PSC Support Australia @pscsupportau
Supporting patients and their families with Primary Sclerosing Cholangitis.#PSC is a rare, chronic autoimmune disease of the liver, specifically the bile ducts. Australia Joined July 2018-
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Australian’s touched by PSC know how life changing Organ Donation can be. We encourage everyone to make their wishes known to their loved ones & register their decision donatelife.gov.au/register-donor…
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@DocKateLynch Wonderful work 🤗🙌🏻
️BONUS OFFER! When you buy an @AUEntertain Membership from us, not only will you be supporting PSC Support Australia but you will also receive a bonus $10 Woolworths WISH eGift Card! Hurry, offer ends 11:59 May 12 AEST. Get yours today: entertainmentbook.com.au/orderbooks/9r5…
Give mum the VIP treatment with Entertainment! Packed with thousands of valuable offers across dining, retail, attractions and travel, an Entertainment Membership is the gift she can enjoy all year round. entertainmentbook.com.au/orderbooks/9r5…
Head over to our Facebook Page & check out our awesome competition; facebook.com/20028272399186… #CompetitionTime #freebie #win #bargain
@ChooseWiselyAU encourages Patients to be empowered with their health choices. Here are some questions to ask your doctor before your next medical test. ⤵️
@PSCPartners Great job guys!!
PSC Support Australia retweeted
Get involved in the #ShowYourRare campaign for Rare Disease Day 2019! Are you feeling up to a challenge? Try painting the Rare Disease Day logo! Check out the other ways to Show Your Rare for #RareDiseaseDay rarediseaseday.org/article/show-y…
We hope every Transplant Hospital in Australia takes note how beneficial Telehealth can be for people with chronic illness. - less travel time - less cost - less time off work - greater accessibility - patient centred Yes please! @GregHuntMP
EARLY BIRD rates for the Australian Telehealth Conference close this Friday 8 Feb - hurry to register! Discounts for healthcare group bookings. bit.ly/2Dk8rQC #ATC2019 Brisbane 3-4 April
We hope tonight’s screening of @dyingtolivedoco on @SBS inspires discussion in your household on the important and beautiful gift that is #organdonation #donatelife
Truely amazing 2018 Organ Donation rates here is Australia. Still so much work to be done to support recipients and donor families. #donatelife #makeitcount
A record number of Australians are saving lives by saying ‘Yes’ to organ donation! Register: donatelife.gov.au
@PSCSupportUK @bhamliverMP We believe this is being trialed here too. Just amazing 🤗
@garyptaylor @PSCSupportUK @AutoImmuneLiver @jfergus75 @F8Martine @maxceline_ @_elenamarcus @LiverTrust @uhbtrust Happy Liverversary 🥳
Research is so important 🙌🏻
#PSC is a difficult disease to treat - this phase 2 study looked at #simtuzumab for 96 weeks but unfortunately didn’t find any improvement in #fibrosis, progression to #cirrhosis or clinical events aasldpubs.onlinelibrary.wiley.com/doi/full/10.10…
Merry Christmas PSCers & Carers. Have a wonderful day with those closest to you & make beautiful memories. 🎅🏻🤶🏻🎄
Wonderful news out of @Austin_Health in Melbourne. Only possible because of the beautiful gift of organ donation. 🎁 Congratulations to the LTU Team! 👩🏻⚕️👨🏻⚕️🏥 @DonateLifeToday #havethechat #PSC
A leading Melbourne hospital is quietly celebrating a remarkable medical milestone - a record 100 liver transplants this year. @EmilyRice28 #9News
🧔🏻👱🏻♂️👴🏼👦🏻👨🏻👨🏻🦰👳🏾♂️🕵🏻♂️👮🏻♂️👨🏻🚀 Today is International Men‘s Day. We’re sending a big shout out to all males affected by PSC 🙋🏼♂️ We see you 💚 #InternationalMensDay #psc #pscaware
Glen Dimpfel @Dimpf1
29 Followers 49 Following
Kate Coldwell @DrKcoldwell
124 Followers 325 Following @DaphneJacksonTr Fellow at the @KIROxford Researching the gut and liver in PSC. https://t.co/COncfb9bsG
Emily @MLenisha53851
10 Followers 772 Following A good friend has just returned to Australia. She is beautiful and kind. If you are over 35, please add her ws: https://t.co/E1Dx5SEtgp
Kayla K @kaykay6663
2 Followers 27 Following
Jodie Gunders @JodieGunders
3K Followers 3K Following Rural Lead Queensland & Trainee Advisor for @ABCAustralia. Studying workplace diversity & inclusion as 2022 @wimqld scholar. [email protected]
ASSCAT @asscatinforma
2K Followers 1K Following ASSCAT acompaña y asesora a los pacientes hepáticos, instando a acciones de diagnóstico y tratamiento para todos los afectados e información a la ciudadanía
Sarah Al-Baiaty @BaiatySarah
7 Followers 169 Following
Hannah @hanlumby
14 Followers 84 Following
Gine Johnson @JohnsonGine
24 Followers 350 Following
Elizabeth Pratt @elizabethcpratt
509 Followers 1K Following Medical journalist Bylines @Healthline @mnt @MDLinx @PsychCentral @Verywell @health_com_ @Theravive PSC + chronic illness Views mine, RT not endorsement
Aircs ODV @AircsOdv
78 Followers 548 Following L'Associazione si propone, come oggetto, di provvedere al sostegno finanziario di progetti finalizzati alla ricerca scientifica sulla colangite sclerosante
James Broadbent @jbroadbentnz
15 Followers 91 Following
Alison Rourke @AlisonRourke1
1K Followers 1K Following Principal at Gregory Hills PS. All views expressed are personal. Commonwealth Bank of Australia & Schools Plus Teaching Fellowship Awardee
DrAlexandra @DrAlexaGastro
2K Followers 5K Following Gastroenteróloga mexicana que ama la Hepatologia y la Endoscopia, Autlense de nacimiento y Tapatía de corazón.
