Rare Disease Advisor - Myasthenia Gravis @rda_mg
Follow the Myasthenia Gravis Junction on Rare Disease Advisor for the latest news, perspectives, and resources about the disease. rarediseaseadvisor.com/junction-hub-p… New York, NY Joined April 2023-
Tweets316
-
Followers22
-
Following12
-
Likes2
Remission is possible in myasthenia gravis, but it is often unpredictable and may not be permanent. Read about different types of remission and factors that may influence long-term outcomes. Read more: buff.ly/LHH5cNz #MyastheniaGravis #RareDisease #PatientEducation
Stefanie Shea-Akers highlights a major gap in Myasthenia Gravis care: the lack of education on managing flares. Without clear guidance, patients struggle to differentiate daily symptoms from serious exacerbations. Read more: buff.ly/VbdiWhF #MyastheniaGravis #MG
A recent analysis highlights a critical challenge in the neurology community: despite significant therapeutic advancements, many patients with generalized Myasthenia Gravis (#gMG) still face substantial barriers to optimal care. Read the full report here: buff.ly/Y9dVg3V
In a recent MG Companion feature, the editorial team explains the MG-ADL scale, a widely used assessment that helps track how myasthenia gravis symptoms affect daily activities. Read more: buff.ly/jZNP5yR #MyastheniaGravis #MG #SymptomTracking #RareDisease #Healthcare
New article posted on Rare Disease Advisor #MG: "Some Patients With MG Experience Persistent Symptoms and Exacerbations." Read the full article here: buff.ly/3P0FTRd #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "French Study Reveals Aspirations and Treatment Wishes of Patients With MG." Read the full article here: buff.ly/4giOY3Y #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "MG Incidence Increases in the Czech Republic, With a Higher Disease Burden in Females." Read the full article here: buff.ly/4gmCoAO #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Isolated and Transient Hand Weakness Could Signal Distal MG." Read the full article here: buff.ly/3OLT1tv #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Patients With Coexisting Refractory GO and Ocular MG May Benefit From Tocilizumab." Read the full article here: buff.ly/4grT6yi #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Pregnancy May Be a High-Risk Period for MG Relapse." Read the full article here: buff.ly/4gbhp3F #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Statins Associated With Increased MG Risk." Read the full article here: buff.ly/49kQ50c #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Investigating the Effects of a Delayed Diagnosis in Myasthenia Gravis." Read the full article here: buff.ly/49paamk #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Treatment Regimen May Lead to Remission in MG." Read the full article here: buff.ly/3BevcY8 #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Eculizumab and Ravulizumab Combined May Be Useful in Long-Term MG Care." Read the full article here: buff.ly/3B146n0 #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "New Loci Could Aid in Prediction of MG Disease Status." Read the full article here: buff.ly/3OrzzBZ #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Patient Develops MG After COVID-19 Vaccine and Pembrolizumab." Read the full article here: buff.ly/3ZaZ7Z9 #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "IVIG Maintenance Therapy May Be Effective in MG Care." Read the full article here: buff.ly/3UZg1si #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Efgartigimod Alfa Could Be an Effective Treatment for SLE and MG." Read the full article here: buff.ly/3Oi42Cr #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Diagnostic and Therapeutic Biomarkers Identified for MG Phenotypes." Read the full article here: buff.ly/4hXrPoP #MyastheniaGravis #neurology #raredisease
New article posted on Rare Disease Advisor #MG: "Laryngeal MG May Be Underrecognized in the Otolaryngology Community." Read the full article here: buff.ly/40GwFAN #MyastheniaGravis #neurology #raredisease
Bryan Reagan @BryanReagan
428 Followers 4K Following Early retired academic computer scientist, Christian, political moderate; Into computers, math, books, ethic food, old movies, sci-fi, chess, tabletop gaming
Food Freedom @RealF00D
65 Followers 1K Following
Kelly Ambrecht @BurntBunny77
3 Followers 85 Following
Lientje @LienEudaimonia
5 Followers 277 Following
Chris Rush @CJRush92
48 Followers 242 Following
Avishek @aliasaka20
29 Followers 359 Following Solutions Engineer, Master Data Architect, Proud Father and Husband
F. Schwennsen @FSchwennsen
0 Followers 18 Following
Tom Bartlett @Bartworld01
239 Followers 543 Following Patient Digital Technology Advisor - Regeneron, argenx, J&J MGFA National Patient Ambassador - Research and MG Registry Rare Disease Advisor Myasthenia Gravis
