RettSyndromeMA @rett_ma
Official Twitter Page of Rett Syndrome Association of Massachusetts (RSAM) rsangels.org Massachusetts, USA Joined June 2018-
Tweets98
-
Followers66
-
Following33
-
Likes28
Rett is Rare-Campaign for Rare Disease Day - mailchi.mp/c8412b89c13a/r…
Rett is Rare-Campaign for Rare Disease Day - mailchi.mp/c8412b89c13a/r…
Team Rett Marathon 2021 - mailchi.mp/3db6930124ef/t…
Maria McTernan Sibling Scholarship rsangels.org/maria-mcternan…
Santa Update Invite! - mailchi.mp/0a37568143af/s…
Merry Holidays and Happy Christmas 🎄🕎☃️ Stories with Santa on Christmas Eve! Join us for some holiday stories of the season. Registration link here: bit.ly/3ne9reQ
Exclusive Invite! Stories with Santa - mailchi.mp/6c7b56bbe207/s…
Giving Tuesday-the force is with you - mailchi.mp/d018cbf3efbf/r…
Final Reminder! RSVP today for Family Check Nov. 18th at 7:30pm.
RSAM BIG NEWS! Monthly Newsletter in your inbox tonight!
This is a test rsangels.org/this-is-a-test/
We have a New Name! RSAM is Rett Syndrome Angels! #rettsyndromeangels
Boys living with Rett Syndrome #rettsyndrome #boyswithrett #rettangels rettsyndromenews.com/2020/11/06/ban…
Rett Syndrome Awareness Month💜 Thank You Mayor Walsh! facebook.com/groups/8336545…
Did you know clinical trials for Anavex 2-73, Ketamine and Epidiolex are recruiting children and adults with Rett syndrome at sites across the country? A clinical trial for Trofinetide is slated to begin enrolling later this year. Learn more at: rettsyndrome.org/for-families/c…
On September 10, join Dr. Huda Zoghbi as she provides a research update following the 20th anniversary of the discovery of the MECP2 gene. Sign up for this free webinar today at: buff.ly/30C0ikI
smyslenny @smyslenny248115
25 Followers 4K Following
ali çelik @alielik70430148
3 Followers 25 Following
Acadia Pharmaceutical... @AcadiaPharma
1K Followers 109 Following Acadia is transforming scientific promise into meaningful innovations. See our community guidelines: https://t.co/1v9MHwVPZ0
Andrew Hostetler @hossandhoss
2 Followers 568 Following
Della Dufresne Mahone... @delladufresne
106 Followers 6K Following Healthcare nerd| Sales professional who provides value| Digital Detective| #Girlmom
Harpoon Brewery @harpoonbrewery
58K Followers 10K Following Official Twitter of Harpoon. Proudly Employee-Owned. Makers of New England’s Original IPA. A follow confirms you are 21+ in the US. #lovebeerlovelife
SPIRE Network @SPIREConcept
422 Followers 1K Following SPIRE-Severe neurological imPairment in IREland; examining prevalence, healthcare utilisation and parental experience. Supported by CHI Research & Innovation
Neurogene Inc. @NeurogeneInc
662 Followers 194 Following Neurogene is focused on developing life-changing genetic medicines for patients and their families affected by rare, devastating neurological diseases.
Jule @JuleTrude
0 Followers 58 Following
NAVID @rahmatallahpour
15 Followers 236 Following
Sensmart Ltd. @SensmartL
4 Followers 27 Following Sensmart revolutionises health-tech to tackle malnutrition, dehydration, emotional eating, extended hospital stays and food waste in healthcare.
Gillian Richards @jarplatterketo
5 Followers 53 Following Kitchen Alchemist. Intuitive recipe creator, creating gluten free, sugar free, keto goodness with alternative whole ingredients. Food is medicine ❤️
Kim Newlove VO @KimNewloveVO
470 Followers 2K Following 💊Pharmacist 📕Author 🎙️Narrator and Podcast Host
Niklas Grimm @NiklasGrimm824
84 Followers 137 Following PhD Student in Biomedicine @ Centre for Genomic Regulation / Massachusetts General Hospital. Light a candle, don't curse the darkness.
N@ViD @NQkushin
9 Followers 207 Following
Intellectual & Dev Di... @iddrc_bch
187 Followers 230 Following IDDRC accelerates cutting-edge research that focuses on the prevention, diagnosis and treatment of intellectual and developmental disabilities. #neuroscience
Special Needs Compani... @SpecialNeedsCo
159 Followers 298 Following Special Needs Companies, led by @AnnetteHines15, offers professional services for special needs families. We provide resources to families across America.