Amanda ☮️ @ikothepuppy
72 Followers 2K Following
Phil Durham @philipdurham
13 Followers 428 Following
European Liver Patien... @EuropeLiver
10K Followers 11K Following Elevate your awareness with ELPA! Uniting for liver health in Europe, we dazzle with passion and shine in the fight against liver disease
Martine Walmsley @F8Martine
1K Followers 1K Following Involve patients in your research! PSC, coeliac disease, IBD patient 🙂 Head of Research Strategy @PSCSupportUK. 😁 she/her
gorantla sarath @sarath_gorantla
430 Followers 5K Following Dr. Sarath Chandra Gorantla is a distinguished gastroenterologist and hepatologist with over 15 years of experience,Star Hospital ,Hyderabad, india.
Caryln @Caryln52286773
45 Followers 2K Following
Sharon Nanz @swimNanz
7 Followers 17 Following
Caring Fairly @caringfairly
216 Followers 507 Following A national advocacy coalition working for rights, recognition and reform for unpaid carers. #CaringFairly
Cairnmillar @Cairnmillar
253 Followers 860 Following A pioneer of community mental health, personal development, and professional education in this country since 1961. CRICOS Provider Number: 03530E
Gareth W @Weeksie17
763 Followers 199 Following Proud Dad | PSC, IBD & Liver Disease Awareness| Liver Transplant recipient :: All views my own 😃
ausEE Inc. @ausEEorg
694 Followers 2K Following ausEE Inc. is Australia’s peak national support and patient advocacy organisation representing Australians living with an eosinophilic disease.
HighTide Therapeutics @HighTideThera
151 Followers 638 Following HighTide Therapeutics (https://t.co/SqLHCiCbMe) develops multifunctional therapies targeting residual risks in cardiovascular-kidney-metabolic (CKM) diseases.
Natasha Howard @NatashaHoward16
332 Followers 485 Following Mum of 2 girls, 2boys. follow vintage shop@AtticusLeomins1 @ethnicorigins
Joe Berger @JoeChadBerger
1K Followers 793 Following
Vegemite Kid @vegemite_kid
232 Followers 1K Following Was once as bright as bright can be. Recycles organs Bleeds black & white. Cursed. Buckley’s Mum. 🏴🏳
Rare Voices Australia @RareVoices
3K Followers 500 Following Rare Voices Australia (RVA) is Australia’s national peak body for Australians living with a rare disease.
The Comical Colon @TheComicalColon
358 Followers 655 Following 👋 I'm Jenna, #ulcerativecolitis & #PSC patient advocate 💊 Oral #vancomycin saved my life 📣 I believe in the power of off-label drugs and the patient voice
Ashley Hudson 💚 @ashley4748
1K Followers 4K Following Ashley Hudson – UK Actor & Playwright |Through the Lens of Resilience
Dr Grant Davies @GrantTDavies
716 Followers 1K Following Interested in bioethics, ADR, person-centred health care and open disclosure. Views are my own
Joanne Hatchett @sjhatch_joanne
352 Followers 1K Following Joanne Hatchett, RN, MS, FNP-retired Family Nurse Practitioner. PSC Partners Seeking a Cure, Medical Science Liaison. Views are my own.
kcuSstarcomeD @kcusstarcomeD
2 Followers 318 Following
Vicki Weeks @VickiWeeks19
42 Followers 166 Following Wife of a liver transplant recipient - interested in anything autoimmune liver disease related! 🙏🏻 for a cure for PSC.
