UHB CF Physios @CF_physios
Providing physiotherapy information and advice for adults with Cystic Fibrosis. Our tweets do not replace the specific advice from your own physiotherapist. heartlandscf.org West Midlands Adult Cystic Fibrosis Centre Joined August 2017-
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Followers471
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Following228
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Likes2K
It's a goodbye to X, for now, from the West Midlands Adult CF Physio team. Please do stay in touch via our website heartlandscf.org
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UHB CF Physios retweeted
We have updated our website today to provide the latest information about Creon availability, and what to do if you are experiencing difficulties in accessing the medications. (1/3) ➡️ ow.ly/saKP50RI1zi
UHB CF Physios retweeted
Hot off the press! We have just released the agenda for our meeting to launch the new Standards of Care for people living with #NTM disease. To take a look and to register to attend this free meeting, please visit: ntmnetworkuk.com/standards-of-c… @UCLTB @NHSEngland @BTSrespiratory
UHB CF Physios retweeted
Publication Alert!📢🚨😀This commentary discusses a RCT that we failed to recruit to.bit.ly/3xb4NrQ "Why publish something that didn't work?!" some may ask. "Why hide it?", I say. We learn many lessons along the way, and these papers help the whole academic community.
UHB CF Physios retweeted
Have you checked out our online resources on physiotherapy recently? 🫁 This leaflet talks about physiotherapy and airway clearance with diagrams explaining how CF affects the lungs and information on the different types of airway clearance. ➡️ ow.ly/1bxz50R3mAl
UHB CF Physios retweeted
Lung MRI has the potential to help in cystic fibrosis care but we need your help in understanding how this might work. Please complete our survey and share your views: forms.office.com/e/zvqaUWT4ZF #MRI #CysticFibrosis
UHB CF Physios retweeted
👋 Hi everyone, I'm Catherine Brown, the new ACPCF Public Relations Officer. I wanted to take the opportunity to introduce myself, ask about you, and ask if there is anything you'd like to see on here :) Please comment below👀⬇️ #ACPCF #CFPHYSIO #CFTRUST #CYSTICFIBROSIS
UHB CF Physios retweeted
Please participate in this online focus group ✅work in UK Adult CF Centre ✅dietitian, physio, CNS or Dr ✅ opportunity to share your views on weight management and CF @bda_cf @CF_Exercise @CF_physios @cftrust Sign up to take part here heartlandscf.org/research
@warnock_loopy67 @OUHospitals @tracybarnett67 @AliGates8 @alice_palace86 @PhysioJayne @JoeyHobbs6 What wonderful work! Keep sharing :)
UHB CF Physios retweeted
Beam #cysticfibrosis youth, developed in collaboration with Johns Hopkins CF center and @YogaForCF is FREE all summer long! Please spread the word and help CF families from around the world benefit from this awesome resource. Read more here beamfeelgood.com/blogs/beam-cf-…
UHB CF Physios retweeted
Today we are thrilled to announce a multi-year co-funding grant with @CFCanada looking into the bacteria Mycobacterium abscessus that causes serious lung infections in people with CF. You can find out more about this exciting research on our website! ➡️ ow.ly/fX0V50OSATj
UHB CF Physios retweeted
Great to see everyone back in Birmingham for the ACPCF study days! We didn’t let the snow put us off ❄️☃️@acpcf
@LisaMorr1992 @NHSGGCsouthAHP @gemmamccrea2812 @PamelaS_Beam Well done Lisa and team👏🙌
UHB CF Physios retweeted
🎆Happy New Year! 💛We hope you all had a lovely one! We wanted to highlight a great #CFliveevent that our Dietitian Katie is involved in! 💵Eating on a budget might be on your mind this new year so register below on come and see what tips/advice you can get!
