m.e. fabie @hellofabie
she/her, feminist, queer, writer #severeME, Covid 11/22 Berlin Joined December 2015-
Tweets3K
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Followers790
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Following911
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Likes25K
@A_n_natomy Ich kriege das seit 2 Jahren so aber idk
Die #LongCovid Off Label Liste ist seit 11.06. in Kraft! Ab sofort kann zb Ivabradin bei POTS auf Kassenrezept verordnet werden bundesanzeiger.de/pub/de/amtlich…
@YamiPanther x.com/i/status/20656…
Die #LongCovid Off Label Liste ist seit 11.06. in Kraft! Ab sofort kann zb Ivabradin bei POTS auf Kassenrezept verordnet werden bundesanzeiger.de/pub/de/amtlich…
Ab übermorgen müsste doch die Medikamente der Off Label Liste verschfeibbar sein oder? Dann sind zwei Monate vorbei
Olivia Rodrigo Album Release heute. Soo gut ❤️ Will ja iwie aufs Konzert probably bin ich delulu
@YamiPanther Scheint wohl 3 Monate zu brauchen nach G-BA Beschluss bis Bundesanzeiger was ich bei anderen Veröffentlichungen gesehen habe
Being a carer for a disabled person is incredibly hard, but there is a world of a difference between carers who think it’s hard because the disabled person is a burden and those who think it’s hard because the state has abandoned disabled people
@rainbowjanelane I feel loneliness, too, a lot and am also queer. Even "just" texting helps me often, even profound relationships can develop. Feel free to msg me if you like.
@anna_reise87030 Nikotin schüttet je nach Dosis etwas Adrenalin aus. Daher auch der erhöhte Puls. Ich denke es kommt auf deine Belastungsgrenze an ob du es "aushältst". Während PEM war es immer eine schlechte Idee zu kleben bei mir.
@ungenesbar @mecfsmed Uff, was für eine Scheiße
How I got out of #verysevereME back to severe (bell <10)? It took 1.5 years. 1. Daily pretty high dose Lorazepam, later Clonazepam to not worsen even more 2. Fycompa / Perampanel, started at 0.05mg, now 2mg 3. Low dose Aripiprazole, had to start VERY low bc.... (1)
@techno_peasant "Recovery" hahahahha I'm still 23.5h in my bed dear 🙄🙄 I don't care what you wouldn't touch lol
@KateKadisha I'm so sorry. I am lucky I have a great doc
Cari Calamari @Snoozelle
858 Followers 1K Following fae/faer; they/them; she/her mid30s, trance, white. i love puns [email protected] snoozelle@bsky ~herrschaft bad~ dark: @CaraDark64 modelle @CaraBuilds
Osé @ose_rouge
2K Followers 514 Following Linke Dissonanzen • Für die Spaltung • he/him • #ZeroCovid • ❄️ • Mastodon: @[email protected] • @oserouge.bsky.social
der räuber thotzenpl... @risottoultra
679 Followers 558 Following oberste vorsitzende der mommy appreciation society // white non binary paragirl // 24 // dark: @teeundhonig
Sibel Schick @sibelschick
36K Followers 1K Following Journalistin & Autorin. sie/ihr. „Mein Körper – wessen Entscheidung? Warum wir reproduktive Gerechtigkeit brauchen“ bei @fischerverlage
Zis for Trans 🔆 (s... @Zis_for_Trans
9K Followers 2K Following Kontakt für Abmahnungen: [email protected] FLINTA
Emmi☁️ @GrumpyEmmi
5K Followers 592 Following Co-Goblin bei WeeklyGeek • sozialwissenschaften • neurodiverses hirn • nerd kram und PnP. terfs und swerfs sind meine ärgsten feinde. she/they.
Buzzcut Kay @agender_Kay
620 Followers 513 Following 1 Waldgnom. Qualitativ-informatives Gepöbel. Menace to society. white, ablebodied, AuDHD, agender, panromantic, demiace. Großes Schwibbli von @kaeriangrin
alyssa @pisstradiol
315 Followers 321 Following it/she | transsexual lesbian | anarchist | autistic | 24 | priv:@pisstradiol67 |
daspupsi™ @daspupsi
2K Followers 2K Following 🇳🅾️ 🇨🅾️🅿️🇸 🏴Radikal antibürgerlich. Für @1WeltohneCops 🌍🧁 #PolizeiAbschaffen 🚓🔥 Yes, #AllCops Pron.: er/he
Jutta Ditfurth @jutta_ditfurth
39K Followers 5K Following Autorin | Soziologin | Aktivistin | Fraktionsvors. ÖkoLinX-ELF im Römer | Literaturagent: Günter Berg @jutta-ditfurth.bsky.social
Juli Maëlle 🍋 @julimaelle
7K Followers 3K Following Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr
DhamiNavraj @DhamiNavraj
16 Followers 396 Following
prluck @Johnluckpr
113 Followers 2K Following Connecting fundraisers with compassionate supporters worldwide. Grow your campaign. Reach caring hearts.
