Zebra Splints @ZebraSplints
Happily single zebra mom Ring splint designer Music is life Puerto Rico, USA #ilivewhereyouvacation 😘 #ehlersdanlossyndrome #EDS #silverringsplints zebrasplints.org Puerto Rico, USA Joined December 2012-
Tweets2K
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Followers159
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Following176
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Likes1K
@Google is trash. Signed up for promotional account and wasn't provided services for 6 weeks then was told the offer expired. No requests, no response to my messages. Absolutely trash.
Vaccination is sexy (Yeah. I'm a dork) instagram.com/p/CTny7O_sUzy/…
Did you know #hypermobility was first mentioned in 400 BC? So, we are still waiting to be believed all these years later! The Scythians and Nomads were noted to have the symptoms mentioned by Hippocrates. #EDS #HSD
Ah, yes. The perk of knowing you're not going to DIE because you had to spend 5 hours at 7 stores finding Lysol and TP...
For everyone out there that can't do anything but sigh and shake their heads reading US news... Me too man, me too.
Just posted a photo instagram.com/p/CTf2IaisFoL/…
Some of the fun new things I've been adding to the shop. This one is a limited run for my *favorite* season of all- spooky season!
Ah, Twitter. The social media platform I use the least. Anyways, gonna make an effort to change that 😊
@SecretaryLevine I am thrilled and humbled to have you leading us through these hard times. You're plunged into the worst of any circumstances and i know you're gonna see us out of it. Go get this grl! Luv u! Thank you for standing up for us ❤
@Danbo @SarahKSilverman It's horrific that they sell bulletproof backpacks in Walmart
@tommcrae scientific proof that your music heals ❤ sciencealert.com/new-research-r…
Sharing this far and wide would be really appreciated - if you feel so inclined. We’re proud of it and it’s for a good cause. bit.ly/merrychristmas… (also, please drink responsibly. Single malts only 🥃🎄) youtu.be/miXSw9TLdjU @EvansMcRaeMusic
@imcorinnemec Hey, if you run you're a WAAAAAAYYYYYY better candidate (both humanity and government wise) than the last asshole 🤣 🤷
@imcorinnemec @BrownTownClownT Like, literally if this had *nothing* to do lynchings, I'm very curious to the meaning behind this tweet. There's a few ways this can be interpreted, none look too great. I'm hoping I'm just dense and missing something here, but I think an explanation would be smart overall
@STEWest I am so sorry, and I sincerely thank you for your service. I also promise my family and I are voting to get him out. I'm glad you made it home safe (ish?) 💗
@Kitsune86 @rachnoira It's a lot of years of training (if you care to Google, I used to work for Steven Kretchmer prior to his tragic demise). I'm so thankful I can use it for something good though. You guys have no idea how happy it makes me that y'all trust me to make your splints ♥️
@Kitsune86 @rachnoira I be the crazy lady making y'all's splints 🤣 it's just me here, start to finish 💖
@Kitsune86 @rachnoira Kinda the idea! I wants them to be purdy, so they *don't* look like aids ♥️
@Kitsune86 @TheMorningSongs You don't need to replace metal like the plastics, and (mine at least) have some adjustability, so if you get that hand swelling in heat thing, the splints can be tweaked to accommodate it 😊
@imcorinnemec Or just stop trying to converse with idiots 🤷
Teckeaun @teckeaun85888
6 Followers 541 Following
Jessi Hanser @jessi_hanser
16 Followers 61 Following
Anne Marie Killough R... @annemarie513
1 Followers 44 Following How in the world am I ever supposed to give a 40+ year bio in less than 160 characters?!
Sarah Clark @sarah_clark_84
993 Followers 4K Following ❤️🐱 Postgrad Research MRes student-researching diagnostic delays. Patient Expert; Writer; Photographer; 🧘 Yogi; #hEDS #MALS #MCAS #POTS #LateDiagnosedAutism
The Ehlers-Danlos Soc... @TheEDSociety
24K Followers 5K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Megan Justice EA LTC ... @MeganAJustice
1K Followers 594 Following Mom. Tax Professional. Accountant. Recipe Developer. Story Teller. @[email protected] Same username at the whale space and the camera place.
No Spoons, Just Knive... @notenoughspoons
215 Followers 208 Following They/Them. Gaming, cats, & disability advocacy. Extra cheesy,extra salty. An unapologetic,awkward mess. I’m bad at video games. EDS/MCAS/POTS/CRPS/MALS spoonie.
Grayson Johnston @snail4president
10 Followers 99 Following Peer wellness specialist, disability advocate, artist, problem solver, research enthusiast, professional learner. Nothing about us without us. No exceptions.
