Dystonia Medical Research Foundation @dmrf
Our mission is to advance research for improved dystonia treatments and a cure, promote awareness, and support the well being of affected individuals. dystonia-foundation.org Chicago Joined December 2008-
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Summer is a time of relaxation, but people with dystonia may be vulnerable to heat-related illness during a heat wave. Staying cool, hydrated, and storing medications properly can help reduce these risks. Learn more on the DMRF website: bit.ly/4eyIY8S #dystonia #dmrf
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Now on the DMRF YouTube channel: Watch a webinar focused on the Dystonia Coalition and its mission to advance research through collaboration. Hear directly from internationally recognized leaders in dystonia research. View now: bit.ly/4aFK4x2 #dystonia #dmrf
June is National Family Month and the perfect time to honor the family members with a 50th Anniversary Tribute. Celebrate those who have supported you. With a donation, we’ll send them a Tribute card with your personal message. Make your Tribute: bit.ly/4jFiy65 #dystonia
Learn about the efforts to understand dystonia through research and patient advocacy collaboration by watching the DMRF webinar on the work of the Dystonia Coalition. Featuring: • Hyder A. “Buz” Jinnah, MD, PhD • Joel S. Perlmutter, MD View: bit.ly/4aFK4x2 #dystonia
Summer travel season is underway! These sturdy DMRF vinyl luggage tags will not only help keep your luggage safe and labeled—they’ll also raise awareness for dystonia as you travel. Price: $7.50 bit.ly/3Lx4bkF #dystonia #dmrf #dystoniafoundation
Help support the DMRF when you purchase items from the DMRF store like this BPA-free, 32oz water bottle. It has a push-button, flip-top lid with a locking mechanism and a wrist strap for easier transport. Price: $10 | bit.ly/4vnLWD7 #dystonia #dmrf #dystoniafoundation
Shop the DMRF Store: These sturdy DMRF vinyl luggage tags will not only help keep your luggage safe and labeled—they’ll also raise awareness for dystonia as you travel. Dimensions are 2” H x 3-1/2” W x 3/16” D. Price: $7.50 Shop Now: bit.ly/4w2egLe #dystonia #dmrf
Learn how collaborative research is advancing understanding and treatment of dystonia from the leaders: • Hyder A. “Buz” Jinnah, MD, PhD – Director, Dystonia Coalition • Joel S. Perlmutter, MD – DMRF Scientific Director View now: youtu.be/u6qgN7AnbWA #dystonia #dmrf
The Dystonia Medical Research Foundation welcomes the following new members to the Medical and Scientific Advisory Council (MSAC). We look forward to working with them and having them as part of the DMRF. Learn more on the DMRF website: bit.ly/4uL3gRm #dystonia #dmrf
The Twin Cities Dystonia Zoo Day is returning to Como Park Zoo in St. Paul on Aug. 22! Join DMRF supporters to raise awareness and funds for dystonia research. Enjoy a fun day at the zoo with people who understand. Register: bit.ly/4fra5RE #dystonia #dmrf
We honor the people who have made a difference in their dystonia journey through our 50th Anniversary Tribute campaign. Honor a father or grandfather and make a donation. We’ll send them a card with a personal message from you. Donate today: bit.ly/4jFiy65 #dystonia
Toledo Dystonia Zoo Day is Aug. 15! Join the DMRF for a day of community, connection and purpose as we raise awareness and funds for dystonia research. Whether you're living with dystonia, supporting a loved one or want to make a difference, register NOW! bit.ly/48oRVMH
Jules van Dongen has completed his Pedals & Points bike ride and raised >$14k benefiting the DMRF! Our thanks to Jules, his wife, Lisa, and his family whose support helped make this journey possible. Thank you for turning miles into hope. bit.ly/4om5hBV #dystonia
It's the LAST DAY to support Jules van Dongen and his Pedals & Points fundraiser for the DMRF! Your donation supports research, awareness and the dystonia community. Help get us to the finish line and close strong. Donate now: bit.ly/4nX76ov #dystonia #dmrf
Stay in the know about what is happening with research, advocacy, education and other resources in the #dystonia community with the DMRF monthly e-newsletter. The June e-news is now available: conta.cc/3Qb0AOy #dmrf
Renew your DMRF membership by June 15 and get a free gift, the summer edition of the Dystonia Dialogue, 15% off DMRF merchandise and access to research updates. Annual Membership is $40 and supports the programs of the DMRF. Renew NOW: bit.ly/48ZrYmL #dystonia #dmrf
Join us TONIGHT for a webinar with the Dystonia Coalition and the efforts on dystonia research and patient advocacy collaboration. Speakers: • Hyder A. “Buz” Jinnah, MD, PhD • Joel S. Perlmutter, MD June 8, 2026 6 PM CT / 7 PM ET Register Now: bit.ly/4un052U #dystonia
The DMRF invites you to a webinar focused on the Dystonia Coalition and its mission to advance research through collaboration. Hear from recognized leaders in dystonia research. Monday, June 8, 2026 6:00pm CT | 7:00pm ET Register here: bit.ly/4un052U #dystonia #dmrf
Don’t miss this upcoming DMRF webinar exploring the work of the Dystonia Coalition and the future of dystonia research. Featuring: Hyder A. “Buz” Jinnah, MD, PhD Joel S. Perlmutter, MD Monday, June 8, 2026 6:00pm CT | 7:00pm ET Register: bit.ly/4un052U #dystonia #dmrf
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