Ant @Ant4444444
52 Followers 243 Following
Lisa @rainbowjanelane
1K Followers 139 Following mostly just my rants about my illness. i'm 31, living with #LongCovid since February 2021. 2nd covid infection as of February 2025. Psychosomatic quacks DNI.
Christina @christina4hope
4K Followers 6K Following ME/CFS ,Fibromyalgia ,Longcovid,lyme Boriliose,MCS ,Vax Injured( not corrona vax ),Hearing loss ect . Also find me on @christina4hope.bsky.social
Nancy K @Zeynep37415770
8 Followers 768 Following heart full of flowers & follow requests 🌺 follow back
colette behind curtai... @colette42781309
126 Followers 603 Following visual poetry about chronic illness, severely ill, forced early retirement. #millionsmissing #mecfs #bedbound instagram: @hey.illness
MECFS, MCAS and PTSD @FatigueMe92484
2K Followers 2K Following Disable patient researcher/health educator/bio-cultural anthropologist of #MECFS, #PTSD, #LongCovid, #MCAS, #MCS, environ illness etc.
Xanthi @Xanthi00164319
137 Followers 385 Following
Markéta Przywara Ml�... @MlcakovaMa89168
11 Followers 64 Following
J @jennyblue333
545 Followers 6K Following
Tzed @Tzedioep
6 Followers 485 Following
Bella Dubrov @BellaDubrov
45 Followers 7K Following
Nah Bro @Katheri88767896
17 Followers 388 Following
Patience Moll @PatienceMoll7
149 Followers 2K Following
Melissa Mazur @PhillyPhile215
3K Followers 4K Following Just a Philly girl, livin' in a lonely world…and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause
Susan Kandarian @susan_mecfs
1K Followers 791 Following Professor-scientist disabled due to worsening #MECFS. Ally for ppl with post-acute infection syndromes
Megan Williams 🐌�... @sickroll
256 Followers 1K Following part time artist, full time sick person. No disability justice without a free Palestine 🇵🇸
Make ME Visible @makemevisible24
738 Followers 375 Following An initiative in India to spread awareness about ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) by a severe patient
Jason Hartman @JasonHartm77534
43 Followers 182 Following
Lilly @LillyMe2013
99 Followers 187 Following
Juul @tiredjuul
637 Followers 671 Following bedridden by Me/CFS POTS longcovid the whole schpiel v severe 23 years old
Lara @lara64390
258 Followers 523 Following Moderate ➡️severe MECFS by a 22 min treadmill session in Dec ‘22 and have never recovered. In Mar ‘23 I got covid. I’ve been very severe since Jul 24
JustJey @JustJsca
111 Followers 412 Following From the pitch to the pause — Long Covid chapter 🪫 Former sports soul, mountain heart 🏔️
Anny @annyk1n
285 Followers 859 Following 💔 one of #millionsmissing #lymedisease #mecfs #mcas 🇫🇮🇩🇪 | 👮🏻♀️| online journalism and media @th_koeln | politics | esports | #freedomofpress
Dr. Anke Mols @anke_mols
42 Followers 82 Following war mal Palliativmedizinerin, jetzt Betroffene von #ME/CFS
Roland Freimüller MS... @Roland_F_MSc
2K Followers 3K Following Wissenschaft ist nicht nur ein Vorteil, sondern auch eine Lebenseinstellung - Menschlichkeit auch... Saubere & gesunde Luft für Schulen & Kindergärten, jetzt!
Karin @Karin189678
43 Followers 575 Following
Anna-Marfa Bloss @AnnaMarfaBloss
445 Followers 4K Following Psychologin I Hochbegabung & Neurodiversität | TeamScience I Psychotherapeutin I PositivePsychologie I HaveCourageAndBeKind I ViewsAreMyOwn I
Alexis de Tocqueville @AlexisdeTob6o2
110 Followers 959 Following
Yumy @aceno59989
2 Followers 136 Following
Princess, The Tower @APainPrincess
29K Followers 28K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Liam's LC/ME Journey @liamsLCjourney
2K Followers 255 Following Open sourcing my Long COVID/ME recovery journey: lab results, doctor's visit summaries, tricks I've found for getting treatments, etc.