Hear from professional chef Luke & others at our next #CFLive event, #Eatingonabudget on 10th Jan. ⭐"I’m looking forward to this CF Live and teaching people how to be thrifty when shopping, what to buy + when, & sharing some cooking tips and advice".⭐ ow.ly/SYg650M8kjZ
UHB CF Physios retweeted
@acpcf @acpcfR @TheACPRC @ECFSPhySIG @CF_physios @AliGates8 @GemStanf @JanetMPhysio @hldouglas can you support & highlight this work. @milliephysio is continuing the fantastic work presented by @orla_physio @ECFSConference last year.
📢Are you a qualified physiotherapist who works regularly with patients with Cystic Fibrosis interested in the effects of Kaftrio on physiotherapy treatment?? 👋We would like to invite you to take part in a focus group to discuss your experiences. ⁉️ Scan the QR code for more.
UHB CF Physios retweeted
🎄 #CFElfOnTheShelf want's his height checked today 🤦Somethings not right! 🧦 When we check your's remember to take your shoes and hats off - why not take us giggle with silly socks this December! @bda_cf @cftrust @cftrustYouth @CFAware @CF_physios #CF #CysticFirbrosis
UHB CF Physios retweeted
🎄It is almost December and we have a special guest joining us to take over our twitter for the month! 👀Keep your eye peeled this week to see who it is! @CFAware @bda_cf @CF_physios @CFLeeds @cfadultsni @cf_newcastle @adult_cf @yorkhullcf @AdultCystic @TeessideCF @ChildrensUnit
@CfphysioInc Wonderful :) It looks amazing, Congratulations all! Catherine
CFPhysio 4 Kids is now live. This educational resource aims to empower, inform, and support you whilst navigating the CF journey. Thank you CFT for support through a Circle of Care grant to help make this next phase of CFPhysio.com happen. cfphysio.com
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
UHB CF Dietitians @CF_dietitians
715 Followers 249 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Tracey Daniels @thecfphysio
2K Followers 2K Following Clinical Lead @YorkHullCF • @YorkStJohn @YSTeachingNHS Research Fellow • CI @NEEMOcf • Clinical Lead Innovation @hnypartnership • Trustee @ChildHealthInt1
Ali Gates @AliGates8
387 Followers 344 Following Physiotherapist, Oxford Adult Cystic Fibrosis Centre and non-CF bronchiectasis. Interested in ACT, NIV, inhaled therapies and all things that come in a glass.
Dr Sophie Dawson @sophie_doph
1K Followers 2K Following Health Psychologist & Programme Manager working in severe asthma at @SheffieldHosp. Views my own.
Gemma Stanford (PhD) @GemStanf
628 Followers 351 Following Head of AHP Research for the HLCC clinical group of GSTT, YOGA-CF co-PI, specialist CF physiotherapist. Current chair of the ECFS PhySIIG. All views my own.
CF inpatient unit -Pe... @PearceWardMFT
731 Followers 473 Following Manchester's Adult Cystic Fibrosis Inpatient unit - now back home on Pearce ward from Spire Manchester as of April 21 ✨🏠
Question CF @questionCF
1K Followers 2K Following 2017 we found the 10 most important questions you thought should be answered by clinical trials in CF. We’re looking again.
CFHealthHub @cfhealthhub
719 Followers 704 Following Digital behaviour change & learning health system to support people with #cysticfibrosis to build habits for treatment-taking. Views of the authors only.
Beam for Cystic Fibro... @Beam_CF
1K Followers 618 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
York Hull Adult CF Ce... @yorkhullcf
400 Followers 303 Following Specialist Cystic Fibrosis centre covering the York and Hull region. Enthusiastic about excellent local care.
Prof. Joy Conway @southcoastjoy
2K Followers 5K Following Prof. Resp Sciences @BrunelUni @BrunelSTAHR | research | smart tech & health | lungs | imaging. Research and ACP. Ed @ijapractice. Gov @healthsciuni
Dr Owen Tomlinson @TomlinsonOwen
961 Followers 1K Following Lecturer & Programme Director @ExeterMed. 1/2 of @CF_Exercise. Exercise & activity expert in #respiratory disease. Cardiopulmonary exercise testing enthusiast.
