mary_sullivan @redfish325
Mom~Patient Advocate/Engagement for rare disorders~Love working with clinicians, families, researchers, patients. Joined December 2012-
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It’s CF Awarness Month! All. Month. Long. #cf #curecf #cysticfibrosis #untilitsdone
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#rare #AllianceRx #cysticfibrosisawareness #cysticfibrosis
#CFF #curecf #rareis #raredisease
"I have learned that protection is redefined in chronic illness. It is often making choices that are painfully unfair; choices that will make us betray our own children. However, it is our strength that commands us, otherwise we would run." on.cff.org/2GWZiCs
New year, new insurance? Update all your caregivers and providers #alliancerxwalgreensprime #specialtypharmacy #cf #curecf
"I have learned that protection is redefined in chronic illness. It is often making choices that are painfully unfair; choices that will make us betray our own children. However, it is our strength that commands us, otherwise we would run." on.cff.org/2GWZiCs
#holiday #travel Know your rights.
"I have learned that protection is redefined in chronic illness. It is often making choices that are painfully unfair; choices that will make us betray our own children. However, it is our strength that commands us, otherwise we would run." on.cff.org/2GWZiCs
@DatelineNBC There’s more in San Antonio than the Alamo and the boots at the mall 🙄 @DateDateline
#vertex does more that just develop life saving medications....thank you, Vertex, we love that you are #allinforcf
The Vertex #AllinforCF Scholarship helps people with #cysticfibrosis and their family members pursue two-year, four-year, or graduate degrees. Applications for the 2019-2020 school year are now open! Apply by December 7: bit.ly/2EsFHZK #NACFC
Thank you, @VertexPharma, for your continued support, dedication, and unwavering commitment to the #CF community! x.com/vertexpharma/s…
Going blue tonight along with 35+ buildings in #Boston to support the great work of @BostonChildrens Hospital #BCHShineYourLight
#betz #sarodeo #pottyphone x.com/ireiatelife/st…
Going blue tonight along with 35+ buildings in #Boston to support the great work of @BostonChildrens Hospital #BCHShineYourLight
Thank you @VertexPharma!!! #symdeko brings us all closer to that day #skininthegame #cf #curecf #cff #untilitsdone investors.vrtx.com/releasedetail.…
@DatelineNBC Devastated.... I had a snappy reply but I’ve grown weary.
@DateDateline @dateline_keith is so bored of this it’s painful to watch-even I’m trying to see what the folders on his faux desk are for-he’s holding his head-help him-we’re 3 decades in on these kids! Put a fork in it!
@DatelineNBC @DateDateline But the love for Ashlea totally made my eyes sweat! ❤️😢
@DateDateline Oh hi, Brandon! Richard Smichard.
@DateDateline Richard is adorable-why is he breaking all of our hearts like this?
mary_sullivan retweeted
Kyle says nope!
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