Florian @MEasy____
115 Followers 298 Following Bekämpfe ME/CFS seit Ende 2024 Hausgebunden, 95% der Zeit im Bett 161
claire18 💞 @claire0n9n
30 Followers 943 Following New on X trynna make older men slide in my dmssss (dont be a creep tho xD)
salatboi 🥬☀️�... @salatboii
103 Followers 1K Following Pöbel- und Retweetaccount. Wiener und Kurde und von allem bisschen was
Matthias L. @LohMatt
683 Followers 500 Following Twittert vor allem über #MECFS, etwas Politik und übers Leben | loves ART and SPORTS
Timo Strotmann @TweetingTimo
4K Followers 392 Following Tech Enthusiast - Software Engineer - Health Advocate Co-Founder of https://t.co/0klWgSE1lR
Aaron Manson @AaronManso30473
11 Followers 197 Following I'm just trying to live and help others live 🙏
A Darkened Room @adarkenedroom
211 Followers 366 Following One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
miss anna @missanna7452552
503 Followers 5K Following In this jungle I'm the queen 👑 of the wild things.and you are my willing subject,I'm the temptation you can't resist. how far will you go to worship me?
how_i_wonderously_per... @honigschnueti
28 Followers 224 Following Bedbound with severe ME/CFS since 1/24.
Daniel @danielhae5
111 Followers 751 Following MSc in Business Innovation @HSGStGallen | Blockchain Enthusiast $ETH | Life on pause due to severe #LongCOVID #MECFS since 08/2022 🪫
felicia ewert @redhidinghood_
11K Followers 633 Following they/ she 🟡⚪️🟣⚫️ dyke| author| antifascist| tired| 🚩 ja, ich halte Vorträge. Sprechzeiten tägl.: 10-19 Uhr (außer es ist zu)
Cari Calamari @Snoozelle
858 Followers 1K Following fae/faer; they/them; she/her mid30s, trance, white. i love puns [email protected] snoozelle@bsky ~herrschaft bad~ dark: @CaraDark64 modelle @CaraBuilds
Ashducation @Ashducation
4K Followers 236 Following They/-/Er ✨ hat #beHindernisse gestartet • findet Hunde cool und Barrieren scheiße • liegt oft rum und häufig richtig ✨#pwME • https://t.co/C1jdEKWYDc
tanja.rollifraeulein.... @RolliFraeulein
11K Followers 2K Following Autorin, Redakteurin und Aktivistin für Behindertenrechte. war hier aktiv. Jetzt auf bsky oder insta
Osé @ose_rouge
2K Followers 514 Following Linke Dissonanzen • Für die Spaltung • he/him • #ZeroCovid • ❄️ • Mastodon: @[email protected] • @oserouge.bsky.social
der räuber thotzenpl... @risottoultra
679 Followers 558 Following oberste vorsitzende der mommy appreciation society // white non binary paragirl // 24 // dark: @teeundhonig
Sibel Schick @sibelschick
36K Followers 1K Following Journalistin & Autorin. sie/ihr. „Mein Körper – wessen Entscheidung? Warum wir reproduktive Gerechtigkeit brauchen“ bei @fischerverlage
Zis for Trans 🔆 (s... @Zis_for_Trans
9K Followers 2K Following Kontakt für Abmahnungen: [email protected] FLINTA
Emmi☁️ @GrumpyEmmi
5K Followers 592 Following Co-Goblin bei WeeklyGeek • sozialwissenschaften • neurodiverses hirn • nerd kram und PnP. terfs und swerfs sind meine ärgsten feinde. she/they.
