LEMS Aware @BeLEMSaware
LEMS Aware provides patients and caregivers with the tools, information, and community support needed to navigate Lambert-Eaton myasthenic syndrome (LEMS). LEMSaware.com Joined June 2020-
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Tescha, a Lambert-Eaton myasthenic syndrome (LEMS) Patient Ambassador, discusses how she has navigated living with LEMS, but doesn't let that deter her from living her life: brnw.ch/21x4dzJ #LEMS #Patient
Listen as Desiree explains how she used her background as a nurse to turn her lived experience into meaningful involvement and leadership within the Lambert-Eaton myasthenic syndrome (LEMS) community: brnw.ch/21x45Vd #LEMS #Patient
Jena, a caregiver to her mother who is living with Lambert-Eaton myasthenic syndrome (LEMS), discusses the challenges of watching her mother go through this rare disease while also being a caregiver to her daughter. Listen to this episode of our podcast: brnw.ch/21x42hU
If your healthcare provider suspects Lambert-Eaton myasthenic syndrome (LEMS), they'll order some tests to get a clear diagnosis. There are generally three main ways they check for these kinds of neuromuscular issues. Learn more about LEMS: brnw.ch/21x3Uxg #LEMS #Care
Have you been diagnosed with Lambert-Eaton myasthenic syndrome (LEMS) and want an easier way to track your symptoms? This symptom‑tracking journal can help you stay on top of your health by capturing details you may forget over time: brnw.ch/21x3Qxw #LEMS #Care
Lambert-Eaton myasthenic syndrome (LEMS) might be something you have, but it is not all that you are. Check out how Jamie has redefined her life and is looking forward as she navigates life with #LEMS. Read our blog here: brnw.ch/21x3JHQ
In this episode of our #LEMSaware podcast, we talk to Connor, a young father to three, sharing a glimpse of what it's like raising a family and managing a full life after being diagnosed with Lambert‐Eaton myasthenic syndrome (LEMS): brnw.ch/21x3G7b #podcast #LEMS
Lambert-Eaton myasthenic syndrome (LEMS) symptoms may progress and affect muscles in other areas as well as the part of the nervous system that controls basic bodily functions. Learn more about how #LEMS may progress: lemsaware.com/what-to-expect….
Maria shares how living with Lambert-Eaton myasthenic syndrome (LEMS) means checking her strength each morning and leaning on her co-workers when she needs to navigate a bad day. Listen to more on this episode of our #LEMSaware podcast: brnw.ch/21x3uqh.
Healthcare providers are there to listen to your questions, hear your concerns, and guide you every step of the way. Find out how specialists deal with LEMS—and how the right care team can make all the difference. Talk to your doctor for more info: brnw.ch/21x3mlu. #LEMS
Greg, Jamie, & Mark are some of our Lambert-Eaton myasthenic syndrome (LEMS) ambassadors, & they all have advice on how to get through life living with #LEMS. Make sure you have a self-care plan, & always remember to take care of yourself. Take a look: brnw.ch/21x3iUv
When Kristen was diagnosed with #LEMS after marrying her husband Todd, the news came as a shock to them both. Together, they learned to navigate an unexpected new reality, face the strain it placed on their relationship, & discover a way forward. Watch:brnw.ch/21x3bBV
Living with a rare disease often means working with multiple healthcare providers—but managing your care team doesn’t have to feel overwhelming. Listen to Dr. Amit Sachdev's advice: brnw.ch/21x37iW. #LEMS #raredisease
June is MG Awareness Month, & @MyastheniaOrg is shining a light on this often‑overlooked autoimmune disease. Lambert-Eaton myasthenic syndrome (LEMS) can cause extreme fatigue & significant muscle weakness, & MG is often mistaken for it: brnw.ch/21x30n3
Jamie, who lives with Lambert-Eaton myasthenic syndrome (LEMS), believes that so much of this journey comes down to perspective. As she’s learned to navigate life with this condition, she’s discovered new strengths. Read more of Jamie's story: brnw.ch/21x2WbT.
Greg's life has changed being unable to work. One thing he has learned is to ask for help to prevent himself from just caring for everyone else's needs and putting himself second. Check out his story and his tips for living life with #LEMS here: brnw.ch/21x2PZu #blog
Emily, a mom living with Lambert‑Eaton myasthenic syndrome (#LEMS), kept careful notes about her symptoms, doctor's visits, and tests. Her story is a reminder: your voice matters, and advocating for yourself is always worthwhile: brnw.ch/21x2Jf3. #raredisease
Getting a #LEMS diagnosis doesn’t mean you have to put your life on hold. With the right care and some attention to smaller challenges, you can often move forward much like you did before. Be sure to talk with your doctor first and learn more: brnw.ch/21x2Bmq.
Rich, a former police dispatcher, shares his experience of being diagnosed with Lambert‑Eaton myasthenic syndrome (LEMS), and what it meant to finally receive treatment. Listen to Rich’s story and learn more about LEMS: brnw.ch/21x2wbb. #LEMS #raredisease
We recently attended the 2026 @MyastheniaOrg's National Patient Conference, introducing a new resource: a brochure featuring a word puzzle designed to reflect the many pieces that often need to come together to reach a LEMS diagnosis: brnw.ch/21x2qm5 #Advocacy
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