Your ALS Guide @YourALSguide
A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more... yourALSguide.com Joined September 2022-
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Twice a month, we share helpful tips, resources, and information to help you navigate the road ahead. Sign up for our free newsletter at youralsguide.com/newsletter #ALS #ENDALS
We are an educational website for families impacted by ALS. Visit us at youralsguide.com #als #endals
When living ALS, tending to your mental health can help you find peace of mind and have a renewed sense of control. Learn more about mental, emotional, social, and physical well-being at youralsguide.com/als-mental-hea… #als #MentalHealthMatters
youralsguide.com/caregivers #als #alscaregiver #endals
Respite care can help #ALS family caregivers avoid burnout by providing much-needed breaks. Depending on your local resources and support network, you may be able to find caregiving help at no cost. Learn more at youralsguide.com/respite-care #NationalFamilyCaregiversMonth
If you are a Veteran who has been diagnosed with ALS, you should qualify for significant VA benefits, including medical equipment, care at VA ALS clinics, disability compensation, a home renovation grant, and an automobile grant. Learn more at youralsguide.com/veterans-with-… #ALS
Caregivers sometimes feel guilty for taking care of their own needs. But the better you care for yourself, the better caregiver you will be. Finding time for yourself can help you recharge. Learn more at youralsguide.com/taking-care-of… #NationalFamilyCaregiversMonth #ALS
We would like to recognize all of the love and energy #ALS caregivers share every single day. Our ALS Caregivers section has information about self-care, respite care, support groups, support services, care options, and more: youralsguide.com/caregivers #NationalFamilyCaregiversMonth
When living with #ALS, setting up smart home devices can help you remain more independent and have greater control over your environment. Learn more at youralsguide.com/als-smart-home #SmartHome
If you are struggling to chew or swallow, or get fatigued while eating, a feeding tube can be a safe and reliable way to get the calories and nutrients your body needs. Learn more at youralsguide.com/feeding-tubes #ALS
We are an educational website for families impacted by ALS. Visit us at youralsguide.com #ALS #ENDALS
We have created an in-depth page on genetic ALS, counseling, and testing. Learn who may be at risk, how counseling might be helpful, what to consider, how testing works, and where you can get tested. Learn more at youralsguide.com/genetic-testing #ALS #ALSGENETICS
Getting a good night’s sleep can be challenging for people living with ALS. There are strategies and devices that can help. Sleeping better can improve your mood, energy level, and overall outlook on life. Learn more at youralsguide.com/als-and-sleep #ALS
Moderate exercise can be beneficial, but you should not push yourself too hard. Learn more at youralsguide.com/exercise-and-a… #ALS
There are many dressing devices that your occupational therapist may be able to recommend to help you continue to get dressed on your own. Learn about button hooks, sock aids, dressing sticks, and more at youralsguide.com/dressing-aids #ALS
I AM ALS @iamalsorg
27K Followers 722 Following I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
AZ Latina ☮️🌊�... @aVoice4ALS
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Dr. Nadia Sethi @nadia_sethi
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I’m Dying To Tell Y... @LorrisPodcast
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Christine Gilmore RN @KickenALSAss
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SOD1 EndALS @CEHaddadNP
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ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier. Animals are my Love!!
Deb Paust @PaustDeb
1K Followers 681 Following Blessed mom, lover of snow, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Sarah Parton (she/her... @sarahkarpar
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Trolley Car🚎 #smok... @babajr20
4K Followers 6K Following Vote! Bring honor & respect back to USA also ICC for putin, bibi & their putz would be nice. #nafo #smokefleet🦋🖇️#bluecrew #resister 🗽⚖️🌊
Ricky Lamont 💙 @RickyLamont1970
2K Followers 5K Following chicago born,married and I'm in love with my wife. in love with comic books, films superman, star wars etc. LIBERAL. #BLUETSUNAMI2026..fully vaccinated NO DMs
Wesley Onrot, Pay Me ... @BeahiveVaisman
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Matt Rocheleau @mrochele
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Mansi Jain @dr_mansi_jain
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ALS News Today @alsnewstoday
3K Followers 1K Following Your source for ALS news, support, & real stories from the community. Let's raise ALS awareness together!🎗️
S cromer @Scromer6
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Cortexa Therapeutics @CortexaTx
3 Followers 16 Following With urgency and precision, we’re accelerating breakthrough science —because in neurodegenerative diseases, time is everything.
