D @aprettierpixie
Bombay Joined March 2010-
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@AntoineMECFS @kirstler31 Hey are you feeling any better?
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@renudhinakaran @MinPres This is why I'm so grateful for the healthcare in india. Everyone tries to scramble out of the country and I agree there are valid reasons for that. My partner keeps arguing you're only talking about 'people like us' . And yeah i am.
@I_need_a_razor Have you noticed any triggers that make you relapse? I thought it's primarily the weather.
@himmatb15 Hey i remember you putting up these results ago. Did symptoms of this disease precede ME symptoms? Obviously you can't do any physio but pain meds?
@RobinWithLC @AntoineMECFS I'm sorry . I assumed you couldn't have gone through what he has. Maybe you could led with that and used kinder words.
@RobinWithLC @AntoineMECFS I'm sorry if you were severe. So you didn't inject stupid shit and just rested and waited it out? For how many years? I don't think you can judge how much a person can bear and when they choose to give up.
@RobinWithLC @AntoineMECFS I'm presuming you haven't been through anything remotely like this, I can't imagine you would be so inconceivably unsympathetic otherwise.
@RobinWithLC @AntoineMECFS He is in terrible pain and can't eat much ,and has been approved for maid. He's desperate . How callous can a person be to waltz in here with revolutionary advice like give it a few more years?
@AntoineMECFS Oh no. Is that the lowest dose you can take? Didn't @liamsLCjourney have something similar? After more doses though i think
@finnishgunners What about the side effects of both
@MartinMoltke And you've gone through the rudiments - LDN , LDA , etc , nothing helps with pain? I have a lot of pain too , particularly neck , shoulders , upper back and hands. Used to only happen during PEM, but now everything is a PEM haze
@MartinMoltke No i mean nothing like Gabapentin or pregabalin?
@zagreusrevival Wow. Half a day . That must increase your quality of life and take away from your agony a tiny bit. What changed?
@himmatb15 Have you managed to ? Or do you need it for pain?
@himmatb15 Won't these help you reduce the gaba dose ? How long have you been taking it?
@AndrewG76201347 Oh it was an in incidental finding?
Nele @NeleHelena
5K Followers 1K Following I tweet about the things I don't like: severe chronic illness / ableism / toxic positivity / medical gaslighting / dysautonomia / MEcfs / autoimmunity
Martin @MartinMoltke
171 Followers 573 Following Severe ME/CFS sufferer - acquired mitochondrial disease
MECFS, MCAS and PTSD @FatigueMe92484
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More about ME @dina_said_that
96 Followers 203 Following 31yo; (very) severe ME/CFS as a result of long COVID #MECFS #longCOVID
Alex @c3vvno
925 Followers 671 Following Severe illness after Covid/Misdiagnosed polydrugged/catastrophic damage/fully disabled. 🦠 🧬 🧠
Antoine 🇫🇷 V.Se... @AntoineMECFS
732 Followers 236 Following 28 y. | Very severe #MECFS, and #POTS since Dec' 24 | Previously company lawyer, big 🎮 and ⚽ fan | Bell 0/5
Sarah Barker @SarahBarx035
771 Followers 2K Following #SevereME #ModerateME #ME wildlife, soil,fauna,flora,
Paul Gads @PaulGadsden82
1K Followers 1K Following I moan endlessly about having M.E and MCAS. Genuinely negative and a misanthrope.
