haemnet @haemnet
Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders linktr.ee/haemnet London Joined May 2011-
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New #Haemcast episode out today, focusing on what makes parents of children with #haemophilia feel supported — and when they don't. Part of our special family-focused collaboration with #LFWBD. Available widely or at loom.ly/Ye0KIjo #bleedingdisorders #podcast #families
300 million people globally live with #hepatitis, and hepatitis B & C kill over 1.3 million each year. This includes people impacted by contaminated blood. We're joining the #WorldHepatitisDay 2026 call to break down barriers that slow the global response to hepatitis. Inequities in access to healthcare, racial inequality, discrimination against women, low awareness, misinformation and stigma... Let's break it down. #WorldHepatitisDay
Researcher, Kate Khair explains what it's like for someone living with Glanzmann thrombasthenia—now available on The Bleeding Edge. bloodstreammedia.com/the-bleeding-e… Sponsor: @Hemab_Tx #TheBleedingEdge #GlanzmannThrombasthenia #RareDisease #BleedingDisorders
We're excited to hear about the new #TheBleedingEdge #podcast from @bloodstreammedia.bsky.social, which focuses on the lived experience of #GlanzmannThrombasthenia. 🎧 Episode 1 here: loom.ly/D36jz3A
We're excited to extend a warm welcome to new members of the Editorial Board of Bleeding Disorders: Care & Practice: Khalid Al Habaybia, Kara Burge, Samantha Carlson, Cyrus Njuguna Githinji, Keri Norris, Lauren Phillips, Dawn Rotellini, Kelly Tickle. #BDCP #bleedingdisorders #haemophilia #research bdcpjournal.com
More from our posters on display at #ISTH2026 🇫🇷 🔵 PB 3294: Insights from a wide cohort of adults with #haemophilia who participated in our Learning 2 Live study 🔴 PB 2738 & 2743: More results from GT360, on the impact of living with #GlanzmannThrombasthenia #ISTHCongress
🇫🇷 Our posters are up at #ISTH2026, including: 🔴 PB 2050, outlining an approach for integrating psychosocial care into #haemophilia #genetherapy 🔵 PB 1432, sharing ELEVATE study insights on the lived experience of switching to #EfanesoctocogAlfa #ISTHCongress
Looking forward to the next few days at #ISTH2026! #Haemnet #bleedingdisorders #research #ISTHCongress
🇫🇷 Just two days to go until #ISTH2026! Our posters include insights from our ELEVATE study, exploring the expectations and experience of people with severe #haemophilia A before and after switching to #prophylaxis with Efanesoctocog alfa, a long-acting FVIII replacement therapy. #ISTHCongress #Haemnet
🇫🇷 It's getting closer...! We're making final preparations for #ISTH2026. Our posters include an evidence-based framework for implementing #haemophilia #genetherapy, including psychosocial care, based on Exigency study findings. More on Exigency here: loom.ly/TRTBXmc #ISTHCongress #Haemnet
🇫🇷 The countdown to #ISTH2026 continues! Posters include insights from our Learning to Live With Severe #Haemophilia study, identifying patterns of disease burden and quality of life impairment. #livedexperience #research #ISTHCongress #Haemnet
🇫🇷We're looking forward to #ISTH2026! Among the posters we're showing are two with more results from our GT360 study on the lived experience of #GlanzmannThrombasthenia. #livedexperience #bleedingdisorders #research
With one week to go, the countdown to #ISTH2026 is on! Who's going? We look forward to seeing you there! #ISTHCongress #Haemnet #bleedingdisorders #research
😓"I just remember this sort of relentlessness…" In the latest episode of our #Haemcast collaboration with Local families with bleeding disorders, Sam, Nicola and Andrew speak about some of the #haemophilia treatment challenges they've experienced. 🎧 Search for Haemcast on your favourite podcast platform, or listen here: loom.ly/FTDxWVQ #bleedingdisorders #families #podcast
What were the top ten most accessed articles in #BDCP last month? From patient goals to shared decision-making, the focus is on patient experience, patient-centred care, quality of life, & haemophilia gene therapy. loom.ly/mXo6ubE #bleedingdisorders #research #haemophilia #genetherapy
Just under a month to go until #ISTH2026! As well as showing posters from studies on patient experiences in #Haemophilia and #GlanzmannThrombasthenia, we're looking forward to hearing about the latest cutting edge science and emerging advances in #BleedingDisorders care. #ISTHCongress
Volunteering to donate blood is a humane and generous act that can literally save lives. Our #WorldBloodDonorDay blog looks at its importance to those living with rare and chronic conditions, including bleeding disorders. loom.ly/xqH-kv #bloodDonation #bloodDonor #BleedingDisorders #blood #plasma