Ihro Orfeo Tecún @LiMingRichter
3K Followers 578 Following Sendung mit der Maus für soziale Gerechtigkeit. Schreibe über alles mögliche. er/ihm/he/him
Buzzcut Kay @agender_Kay
620 Followers 513 Following 1 Waldgnom. Qualitativ-informatives Gepöbel. Menace to society. white, ablebodied, AuDHD, agender, panromantic, demiace. Großes Schwibbli von @kaeriangrin
Jorinde Wiese @jorinde_wiese
7K Followers 8K Following (no pronouns) activist fighting against sexual violence 🏳️⚧️ trans rights 🏳️🌈 LGBTQIA* Je parle Français og Dansk. 你呢? #KonsequenzenFürLuke
Melina Borčak 🇧�... @MelinaBorcak
34K Followers 559 Following Hater sagen: Muslimiše, genderwahnsinnige Asyltouristin islamisiert Lügenpresse... Stimmt! Arbeit u.a. CNN, DW,ARD 🇬🇧tweets= follow brandnew @MelinaBorcakEng
Michael Stingl @neurostingl
17K Followers 1K Following Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin Ordination @cereprax
AutonomeGeschichte @r... @RadicalPast
36K Followers 89 Following ★ dt. /engl. ★ Kein Vergammeln, kein Vergessen! ★ Tweets zur Geschichte sozialer Kämpfe, linksradikaler & ausserparlamentarischer Bewegung ★ Kurator: @billstein
🌱 butterweiche but... @funkelgoth
556 Followers 163 Following 33 | sie/er | genderqueere detrans Frau 🐬 since 2019
daspupsi™ @daspupsi
2K Followers 2K Following 🇳🅾️ 🇨🅾️🅿️🇸 🏴Radikal antibürgerlich. Für @1WeltohneCops 🌍🧁 #PolizeiAbschaffen 🚓🔥 Yes, #AllCops Pron.: er/he
Lisa @rainbowjanelane
1K Followers 139 Following mostly just my rants about my illness. i'm 31, living with #LongCovid since February 2021. 2nd covid infection as of February 2025. Psychosomatic quacks DNI.
Dolly Dyson @DollyDyx
129K Followers 229 Following Check out my latest YouTube project and let me know what you think😽💕
eve long 💛 😷 �... @everesists
1K Followers 7K Following Born @ 331 ppm. #PAIS since 2000. #NotRecovered in German & English. Mostly doomscrolling and sh*tposting at this point because the world has gone to hell.
Christina Koch @CK65375
2K Followers 144 Following Until 8/23: School, hiking, soccer, chess, wine, culture, politics. Now severely ill (ME/CFS, POTS, CCI, MCAS). Still fighting. Antifascist. #eisern
19grams Coffee Roaste... @trescabezas
968 Followers 291 Following 19grams Formerly known as Tres Cabezas. Importing, roasting and brewing specialty coffee since 2002. Sustainable and direct from the farmers.
Dr. Anke Mols @anke_mols
42 Followers 82 Following war mal Palliativmedizinerin, jetzt Betroffene von #ME/CFS
Matthias L. @LohMatt
683 Followers 500 Following Twittert vor allem über #MECFS, etwas Politik und übers Leben | loves ART and SPORTS
eddy63 @nawunderbar
5K Followers 244 Following
Michael @steptoback
330 Followers 397 Following ME/CFS after Covid 2k22; Bell 10 always try to climb up
NZ_fund_MECFS 🦋 @NZ_fund_MECFS
858 Followers 2K Following It’s the end of the world yet you’re not gone. Until you finally are. #MECFS #LongCovid #PostVac #NotRecovered #MillionsMissing https://t.co/VVu3MaZAnH
FrauPsychologin @xenawien
1K Followers 658 Following Clinical psychologist. Working at Women´s Health Center. Living w. Chronic + Rare Disease. Cyclic Vomiting Syndrome + Mitochondriopathy. Live long and prosper!
Dana Mahr @STS_DACH
2K Followers 3K Following Dieser Account wird wegen wachsender extremistischer und antisemitischer Tendenzen auf dieser Plattform nicht mehr genutzt.
dianna haze @diannahaze
16K Followers 252 Following Tweeting through the hazy brain fog of Severe Long Covid. (Chronically ill alter-ego of @thephysicsgirl)
DogPack404 @DogPack404
47K Followers 0 Following
Rosanna Pansino @RosannaPansino
865K Followers 545 Following Fun Sized Baker, YouTuber, New York Times Best Selling Author, TV Host & Actress. Loves singing, creating and hanging with my three bulldogs. 🍪🎬🎵💕🐶🐶🐶
Kamala Harris @KamalaHarris
21.0M Followers 701 Following Always fighting for the people. Wife, Momala, Auntie. She/her. 107 Days available now.
ACT UP NY @actupny
23K Followers 780 Following ACT UP is a diverse non-partisan group of individuals united in anger and committed to direct action to end the AIDS crisis. #ACTUP, #FightBack, #FightAIDS!
Ziyad Al-Aly, MD @zalaly
32K Followers 942 Following Physician-Scientist | TIME100 Health https://t.co/AXG4WotuRc Profile: https://t.co/ywweQn5DHA…
Dr. Michael Gurr, Hau... @drmigurr
5K Followers 323 Following Seit 23 Jahren Landarzt in Eisenberg/Pfalz. Gründer von https://t.co/HfDXJtZLGG , dem ersten zeitversetzten Online-Sprechzimmer für Patienten und ihre Ärzte.