Deb (parody) #LeagueO... @deborahbrian
4K Followers 4K Following Recovering academic, research manager, #POTS, #ChronicIllness, etc. Same handle at 🦋. Opinions my own; fools not suffered. she/her
Beverly @BeverlyRehh
292 Followers 2K Following Teacher: "It`s better to fail than to cheat!" Me: "lol no. It`s better to cheat than to repeat”:D
Nick Wellings @Nick_Wellings
3K Followers 7K Following used to love opera + ballet, some books. now disabled by ME
sean stidston @seanstidston
1K Followers 3K Following
Patrick @pjl788
129 Followers 1K Following Suffering from Long Covid and Myalgic Encephalomyelitis | NYR Fan (Fire Drury)
Christina @christina4hope
4K Followers 6K Following ME/CFS ,Fibromyalgia ,Longcovid,lyme Boriliose,MCS ,Vax Injured( not corrona vax ),Hearing loss ect . Also find me on @christina4hope.bsky.social
T @Yrrepmot
1K Followers 3K Following
a tired human @saffronandsky
3K Followers 2K Following disability justice. mod chronic illness for decades. long covid in '22 = v. severe MCAS+ME&POTs=bedbound. Xennial, parent, mixed race, writer, gardener ♿ 🏳️🌈
Andrew Green @AndrewG76201347
2K Followers 1K Following ME/CFS, POTS, MCAS, lupus, mtDNA, AVP-D. Female (ignore name). Scientist retired due illness/disability. Anonymous because I share medical details of my child.
Cheryl @Worryk_521j
151 Followers 2K Following People change, and often they become the person they said they will never be
Naomi Harvey “PhD W... @Naomi_D_Harvey
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Chükã✨ @miles_montegoh
191 Followers 261 Following Explaining the world through football ⚽ | Stories, politics & power plays behind the game⭐
Make ME Visible @makemevisible24
740 Followers 376 Following An initiative in India to spread awareness about ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) by a severe patient
MysticCharlotteTaylor @Isoukerc54637
10 Followers 2K Following Confidence is key Creating my own path
Wilhelmina @Taura325621
85 Followers 2K Following I’m learning to love the sound of my feet walking away from things not meant for me.
Alexys Roberts @AlexysRobe57725
77 Followers 4K Following
経済指標の読み... @Iwiko604915
40 Followers 2K Following 【完全無料】 25年の株式投資プロチーム（運用資産500億円以上）が提供：毎日の市場分析レポート ＋ 優良成長株のピックアップ。プロの情報を無料で。まずはお気軽にお問い合わせください。
StarZoeySmith @GEgsqB0j28Y8X
41 Followers 1K Following Living life with purpose and chasing success.
かみのかどちか... @kaminokado56631
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Fusetu @Fusetu193157
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RonM @MallikRanajay
35 Followers 98 Following Technologist, man of science, dark humour, dark chocolate, strictly non-vegetarian, poor English, extreme sarcasm, 🎹
Davin @Beafas15237
6 Followers 242 Following The night is coming, I'll be waiting for you on the air. https://t.co/CRkhhkLcQl
Dionne @dionne_nichols9
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Nononono 🏳️�... @zkapasi
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Vicki @vicki_schultz39
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Sam Connor @criprights
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Impulse has ADHD ✨ @ImpulseHasADHD
749 Followers 383 Following He/They, 24 ✨ Unstoppable Force✨ Immovable Object ✨ Learning and spreading awareness about ADHD. Reach out if you think you have ADHD. 🇮🇳🏳️🌈
Aniruddha Gupta 🌐 @gamesmasterg9
160 Followers 320 Following I have the honor to be your obedient servant, A dot Gup
Trap Jepita🇮🇳 @raxter
67 Followers 380 Following Cat dad. Goaphile. Reads a bit. Likes all things Scandinavian (Think A-Ha). Craft Beer junkie. U get the idea.
Crazy Comet @mean_meteor
335 Followers 344 Following Half of the world's problems will be solved if we spent more time watching the Night sky. | South Africa fan account #azaadi
Robin W. @RobinWithLC
13 Followers 48 Following
ChronicIllnessHumor @HumorChronic
4K Followers 2K Following https://t.co/b2LRFsTRox https://t.co/QSzrqdhVhT #chronicillness #autoimmune #funny
Rebecca Ryan @DrRebeccaRyan
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Stefan Arce ME/CFS @stefan_arce
662 Followers 68 Following #severeME/CFS #disautonomia #bedridden #encefalomielitismialgica #POTS
Hugo @mx__worldwide
886 Followers 1K Following They/them | 30 | ME since 2016, (very?) severe since covid in 2022 (now 99% bedbound) | Pain-hyperacusis | Pro disability justice & pro 🇵🇸 mxworldwide on 🦋
Romain @32Sfc46582
615 Followers 377 Following Même dans les moments les plus sombres, l'espoir et la lutte pour la survie peuvent donner un sens à l'existence. Père de deux enfants. #severemecfs #bedridden
Cat (CovidSolidarity) @CovidSolidarit1
14K Followers 5K Following Denial ≠ hope. Norms ≠ truth. Tsunami Tendenko. Please do not give me unsolicited medical advice. If you do after I have asked you not to I will block you.
