RareByDesign @RareByDesign
Creating awareness of inclusion, representation and living life positively for #PWD and #RareDiseases along with their families. Founded by @kegottsleben. linktr.ee/RareByDesign South Dakota, USA Joined March 2021-
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The Style Show: A Runway to Empower was such an honor to help plan + design. Rare by Design creates such a unique space to empower voices, bring awareness + encourage inclusivity within our community. Congratulations on an incredible 5th year!
Happy 35th Anniversary to the Americans with Disabilities Act!
Don’t miss your chance to see your film on the big screen at our beautiful downtown Sioux Falls State Theatre. 📷 Tap the link: filmfreeway.com/TheFilmFestiva… #TheFilmFestival #RBDTheFilmFestival #InclusionIsAlwaysIn
Thanks for the kind words, Claudia! 📷 Remember that submissions are OPEN! Tap the link to submit. filmfreeway.com/TheFilmFestiva… #TheFilmFestival #RBDTheFilmFestival #InclusionIsAlwaysIn #Disability #RareDisease #Films
Have you registered for our 4th annual Run, Walk & Roll event?! Join us on September 20, 2025, at Elmwood Park in Sioux Falls, SD. This is a great local 1-mile, 5k and 10k on the bike trail. Learn more here: runsignup.com/Race/SD/SiouxF… #SDCenterForDisabilities #HealthAndWellness
We are so grateful for @EventCompanySD!
The Style Show: A Runway to Empower 2025. What an incredible night of celebrating the rare that makes us all beautiful! Client: @rarebydesign Venue: Hilton Garden Inn DT Sioux Falls Photos: @pinstudiossf #MidwestEventPlanner #EventDesign #CharityEvent #FashionShow
We are so grateful for your support and assistance with this event each year.
The Style Show: A Runway to Empower 2025. What an incredible night of celebrating the rare that makes us all beautiful! Client: @rarebydesign Venue: Hilton Garden Inn DT Sioux Falls Photos: @pinstudiossf #MidwestEventPlanner #EventDesign #CharityEvent #FashionShow
[Video Description] 7 rare disease advocates talking about them being 1 in 10 and sharing the name of their rare disease.
2/2 Advancing lifesaving treatments & initiatives is vital! Average time to diagnose rare diseases is 4.8yrs & only about 5% of #RareDiseases have approved treatments. We'd love for you to join in recognizing #RareDiseaseDay on Feb. 28 by wearing stripes or rare disease colors.
1/2 Did you know that it is estimated that 1 in 10 people (30 million) in the United States have a rare disease? This year’s #RareDiseaseDay is more critical than ever to increasing awareness & research. youtu.be/yH5XFg-U3qk?si…
.@EveryLifeOrg Asks Advocates to Urge your Members of Congress to protect #RareDisease experts, funding, and stability of our nation’s biomedical research and public health agencies. It takes no time at all to do this. everylifefoundation.quorum.us/campaign/11029…
3/3 Grab your early bird pricing ticket(s) and other fun add-on items at thestyleshow.org. #InclusionIsAlwaysIn #RepresentationMatters #FashionForAll
2/3 Cara was born deaf. She has cochlear implants in both ears but she prefers her right one. Cara wants to see you cheering loudly for all the models on Sat., May 3! Let's see if you can accomplish this for her during the runway show by spending the evening with us.
1/3 Meet Cara McGary! You will see her as one of our models at #TheStyleShow on May 3! Cara is from Sioux Falls, South Dakota, and is currently a freshman at South Dakota State University (SDSU) studying nursing. She is also a cheerleader on the SDSU Cheerleading team.
We are excited to announce that tickets for #TheStyleShow at the Catlin (formerly known as Hilton Garden Inn DTSF) are now available for purchase. This year we have early-bird pricing. Prices will last until March 15! Snag your ticket(s) at thestyleshow.org
[Video Description] Photos of people with different disabilities in a TV studio in front of a green screen and sitting in studio.
Today we shot video footage for our Tradition of Caring commercial with @keloland! We had a wonderful time with the #Keloland crew as we filmed. Our team is incredibly excited to see the final product. #InclusionIsAlwaysIn #RepresentationMatters instagram.com/reel/DF886D4Mp…
#ModelMonday Let's meet our next model who will join us on our #TheStyleShow runway this May 3! Derek Smith lives in Sioux Falls, SD, and has a dog, Jaxon. He works at @joingreatlife Fitness and Performance Center and loves to... facebook.com/photo/?fbid=64… #InclusionIsAlwaysIn
Rare disease research is already underfunded. Cutting indirect costs only worsens the situation, jeopardizing the very science that leads to breakthroughs. How can we expect innovation when the basic support for it is stripped away? @doge #SaveScience #RareDiseaseTruth
#FashionFriday Let’s give it up for Terra Shepherd Boutique & Apothecary! Not only is our team excited to have them back in lineup for #TheStyleShow, but so are our models! Trendy & adaptable clothing is what we like to see. Can’t wait to have our models show off their clothing.