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOw9N6c
Alison Armstrong @AlisonArmstron
2K Followers 1K Following Nurse Consultant in a regional ventilation service. Passionate about promoting independence and assuring good life quality in this complex patient group.
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Pamela Scarborough @PamelaS_Beam
988 Followers 978 Following Digital health. Physiotherapist & Yoga teacher. Cofounder @beam_cf @kidneybeam_ Delivery Lead for the @heartfoundation walking website. Research @yogacfresearch
Lucy Wadsworth @lucyewadsworth
498 Followers 638 Following Clinical Specialist CF Physiotherapist at the Manchester Adult CF Centre; Gryffindor 🦁; Views are my own
abi halstead @abihalstead
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💙Fiona Moore💙 @fionamooreRD
740 Followers 989 Following Lecturer in Dietetics at GCU, Dietitian, MSc Advanced practice. Supplementary prescriber. BDA Cystic Fibrosis specialist group, ordinary member ECFNG Own views
Angela Holden @Angela__Holden
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BHP Clinical Academic... @BHPClinAc
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Rachael Thornton @Rachael_M_T
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NTM Network UK @NTMNetworkUK
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meghan @meggiee2003xx
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_laurenclayton_ @laurenclayton__
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Louise Warnock @warnock_loopy67
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Gayle Pledger @gayle_pledger
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Uni of Hull: MSc in N... @NDHullUni
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heidi sammons 🌹 @heidisammons
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Alexandra M @AlexandraM_PT
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CFComfortFundBristol @cfcf_bristol
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Cystic Fibrosis Nursi... @BWCCFNurses
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Millie McMurray @milliephysio
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bosskb @bosskb1
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Nicola Rowbotham @nicrowbotham
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Medibanx @Medibanx
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Elizabeth Julian @thegunseller
379 Followers 909 Following Loves a cup of tea (views, own, etc). NB Twitter handle references Hugh Laurie and not actual arms dealing.
Ian Culligan @Ian_Culligan
109 Followers 342 Following Work-life balancing Dad. Former physiotherapist, now Head of Health and Environment at BUPA.
ERN-LUNG @ErnLung
1K Followers 1K Following
fiozy @fiozy1
78 Followers 406 Following Chartered Society Of Physiotherapy. Love being a Respiratory Physio and mum of 3 boys
Center For Latino Pat... @LatinoswithCF
155 Followers 185 Following Our mission is to improve the health and quality of life for Latino patients with Cystic Fibrosis through research, education, advocacy, & patient engagement.
Fernando Rosales @FRosales703
123 Followers 596 Following Son of God, Autism Dad, Husband, IronMan 70.3 x 3, Runner junkie, cyclist & Entrepreneur + Chef in process!!! #keepbreathing
Zelmarie @ZZelmarie
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Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
UHB CF Dietitians @CF_dietitians
715 Followers 249 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Rachael Moses @NHSRachaelM
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Tracey Daniels @thecfphysio
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Ali Gates @AliGates8
387 Followers 344 Following Physiotherapist, Oxford Adult Cystic Fibrosis Centre and non-CF bronchiectasis. Interested in ACT, NIV, inhaled therapies and all things that come in a glass.
Gemma Stanford (PhD) @GemStanf
628 Followers 351 Following Head of AHP Research for the HLCC clinical group of GSTT, YOGA-CF co-PI, specialist CF physiotherapist. Current chair of the ECFS PhySIIG. All views my own.
CF inpatient unit -Pe... @PearceWardMFT
731 Followers 473 Following Manchester's Adult Cystic Fibrosis Inpatient unit - now back home on Pearce ward from Spire Manchester as of April 21 ✨🏠
Question CF @questionCF
1K Followers 2K Following 2017 we found the 10 most important questions you thought should be answered by clinical trials in CF. We’re looking again.
CFHealthHub @cfhealthhub
719 Followers 704 Following Digital behaviour change & learning health system to support people with #cysticfibrosis to build habits for treatment-taking. Views of the authors only.
