Brain Buddy @brainbuddyuk
Brain Buddy provides support & advice for people who are affected by neurological conditions & considering brain surgery. brainbuddy.co.uk Joined March 2020-
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“Will I need rehabilitation or therapy afterward?” 🧠 Possibly. After epilepsy surgery, some people may benefit from physiotherapy, occupational therapy, speech therapy, or psychological support depending on their recovery needs.
👩⚕️ Regular check-ins track healing & seizure control 💊 Medications may continue (and be adjusted) 🧪 Scans/EEGs help monitor progress 🧩 Support for memory, mood & daily life if needed You’re supported every step of the way 💙
DID YOU KNOW? 📷 Hormonal changes can have a real impact on epilepsy, affecting how often seizures occur and how intense they can be. From puberty to pregnancy to monthly cycles, the body’s natural shifts can play a bigger role than many people realize. Awareness is power.
Calling all patients who want to be part of something bigger.💜 Had epilepsy surgery? Your voice can shape the future of care. 📷[email protected] #EpilepsySupport #EpilepsySurgery #BrainBuddies #EpilepsyAwareness #LivingWithEpilepsy #EpilepsyCommunity
Want to support people living with epilepsy & those navigating epilepsy surgery? Join our Volunteer Training Programme, including Mental Health First Aid + practical support skills. Be the support someone needs. Email: [email protected]
Epilepsy can take time, moments, and milestones. Grieving that loss is normal, and it doesn’t erase your strength. 📷 Brain Buddy stands with you. #BrainBuddy #EpilepsyAwareness
Epilepsy surgery isn’t “extreme.” For drug-resistant epilepsy, continuing medication often carries more risk over time. Uncontrolled seizures raise the risk of injury, cognitive decline, and SUDEP, every year. Surgery has upfront risk. Uncontrolled epilepsy has lifelong risk.
💜 Living with epilepsy or supporting someone who does? Join us for a free, inclusive event exploring care, research & community at UCL-UCLH. 🗓️ 2 Oct | 🕚 11am–3pm | 📍 London 🔗 Register now – spaces limited! #EpilepsyAwareness #UCL #UCLH
“When can I drive again?” is a common question after epilepsy surgery. Most places require you to be seizure-free for 6–12 months and cleared by your doctor. Check local laws + talk to your neurologist before getting back behind the wheel. 💜 #Epilepsy #SeizureFree
Fewer than 1% of people with drug-resistant #epilepsy get the surgery that could help them. It’s effective. It’s underused. It’s time to raise awareness. 🧠 #epilepsyAwareness #SeizureFreedom #NeuroHealth
With the right support, epilepsy brain surgery can change lives. 💜 For many, it’s a path to seizure freedom — but it’s not easy. We’re here for the journey. You can be too. 🔗 brainbuddy.co.uk #EpilepsyAwareness #SupportMatters #BrainSurgery #HopeThroughHealing
Agatha Christie, the world’s best-selling novelist, lived with epilepsy, reflected in the vivid seizure experiences of her characters. 💜Her story reminds us: epilepsy is not a barrier to brilliance. #BrainBuddy #EpilepsyAwareness #AgathaChristie #YouAreNotAlone
Feeling anxious before epilepsy surgery? You’re not alone 💜 Here are 5 quick tips to help calm your mind: 🧘 Deep breathing 📝 Write it out 💬 Talk to someone 📚 Learn about your surgery 🎧 Use calming music or apps We’re with you 💪 #BrainBuddy #EpilepsySupport
SOLD OUT... but not for long! Due to high demand, we’ve just released 10 extra tickets — grab yours before they’re gone (again)! 📷📷 📷 33 Queen Square, London WC1N 3BG 📷 Doors open: 6:00 PM | Start: 6:30 PM Book here: eventbrite.co.uk/.../brainbuddy…...
Here’s what to do immediately for a strong start to recovery! Immediate Recovery Checklist: 📷 Ample rest & naps 📷 Gentle walking 📷 Dry head, then gentle washing 📷 Daily incision check 📷 Meds exactly as prescribed 📷 No strenuous activity 📷 Head elevated during rest
🚶♂️ Climb for a Cause! Join Brain Buddy on Sat 20 Sept as we hike Snowdon for the National Brain Appeal 💪 With tips from Human Performance Coach Phil Kelly, this is more than a climb — it’s a growth journey. 🎟️ 10 spots only: [Event link] 📩 DM for brochure! #BrainBuddy
💜 This #NationalEpilepsyWeek, we stand with the 65 million people living with epilepsy around the world. It’s time to break the stigma, raise awareness, and support life-changing research and care. Every seizure, every story, every step forward matters. #EpilepsyAwareness
Our epilepsy team at UCL/UCLH is planning a clinical trial of Transcranial Magnetic Stimulation (TMS), a non-invasive treatment for patients with drug- or surgery-resistant epilepsy If you're interested, please contact Jane de Tisi at [email protected] or 020 3448 8612.
Epilepsy surgery is often safer than living with long-term uncontrolled seizures. For those with drug-resistant epilepsy, surgery can offer freedom, stability, and a real chance at a better quality of life. 💜 #EpilepsyAwareness #BrainSurgery #SeizureFreedom #YouAreNotAlone
Packing the right things can make your hospital stay a little more comfortable and less stressful. Here are a few essentials to bring: 👕 Loose, comfy clothes 🧼 Toiletries & lip balm 🎧 Headphones, books & something calming 📄 Medication list & important docs 💜 Home comforts
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