Walter_Jones @carljones_aggie
130 Followers 638 Following Texas Aggie Living with ALS, but not forever.
Jimmy Goad @JimmyLGoad
11 Followers 179 Following
ALS Clinic Advisor @ALSClinicSurvey
23 Followers 62 Following Provides ALS-patient reviews of ALS clinics.
Kim Hughes @KHYag2017
0 Followers 3 Following
Kim Hughes @kim_hughes45039
0 Followers 1 Following
KAREN GISSELLE PERDOM... @KarenPerdo18
0 Followers 25 Following
🪔FlightParamedicRN... @Medic1st_RN2nd
1K Followers 2K Following Medic/RN dx’d with ALS; Svr weather, aviation, Fragile X Syndrome #NeverTrump #CovidIsABadThing
Refikerbaş @Refikerba267461
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Yani Stavrev @yanistavrev
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Karen Stuck Mortensen @KMortensen3
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jhrefsdghjyu54 @sdgtyjuj56rhe
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Brandon @BrandonBakerLBK
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Tanabe Pharma America @TanabePharmaUS
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Gregory Schreiber @gdschreiber
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Clem @Clemleo_C
203 Followers 1K Following The greatest glory in living lies not in never falling, but in rising every time we fall💪 #TrumpsAmerica #ETH
Suzan Cheng @SuzanCheng
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Regina Liaw @LiawRegina
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American Association ... @AACYorg
2K Followers 5K Following The American Association of Caregiving Youth® is the only organization in the United States dedicated solely to addressing Caregiving Youth issues/solutions.
Robert (Bobby) Hand, ... @BobbyHandPT
24 Followers 130 Following Neurologic PT. Advocate. Educator. 🧠 🏃♂️🏋🏻♂️ 🦼🦽 Asst Clin Prof @ Drexel PTRS. Posts = my own.
Melinda S. Kavanaugh @MelindaSKav
178 Followers 135 Following Professor of social work at UWM, young caregiver/carer researcher and advocate, Founder, Global Neuro YCare
Danielle Bryant @DBryOfficial
127 Followers 140 Following
Abilities Expo @AbilitiesExpo
17K Followers 6K Following #AbilitiesExpo is the leading event offering life-enriching products, services, education & fun to the community of people with disabilities nationwide.
NEALS Consortium @NEALSConsortium
3K Followers 99 Following The NEALS Consortium is an international, independent, non-profit group of researchers who collaboratively conduct clinical research in ALS
Michael -ALS Warrior @Michael27423282
65 Followers 276 Following Have been fighting ALS since 2020. Beautiful wife DEB, 3 Girls, one Awesome Grandson #ALS Sucks #Team Peeb's
Clare Durrett @ClareDurrett
825 Followers 1K Following Working on making my life worthwhile one day at a time. Tweets are my own. All in for Team Gleason and Answer ALS.
Malinda Villalobos @MalindaVil14492
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Brandon Thacker @SThacker6323
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Amy Carraway @amychelle69
1K Followers 3K Following Music lover, college football fanatic. good intentions. Committed to saving the monarch butterflies. ink pen hoarder. Fight to end ALS. #hookem
Leah @Leah40981318
2 Followers 93 Following
David Ali @davidiali
350 Followers 418 Following MND advocate and supporter and working towards a world free from ALS/MND. Views/RT my own
israel schubert @Ilurs2021
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mmarotta @mmarotta
2K Followers 3K Following Educator, Technology PD consultant/ Adjunct & life-long- learner
Dr. Jon Barton PhD. @DrJonBarton
3K Followers 6K Following CEO of ALT LLC. in Santa Barbara,CA. Next Gen Additive manufacturing, innovations in health, synthetic tissues, electronics and sustainable materials. #3DALT
Brian Wallach @bsw5020
142K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
I AM ALS @iamalsorg
27K Followers 722 Following I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
AZ Latina ☮️🌊�... @aVoice4ALS
4K Followers 5K Following Advocate for people w/ALS & Amyloidosis (that killed Mom). FDA must heed Congressional mandate for regulatory flexibility in all Rare Diseases. #DyingWaiting
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
ALS Advocacy @alsadvocacy
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Mayuri Om Saxena @Mayuri_Saxena
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Mandi @RunningMama0522
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ALS Uncensored 🏴�... @ScottsFight
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Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following ALS we are coming for you. Widowed by ALS and still fighting it.