AllStripes @_allstripes
3K Followers 1K Following Our mission is to unlock new treatments for people affected by rare disease.🚀
Taysha Gene Therapies @TayshaGTx
776 Followers 159 Following Taysha Gene Therapies is focused on advancing AAV-based gene therapies for severe monogenic diseases of the central nervous system.
Cristina Gontan @GontanCristina
151 Followers 386 Following Assistant professor. Biologist studying XCI and X-linked neurodevelopmental disorders. @ErasmusMC
Rocky Mountain Rett @RMRETTORG
55 Followers 60 Following #RMRA provides support for Rett families in the Rocky Mountain Region. We maintain the Rett Clinic at #ChildrensColo and help make Rett History.
Katie Cronin @KC330824
6 Followers 62 Following
Ik, anders dan jij @andersdanjij
110 Followers 1K Following Petlover🐩🐈🐈, Chronisch Ziek, Gecompliceerd, CRPS, Autivrouw, Fibromyalgie, Bedlegerig, Doorzetter, Optimist, Creatief, Wijs, Positief, Christen, Blogger
Kyla kukler @kyla81787353
312 Followers 825 Following I'm 21 from Canada I have autism spectrum disorder that I love coffee and I have an undiagnosed chronic illness called CVS and I'm just really really struggling
Víctor Baez @95be76997cd9463
35 Followers 1K Following
Bonnie budd @BonnieBudd08
443 Followers 2K Following Princess Sabrina Book Series is based on the author/illustrators daughter. The series shows children of all abilities that no matter what - YOU are important!
Old Fellow @Psyker390
553 Followers 6K Following Urbanist. Market researcher. News addict. Policy enthusiast.
Claude B @Claudebee
3 Followers 33 Following
Carrie Weaver @cweaver05
7 Followers 156 Following
Komal Yasmin @Komal__Yasmin
194 Followers 461 Following P.doc @RuggGunnLab @BabrahamInst |Prev.@WellcomeTrust DPhil @Brockdorfflab @OxfordUni | Editor in chief Phenotype Oxford | Fellow @Newnham College | Cartoonist
Carlos Silva @CarlosS04765397
38 Followers 760 Following
Masshole Sports @MassholeTJ
57 Followers 275 Following Masshole with some hot takes, facts, and opinions about Boston sports! Pats, Bruins, Sox and Celtics!
JORTIZ-CDKL5-POR LA C... @ortiz_js
30 Followers 131 Following ESTOY RODEADO DE VUESTRO AMOR, TODOS SABEIS HACER QUE ME SIENTA ESPECIAL.
Gerard Saydah @GerardSaydah
96 Followers 833 Following
Jeannie Lee @XistHarvard
2K Followers 212 Following X chromosome inactivation, imprinting, non-coding RNA, repetitive elements, epigenetics, 3D genome 🧬; neurodevelopmental disorders and therapeutics
Georgia Wright @GeorgiaWright9
230 Followers 682 Following NCIS fan, mystery reader, mom to Suzanne who valiantly battles Rett Syndrome daily. I collect old time radio shows.
Julie Peden @rettpurple
49 Followers 137 Following
Grace For Rett Syndro... @GraceForRett
718 Followers 1K Following Grace has #rettsyndrome and a bad case of sass. Newly diagnosed? ⬇️ You can sit with us.
LAA group @GroupLaa
3 Followers 78 Following
Anna-Marissa Estep @mrsestepscience
220 Followers 330 Following Crazy science teacher, wife, and mother trying to make the world a better place one student at a time.
GeoffT @_GeoffT
4 Followers 121 Following
Christian McMahan @CMcMahan_
262 Followers 273 Following
CDKL5 Canada @CDKL5Cad
365 Followers 497 Following Registered Charitable Organization#821379930RR0001. CDKL5 Deficiency Disorder - Rare Genetic Epilepsy.
UMass Chan Medical Sc... @UMassChan
15K Followers 4K Following Official X home of UMass Chan Medical School: pioneering education, research and healthcare delivery. See how we are advancing medicine together.