MECFS, MCAS and PTSD @FatigueMe92484
2K Followers 2K Following Disable patient researcher/health educator/bio-cultural anthropologist of #MECFS, #PTSD, #LongCovid, #MCAS, #MCS, environ illness etc.
Peter W 🇺🇦 @mediumwhite
777 Followers 669 Following Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
Jo @cfs_jo
4K Followers 2K Following ME & POTS, Still me. Sense of humour intact. Proud “Anti-Recovery Activist” (sarcasm). “Privileged senior adult child” - Brad
Martin @MartinMoltke
171 Followers 573 Following Severe ME/CFS sufferer - acquired mitochondrial disease
More about ME @dina_said_that
96 Followers 203 Following 31yo; (very) severe ME/CFS as a result of long COVID #MECFS #longCOVID
Alex @c3vvno
925 Followers 671 Following Severe illness after Covid/Misdiagnosed polydrugged/catastrophic damage/fully disabled. 🦠 🧬 🧠
Candace D. @DiaryofaSickGrl
17K Followers 2K Following Wife. Mother. Dog mom. Chronicling chronic illness ✍️🥄#hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Paolo Maccallini @PaoloMaccallini
509 Followers 144 Following
Sarah Barker @SarahBarx035
771 Followers 2K Following #SevereME #ModerateME #ME wildlife, soil,fauna,flora,
Deb (parody) #LeagueO... @deborahbrian
4K Followers 4K Following Recovering academic, research manager, #POTS, #ChronicIllness, etc. Same handle at 🦋. Opinions my own; fools not suffered. she/her
Nick Wellings @Nick_Wellings
3K Followers 7K Following used to love opera + ballet, some books. now disabled by ME
Covid Institute @Covid_institute
2K Followers 331 Following We are a premier long COVID and long covid vaccine injury treatment clinic in Plano Texas. Stellate ganglion block (SGB). EAT Procedure. Robert Groysman, MD
T @Yrrepmot
1K Followers 3K Following
Harriet Carroll: Long... @angryhacademic
9K Followers 4K Following #LongCovid Scientific Consultant Hon Research Fellow, Lund Uni PhD Nutrition & Metabolism Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClots
RustlinJimmies @jimmies_rustlin
57 Followers 368 Following
CoffeeBlackMD @CoffeeBlackMD
20K Followers 453 Following P/CC. TRT. HRT. Peptides. Optimization. A little biohacking. Not medical advice. Here to help. If I can. DMs can get very busy (will get to you) Chaotic good.
#NotJustFatigue @njfatigue
1K Followers 724 Following We’re a bipartisan 501(c)(3) sounding the alarm on ME/CFS with digestible, creative content, and advocating for people with the disease. This is #NotJustFatigue
Sa | Learn About M.E. @HazylightsSa
240 Followers 302 Following Everything is simulation Sick of #MECFS but don't call it CFS, call it Myalgic Encephalomyelitis or something else.
Anna Giuseppa🥰💙... @AnneSpaceCoast
6K Followers 4K Following Retired RN | Jesus | HER2 - BC Survivor |Heptavax Injury '88 | Front line AIDS 80s NYC |ASD Mom | POTS/OH/MCAS | Pituitary Adenoma/Acromegaly $annespacecoast
Dr Sarah Myhill @MyhillNews
8K Followers 4K Following Pls do not use to report health concerns. Detailed questions about Dr Myhill's protocols not answered.