Sharyn Blum @sleepyknave
4K Followers 3K Following Disabled/CI/ND. Masked no one. Ask me about alt text! • Queer/Aro/Nonbinary. Mx & masc. Any/All. • Abolish/Decolonize/Liberate. • Not here for your normativity.
Claire(PainPalsBlog)�... @ClaireSaul1
2K Followers 2K Following EhlersDanlosSyndrome, hypermobility, chronic pain, POTS, FND/dystonia, migraine, depression; mum, an NHS nurse in a previous life
amy nelson @averyzoe
275 Followers 499 Following Senior Editor/Deputy E.I.C at Gamesfiends.com, as well as BrutalGamer, mother of 5, gamer, reader, wife to @MacAnthony, and all-around bad-ass (no, not really)
"But You Don't Look S... @butudontlooksck
637 Followers 419 Following #butyoudontlooksick started out telling Melody’s story living rare diseases. Now #unfiltered community. ⬇️Managed by Anna & Nika⬇️
SEDSConnective @SEDSConnective
6K Followers 3K Following Charity - Hypermobility EDS/ GJH MCAS POTS Allergies GI NEURODIVERGENCE AuDHD Dyspraxia TS Dyslexia + Chair @JGJanegreenMBE / Patrons Dr Eccles, Dr Spiritos
V.M. Morgan @TMae93
10 Followers 291 Following Aurhor ✍🏼 Reader 📚 Kind of Gay 🏳️🌈“Unless they payin’ your bills pay them bitches no mind” -The Queen
BendyNurse @BendyNurse
214 Followers 1K Following
waywardstarfishmental... @WaywardStarfish
6 Followers 114 Following
Jac 🦓 @jaclyngeeh
182 Followers 426 Following Full-time writer, life-long learner. Tweeting about life with hEDS & neurodivergence
kel @againsthegemony
259 Followers 2K Following
MalkaG on Bsky 💙�... @Malka_G
596 Followers 1K Following Freelance communications specialist, editor, writer, advocate. Thoughts are my own, RTs ≠ endorsements.
Genderquoi | a Cleric @QuoiGender
333 Followers 491 Following •28 •E/Em/Eir/Siya •Fil-Am, Queer, Autistic, Chronically ill •Am I a gender, or am I agender? •I am a lot of people •Dissociated, Disabled, Disillusioned
CDC hate account @bendyqueer
672 Followers 833 Following former trauma therapist that became too ill to work bc of autistic burnout & hEDS. probably popping a joint back into place.
Dana Michelle @DanaMichella7
227 Followers 408 Following I'm more normal than I think I am, I think.
O-KAE, More Tea! @kaereature
474 Followers 2K Following They/them. Multiple chronic illnesses. Held together by kt tape. Never outgrew pop punk. Lover of tea. Sometimes a writer. Eventual archivist. ♿ 🏳️🌈 📄
Kibichea @kibichea
0 Followers 1K Following
Caitlin 🏜 🍰 @sickbaycheese
454 Followers 2K Following she/they • Disabled • Soapmaker • Standard Nerd • I love: Star Trek | Golden Girls | coffee | cats | gaming | photo | science #IDIC #hEDS #POTS #MCAS etc. #PsA
Samuel Joe @SamuelJ14292558
95 Followers 360 Following if you are in need of job offer you could chat me up...let help you help others
selene depackh @artificts
186 Followers 1K Following Author of Glitch in the System novel series; illustrator/designer
Kit @Kitsune86
841 Followers 544 Following Trans | Calgary Bison Clan | FPWC Member | B.A Psych | EDS | #ADHD | Epilepsy | Musician | Married to @kelesti_
ۗۗۗۗۗ Mr.PAINman... @medicatedboy
120 Followers 237 Following Im Eli! im a 21yo trans guy,disabled(i have CRPS, PoTs,cyclical vomiting, Degenerative disc& EDS-unspecified+more!)I'm just trying to get through ✌ #1312
Hope Mains @HopeMains
119 Followers 540 Following
Beck Cameron @Beckymonster83
16 Followers 179 Following “The fault, dear Brutus, is not in our stars, But in ourselves…” Cassius - William Shakespeare.
ganadu @ganadu
49 Followers 449 Following
Nix @voodookiten22
12 Followers 99 Following
crafting-entropy(they... @craftingentropy
21 Followers 207 Following Writer, reader, crafter of all fibers. Nonbinary and won't shut up about it.
Barbi A. @jadebarbiegems
95 Followers 399 Following I'm a mom, jewelry designer, youtube content creator, home baker. I am a fun girl who loves, music. I also am an EDS warrior, surviving everyday.