Rett Syndroom NL @Rettsyndroom
514 Followers 137 Following De Nederlandse Rett Syndroom Vereniging is een patiëntenorganisatie die opkomt voor de belangen van mensen met Rett syndroom en hun gezinnen. https://t.co/PsU4atdzrl
AJ Tesler @ajtesler
1K Followers 956 Following Producing: Watch Smartless on HBOMax Directing: https://t.co/QBMe4lvgsx // https://t.co/BftOcoBJ7E // http:// https://t.co/0J29L05dxZ
Bonnie budd @BonnieBudd08
443 Followers 2K Following Princess Sabrina Book Series is based on the author/illustrators daughter. The series shows children of all abilities that no matter what - YOU are important!
Cure CDKL5 @CDKL5UK
1K Followers 2K Following Support to families living with CDKL5 UK Registered Charity 1207922 - Partnering Bristol Childrens Hospital in the first paediatric neurology RCDN-CDKL5
Cammy Can @Cammy_Can
803 Followers 351 Following Cammy Can is more than a 7 year old girl with Rett syndrome spreading awareness. I am an anti-bullying campaign and try to bring out the best in others.
Tobii Gaming @tobiigaming
51K Followers 814 Following Head & eye tracking for PC gamers. Unparalleled immersion in over 170 games, + epic features for content creators & pro gamers ➡️ https://t.co/7bzJgW2Enk
Tobii @TobiiTechnology
4K Followers 291 Following Welcome to the official Tobii Twitter account. The global leader in #eyetracking and pioneer of #attentioncomputing. Over 20 years of experience.
MrRogersQuotes @QuotesRogers
124 Followers 22 Following
Jeannie Lee @XistHarvard
2K Followers 212 Following X chromosome inactivation, imprinting, non-coding RNA, repetitive elements, epigenetics, 3D genome 🧬; neurodevelopmental disorders and therapeutics
Mary Engel @MaryKForrest
3K Followers 868 Following
Girls on the Run® @GOTRI
23K Followers 752 Following We inspire girls to be joyful, healthy and confident using a fun, experience-based curriculum which creatively integrates running.
Believe In Brynn @believeinbrynn
135 Followers 85 Following Brynn is an amazing 7 year old who battles Rett Syndrome daily and has made a significant impact on Rett awareness and funding since her diagnosis on 10/28/13
The Blue Bird Circle @TheBlueBirdHou
26 Followers 40 Following Houston based non-profit since 1923, supporting Pediatric Neurology
Midwest Rett @MidwestRett
3 Followers 0 Following
Sparkle Athletic @SparkleAthletic
11K Followers 7K Following Inspiring athletes to put the fun back in their run, while spreading the power of sparkle. Buy a skirt & join #teamsparkle. It's YOUR time to shine.
Racing For Rett @RacingForRett
180 Followers 168 Following Racing For Rett is a nonprofit raising awareness and funds to find a cure for Rett Syndrome.💜 Purchase a Wildcat mask and 100% of the profits will be donated!
Rocky Mountain Rett @RMRETTORG
55 Followers 60 Following #RMRA provides support for Rett families in the Rocky Mountain Region. We maintain the Rett Clinic at #ChildrensColo and help make Rett History.
A Happy Caregiver @ahappycaregiver
252 Followers 428 Following “You have two hands. One to help yourself, and one to help others.” ~Audrey Hepburn #familycaregiver #workingcaregiver #thejoyfuljuggle #caregiving #advocacy 💜
ORSA @OntarioRettSA
748 Followers 917 Following ORSA Canada is a volunteer, non-profit charity for parents, researchers and medial professionals. We advocate for all Canadians affected by Rett syndrome.
Rett University @RettUniversity
622 Followers 103 Following #RettUniversity is an educational services org providing e-learning, support & training for the #RettSyndrome community. See also @girlpower2cure + @rettgirl
Rett Syndrome✿✿GP... @girlpower2cure
2K Followers 747 Following #gp2c raises awareness & research funds for #RettSyndrome - head to the link below to get involved. Partners with: @rettuniversity & @rettgirl
Rett Dad @RettDad
1K Followers 1K Following In addition to teaching my daughter about the world, I am teaching the world about my daughter and others with Rett syndrome.
Rett UK @RettUK
3K Followers 596 Following Rett UK is a national charity dedicated to supporting and empowering people with Rett syndrome and their families #SupportTodayHopeForTomorrow [email protected]
RSRT @RSRT
2K Followers 300 Following The Rett Syndrome Research Trust: Our singular focus is a cure for Rett syndrome. DONATE: https://t.co/R06XhvrgBw