🎧 Caught up on #Haemcast? The latest episode looks at the experiences of partners of people living with a bleeding disorder. Search 'Haemcast' on podcast platforms or listen here: loom.ly/t0lDAvA #LFWBD #families #bleedingdisorders #haemophilia #vonWillebrandDisease #podcast
Bleeding disorders are a family affair, as we're hearing in the latest series of #Haemcast. Our video 'No Patient is an Island', based real-life stories, explains why #bleedingdisorders care should be family-focused. Watch the full video: loom.ly/XdXPZDU #families #haemophilia
From teamwork & living in the moment to what's missing in terms of support, the next episode in our special #Haemcast collaboration with #LFWBDexplores the experiences of partners of people with a bleeding disorder 🎧 loom.ly/Aag-rjQ #bleedingdisorders #relationships #families
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
Brian O Mahony @Brianhemophilia
3K Followers 503 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee Chair. Wife & mum, artist, forever learning. Winner of Nursing Times Nurse of the Year Award 2024. Opinions are mine.
WFH @wfhemophilia
8K Followers 169 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Haemophilia Society @HaemoSocUK
5K Followers 708 Following For everyone with a bleeding disorder. We're a member organisation supporting the UK bleeding disorder community through information, events and advocacy.
flora peyvandi @flora_peyvandi
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EHC_Haemophilia @EHC_Haemophilia
3K Followers 420 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Dr Kate Khair PhD @katekhair
1K Followers 859 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Clive Smith @Clive_Smith_
2K Followers 989 Following Chair of Infected Blood Memorial Committee, President of The Haemophilia Society, World Federation of Hemophilia Youth Chair, Criminal Barrister & Lecturer
Haemophilia Journal @haemophilia_jnl
2K Followers 295 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
Shematologist, MD @acweyand
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EAHAD @EAHADnews
3K Followers 461 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Patrick James Lynch @pjlynch
3K Followers 875 Following Founder & CEO, https://t.co/kmRD091Ehf | filmmaker, content producer, and bleeding disorders advocate
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Dr Simon Fletcher PhD... @abookclubof1
538 Followers 577 Following Qualitative Research, Gene Therapy, Rare Diseases, Bleeding Disorders, Cardiomyopathy, Nursing, PhD Life and Books...lots of books (He/Him)
Laurence Woollard @TheWoollard
1K Followers 613 Following Director @PulseInSync | Advocacy & Policy in Rare Disease | Patient Research Team Leader @IMABQistudy @uniofeastanglia | MSc Health Policy @imperialcollege
The Haemophilia Socie... @HaemoSocUK_PI
2K Followers 465 Following Tweeting about and from the Infected Blood Inquiry into contaminated blood and blood products. The Haemophilia Society: [email protected]
SETH Trombosis y Hemo... @SETH__Oficial
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Muhibullah Shahid @Muhibullah77445
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zahra molazem @zahramolazra
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Sweet Cammy 🍓 @sandyturner2
77 Followers 3K Following softest chaos you’ll meet today 🌙 follow back always
Marcus Morgan-Valenti... @Totalblessings
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aneeshwar reddy @ReddyAnees11891
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Raheel Ahmed Khan @RaheelAhmedPwh
1 Followers 50 Following Founder & CEO HWSK | Hemophilia A advocate | Building Pakistan’s hemophilia care system | Vision: National Center of Excellence for Bleeding Disorders
Bommaiah s ( 👑@Hem... @Hemoman_king
0 Followers 66 Following this A/c only for Hemophila Rare Bleeding Disordered Affected People Awareness Purpose only not for Entertaining my self only @hemoman @savepwh @savehemophilia
free way landscape @RazaUrRehmanCh1
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Hemophilia Jharkhand @HemoDhanbad
6 Followers 59 Following Hemophilia Society Dhanbad Chapter || Affiliated to @HemoIndia || Hemophilia Patient Advocacy Organization for Jharkhand Facebook: https://t.co/6Xl3X5nVFn
baba @MomodouLeigh
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Boldwire Energy @BoldwireE
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David Eduardo Conueca... @dcons83
2K Followers 6K Following Parents came here, 1975 Edmonton, Alberta . I'm just the result of Edmonton pre internet, mid and present. I enjoy freedom ,travel and value human rights.