I’m Dying To Tell Y... @LorrisPodcast
1K Followers 851 Following Living with ALS for 22 years. Host of I’m Dying To Tell You Podcast. Available on all Podcast platforms. Instagram at ImDyingToTellYouPodcast
Lisa's Legacy for ALS @LisaLegacy4ALS
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SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier. Animals are my Love!!
Hande Ozdinler @DrOzdinler
26K Followers 698 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART :
Jean C9orf72 @Jeanc9orf72
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BrainStorm @BrainstormCell
5K Followers 762 Following BrainStorm Cell Therapeutics, Inc. (NASDAQ: BCLI) is a clinical-stage biotechnology company developing autologous cell therapies for neurodegenerative diseases.
Nicole Cimbura @nicolecimbura
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Shelly Hoover @shellyhoover
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CMSGov @CMSGov
208K Followers 113 Following Official X account for the Centers for Medicare & Medicaid Services (CMS) | Follow @DrOzCMS
Tanabe Pharma America @TanabePharmaUS
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NIH @NIH
1.7M Followers 224 Following Official account of the National Institutes of Health. NIH...Turning Discovery Into Health®. Privacy Policy: https://t.co/wOGwZ3gX1M Engagement ≠ endorsement
Karen Duffy @cure_ALS
679 Followers 263 Following Wife, mother, advocate & fundraiser for ALS. Director of Cure for ALS. Community Outreach/webmaster for Emory ALS Center.
The Ability Center @abilitycntr
10K Followers 1K Following Making our region the most disability-friendly in the nation since 1920. #ToledoIsForEveryone
Melinda S. Kavanaugh @MelindaSKav
178 Followers 135 Following Professor of social work at UWM, young caregiver/carer researcher and advocate, Founder, Global Neuro YCare
Paralyzed Veterans of... @PVA1946
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Abilities Expo @AbilitiesExpo
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NMEDA @NMEDAcom
8K Followers 754 Following NMEDA members are dedicated to improving the lives of folks with disabilities by providing wheelchair accessible vehicles & adaptive equipment solutions.
ALS Voice @als_voice
330 Followers 298 Following ALS Voice provides cutting-edge neurotechnology based personalized communication services to individuals with communication deficits.
Matt Wild @marinemattcda
517 Followers 2K Following Family Man, Husband, former Marine, disabled Vet w/ ALS, Matt's Place Founder, Advocate #Uncrushablespirit, Adaptive Gamer
The Joe Martin ALS Fo... @foundation_joe
163 Followers 300 Following We believe that with the help of family and a caring community people with ALS can live with purpose, joy, and hope. Our services are provided absolutely free.
Bridging Voice @BridgingVoice
164 Followers 33 Following Non-profit enabling people w/ ALS to connect & communicate w/ family, friends & the broader world using assistive technology.
ELA Colombia @ColombiaELA
487 Followers 439 Following Asociación Colombiana de Esclerosis Lateral Amiotrófica -ACELA. Miembro pleno de Alianza Internacional de Asociaciones de ELA. ALS Colombia
Unite Genomics @UniteGenomics
232 Followers 870 Following Unite is developing an all-in-one platform to bridge the gap between the rare disease community and researchers to accelerate the development of treatments and
HealthWell Foundation @HealthWellOrg
2K Followers 2K Following Helping underinsured Americans afford critical medical treatments — because no one should go without essential care.
DagmarMunn @DagmarMunn
342 Followers 312 Following "ALS and Wellness": https://t.co/gJfOWeHkBm Living Well with ALS": https://t.co/5Yw2Tv30n8 Trampoline History & Videos at: https://t.co/Q9IFK7VZWi
@numotionfoundation @Numofoundation
192 Followers 58 Following Our mission is to support people and causes that work towards enhancing the lives of people with disabilities in communities of common interest.
