautiful Exhaustion ... @SleepIsPretty
613 Followers 4K Following This account is to document my journey w/CFS.ME.🌷 Poet. NW Native. | Memories interwoven in my tweets.| Chronic Pain. Chronic Fatigue.|
FUTURE4HEALTH EU/USA @Future4H
46 Followers 455 Following ♦️Top quality #BEYUNA 💯% natural SUPPLEMENTS #CLEANLABEL #NoChemicalAdditives #VEGAN #GMOFree
Alison @Thrivingwdisabl
1K Followers 3K Following She/her, #bisexual, #FNDaware, #blogger and #coach helping #disabled folx navigate the #broken #healthcare, #welfare and #SocialSecurity systems, step by step!
Kristina Osobka @ChronicallyTina
1K Followers 2K Following Founder of the ROCK ME Project. Wife, Cat mom, Author, Advocate, and medical DUMPSTER FIRE. Living life one SPOON at a time. ME is a DISEASE not a LIFESTYLE!
Chrissy Clements @ClementsChrissy
202 Followers 1K Following Hi, I'm Chrissie, have been an ME Warrior for 7 years this November. Am a huge Jason Hughes fan he's gorgeous. Love Hollyoaks, EastEnders and Emmerdale ❤️💕🥰
Neuroaesthetic Farmho... @NeuroFarmhouse
2K Followers 5K Following Prescribing Creativity through Neuroaesthetics for Chronic Illness | Where Art Becomes Medicine.
Aries36 @aries3685
411 Followers 637 Following I'm a Chronic illness Warrior Princess that is back to rule her world! I am also trying to be a writer and use my northern charm at every opportunity! 🔥💜👑
mark kent @supersnopper
226 Followers 4K Following
Chronically Cindy Gab... @chroniclatina
302 Followers 736 Following Ecuatoriana | Chronic & Invisible Illnesses | LGBTQ+ Ally | Disability Advocate | she/her #chronicillness
In&Visible @InAndVisible
116 Followers 479 Following Purpose driven clothing brand representing the #InvisibleIllness & #Disabled communities. At least 50% of profits go to charity.
ME CFS FOUNDATION SOU... @mecfs_sa
2K Followers 3K Following We aim to raise awareness, dispel the myths and misconceptions surrounding #MECFS. Comprehensively support affected #pwme and form alliances with 3rd parties.
Zor Horwitz 👁️�... @Overwatch_Eagle
419 Followers 1K Following Political Parties are relics. We are dominated by predatory, corporate psychopaths who want us only as their chattelized debt-slaves. How do we fix this?
allyann @me_allyann
2K Followers 5K Following Living with & advocating for ME, POTS & FM, ex IT. Homebound & at times bedridden. I regularly delete tweets. @allyann.bsky.social #mecfs #pots #fm #endo
PanicMechanic @PanicMechApp
292 Followers 754 Following Puts you in the driver’s seat of your panic attacks! mobile app
Amy Ferraro-Kick ED�... @acf1973
548 Followers 2K Following Kick ED’s ButtEatingDisorders (Facebook), Fibro,Migraines,Depression,ICC,IHH,Autism Mom,Eating Disorder
Polly Gilreath @PollyGilreath
837 Followers 821 Following #MyalgicE #ME #CFS #Fibromyalgia #POTS need more funding now! Feminist Grandma. Chronic Illness. Prisma pencil art.
Dust And Ashes @DustAndAshes1
56 Followers 425 Following German handmade jewelry and home accessories
mindbodybodhi.com @mindbodybodhi
155 Followers 153 Following Raising awareness of Fibromyalgia as a mindbodydisease https://t.co/QxDgapaeST
penny #ME🕊️🕊�... @TheOldLostRoad
2K Followers 4K Following 33yrs severe #MECFS. Left/Green. Hermit outcast. Trying not to disappear.🍃
🧡Beana🧡 @GenaMSwarrior
3K Followers 5K Following Wife, Mother, Grandmother. Dx with PPMS 2015. It truly is a roll of the dice each day. 🫠 #MultipleSclerosisAwareness #MSChangedMe #Trumpsucks
Fibromyalgia Wellness @Fibro_Wellness_
209 Followers 152 Following #fibromyalgiawellness Posting about fibromyalgia and related health disorders. I am also a vestibular migraine warrior. Not selling anything! 😉
Esther Bradford @ebradford1975
107 Followers 301 Following Esther from Leicester, live 🍔🍦🍷love 🌹❤️🦀laugh 😂vodka drinker #fibromyalgia #invisableillness
Rosalynde Lemarchand @frenchros
2K Followers 2K Following An M.E. sufferer for 20 years. Wanting to help others with this illness, raise awareness and promote understanding through my poetry and my blogs
Joe Falzone @JoeFalzone8
754 Followers 2K Following Physician, thinker, pragmatist, CPP, loves cutting edge science, artist, maker, trying to laugh in the face of intractable pain.