European Thrombosis &... @EuropeanTHA
3K Followers 965 Following #ETHA: 28 orgs advocating for better awareness & prioritisation of #thrombosis (#bloodclots) & #hemostasis in #EU patient safety & research programmes #WTDay25
Emma Bush @BushEmma87072
1 Followers 67 Following
Martin Žídek @martin_zidek_cz
14 Followers 326 Following
Davenport Clearwater ... @DavenportGrp
0 Followers 13 Following Want support with your community relations? Need help with fundraising? Want to organise first-class events? Get in touch!
Mia @Miajacobx
0 Followers 21 Following TCD Physiotherapy Student 👩🎓 🩻// Fitness Coach and Personal Trainer @BikeRowSki 🚴♀️ 🚣🏻♂️ 🎿
Dr. Chokri Ben Lamine @abouabdrahman0
3K Followers 6K Following Hematologist, King Faisal Specialist Hospital and Research Center
Thomas Reiser @TomReiser
1K Followers 569 Following International association and business events executive and world traveler. Opinions are my own. Retweets do not imply endorsement.
Akshay Varu @akshayvaru2026
183 Followers 7K Following Predoctoral Researcher | Neuropsychiatric Disorders | ML | Meta-analysis | Transcriptomics | GATE Qualified | Preparing for PhD in Systems Biology
Liana @Liana19688329
10 Followers 360 Following
Kristian @drkristt
2 Followers 163 Following
soleohealth @soleohealth
239 Followers 240 Following Soleo Health is an innovative national provider of complex specialty pharmacy and infusion services, administered in the home or at alternate sites of care.
Lola Raka @LolaRaka87779
4 Followers 106 Following
Shabbir Basha @Shabbir_hemo
2 Followers 65 Following
Hemostasis Today @HemostasisToday
773 Followers 2K Following Your Daily Updates on Hemostasis and Thrombosis
Undiagnosed? @RareDiseaseDDx
2K Followers 4K Following Select symptoms in free RareLook™ to see matching rare diseases. Share with physician, who gets free RareMDx™ to refine and generate a DDx.
Sunny @chandsanjay2
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coagfocus @coagfocus80088
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Sharon Taylor @SharonT52316671
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Scott W @Meatzilla25
111 Followers 85 Following
Heghine Khachatryan @HeghinKhach2025
413 Followers 6K Following Co-founder and Editor-in-Chief of Hemostasis Today, Yeolyan Hematology and Oncology Center, Hemophilia and Thrombosis Center, MD, PhD
Kinesiotherapy.gr @GelsisJohn
20 Followers 51 Following Ένα διαφορετικό φυσικοθεραπευτήριο Διαχείριση Χρόνιου Πόνου, Στοματοπροσωπικού Πόνου, Σκολίωσης, Αθλητικών κακώσεων, Βιοϊατρικός Βελονισμός, Group Therapy.