Beam for Cystic Fibro... @Beam_CF
1K Followers 618 Following Movement to feel good 🙂 Online sessions for both children and adults, led by people with or working in cystic fibrosis. Join our global community #beamfeelgood
York Hull Adult CF Ce... @yorkhullcf
400 Followers 303 Following Specialist Cystic Fibrosis centre covering the York and Hull region. Enthusiastic about excellent local care.
Cystic Fibrosis Found... @CF_Foundation
30K Followers 2K Following Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Alexandra Hough @HoughAlexandra
665 Followers 138 Following Politics geek, respiratory physio, author of 'Hough's Cardiorespiratory Care', gardener, dog-lover and Greenie.
Prof. Joy Conway @southcoastjoy
2K Followers 5K Following Prof. Resp Sciences @BrunelUni @BrunelSTAHR | research | smart tech & health | lungs | imaging. Research and ACP. Ed @ijapractice. Gov @healthsciuni
Dr Owen Tomlinson @TomlinsonOwen
961 Followers 1K Following Lecturer & Programme Director @ExeterMed. 1/2 of @CF_Exercise. Exercise & activity expert in #respiratory disease. Cardiopulmonary exercise testing enthusiast.
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
Pamela Scarborough @PamelaS_Beam
988 Followers 978 Following Digital health. Physiotherapist & Yoga teacher. Cofounder @beam_cf @kidneybeam_ Delivery Lead for the @heartfoundation walking website. Research @yogacfresearch
Lucy Wadsworth @lucyewadsworth
498 Followers 638 Following Clinical Specialist CF Physiotherapist at the Manchester Adult CF Centre; Gryffindor 🦁; Views are my own
CF News Today @CFNewsToday
5K Followers 2K Following Your source for cystic fibrosis news, support, & real stories from the community. Let’s raise CF awareness together!🎗️
💙Fiona Moore💙 @fionamooreRD
740 Followers 989 Following Lecturer in Dietetics at GCU, Dietitian, MSc Advanced practice. Supplementary prescriber. BDA Cystic Fibrosis specialist group, ordinary member ECFNG Own views
European Cystic Fibro... @ecfs_ecfng
309 Followers 237 Following European Dietitians working with people with cystic fibrosis to support optimum nutrition and improve clinical outcomes
BRSAS @BRSAS1
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Gayle Pledger @gayle_pledger
573 Followers 624 Following 🫁 CF mum 🌍 Global campaigner 💊Trikafta4all 🏆’Big Issue’ Changemaker 2025. Founder@VertexSaveUs, ‘Right to Breathe,’ working@JustTreatment. Views my own.
CF STORM @cfstormstudy
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Center For Latino Pat... @LatinoswithCF
155 Followers 185 Following Our mission is to improve the health and quality of life for Latino patients with Cystic Fibrosis through research, education, advocacy, & patient engagement.
The Physiotherapy Ben... @PhysioBF
104 Followers 14 Following The mission of the PBF is to help those past and present members of the Chartered Society of Physiotherapy who are experiencing hardship and distress.
Brenda Morrow @brendam1611
1K Followers 732 Following Mother; #PedsICU; #CF; paediatric 🫁physiotherapist; @WFPICCS past President; SAE @PedCritCareMed; EiC @SAJCritCare; @crit_sa President; dog agilitier 🇿🇦
Thomas kent @kent1_10
616 Followers 476 Following Devon 📍 …normally tweeting about football ⚽️ #pafc
Wendy 🍵 @wendy_foo_
700 Followers 2K Following #CysticFibrosisOT and Mental Health First Aider. Yuanyang tea lover. All views my own. She/ hers. 🇸🇬 lost in 🐝Mcr
Jocelyn J. Fitzgerald... @jjfitzgeraldMD
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NEEMO @NEEMOcf
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Heartlands Cystic Fib... @heartlandscf
9 Followers 0 Following
Jo Whitehouse @JoWhitehouse9
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CFPhysio.com Inc @CfphysioInc
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Harriet Shannon @HarrietShannon
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Prof. Christina Pagel... @chrischirp
174K Followers 896 Following Prof Operational Research @UCL_CORU, . Member of @independentsage. only posting now at chrischirp at bluesky. https://t.co/nNW5zMenx2
John Hurst @ProfHurst
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Laura Hemmings @laurahemmingsPT
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The Respiratory ACP N... @RespiratoryACPs
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CSP BAME Network @cspbame
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Jane Bell @JaneB3ll
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nicola @CFmskphysio
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Janet Mitchell @JanetMPhysio
359 Followers 442 Following Physiotherapy Lead for Cystic Fibrosis in Manchester 🤗 Views are my own
Jodie 🌻 @JodiieLouiise_x
802 Followers 674 Following 32 years old ♥ #TheScript🍀❤️#Southbank #WWFC 🐺 #cysticfibrosis
Lisa Bashford @bashford_lisa
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Max Thomas @maximum_science
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Chris McSweeney @skybluecj
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Gurjit Chinji @Gurj_Chinji
22 Followers 62 Following
Sue Hughes @Susiedonny57
69 Followers 717 Following
Iain T - Inclusive Tr... @IainInclusivePT
35 Followers 85 Following I focus on working with people with health conditions, disabilities and no exercise background.
