CyFi Life @CyFi_Life
Improving the lives of people with Cystic Fibrosis. CyFiLife.com Joined February 2016-
Tweets121
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Followers685
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Following1K
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Likes57
CyFi Life retweeted
If you’re going through PIP, then this is where you should start! Get advice from a professional, and I highly recommend the lovely Sangeeta from the @cftrust I wouldn’t have been successful if it wasn’t for her advice! ☺️
CyFi Life retweeted
In honor of #CFAwarenessMonth and #GiveBIG, on May 8th CF Yogi is holding an OPEN HOUSE in our online yoga studio! Join us for a FREE livestreamed yoga class open to the public, and learn about how yoga can help those with CF! Sign up at zoom.us/meeting/regist…
#MotivationMonday Sport Therapist and long distance runner @Evan_STC talks to us about CF and how diet, exercise and traditional Chinese medicine have helped him. #cf #cysticfibrosis @CFAware cyfilife.com/2019/02/12/eva…
New Yorker @TeenaMM12 discusses how exercise, diet and support networks allow her to compete as a high level athlete despite having CF. @CFAware cyfilife.com/2019/01/04/tee…
Aussie CFer Doug Porter gives advice on a range of subjects, such as adapting his career to fit in with increased healthcare demands, exercise, diet and how he balances enjoying life with looking after his health. #TipTuesday #cf @CFAustralia cyfilife.com/2016/09/23/dou…
Bodybuilding CFer Joe Tonge gives advice on his diet and fitness regime #bodybuilding #muscle @CFAware cyfilife.com/2016/06/21/joe…
#MondayMotivation An in depth chat with CFer Dr Jon King, including topics such as becoming a doctor, being on the transplant list, goal setting and cycling. @CFAware cyfilife.com/2016/03/09/dr-…
Sage advice from @_nxjx_ on the importance of looking after your mental health, especially for those of us with a chronic illness.
#WisdomWednesday with @timwotton , author of 'How Have I Cheated Death', his must read book on reaching the big 4-0 with CF. @CFAware cyfilife.com/2016/11/22/tim…
It takes a lot of hard work for anyone to become an athlete. It's even harder for someone with CF. @TeenaMM12 discusses how she overcomes her condition to compete with the best. #MotivationMonday @cf_foundation cyfilife.com/2019/01/04/tee…
Teenage CFer Jago Hartland talks keeping fit, collapsed lungs, diet and having siblings with CF. @CFAware cyfilife.com/2016/05/28/jag…
CyFi Life retweeted
And here it is, the moment you’ve all been waiting for! The final survey of #questioncf phase II surveymonkey.co.uk/r/Motivation-tw please complete and then retweet. Thank you!
#ThrowbackThursday - Our very first CyFi Life interview with the brilliant @_nataliejohanna which focused on diet and keeping fit with CF. @CFAware cyfilife.com/2016/03/01/nat…
@Yoga4CF Interesting question. I personally would like it, especially if I’m in hospital. I find it important to get reminders of positive things beyond the 4 walls of the room. I can understand why some people might not though if it makes them feel like they’re missing out.
#MondayMotivaton Marathon running CFer @Evan_STC discusses diet, fitness and life with CF. @cf_ireland cyfilife.com/2019/02/12/eva…
CyFi Life retweeted
RTE's Dancing with the Stars judge Julian Benson won't give up role despite cystic fibrosis battle - Irish Mirror Online irishmirror.ie/showbiz/irish-…
#FridayFun - advice from @JoeDexter on how he's making the most of life as as rock star despite having CF. @CFAware cyfilife.com/2016/06/12/joe…
Great article on a topic that a lot of adults with chronic illness can relate to.
How Does Cystic Fibrosis Affect Our Fear of Failure? ift.tt/2tUbhY1
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Chris Riches @ChrisMRiches
1K Followers 760 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2019 British Press Awards🏆& 2020 British Journalism Awards Campaign Journalist of the Year 🏆. ❤️Spurs
cf/Aware @CFAware
12K Followers 9K Following All about Cystic Fibrosis. Always refer to your team for specialist advice. Oh and we don't always agree with RTs.
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
Colin DePriest @KickerColin99
110 Followers 422 Following 4 1/2⭐️kicker #40🇺🇸 & punter #89🇺🇸I Class of 2027 | Trinity Christian School - Sharpsburg, GA (3A/3 x All-Region) (205lb 6’ 1”) 3.75GPA 📚 (678)-890-6729
Morgan Parker @MorganP55639033
74 Followers 234 Following
Robert Sandler @RobertDSandler
86 Followers 229 Following PhD student at Uni of Sheffield (ScHARR). Research in Learning Health Systems and Cystic Fibrosis.