Everybody Wears @everybodyws
1 Followers 21 Following Fashion first people first. Communications major, disabled creator.
Alexander Campbell @Alexand02363572
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Derek Smith @DerekSm28545737
353 Followers 5K Following
605 Raffles @605Raffles
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PENNYJTHAPRIL2022♿ @pennyjth4
2K Followers 6K Following APRIL 1,2022 HI I HAD TO MAKE ANOTHER NEW ACCOUNT YOU KNOW MY OTHER TWITTER ACCOUNTS ,@PENNYJTH @PERNELLALEE85 AMONG OTHERS GOD BLESS
fredericaandrew @fredericaa64694
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Erna Dinata @ernadinata_ed
705 Followers 4K Following Department of Social Work, School of Health Sciences, University of South Dakota. Views expressed here are my own. Crescat Scientia Vita Excolatur. Veritas.
Amber Ryan @elainequil12882
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Andy Imparato @AndyDRC
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McDeaule @MDeaule26104
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ABLEnow @ABLEnowVA
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Michaela Davert @FunsizeStyle
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Equal Accessibility @EqualA11y
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Jon @JonU235
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Gillian Sapia RN @GillianHSapia
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Nanci Castelao @NanciCastelao
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Brittani @brittani4murray
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DominicHollaway @DominicHol42733
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Maude Assity @TheMaudeAssity
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Catherine Stratton, M... @cathsmstratton
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Psych PhD @nomoretired2023
491 Followers 1K Following at the crossroads between #RareDisease, #Healthcare, and what-the-f%$%
Billie Sutton Leaders... @SuttonLeaders
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Mary Bollock @MaryBollock
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Julie Marigliano @JulieMarig13
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BILLY Footwear @BillyFootwear
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Life warrior @JacintaFeehan
993 Followers 4K Following Hi❤#Journalist #Advocate #Socialissues #Inclusion #MentalHealth #InvisibleIllnesses #Empowerment #Positivity #Healing #Spirituality #Empath ❤🌻🌈💪🙌🙏😘❤
The Style Edge @TheStyle_Edge
22 Followers 292 Following Fashion Stylist-Helping You Look Fabulous When You May Not Feel Fabulous. 20 year Fashion Veteran. Too many surgeries to count. #chronicillness #injuries
Beth Steckler (she/he... @purplemamabear
6K Followers 6K Following Focused on improving healthcare for patients & caregivers & medical professionals. Patient advocate, patient engagement. Believes kindness CAN change the world.
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Addie Graham-Kramer @addiegraham
776 Followers 425 Following Event design & PR prof that builds dreams through events across the country. CEO of @EventCompanySD w/ HDQ in the 605.
myTomorrows @myTomorrows
2K Followers 3K Following myTomorrows is a platform that links physicians and their patients facing unmet medical needs to treatments in development worldwide
Bea Kali @BeaKali113
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Heather McCullen @H_SalemOaks
740 Followers 1K Following I no longer use this account. Please follow me on Bluesky instead. https://t.co/Gu6EGFYt0z
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49 Followers 242 Following Anti-mag/CIDP, VVS, FND. The lines blur. Making memories while 'icing the cake'
Indigo @LadyIndigo1337
28 Followers 408 Following 32 homeless transwoman pansexual poly, trans model, shameless. sex worker, verified Pornhub amateur. I need help with my transitioning pls DM me to help
Sanford Research @SanfordResearch
857 Followers 359 Following Innovating healthcare through cutting edge science
Neena Nizar @NeenaNizar
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CTNNB1 Connect & Cure @ctnnb1cc
239 Followers 425 Following Connecting families, raising awareness, finding treatments and a cure for CTNNB1 Syndrome 🧬💛💙 https://t.co/dZAf1GmhAJ
WW 💙 ♿️ 💙 @WelchWonderland
147 Followers 1K Following 💙💙 Advocate for Disability Rights, Diversity & Inclusion for All. (She/Her/Hers) 💙💙 …. Unsolicited 🚫 DM’s 🚫
Ellen Buck-McFadyen, ... @BuckMcfadyen
77 Followers 235 Following Nursing professor at Trent University, co-founder of The Isaac Foundation, wife, and mom to two amazing boys.
Lemonly @lemonly
3K Followers 569 Following Home of the world’s best infographics. 🍋 We make sweet visual content for the world’s best brands.
Samantha Smith @Samanth56615336
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UKBabyBits @UKBabyBits
8 Followers 103 Following 100% Free Online Classifieds Helping parents-in-need to share, donated, buy & sell baby and toddler items. We also re-tweet useful posts by our followers
Anna Laurent @lilannalaurent
495 Followers 389 Following she/her | Social Worker | Alagille Syndrome (ALGS) | Trauma-informed sarcasm | Advocate | Opinions are my own
traci Anne Bliss hump... @TraciABH
264 Followers 699 Following She/her. chaplain. mba & seminary grad. mom&wife. Recovering codependent. Feminist. Pentecostal. Affirming. Anti racist in training. on the days that I believe
SD CEO East Women's B... @SDCEOEast
69 Followers 29 Following Empowering women and propelling economic development.
Becoming rentABLE @BRentable
119 Followers 150 Following Can't find an accessible short-term rental? We are changing that! #accessible
The Harkin Institute @HarkinAtDrake
2K Followers 1K Following Official home of The Harkin Institute for Public Policy & Citizen Engagement at Drake University and the Tom Harkin Papers at the Drake University.