Trevster @Trevste12577832
0 Followers 82 Following
Haemophilia Udaipur S... @UdaipurSociety
20 Followers 60 Following Non-profit organization working for the betterment of people with Hemophilia. Affiliation to hemophilia Federation of INDIA. [email protected]
hartley neel @HartleyNee51347
0 Followers 141 Following
Gevorg Tamamyan @GevTamamyan
2K Followers 4K Following Editor-in-chief of @OncoDaily, Prof. & Chair of Ped. Oncology and Hematolgy at YSMU, President of @AsiaSIOP, President of @poem_group, CEO of @ImmoncInstitute
🇺🇦🇯🇵𝘩�... @imhemophilia
189 Followers 1K Following #hemophilia #Craftbeer #Yacht OP-724試験参加中 ★Слава Україні! Героям слава! 🇺🇦🇯🇵🇷🇴 🍦🧊🍨 https://t.co/2GfUYJ5kWo
Daniel J Paiement... ... @j_paiement
779 Followers 7K Following YOU die to live..😏...I live to die👻☠️. ☝️tat =. “Grab what you want. Keep what you need”
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
Brian O Mahony @Brianhemophilia
3K Followers 503 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee Chair. Wife & mum, artist, forever learning. Winner of Nursing Times Nurse of the Year Award 2024. Opinions are mine.
WFH @wfhemophilia
8K Followers 169 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Haemophilia Society @HaemoSocUK
5K Followers 708 Following For everyone with a bleeding disorder. We're a member organisation supporting the UK bleeding disorder community through information, events and advocacy.
flora peyvandi @flora_peyvandi
3K Followers 693 Following Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 420 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Dr Kate Khair PhD @katekhair
1K Followers 859 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Clive Smith @Clive_Smith_
2K Followers 989 Following Chair of Infected Blood Memorial Committee, President of The Haemophilia Society, World Federation of Hemophilia Youth Chair, Criminal Barrister & Lecturer
Haemophilia Journal @haemophilia_jnl
2K Followers 295 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
Shematologist, MD @acweyand
81K Followers 6K Following Peds heme onc, mother, dreamer, pacifist, justice seeker. Clueless Mother Theresa. Retweeted by Wonder Woman #CakeForBreakfast https://t.co/4SLDqCFsMq
EAHAD @EAHADnews
3K Followers 461 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Patrick James Lynch @pjlynch
3K Followers 875 Following Founder & CEO, https://t.co/kmRD091Ehf | filmmaker, content producer, and bleeding disorders advocate
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Dr Simon Fletcher PhD... @abookclubof1
538 Followers 577 Following Qualitative Research, Gene Therapy, Rare Diseases, Bleeding Disorders, Cardiomyopathy, Nursing, PhD Life and Books...lots of books (He/Him)
Laurence Woollard @TheWoollard
1K Followers 613 Following Director @PulseInSync | Advocacy & Policy in Rare Disease | Patient Research Team Leader @IMABQistudy @uniofeastanglia | MSc Health Policy @imperialcollege
The Haemophilia Socie... @HaemoSocUK_PI
2K Followers 465 Following Tweeting about and from the Infected Blood Inquiry into contaminated blood and blood products. The Haemophilia Society: [email protected]
World Health Organiza... @WHO
12.7M Followers 2K Following We are the @UN’s health agency working for #HealthForAll Always check our latest tweets for updated advice/information.
New England Hemophili... @NewEnglandHemo
861 Followers 89 Following Serving the New England bleeding disorders community since 1957.
Hemofilia Málaga @hemofiliamalaga
618 Followers 289 Following Asociación Malagueña de Hemofilia y/u otras coagulopatías. 📍 C/ Linaje, 2. 3º piso, izq. (Málaga). 🔔 [email protected] 📱 609 393 237
Eastern PA Bleeding D... @Eastern_pabdf
807 Followers 105 Following Supporting research & providing services to local patients with hemophilia & von Willebrand disease.
Asociación de Hemofi... @ASHECOVA
3K Followers 2K Following Asociación de Hemofilia de la Comunidad Valenciana (ASHECOVA). Entidad declarada de Utilidad Pública desde el 15 de diciembre de 2008 #hemofilia #hemophilia
SETH Trombosis y Hemo... @SETH__Oficial
4K Followers 2K Following Cuenta oficial de la Sociedad Española de #Trombosis y #Hemostasia (SETH) enfocada en la divulgación científica. Creamos comunidad.