life of a spoonie @life_spoonie
1K Followers 1K Following lost in #brainfog #ehlersdanlossyndrome #addisonsdisease #pots #epilepsy #traumaticbraininjury #chronicpainsyndrome #avascularnecrosis #diabetes #lgbt 🏳️🌈🎗
Adelaide Hydrotherapy @adlhydrotherapy
52 Followers 444 Following Adelaide's first dedicated #hydrotherapy facility, opening in Welland this July.
Teresa Thompson @AuntTre
1K Followers 931 Following Chronic pain patient, intractable pain, permanently disabled
Marie @Marie_in_KS
574 Followers 403 Following 47 & living w #fibromyalgia #dysautonomia #ra #hEDS Engineer in past life. Married w/ 2 #POTS kids, 1 of which has #hEDS. Doing my best. (she/her)
Victoria Abbott-Flemi... @CRPSguru
1K Followers 2K Following Speaker, author, lived experience of Complex Regional Pain Syndrome #CRPS & bilateral above knee amputation. Founder of @BNightsCRPS Opinions are my own
@chronicallyjess.co.u... @myfibroandmej
700 Followers 728 Following Hey, my name is Jess. This account is to raise awareness of #Fibromyalgia & #MyalgicEncephalomyelitis. 📍 : England
Joanna No Banana @JoannaNoBanana
28K Followers 17K Following Joanna (she/her) 30 Queen of Allergies 👑 MCAS. POTS. EDS. CCI 💛 Autistic. ADHD. OCD. PMDD. Striving to live my best life 💕 #ForTinu
Nancy @nlbvern
99 Followers 421 Following Chronic Pain, Invisible illnesses, don't believe in the word normal
Neuroaesthetic Farmho... @NeuroFarmhouse
2K Followers 5K Following Prescribing Creativity through Neuroaesthetics for Chronic Illness | Where Art Becomes Medicine.
mark kent @supersnopper
226 Followers 4K Following
Chronically Cindy Gab... @chroniclatina
302 Followers 736 Following Ecuatoriana | Chronic & Invisible Illnesses | LGBTQ+ Ally | Disability Advocate | she/her #chronicillness
Alex Aldridge @CFSVitalist
341 Followers 495 Following Editor of Humans of ME / CFS | Advocacy and Support for the Millions Missing
In&Visible @InAndVisible
116 Followers 479 Following Purpose driven clothing brand representing the #InvisibleIllness & #Disabled communities. At least 50% of profits go to charity.
Zor Horwitz 👁️�... @Overwatch_Eagle
419 Followers 1K Following Political Parties are relics. We are dominated by predatory, corporate psychopaths who want us only as their chattelized debt-slaves. How do we fix this?
Amy Ferraro-Kick ED�... @acf1973
548 Followers 2K Following Kick ED’s ButtEatingDisorders (Facebook), Fibro,Migraines,Depression,ICC,IHH,Autism Mom,Eating Disorder
mindbodybodhi.com @mindbodybodhi
155 Followers 153 Following Raising awareness of Fibromyalgia as a mindbodydisease https://t.co/QxDgapaeST
Fibromyalgia Wellness @Fibro_Wellness_
209 Followers 152 Following #fibromyalgiawellness Posting about fibromyalgia and related health disorders. I am also a vestibular migraine warrior. Not selling anything! 😉
🧡Beana🧡 @GenaMSwarrior
3K Followers 5K Following Wife, Mother, Grandmother. Dx with PPMS 2015. It truly is a roll of the dice each day. 🫠 #MultipleSclerosisAwareness #MSChangedMe #Trumpsucks
Jake Foster @jakefosternow
529 Followers 410 Following Astronomer at the Royal Observatory Greenwich 🪐 Views are my own.
Joe Falzone @JoeFalzone8
754 Followers 2K Following Physician, thinker, pragmatist, CPP, loves cutting edge science, artist, maker, trying to laugh in the face of intractable pain.
life of a spoonie @life_spoonie
1K Followers 1K Following lost in #brainfog #ehlersdanlossyndrome #addisonsdisease #pots #epilepsy #traumaticbraininjury #chronicpainsyndrome #avascularnecrosis #diabetes #lgbt 🏳️🌈🎗
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62.9M Followers 1K Following “In The Dark” & “I Said I Love You First...And You Said It Back” Out Now
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210 Followers 180 Following Stand up to Fibro! The daily struggles, difficulties and worries of living with Fibromyalgia. My unapologetic and real feelings on life.