Soph @ForsterSoph
22 Followers 136 Following
Paco @Paco02358200
0 Followers 9 Following
Travis Pearce @TravisPearce18
1 Followers 34 Following
Jan Král @KralJan
4K Followers 3K Following MD, PhD, MSc, MBA at @FnMotol | Interests in #IBD, #Endoscopy, #LiverDiseases, #BariatricEndo, #AI, #3DPrinting - https://t.co/ROG5kRobku, #ESGE SoMe WG
Kate Lynch @DocKateLynch
286 Followers 97 Following Gastroenterologist and Hepatologist | Adelaide, South Australia | Passionate about PSC/IBD and finding a cure!
PSC Partners Canada @PSCPartnersCa
642 Followers 228 Following Mission: to drive research to identify treatments and a cure for PSC, while providing education and support for those impacted by this rare disease.
PSC Support @PSCSupportUK
3K Followers 1K Following Patient organisation for primary sclerosing cholangitis. Info and support for patients | the PSC App | research towards a cure. #LetsBeatPSC #LetsBeatPSC
Northern Qld PHN @NQPHN
895 Followers 417 Following Northern Queensland Primary Health Network. Helping northern Queenslanders live happier, healthier, longer lives. [email protected]
Georgie Crozier MP @georgiecrozier
15K Followers 669 Following Member for Southern Metropolitan Region, Shadow Minister for Health
Michael McCormack @M_McCormackMP
21K Followers 2K Following Federal Member for Riverina. Shadow Minister for Veterans' Affairs. Shadow Minister for Water. Husband of Catherine. Proud Dad of 3.
The Sweetest Gift @SweetestGiftAU
155 Followers 1K Following We want to open the world's first dessert cafe staffed by organ recipients and chronic illness sufferers. Sydney, AUS. 50% health issues. 50% foodies
Rare Voices Australia @RareVoices
3K Followers 500 Following Rare Voices Australia (RVA) is Australia’s national peak body for Australians living with a rare disease.
Richard M Colbeck @richardmcolbeck
6K Followers 2K Following Liberal Senator for Tasmania in the Australian Parliament. Enjoy Photography, Music. Authorised by Richard Colbeck, Liberal Party of Australia, Devonport, Tas.
Maxine @maxceline_
474 Followers 382 Following Liver transplant recipient for PSC. Programme Development Officer @PSCSupportUK. Freelance Dance Practitioner. All views mine. BE AN ORGAN DONOR! @NHSOrganDonor
My Health Record @MyHealthRec
2K Followers 101 Following My Health Record is a secure online summary of your health information. You can control what goes into it, and who is allowed to access it.
liver glamorgan @livernurse
13 Followers 11 Following
Poznaj PSC @poznajPSC
3 Followers 4 Following
Rare Disease Day @rarediseaseday
42K Followers 3K Following 28 February 2027 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are impacted by rare diseases. #RareDiseaseDay
Rare Disease Blogs @rarediseaseblog
2K Followers 15 Following International opinion & debate from opinion leaders in the fields of Rare Diseases & Orphan Drugs
RE(ACT) Community @react_community
2K Followers 480 Following #RAREvolution #REACTCongress. This channel is no longer fed. This channel is no longer fed. Follow us on https://t.co/mi6vAAQBDb
Rare Disease Team @RareDxResearch
5K Followers 120 Following A Canadian research team focusing on rare disease policy.
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
National Organization... @RareDiseases
40K Followers 3K Following #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
Dying to Live @dyingtolivedoco
93 Followers 400 Following Cinema documentary about organ donation; made in Australia and relevant internationally. Check website to find or request a screening. #DyingToLive #REGISTER
AASLD @AASLDtweets
34K Followers 4K Following AASLD is the leading organization of scientists and health care professionals committed to preventing and curing liver disease. @AASLDFoundation @AASLDPresident
ClinicalLiverDisease @CLD_Learning
12K Followers 711 Following Clinical Liver Disease (CLD) is an official digital learning resource of The American Association for the Study of Liver Diseases.
Dr Grant Davies @GrantTDavies
716 Followers 1K Following Interested in bioethics, ADR, person-centred health care and open disclosure. Views are my own
Health Complaints Com... @HCC_Vic
706 Followers 399 Following We provide an independent and impartial service to resolve complaints about healthcare and the handling of health information in Victoria. Ph: 1300 582 113
Health Consumers SA @HealthConsumers
1K Followers 966 Following Health Consumers Alliance (HCA) is the independent voice of health consumers in South Australia.