Augie's Quest @augiesquest
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ALS WORLDWIDE @ALS_WORLDWIDE
1K Followers 108 Following Nonprofit organization that provides FREE guidance and support to people with ALS in over 150 countries. We seek to help people live better and longer with ALS
Lorri Carey @LorriCarey
151 Followers 68 Following Midwest Momma & Wife. ALS Warrior. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear
Kids4Cure @ALSKids4Cure
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MND Association @mndassoc
47K Followers 11K Following Every day we support people affected by motor neurone disease. Because with MND, every day matters.
Jeremy Van Tress @jeremy_vantress
365 Followers 367 Following Husband. Father. US Army Veteran with ALS. US Paralympic hand cycle hopeful. Social Worker. #LA28
Maceo Carter @MaceoCarter
942 Followers 619 Following Father, UNC Tar heels Fan, Sibling, Living with ALS.
ALS CURE Project @alscureproject
722 Followers 465 Following The purpose of the ALS CURE Project is to provide laser focused leadership and sponsor scientific research leading to a cure for ALS (aka. Lou Gehrig’s Disease)
CDC @CDCgov
5.5M Followers 244 Following CDC's official source for daily credible health & safety updates from Centers for Disease Control & Prevention. Privacy/comment policy: https://t.co/9LbZmE3Wzg
Sano Genetics @sanogenetics
2K Followers 248 Following Sano combines genetic testing, recruitment, and long-term engagement in one platform, accelerating enrollment and simplifying operations for precision medicine
ESPN @espn
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ALS Clinic Advisor @ALSClinicSurvey
23 Followers 62 Following Provides ALS-patient reviews of ALS clinics.
David Taylor @VPResearch_ALS
1K Followers 1K Following ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him
National Academies @theNASEM
89K Followers 2K Following Providing expert advice on some of the most pressing challenges facing the nation and world. Non-partisan. Non-profit.
Sara Feldman @saritaapril
602 Followers 509 Following Physical Therapist, Assistive Technology Professional and Evaluator for clinical trials at the MDA/ALS Center of Hope.
Brigance Brigade Foun... @BriganceBrigade
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ALS Ride For Life @ALS_RideForLife
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ALSUntangled @ALSUntangled
119 Followers 2 Following Every day more deaths and tortuous suffering. It’s time to stop clowning around with ALS research and those whose lives depend on it. #dyingwaiting
Pat Dolan @Team_Thriving
845 Followers 1K Following Mapper who is Striving to be Thriving with #ALS Author of the ALS Geospatial Hub - https://t.co/Po3Z3KCvuS #nohandsmapping
Jill Brattain @MommaJillB
544 Followers 541 Following Love my family, love my life, but most of all, Love God. Victim of the ALS beast. Miss my best friend.
Live Like Lou @LiveLikeLou4
1K Followers 491 Following Leaving ALS better than we found it #Onward #LiveLikeLou
U.S. FDA @US_FDA
591K Followers 103 Following Our posts are FDA Approved! Privacy Policy - https://t.co/LbTJXYRXVP FDA Authentic Accounts - https://t.co/w2LNbzG7M0
MAC Angels Foundation @MACAngelsNY
422 Followers 490 Following MAC Angels Foundation: supporting pALS: patients, families and caregivers impacted by ALS
Robert Packard Center... @packardcenter
2K Followers 673 Following The Packard Center enables the best ALS scientists to collaborate and develop new treatments and find a cure for ALS, also known as Lou Gehrig’s disease.
Alisa Brownlee ATP, C... @ALSAssistiveTec
3K Followers 4K Following RESNA Certified #AssistiveTech guru-ALS United, Mid-Atlantic. Founder, alsAThome, virtual home assessments. Opinions my own.Proud @trisigma & @ESUniversity alum
ALS_NewMexico @ALS_NM
623 Followers 563 Following ALS New Mexico is a non-profit organization dedicated to helping people with ALS and their families in New Mexico. We provide comprehensive care and support.