Wishes & Dreams for C... @Wishes4CF
11 Followers 27 Following Wishes and Dreams for Cystic Fibrosis is comprised of CF families with the mission of raising awareness and funds for The Cystic Fibrosis Foundation🌹🖤
Andrew R Surguy Jr @SurguyJr
96 Followers 241 Following If I had time, I would play golf, Go fishing, Read a book
heidi sammons 🌹 @heidisammons
2K Followers 6K Following Proud mama & Salty Bitch with Cystic Fibrosis CU-alum 1992 LET’S GO BUFFS #65Roses
French Will @RealFrenchWill
247 Followers 464 Following CleanTech advocate, dad of 2 incl. #CFWarrior. Born 343ppm. Care about decarbonising energy, beating #CF, running, EVs.
Tamara de Waal-M💉�... @Heppygirl86
706 Followers 1K Following Donorvoorlichter - Longgetransplanteerd❤️ - ADDtje - Voice-over - Muziek - Bakken - Hugo 💙 - 16-06-2012 💍
miloud.abdelmalek @malek_miloud
33 Followers 374 Following
NICHOLA @nichrey35
139 Followers 1K Following Cf Mum 2 the most amazing little 6 year old. mum 2 a furry old girl, aquarian, borderline nutter, wine drinker. keen cyclist & organic farmer 🌷
Fernando Rosales @FRosales703
123 Followers 596 Following Son of God, Autism Dad, Husband, IronMan 70.3 x 3, Runner junkie, cyclist & Entrepreneur + Chef in process!!! #keepbreathing
Stacey Stein @smmstein39
242 Followers 3K Following To know You is to Love 💕 You. Mother, wife- and everything else that comes with life as a Woman ♌️ 🦁
RBJonah @jonah_rb
40 Followers 825 Following
Nana Tosic @TosicNana
4 Followers 45 Following
Joanne Williams @boltingforBen
247 Followers 888 Following Awesomeness ambassador. CF fighters advocate. Beer aficionado. Richmond Tigers tragic.🐯
A. Roberts 📸 @hippylovephotos
258 Followers 407 Following 'Cuse🍊✖️est.2013 ✖️Published Photographer 📚 ✖️CF🫁
Project CF Spouse @ProjectCFSpouse
108 Followers 249 Following Are you the spouse or partner of someone with cystic fibrosis? Have you been looking to connect with other CF spouses and partners? Well, look no further!!
James D @jam_esJD
163 Followers 2K Following Capital markets | global security | Macro | Music | CF brother 'X' is not a free speech platform
The Cffb @TheCFFB
150 Followers 295 Following The Cystic Fibrosis Foundation of Barbados is dedicated to building awareness and assisting those persons living with CF in Barbados
Ali's Gift @Alis_Gift
134 Followers 180 Following We work to remove the unique challenges people with Cystic Fibrosis face so that CF is never the reason they miss out on travelling, study, whatever they want!
York Hull Adult CF Ce... @yorkhullcf
400 Followers 303 Following Specialist Cystic Fibrosis centre covering the York and Hull region. Enthusiastic about excellent local care.
Stichting Muco & Frie... @MucoFriendsNL
451 Followers 1K Following De Stichting Muco & Friends ondersteunt wetenschappelijk onderzoek naar oorzaak, behandeling en genezing van CF middels het inzamelen van geld
Beating The Odds @ChrisMacleodBTO
199 Followers 413 Following “Beating The Odds” is Chris MacLeod’s inspirational book with 11 lessons to help you overcome a health crisis and lead a more resilient life.
Christina J. Nicolais... @CJ_Nicolais
113 Followers 209 Following Pediatric Psychologist. Clinical specialty in pulmonology. Research in treatment adherence and patient-provider communication. Lover of evidence.
Azhar @azharagwaan11
13 Followers 318 Following
Judy Schloss @JudySchloss
731 Followers 2K Following Respiratory Therapist- mom of three crazies- dog lover -hobby farmer - crafter. Opinions are my own! #RespiratoryTwitter
aine stafford @ainestafford2
14 Followers 44 Following
David Nannini @david_nannini
100 Followers 938 Following Interested in Medical Causes, especially Cystic Fibrosis.
Gabrielle Boivin @GabrielleBoivi5
134 Followers 3K Following
Jeff Smith #TitanUp �... @KillerNutz
395 Followers 3K Following Proud Dad #Buckeyes #TitanUp #Reds #Bulls #Donatelife #Bobaflex #DonateLife #LungTransplantSurvivor #CF
Sarah MacFarlane @SM_Psychology
32 Followers 63 Following Trainee Clinical Psychologist Lancaster University Research: 'The Impact of Cystic Fibrosis on Romantic Relationships' Email: [email protected]
UHB CF Physios @CF_physios
471 Followers 228 Following Providing physiotherapy information and advice for adults with Cystic Fibrosis. Our tweets do not replace the specific advice from your own physiotherapist.