HemophiliaofGA @HemophiliaofGA
1K Followers 255 Following A nationally recognized Hemophilia Treatment Center & nonprofit providing comprehensive care, pharmacy services, and support to people with bleeding disorders.
Real Fundación Victo... @RFVE_hemofilia
827 Followers 484 Following Fundación cuyo objetivo es promover y divulgar investigaciones científicas en el campo de la Hemofilia y otras coagulopatías congénitas y patologías asociadas.
Bleeding Disorders Co... @bdcouncilca
728 Followers 473 Following We are dedicated to supporting patients living with bleeding disorders by improving their quality of life through advocacy, education, and outreach.
Maj Friberg Birkedal @FribergMaj
1 Followers 1 Following
Bleeding Disorders Fo... @HemophiliaFL
2K Followers 506 Following The mission of the Bleeding Disorders Foundation of Florida is to improve the quality of life for people with bleeding disorders.
Hemostasis and Thromb... @HTRStoday
2K Followers 181 Following Supporting research, mentoring, workforce development, and education for those interested in advancing care for people with hemostatic and thrombotic disorders.
Kate Sears @MedwatchKate
3K Followers 181 Following Hi I'm Kate, community lead for https://t.co/QJV3PYVLWF. Want practice changing news in oncology/hematology? Get our weekly newsletter.
stacey8892 @stacey88921
321 Followers 655 Following Mama- Cancer survivor - I teach nursing @QUB and loving it! Nurse for life! Interested in bleeding disorders, rare diseases, stroke care and education
Jigar Amin @jig_amin
27 Followers 754 Following
Ann Devos @DevosAnn
107 Followers 229 Following I am a haematology nurse at University Hospital Antwerp, department of Pediatrics on Red blood cell disorders and haematology adult transplant registration .
Sunny M @SunnyMVWD
5 Followers 15 Following Director of Corporate Strategy for Haemnet. Creating a better life for those woth VWD. Voice for the voiceless
British Society for H... @BritSocHaemThro
2K Followers 388 Following The BSHT is the main Academic Thrombosis & Haemostasis Society in the United Kingdom with over 300 members.
Michael U Callaghan @hemagineer
1K Followers 2K Following Husband. Dad. Classical Hematologist. Drepanocyte Handler, Hemagineer, Hemophiliologist, Thrombonaut, Podcaster.
Megan Brown MD @MeganBrownMD
1K Followers 951 Following Pediatric Hematologist. Spartan. Jesus follower. Passionate about the intersection of hemostasis and women's health. All views are my own.
stephtaylor @sctx2yahooco1
27 Followers 49 Following
Ray McKeown @thedatamanager
90 Followers 186 Following Data Manager at NI Haemophilia Comprehensive Care Centre, Belfast City Hospital. Views, tweets and/or opinions are my own unless they are quotes or retweets.
Niamh Larkin @NiamhLarkinANP
184 Followers 153 Following Advanced Nurse Practitioner in Haemophilia, mum, wife, taxi, coach, shopper and student!!
Thrombosis & Haemosta... @TH_Journal
3K Followers 526 Following #TH : basic &clinical research on #thrombosis, #haemostasis & #vascular biology. 👉 Follow us on our Bsky 🦋 and LinkedIn 💼 accounts
Northern California B... @NorCalBDF
917 Followers 435 Following Northern California Bleeding Disorders Foundation - nonprofit organization serving needs of people with hemophilia, VWD, and all other bleeding disorders
Hemo Girls Rock @HemoGirlsRock
439 Followers 326 Following Hemophilia Educator, Advocate, Research Supporter, Patient. All opinions are my own.
lynn malec @malecly
480 Followers 358 Following pediatric/adult hematologist with hemophilia focus, passionate to improve care for women/girls with bleeding disorders, clinical researcher, proud cheesehead
Dr. Dua Hassan, MD @DrDuaHassan
654 Followers 4K Following #Pediatrician #Doctor | @ColumbiaPS MD/MPH | @BostonChildrens Residency | Passionate about #Child #Health #Medical #Research & #Education
Mary Cushman 🫀🧠... @MaryCushmanMD
7K Followers 3K Following Hematologist, University Distinguished Professor & Vice Chair for Emerging Researchers, @UVMDeptMed. Co-Director @UVMHeartBrain. Views mine