Whitney Dafoe @DafoeWhitney
12K Followers 88 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Act Up-Paris @actupparis
18K Followers 2K Following association de lutte contre le VIH-Sida, les IST et les discriminations depuis 1989 🔺 silence=mort • colère=action • information=pouvoir ✊️
Michael Lin, MD PhD �... @michaelzlin
29K Followers 448 Following Professor of Neurobiology & Bioengineering @Stanford ☘️🧪🦠🧠🌈🔬📖🇺🇲🌏Neurons, viruses, medicines. Invented predecessor of nirmatrelvir. Also @MichaelLinLab
Dr. Michael Schmitz @DocOnco
30K Followers 350 Following Internist und Hämato-Onkologe, Palliativmediziner.
PolyBio @polybioRF
14K Followers 2K Following 501(c)3 transforming how LongCovid, ME/CFS, Lyme+ and Alzheimer’s are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
FaggotsForFuture ✊�... @RealTadzioM
12K Followers 4K Following "Grande Dame des Klimaextremismus" & "Regenbogenkommunist" Blog: https://t.co/bM9o4u9nd3
DEACTIVATED @thrasherxy
72K Followers 2K Following THIS ACCOUNT HAS BEEN DEACTIVATED. Try finding Steven on BlueSky, Instagram, or in the pages of The Viral Underclass and The Overseer Class
Danielle Beckman @DaniBeckman
39K Followers 4K Following PharmD, MS in Biophysics, PhD in Biochemistry I like taking photos of weird things inside the brain 🔬 🇧🇷 Rio 🇺🇸 Sacramento 🇩🇪 Munich
Fen, MD @FvRhijn
4K Followers 2K Following 💉*7 | MD w/ #ME due to #LongCovid | rheumatology resident | regenerative med | vascular inflammation | scleroderma | harpist | they/them 🌈 views are mine
GeNeuro @GeneuroO
531 Followers 309 Following We focus on Human Endogenous Retroviruses (#HERVs) to fight neurodegeneration in #MS, #ALS and #LongCovid $GNRO Community Guidelines: https://t.co/5NBN2obhoj
me-cfs.bsky.social @yann_mecfs
935 Followers 918 Following I’m more active on BSKY now FCK musk FCK fascism
Dossier @dossier_
13K Followers 1K Following DOSSIER ist eine unabhängige, gemeinnützige Redaktion für investigativen und Datenjournalismus. Unterstützen: https://t.co/zaQxrqBbQ9
Dr. Angela Rasmussen @angie_rasmussen
504K Followers 8K Following Virologist working at but not speaking for @USask. Co-EIC @Els_Vaccine. Jeopardy! loser. "Disreputable vaccine cheerleader." 🇺🇸in🇨🇦. Opinions mine. she/her
Ibrahim Massri @IamIbrahim21
8K Followers 3K Following Palestinian writer & teacher | Founder of @phoenixlibrary1 | Author of I Am From Gaza. 📖 Words as witness, hope as resistance.
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 4K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine ONLY POSTING ON UPSCROLLED NOW
Wilhelmina Jenkins @minadjenkins
2K Followers 1K Following
Rob Wüst @RobWust
7K Followers 738 Following Associate Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease
Trisha Greenhalgh @trishgreenhalgh
160K Followers 4K Following On the other place now. @trishgreenhalgh.bsky.social
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Oonagh Cousins @oonagh_cousins
3K Followers 956 Following Communications and Policy @visible_health | @long_covid | @ThereForME_UK Anti-Recovery Activist 👀
JugendInfo @InfoJugend
2K Followers 684 Following 📢 Tagesaktuelle Nachrichten Erinnerung an Gestern - Nachrichten von Heute - Für die Welt von Morgen
Disrupt @disrupt__now
2K Followers 92 Following Für ein gutes Leben jenseits des Kapitalismus! | Aktionstage vom 08.-12.05. in Berlin/ Grünheide #DisruptTesla | Alle Infos, Events & Mobimaterial 👇
MECFS Stuttgart @MECFS_Stuttgart
2K Followers 2K Following Informationen & Aufklärung über #MECFS und #LongCovid 🇬🇧🇩🇪
Flor 🥀 @lugaresxcomunes
2K Followers 1K Following we need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME #adhd
Tanja @TanjaRadfahrer
222 Followers 173 Following