Pyretta Blaze CCG ✝... @thePyrettaBlaze
4K Followers 636 Following patient advocate - living life on Hard Mode with hEDS | 👩🏻🚒FF/EMT • gamer • feral rescuer
kiddo•cryptid•cro... @fuzzzilla
290 Followers 1K Following hEDS, AVM, fibromyalgia, ME/CFS, ADHD, anxiety, depression, dysautonomia! Artist, witch. https://t.co/4nfXscD2Jg She/they 🦓🏳️🌈♿️
🧂🤷🏼♀️... @pixiestik_
2K Followers 5K Following Just hanging around, all week, to deliver my hot takes on nothing. She/Her/Cis - Still a bit feral. Art by @davidmackkabuki
Dani Barley ♿️�... @DaniRBarley
285 Followers 2K Following Expat. 🇺🇸➡️🇦🇺 Writer, researcher and creative nerd. 🤓 Chronic Retweeter. 🔄 Unicorn enthusiast.🦄🦄🦄
ornery ass bitch 🦓... @ArborealPhoenix
97 Followers 572 Following I've got faulty collagen, fragile joints, too many bills, and too little energy. Forever trying to grow. Not a woman. Neurodivergent and tired of hiding it.
Escha @_escha_
39 Followers 153 Following
amanda moore @amandabob0
1K Followers 3K Following Take down the #patriarchy! #StillWithHer #FutureIsFemale #FuckTrump. #iCuss Also, take time to love. People are important. And #zebras rock. #EDS
Nerdy Zebra @nerdymedzebra
974 Followers 1K Following #ActuallyAutistic #ADHD nerd with #EDS/#HSD, #Dysautonomia, #MCAS, etc. | Pls link me related papers to read. 🙏 | She/her. | BLM | + @ExecDysfunction
Cathryn Alschuler @catcals
2 Followers 27 Following
SEDSConnective @SEDSConnective
6K Followers 3K Following Charity - Hypermobility EDS/ GJH MCAS POTS Allergies GI NEURODIVERGENCE AuDHD Dyspraxia TS Dyslexia + Chair @JGJanegreenMBE / Patrons Dr Eccles, Dr Spiritos
Ehlers Danlos Syndrom... @CooperativeEds
1K Followers 366 Following new group being formed around EhlersDanlos Syndrome email: [email protected] YouTube: https://t.co/XMM2J9YVzZ pronouns: they/them
Ehlers-Danlos NSW @EhlersDanlosNSW
214 Followers 52 Following Here to raise awareness and advocate for Ehlers-Danlos Syndrome for New South Wales in Australia. #EDS #HEDS #EhlersDanlosSyndrome #EDS4NSW
Ehlers-Danlos Zebras @EDSzebras
217 Followers 46 Following I have Ehlers-Danlos Syndrome Hypermobility type (EDS), which caused Postural Orthstatic Tachycardia Syndrome (POTS), Fibromyalgia, & Chronic Myofascial Pain.
World Health Organiza... @WHO
12.7M Followers 2K Following We are the @UN’s health agency working for #HealthForAll Always check our latest tweets for updated advice/information.
Kit @Kitsune86
841 Followers 544 Following Trans | Calgary Bison Clan | FPWC Member | B.A Psych | EDS | #ADHD | Epilepsy | Musician | Married to @kelesti_
Pyretta Blaze CCG ✝... @thePyrettaBlaze
4K Followers 636 Following patient advocate - living life on Hard Mode with hEDS | 👩🏻🚒FF/EMT • gamer • feral rescuer
amanda moore @amandabob0
1K Followers 3K Following Take down the #patriarchy! #StillWithHer #FutureIsFemale #FuckTrump. #iCuss Also, take time to love. People are important. And #zebras rock. #EDS
kiddo•cryptid•cro... @fuzzzilla
290 Followers 1K Following hEDS, AVM, fibromyalgia, ME/CFS, ADHD, anxiety, depression, dysautonomia! Artist, witch. https://t.co/4nfXscD2Jg She/they 🦓🏳️🌈♿️
Nix @voodookiten22
12 Followers 99 Following
Angelica Cosmic @CosmicCult
41 Followers 90 Following I do commission,digital art, psy art, anything funky, fun/creepy/cute!! I'm a work in progress and I'm excited to be working more and more, art makes me happy!
NickiOh314 @JusTtv314
728 Followers 682 Following Hey Hey 👋🏽 nigh , Here to get inspired and hopefully inspire others ‼️Subscribe to my YOUTUBE CHANNEL & Tiktok 😉 @Nickioh314
Amazon Reading Club @AmazonReadClub
15K Followers 16K Following Your one-stop shop for getting information on the best books on Twitter.