Hazri Aris @HazriAris
138 Followers 621 Following I’m just a simple man, trying to make my way in the universe.
Panagiotis Christofor... @HaemSummit
318 Followers 927 Following MD, Haematologist specialising in Haemophilia and Rare Bleeding Disorders. Currently Clinical Fellow in RLH @QMUL EHC steering committee member. Mountaineer⛰️
caterina casari @caterinacasari
1K Followers 1K Following Researcher at @InsermU1176 ❤️science, sharing #VWF & #VWD Previously @UniFerrara @UNC Supporting #ISTHEarlyCareer
Arizona Blood Allianc... @ArizonaBleed
1K Followers 548 Following 501c3 Organization Dedicated to increasing life-enhancing opportunities for Arizonans living with inherited blood conditions #Hemophilia #VWD #BleedingDisorders
Bethany Samuelson Ban... @bsamuelson_md
1K Followers 640 Following Hematologist, wife, mama to 2. Passionate about equal care and representation in research for women and all patients with bleeding disorders. Tweets my own.
Jessica Garcia, MD @DrJessGarcia
571 Followers 585 Following #girlmom,#wife,#FirstGen,#26.2|🇲🇽🇺🇸|@UofIllinois|@UICOMPeoria|@MedicalCollege| peds heme, bleeding & clotting doc @UTSW_PedsHemOnc|Asst. Prof| Tweets=own.
HaemophAmicus @HaemophAmicus
1K Followers 5K Following Haemophilia and Allied Disorders Slovenia/Europe 🇸🇮➡️🇪🇺➡️🌎
dr dhwanee thakkar @dhwaneethakkar
140 Followers 178 Following
Hemofilia México FHR... @HemofiliaMexico
2K Followers 233 Following A.C., de personas con Hemofilia y otros trastornos sanguíneos en México. Contactos: https://t.co/jvSbcnSiG2
Sección Hemofilia de... @HemofiliaCuba
216 Followers 425 Following Sección dentro de la Sociedad de Hematología. Paso a paso hacia mayor calidad de vida entre hemofilicos. Canal de telegram https://t.co/fJWkBODpuv
Conan McIlwrath @ConanMci
335 Followers 693 Following Chairman, UK Haemophilia Society, Co-Chair family’s of Haemophila NI, Leakage FM NI Water, Big Toon fan, but my most important role - Dad! Opinions are my own!
Mark Antony Ward @Haemosexual
2K Followers 4K Following Haemosexual is a community based online support & information resource. Advocating for anyone LGBTQ+ with a bleeding disorder/impacted by contaminated blood 🩸
Megan Adediran @meganhfn
696 Followers 1K Following Mother of 2 sons with severe #haemophilia A. Founder and Executive Director, Haemophilia Foundation of Nigeria. An Arsenal fan true and true….
Coalición de las Am�... @coalicionameric
219 Followers 115 Following Somos una agrupación Autónoma enfocados en mejorar el cuidado y cobertura Universal de la Salud. 🔺 Hemofilia y otros desórdenes de coagulación.
Trevor Baglin @TrevorBaglin
406 Followers 15 Following Explorer of Sound and Vision. Musician, songwriter and producer and creator of Mallory Vice.
N. Jansen @Naatepetaatje
9 Followers 110 Following
Lotte Haverman @LotteHaverman
118 Followers 114 Following
ATHN @ATHNnews
379 Followers 510 Following At ATHN, our goal is to secure data, advance knowledge, transform care—and ultimately improve the lives of people with bleeding and clotting disorders.
David Lillicrap @DavidLillicrap
2K Followers 112 Following Queen’s U prof researching molecular aspects of blood clotting. Co-Editor in Chief (w/@JHMorrissey) of the Journal of Thrombosis & Haemostasis @JTHjournal