Paralympic Games @Paralympics
291K Followers 3K Following #Paralympics - the home of the Paralympic Movement. ❤️💙💚
Andy Imparato @AndyDRC
23K Followers 24K Following CEO @DisabilityCA, @HPRScholars advisor, Harkinista, Sacramentan, my tweets are my own. He, him, his.
The Dakota Scout @TheDakotaScout
4K Followers 178 Following South Dakota's leading alternative, independent and locally-owned newspaper covering all things Sioux Falls and South Dakota politics.
KultureCity ® @Kulturecity
1K Followers 172 Following The worlds leading nonprofit in sensory accessibility and acceptance of those with invisible disabilities. Find us in 1800+ venues + events worldwide🗺️
Andrew McFadyen @isaacfoundation
966 Followers 1K Following Executive Director. Member NYU @CUPAEthics and NYU PGTME. GE2P2 Independent Bioethics Advisory Committee. MHSc Candidate, UofT.
Equal Accessibility @EqualA11y
13 Followers 16 Following Disabled-Owned - Consulting company dedicated to helping businesses create equal experiences for ALL individuals.
ArtsSiouxFalls @ArtsSiouxFalls
1K Followers 145 Following Raising the Greater Sioux Falls area to new heights in prosperity, vitality and quality of life through the arts.
Addie Graham-Kramer @addiegraham
776 Followers 425 Following Event design & PR prof that builds dreams through events across the country. CEO of @EventCompanySD w/ HDQ in the 605.
Effie Parks @OnceUponAGene
7K Followers 4K Following Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Ultragenyx @ultragenyx
850 Followers 39 Following At Ultragenyx, our vision is to lead the future of rare disease medicine. Community Guidelines at: https://t.co/SmbtrpYkpS
Maayan Ziv @maayanziv
9K Followers 2K Following Founder of @AccessNowApp. Disability Activist. Canada’s Top 40 under 40.
Judy Heumann Legacy @judithheumann
33K Followers 1K Following In memory of Judy Heumann, “the mother” of the Disability Rights Movement (1947-2023)
Ashley BallouBonnema @BreatheBravely
216 Followers 160 Following Seeker of adventure, musician, Cystic Fibrosis fighter, lover of life, writer, and truly grateful for each beautiful relationship, opportunity, and breath.
Tilting the Lens @TiltingTheLens
793 Followers 4 Following Educate, Advocate, Design. A new accessibility consultancy founded by @thesineadburke
Megan Raposa @mlraposa
3K Followers 2K Following Founder of @sfsimplified in Sioux Falls, S.D., tweets are primarily about local news, coffee and my kid. Formerly: @argusleader.
Michael Kutcher @mkutch
13K Followers 5K Following Keynote Speaker+Life Thinker—Disability & Organ Donation Advocate.
Emily Ladau @emily_ladau
26K Followers 833 Following I live life on wheels. ♿️ Peacocks = aesthetic. 🦚 Author, Demystifying Disability. 📖
Tiffany Yu (she/her) @ImTiffanyYu
7K Followers 2K Following OUT NOW #AntiAbleistBook (Hachette Go, 2024) • CEO @diversability • Creator, #AntiAbleism Series • 💸 @awesome_dis • Ex-@GoldmanSachs @Georgetown
Ellen Buck-McFadyen, ... @BuckMcfadyen
77 Followers 235 Following Nursing professor at Trent University, co-founder of The Isaac Foundation, wife, and mom to two amazing boys.
Affect @AffectTheVerb
2K Followers 226 Following Creating resources to amplify multiply-marginalized folx and embody disability justice. Main program: #DisabledAndHere
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2K Followers 842 Following We’re a non-profit that makes style accessible to people of all abilities. ♦️ Created: HackAbility ToolKit ♦️ Read our monthly research journals 👇
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Target @Target
1.9M Followers 2K Following When you go to Target for 280 characters or less... Have a question? @AskTarget
SculptureWalk @sculpturewalk1
131 Followers 2 Following SculptureWalk is the largest annual exhibit of public sculptures in the USA
[email protected] @FsrmSdsu
5 Followers 2 Following Prominent Fashion Program at a traditional university.
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310 Followers 138 Following This is GAMUT Management, the premier consulting and talent management company working exclusively with and for people with disabilities (PWDs).
EveryLife Foundation @EveryLifeOrg
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Alex Watters @alexjwatters
2K Followers 896 Following City Councilmember📍Sioux City, IA ♿️ Retweets ≠ endorsements & tweets are my own. He/Him
BILLY Footwear @BillyFootwear
4K Followers 21 Following We make shoes that fit for everyone. Step In!
Rare Advocacy Movemen... @RareAdvocacy
3K Followers 1K Following Network of people with #RareDisease #LivedExperiences dedicated to evolving the #LivingRare experience into opportunities for the global community to thrive.
Alice Wong @DisVisibility
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