Jayne Bailey @thedailymanic
1K Followers 997 Following #Hypermobile chick living with #dysautonomia #POTS. Finding #balanceinthemadness
Rachel Thompson | Aut... @RachelintheOC
84K Followers 3K Following #Author 8 books! Trauma survivor helping others thrive | Founder #MondayBlogs @BadRedheadMedia | Mostly on Substack. https://t.co/v8KLVXBZBG
TransGate Solutions @TransGateHQ
28K Followers 28K Following #SmallBusiness solutions experts. Nationwide partnerships with #CommunityBanks and #TradeAssociations to help their business clients and members. #BankLocally
Ken Rutkowski @kenradio
816K Followers 668K Following Syndicated Radio Talk Show Host / Founder of METAL Men / Helping men to become better husbands, fathers, and citizens for the planet
🔪 L.T. Vargus 🔪 @ltvargus
149K Followers 114K Following Cat enthusiast. Author. Selfish and unfunny. https://t.co/28Gb9J0L7Q
Digging Deep Project @DiggingDeepJrnl
7K Followers 5K Following A community of support for parents and professionals of young people with medical, emotional, educational or mental health needs.
Striped Hope™ @stripedhope
678 Followers 87 Following Striped Hope offers gifts, clothing, home decor, stationery and more all personalized by you! Add a name, initials, dates, monogram, pictures and more!
WeAreMore @WeAreMoreApp
4K Followers 3K Following Support Network for chronic disease patients. #Cancer #Heartdisease #Diabetes #Chronicpain #Mentalhealth #Addiction #HIV #HepC #Autism #Alzheimers #seizures
The Mighty @TheMightySite
49K Followers 2K Following Making health about people: When we ask how you’re doing, we actually want to know! Download our free app to join a community that gets it ✨
Professor Lara Bloom @LaraBloom
7K Followers 1K Following President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️🌈Gay•She/Her• Views my own
EDS Today @EDS_Today
6K Followers 482 Following Nonprofit - Ehlers-Danlos Syndromes. Sadly, many never receive a proper diagnosis or treatment within their lifetime.
Ehlers-Danlos Support... @ehlersdanlosuk
18K Followers 10K Following *This account is no longer active. See pinned post for how to find EDS UK and access support.*
EDS awareness page @Ehlersdanlos
6K Followers 479 Following Support page for Ehlers-danlos Syndrome sufferers.
EDS Awareness @EDSawareness1
10K Followers 3K Following An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
The Ehlers-Danlos Soc... @TheEDSociety
24K Followers 5K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Smiths Depot Sewing @Smiths_Depot
12K Followers 20K Following New Sewing Patterns up to 90% Off Retail prices. Over 6,000 in stock. Never Any Ads-Popups-or Banners. Check Us Out Today and Save!
OffenhausLive @OffenhausLive
72K Followers 71K Following we are going to have to change. we must adapt throughout this pandemic. we hope you are all safe and well. #StayAtHome
Wolf Mother Movie @WolfMotherMovie
2K Followers 3K Following Najarra Townsend, Kevin Pinassi, Tom Sizemore. A prostitute and petty thief, set out together to solve child abduction case #wolfmothermovie
Vibrance Imaginarium @KayLeSueur
721 Followers 1K Following Vibrance-Sound Experiences Creative Art Alter Ego Keeping Your Heart Toasty!
Amigurumi.com @Amigurumicom
9K Followers 5K Following I collect the cutest amigurumi patterns on https://t.co/Gk6AbYprbu
Prank A Friend @prankafriend
11K Followers 7K Following Home of Knicker Sniffer, Anal Bleaching Kits, Dick At Your Door UK, The Rude Card Company, Giant Cock and more by @PeterGore #Pranks #Laughs #PostalPranks #Fun
Beard Vape Co. @beardvapeco
16K Followers 3K Following This product contains nicotine. Nicotine is an addictive chemical. Must be 21+. Vape Juice for Beard Lovers of the world. Contact: [email protected]
Victoria Theodore @VictoriaTheo
41K Followers 7K Following Pianist-Singer-Polyglot-Yogi-Dancer-Geek https://t.co/OTwrkf2Ca0 MD 🎹🎤✍🏽💃🏽🤓🧘🏽♀️ Pianist for Best Picture Winner CODA
jameswatson @jameswatson271
97K Followers 107K Following
SophieDiddles @sophie_diddles
12K Followers 10K Following Vegophobic, kitchen dancing iced tea aficionado seeks like minded individuals for humor and possible political incorrectness. 18+ only.
DiKayo Data @dikayodata
14K Followers 3K Following The multimedia mogul behind the #DataFemme podcast | Fearlessly championing #WomenInTech 💃🏽
Crew Juice @CrewJuiceLiquid
3K Followers 187 Following Crew Juice provides a smooth experience filled with unexpected but compatible tastes. Crew Juice will give you a voluminous vape without being overly sweet.
Nostrum Vapor @nostrumvapor
2K Followers 2K Following Nostrum Vapor hand crafts premium ejuice with only the most painstakingly curated finest ingredients. Each flavor stands out and is unique. Home of #mixology