ERN RARE LIVER @ERN_RARE_LIVER
1K Followers 213 Following A major opportunity for better treatment for patients with rare liver disease in Europe
Dr MIF Shariff @MIFShariff
40 Followers 23 Following Consultant Gastroenterologist & Hepatologist/HPB at West Herts NHS Trust
Vicki Weeks @VickiWeeks19
42 Followers 166 Following Wife of a liver transplant recipient - interested in anything autoimmune liver disease related! 🙏🏻 for a cure for PSC.
LetsBeatPSC @LetsBeatPSC
54 Followers 53 Following 40yo diagnosed with PSC. Father to wonderful son, husband to perfect wife. Raising awareness of PSC. A little tennis here and there, maybe some Poker too.
Ajmera Transplant Cen... @UHNTransplant
4K Followers 2K Following Largest #organ #transplant centre in Canada at @UHN. Performing over 700 transplants annually, and providing world-class care to over 7,000 recipients. #TeamATC
Canadian Donation and... @CNTRP
2K Followers 812 Following Canada's national #donation and #transplantation research network | https://t.co/9CgFr3l1CS
Christine Browner @Ckbrowner
145 Followers 196 Following Advocate for #raredisease, #liverdisease, #organdonation, #PrimarySclerosingCholangitis, #AutoimmuneHepatitis
Neil Rajoriya @NeilRajJ1
1K Followers 1K Following Transplant Hepatologist at The Liver Unit, Birmingham, UK.
PSCSverige @PscSverige
29 Followers 45 Following Primär Skleroserande Cholangit, Primary Sclerosing Cholangitis, patients,
Gilead Sciences @GileadSciences
72K Followers 199 Following At Gilead, we set – and achieve – bold ambitions to create a healthier world for all people. Read more: https://t.co/TZWHS6iRTe
The Sydney Morning He... @smh
875K Followers 702 Following Australia's leading news source. Independent. Always.
Dr Louise Schaper @louise_schaper
4K Followers 2K Following On a mission to fix healthcare. Leading & advocating for innovation of the health ecosystem at scale. Yes, I do have the coolest job!
Digital Health AU @AuDigitalHealth
15K Followers 6K Following Australia’s need for a connected healthcare system is now greater than ever. One that’s accessible, progressive, and importantly secure.
Australasian Institut... @TheInstituteDH
5K Followers 1K Following AIDH is the peak body for digital health representing a united and influential single voice for health informatics and digital health leaders and practitioners.
ATC 2020 @AIDH_ATC
417 Followers 395 Following Australian Telehealth Conference-Online | Virtual | Healthcare Accessible and sustainable healthcare in the digital age #ATC2020. Presented by @TheInstituteDH
PA Real Life @PA_Real_Life
3K Followers 2K Following Exclusive human interest tales from @PA. We write for national and international papers, websites, TV and magazines https://t.co/yTRMpDQS68
Rachel Williams @RachyWils
150 Followers 150 Following Deputy Features Editor at that's life! magazine, Australia
Pharmacy - Austin Hea... @Austin_HealthRx
646 Followers 307 Following Promoting research, education and practice excellence from the Pharmacy Department at Austin Health (Melbourne, Australia). RT not an endorsement
Elizabeth Pratt @elizabethcpratt
509 Followers 1K Following Medical journalist Bylines @Healthline @mnt @MDLinx @PsychCentral @Verywell @health_com_ @Theravive PSC + chronic illness Views mine, RT not endorsement
Kate Lynch @DocKateLynch
286 Followers 97 Following Gastroenterologist and Hepatologist | Adelaide, South Australia | Passionate about PSC/IBD and finding a cure!
Sydney Local Health D... @SydneyLHD
3K Followers 308 Following Home to RPA, Concord, Canterbury, Balmain & Sydney Dental hospitals, the Walker Estates and community health services. #SLHD
Travis Pearce @TravisPearce18
1 Followers 34 Following
Ashley Hudson 💚 @ashley4748
1K Followers 4K Following Ashley Hudson – UK Actor & Playwright |Through the Lens of Resilience
Carers Australia @CarersAustralia
3K Followers 710 Following We are the national peak body representing Australia’s 3 million carers, advocating on their behalf to influence policies and services.
Darling Downs Health @darlingdownshhs
537 Followers 136 Following We provide health services across the Darling Downs and South Burnett. Community guidelines https://t.co/8jBmqeUSNe…
Darling Downs and Wes... @DDWMPHN
889 Followers 368 Following We work within the Darling Downs and West Moreton region to better understand, support and improve the health of people living in our region.
WentWest - Western Sy... @WentWest_Ltd
1K Followers 632 Following As the Western Sydney Primary Health Network, WentWest connects health services to meet local needs across Western Sydney.
WA Primary Health All... @wapha_phns
1K Followers 205 Following WA Primary Health Alliance shapes, strengthens and sustains a health system that works for people. Our social media rules of engagement https://t.co/TPUzW6ZyEgTrends for United States
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