Alison Scott @alicscott73
1 Followers 24 Following
Dr. Denis k @Denis96047750
38 Followers 183 Following PAN AFRICANIST ,PHARMACIST, bachelors, MBA (SCandL) . MYASTHENIA GRAVIS patient's advocate.
S - Bill Raper - 🇺... @billraper13
300 Followers 890 Following Blood bought, born again, child of the one true King!!!! USMNT 🇺🇲⚽️ Manchester United 👹⚽️ FC Cincinnati Fanatic 🦁🧡💙⚽️
PaddyNenagh @PaddyNenagh
2K Followers 4K Following Retired Uni Tutor (History). Huge fan Luke Kelly & Iris Dement. Diagnosed Myasthenia Gravis. RTs not necessarily endorsements. Kindness is the mightiest force..
Figen Değer @figendeger
145 Followers 222 Following Y así como todo cambia, que yo cambie no es extraño.
Little Red Corvette @princesshoped
5K Followers 4K Following Myasthenia gravis ❄️Graves disease Twin Mama FinerWoman 💙🕊 #WhoDat🖤💛⚜️ LSU'05 Agribusiness-South BR Native ✊🏿I cuss alot I'm getting tf outta Lousyana
Fabio Del Taglia @fabdelta
99 Followers 319 Following Spreading education about healthy eating on https://t.co/xoBVjXuxjz | #healthyeating | #nutrition | #healthyfood | #healthylifestyle
bklyn @NikSheth2
9 Followers 62 Following
Myasthenia Gravis Fou... @MyastheniaOrg
2K Followers 326 Following #MyastheniaGravis Foundation of America (MGFA) is the largest nonprofit patient advocacy organization dedicated solely to improving the lives of people with MG.
Georgia Gleason @georgialgleaso1
2 Followers 89 Following
UCB RDCN @UCB_RDCN
19 Followers 11 Following Connecting a community of neuromuscular experts & sponsored by UCB. Intended for healthcare professionals (outside UK). Community guidelines https://t.co/30z5xIDI32
Linda Cartwright @icycart64
4 Followers 72 Following
Christine J Villano @cjvillano
677 Followers 888 Following Christ follower. Myasthenia Gravis warrior. Encourager. Seeking wisdom in every situation.
Claire FND & Myasthen... @FndClaireBattle
9 Followers 49 Following Welcome to my FND &Myasthenia Gravis Battle I am a 42 year old single Mum to 2 boy's unfortunately my diagnosis has left me no longer the person I was.
PabloGarciaReitboeck @pablogarciareit
297 Followers 485 Following 👨👩👧👦👨⚕️🏥🇦🇹🇪🇦🇪🇺🇬🇧 Neurologist @stgeorgestrust. #mnd #myasthenia gravis #clinical trials
Sybil Cooper @sybilcooperphd
740 Followers 624 Following I am a science nerd, immunologist, Functional nutrition counselor, Primal Health coach, living well w Sjogren's & Myasthenia Gravis and MCTD.
Mike Antonellis @mantonellis33
354 Followers 345 Following Vice President of MarComms at the Myasthenia Gravis Foundation of America. Marketing professional, mentor and coach, Dad and husband, Referee, Painter.
George Regnery @georgeregnery
1K Followers 381 Following Ridgefield, CT. Conservative. Married. 2 kids. Work in the pensions sector. Go Packers! Beating Myasthenia Gravis.
Jen's Ri @texasmcmanus
4K Followers 4K Following Pro-Life, Pro-God, Pro-Country, Pro-Guns, no apologies! Don't Mess with Texas! Proud Mom, Conservative/libertarian Myasthenia Gravis and strokesurvivor, Single
kelley ann hornyak @poeticonic
2K Followers 636 Following 🖋️ Consumer of pop culture, producer of poetry. 📚 Author of Poet Iconic Vol. 1 and more to come.
Myasthenia Gravis Fou... @MyastheniaOrg
2K Followers 326 Following #MyastheniaGravis Foundation of America (MGFA) is the largest nonprofit patient advocacy organization dedicated solely to improving the lives of people with MG.
Conquer Myasthenia Gr... @ConquerMG
1K Followers 63 Following Myasthenia Gravis is a neurological disorder. Conquer MG is a nonprofit, driven by the desire to help MG patients get prompt diagnosis and optimal care. 💙