Heather Clements-Whee... @HC_Trainer
198 Followers 419 Following Loving my online working lifestyle. Married to my best friend. Lucky that CF has let me live the life I want (for part of the time at least!) She/her
Lorna Allen @alloonsl
789 Followers 1K Following Cystic Fibrosis mum, raising awareness of ongoing critical resesrch need to safeguard the lives of those with the condition IT'S NOT JUST LUNGS;Views are my own
Jessica Jones @jaffa_girl
436 Followers 2K Following Policy wonk: rare disease & transplantation. Patient advocate. Health inequality, politics & opinions. Views largely those of my dog, not my employer.
RecedingChimp @RecedingChimp
56 Followers 67 Following Hello there, Chimp here, Cystic Fibrosis sufferer from The Midlands. Just a bald, bearded bloke who loves to game and have laughs.
Clare Reilly @clarecmr100
311 Followers 661 Following CS Physio National CF unit SVUH. Therapy lead on the NCPCF. Education officer for @ECFSPhySIG Mum of 2 crazies. DSO Viola player 4 fun. Proud Nordie.
Fiona M. King @FionaMKing1
40 Followers 222 Following Allergy mum. Cystic Fibrosis Specialist Nurse. All views my own except retweets
Jess Meredith🐾 @jessicameredi16
2K Followers 3K Following Organ Donation | Sister of liver transplant recipient | We won the campaign for CF meds! | HMO Action Group | Animal rights | Adopt don't shop | Civil Engineer
Catherine Meredith @873Meredith
2K Followers 4K Following Organ Donation. CF. CKD. NHS. Population. Environment. Animal Welfare. Plant based. Ban Intensive Farming, Fur, Foie Gras.
Charlotte Hardaker @CharlieHardaker
743 Followers 797 Following Ventilation & Respiratory Physiotherapist. Interests: NIV, NMP, tracheotomies, cough augmentation & all things respiratory 🩺 she/her
Laura Kinsey @laurakinseyRD
424 Followers 1K Following Lead Dietitian for Cystic Fibrosis. NIHR ARC-GM Pre-doc fellow. Passionate about Dietetics, Cystic Fibrosis Gastroenterology and research. Views are my own.
Emma Raywood, PhD @Fizzy_Emma
587 Followers 721 Following (she/her) 🫁 Respiratory Physiologist (paediatrics) 👩🏻💻 Senior Digital Coach @NuvoAir 👩🏻🎓 PhD in Digital Health @FizzyoCF @UCLchildhealth
Ciara O'Connor @OKiki82
166 Followers 371 Following Senior Physiotherapist working in adult Cystic Fibrosis. Views are my own.
Enya Daynes @EnyaDaynesPT
2K Followers 3K Following Clinical Academic Physiotherapist Leicester BRC. Interest in dyspnoea & PR. Chair: BTS PR specialist advisory group & @CAHPR_EM_hub. Quality lead for PRSAS.Trends for United States
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