Antoine 🇫🇷 V.Se... @AntoineMECFS
732 Followers 236 Following 28 y. | Very severe #MECFS, and #POTS since Dec' 24 | Previously company lawyer, big 🎮 and ⚽ fan | Bell 0/5
FndNope @FndNope
483 Followers 372 Following Challenging the #FND philosophy seeking truth beyond misdiagnosis. Advocating for real answers, thorough investigation, and respect in neurological care.
Tom Kindlon @TomKindlon
15K Followers 620 Following With ME 37 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Arf-PEM-Jansen 🪫 @dokter_Arf
986 Followers 956 Following 17 years ME + LC = a clusterf*ck Stoic Zen Buddhist trying to Master the Art of PEM 🧘🏼 Support Biomedical Research: Cure ALL Patients 👈🏻
marisa 💜 @lcwithme
1K Followers 356 Following 24. Creator, Dancer, Artist. #LongCovid since Jan 2022
Ami @amiandlife
640 Followers 238 Following My story of a virus making me chronically ill - ME, MCAS, Dysautonomia and more… ❤️🩹✨🌸
🕸️Dr.T, PhD @chydorina
18K Followers 6K Following PhD in Biology (not an MD). Cognitive health and chronic disease recovery.
holdingonME @JoannaWo4
807 Followers 886 Following 27/ i have long covid for 40 month, and now suffer from severe mecfs (bell 0-10) and pots. I prob have other issues as well but too fatigue to get tested #mecfs
Zagreus | Severe Long... @zagreusrevival
888 Followers 365 Following "I know you're a prayer case. But I haven't lost hope." — A dear friend.
Tobias @992tobias
4K Followers 86 Following MECFS 2010 - I don’t belong to the scars that they left on my soul
dianna haze @diannahaze
16K Followers 252 Following Tweeting through the hazy brain fog of Severe Long Covid. (Chronically ill alter-ego of @thephysicsgirl)
a tired human @saffronandsky
3K Followers 2K Following disability justice. mod chronic illness for decades. long covid in '22 = v. severe MCAS+ME&POTs=bedbound. Xennial, parent, mixed race, writer, gardener ♿ 🏳️🌈
Living Ghost @I_need_a_razor
2K Followers 541 Following surviving the living death disease, chronically ill from Covid (unvaccinated)
The impatient patient @HalfThePerson
1K Followers 708 Following Ultramarathoner, triathlete & #LongCovidAdvocate I never wanted to be / LC-dysautonomia & LC-MCAS
Amy @alexandrite113
8K Followers 896 Following Yeeting into the void ME/CFS. Was very severe, now moderate
Manuel Ruiz @manruipa
6K Followers 223 Following 🔬Diving deep into #MECFS, #LongCOVID, #LongEBV & post-vaccine syndrome research. Dual role:Researcher and EBV ME/CFS patient. Seeking answers. #Antivirals #HLA
LA2LAGURL @La2Arceri
1K Followers 2K Following Questioning everything : spiritual & ᴺᴬᴿᶜᴵˢˢᴵˢᵀᴵᶜ abuse survivor #CPTSD: EDS, #ME/CFS: POTS, CCI, Chiari, MCAS 29 years, bilateral SCDS surgeries 2009 2015
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191 Followers 261 Following Explaining the world through football ⚽ | Stories, politics & power plays behind the game⭐
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12K Followers 7 Following Co-Founder & CEO @KnotDating | Forbes 30Under30 Asia
Michael Stingl @neurostingl
17K Followers 1K Following Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin Ordination @cereprax
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2K Followers 258 Following Open sourcing my Long COVID/ME recovery journey: lab results, doctor's visit summaries, tricks I've found for getting treatments, etc.
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1K Followers 1K Following Millennial 🏳️🌈 AuDHD 🧠 Leftist ✊🏼 Medical Speech-Language Pathologist👩⚕️ chronically ill 😷
Rhi @rhirhiarhii
3K Followers 2K Following BSc, PgDip Molecular Biology. Neuroscience Nerd & Science Communicator. Eternally trapped in bedYou might like
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