Marie @Marie_in_KS
574 Followers 403 Following 47 & living w #fibromyalgia #dysautonomia #ra #hEDS Engineer in past life. Married w/ 2 #POTS kids, 1 of which has #hEDS. Doing my best. (she/her)
Victoria Abbott-Flemi... @CRPSguru
1K Followers 2K Following Speaker, author, lived experience of Complex Regional Pain Syndrome #CRPS & bilateral above knee amputation. Founder of @BNightsCRPS Opinions are my own
@chronicallyjess.co.u... @myfibroandmej
700 Followers 728 Following Hey, my name is Jess. This account is to raise awareness of #Fibromyalgia & #MyalgicEncephalomyelitis. 📍 : England
Joanna No Banana @JoannaNoBanana
28K Followers 17K Following Joanna (she/her) 30 Queen of Allergies 👑 MCAS. POTS. EDS. CCI 💛 Autistic. ADHD. OCD. PMDD. Striving to live my best life 💕 #ForTinu
Nancy @nlbvern
99 Followers 421 Following Chronic Pain, Invisible illnesses, don't believe in the word normal
MyMigraineLife (Sarah... @MyMigraineLife
5K Followers 6K Following Patient advocate #migraine #pots 🧠Health & happiness seeker 💫Product reviews, discounts & life stories on blog ⬇️ #milesformigraine advocacy & family programs
Danny Irish🍀🇺�... @mmsoaorg
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577 Followers 979 Following Healed and humbled by God. Had chronic lyme disease and POTS for 10 years, now my goal is to spread awareness and hope for chronic illnesses!
Steph Sealy M.Ost. Re... @Osteo_darkforce
3K Followers 3K Following All opinions are mine! 🚫DM #chronicpain #Spoonie #clusterheadache #osteopathy #24hrbirds #Wegeners #mamaofaboychef #autism #mamaofasquareroot 🌊🌊
HealthUnlocked @HealthUnlocked
7K Followers 3K Following We are the social network for health. Ask questions. Get answers. Talk to others who’ve been there before. #UnlockYourHealth
Sue Ingebretson @SueInge
37K Followers 34K Following Speaker & Holistic #Health Care #Coach Living Well with #Fibromyalgia. #Author of #1 Amazon #ChronicIllness best-sellers #FibroWHYalgia #GetBackintoWhack
yesman @yesman14606168
394 Followers 1K Following 23, male,ibs, have mental and physical health issues, in 2020 want to change my life by saying 'yes' https://t.co/xWQPWZ4YjP
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519 Followers 698 Following Wife. Mother of 3 awesome kids. Founder of Chronically Simple (@cshealthapp). #EDS Warrior. Advocate for patient empowerment. Lover of coffee.
trudy @trudyflynn_
2K Followers 3K Following Fibromyalgia, Chair Fibromyalgia Association Canada, PERA alumni CIHR-IMHA, Patient Partner #Fibromyalgia #FAC #PatientEngagement
Karen @hopeforMEyet
573 Followers 367 Following One step at a time, my ME/CFS PoTS journey. Shop owner but unable to work since 2017. Have now stopped my keto diet, saw no difference after 13 months 😔 ♿
🎄Mo-Di Quinn ♿ �... @modiquinn
999 Followers 1K Following I have had Myalgic Encephalomyelitis since 1995. I'm kind-hearted and witty. I have a serious and understanding nature. Studied Anatomy/Physiology/Medicine.
M. and S. Shaw @twoShaws
2K Followers 3K Following Person w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) #POTS #MCAS & her ME advocate spouse/caregiver. Before: Architect, software interaction designer.
FibroGirl @FibroGirl3
2K Followers 1K Following 🦋Fibro Warrior🦋 Age 30🥄Raising Awareness of hidden disabilities 💜 TikTok: @fibrogirl3 Insta:@Littlen3wportsparkles
Olivia Fitch @livwithhope
339 Followers 177 Following I’m Liv :) I use this account to advocate for the #MillionsMissing b/c of #MyalgicEncephalomyelitis. Calling for equity, research & funding. Fighting for hope.
SweetyBird @Sweetybirdtoo
244 Followers 352 Following wife, mother, crafter, but sadly #MECFS is what rules my life, I am one of the #MillionsMissing #SevereME #KDrama #Dyslexia🌹#TheRose #EXO #SuJu #Day6 #SuperM
Lu @LuPwME
2K Followers 2K Following Moderate ME/CFS patient. One of the #MillionsMissing since 2016. Animal/nature/wildflower lover. Miss walking, writing and cooking (lost to this illness).
Rose @sleepitea
309 Followers 731 Following 20-something 🏴 living with hEDS, ME/CFS etc 🏩 neurodivergent 🍭 lover of animals and nature 🐙🌵
Yvette Cooper @YvetteCooperMP
461K Followers 933 Following Secretary of State for Health and Social Care. Labour MP for Pontefract, Castleford & Knottingley
🎀 x_neurodiverse_f... @Justbeing_Lou_x
1K Followers 1K Following #Fibromyalgia warrior💜 #Depression warrior🖤 #Anxiety warrior💛 Mum ❤ scorpio ♏🦂 #Mentalhealth & #Autism advocate
Happy Dogs @pbj_Happy_dogs
5K Followers 5K Following #CBD Helping you & your #dogs look and feel your very best. #CRPS hEDS #MTHFR & dysautonomia make life challenging some days. Smile you will feel better. 😜You might like