ᴮᴱᴀɴɢɪᴇ⁷... @Angelicaaycoz
588 Followers 3K Following Mother of two daughters with Cystic Fibrosis.🌹65 Roses.💜Just Breath... BTS Army mom, Shinhwa princes. Living life to the fullest. Personal /Fan Account
glauco g a @glaucoga
29 Followers 418 Following
Cystic Fibrosis Resea... @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOw9N6c
Matthew Bowman @mlbowmandptccs
419 Followers 684 Following Proud IC/SUNY Upstate alum. Focus on Pulm Rehab/CF care/longCOVID. @binghamtonu clinical assistant professor. #NACFC PT program planner. Chix Parm connoisseur.
ContinuumRx @continuumrx1
34 Followers 262 Following Your Local Home Infusion Partner. Post acute care coordination & care management for case managers in Nashville, MD & VA. #infusiontherapy #continuumrx
The Salty Life Founda... @thesaltylifecf
149 Followers 268 Following The Salty Life: A Cystic Fibrosis magazine featuring people affected by CF in all walks of life🧂🌊65🌹 #thesaltylife #saltylife
Todd Baillie @TBaillie2
921 Followers 3K Following Proud dad to sons at Georgia Tech & UNG plus another GT Grad. Clemson Grad, Janam/HID Revenue Chaser & Board Member of BreatheStrong for CF.
Jill @VJillJones
76 Followers 723 Following
WC @WhitneySian
227 Followers 1K Following
Kristen Lo Giudice @GiudiceKristen
1 Followers 11 Following
Kenneth Hyatt @bogie13
922 Followers 5K Following
Strawfie Challenge @strawfie
4K Followers 6K Following A Selfie Campaign - Take a photo breathing through a straw, #strawfiechallenge Download campaign song: Breathe With Me by Betsa in aid of the CF Trust (UK)
CF Adventurers @CfAdventurers
2K Followers 3K Following CF Adventurers, https://t.co/0WCB7sg5Xf, is a place for people with cystic fibrosis to meet online, support each other, chat, and have fun.
Cystic Fibrosis Trust @cftrust
26K Followers 4K Following We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
Chris Riches @ChrisMRiches
1K Followers 760 Following @Daily_Express NW Correspondent, CF & PKU Campaigner, 2019 British Press Awards🏆& 2020 British Journalism Awards Campaign Journalist of the Year 🏆. ❤️Spurs
UHB CF Dietitians @CF_dietitians
715 Followers 249 Following Providing nutritional advice for cystic fibrosis patients! Our tweets do not replace the specific dietary advice your own dietitian may provide.
Gunnar Esiason @G17Esiason
21K Followers 561 Following Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 Biotech / Healthtech | Venture / Startups | Hockey coach 🔬🏒 @BostonCollege @TuckSchool 🦅🌲
cf/Aware @CFAware
12K Followers 9K Following All about Cystic Fibrosis. Always refer to your team for specialist advice. Oh and we don't always agree with RTs.
Jillian McNulty @jilli09
4K Followers 3K Following Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Kimberly Toogood @KToogie
3K Followers 5K Following Artist; @sketchybreather Cystic Fibrosis, Double lung transplant recipient, in rejection. No press enquiries! Eric & Ava ❤️ Shielding & miss hugs!
CF Ireland @cf_ireland
5K Followers 2K Following Cystic Fibrosis Ireland is the national charity dedicated to improving treatment & facilities for people with CF in Ireland. (RCN) 20011376
Geraldine Dunegan @GeraldineDuneg1
267 Followers 2K Following I’m a survivor and a mom of a CFer & a GiGi of 4
CF-mom @Sandy_cf_mom
178 Followers 112 Following wife for 22 years to as wonderful man. mother of 2. gma to a beautiful lily girl. mom 2 a 21 year old wonderful daughter & a 17 year old son w/ cystic fibrosis.
Mariah Caise @caiseclosed
336 Followers 359 Following Let go & let God.💜 Cystic Fibrosis 💜 Rest in peace to my beautiful mother 8/21/1969-11/3/2014. Cancer stinks but you will live on in my heart forever. #curecf
Shane Howard Magill @TransManKnits
287 Followers 445 Following If it wasn't for my C.F. team I wouldn't be half the man I am today. I can't thank them enough for all their recent support.
k @Kaz45526422
79 Followers 730 Following
Hacka Health @HackaHealth
113 Followers 134 Following An @SBRIHealthcare funded technology to support children and young people living with long term conditions #cysticfibrosis #healthtechnology #physiotherapy
Mani @thirdpill
100 Followers 697 Following Doomed to manichaeistic dualism, but in search of the third pill.
Bethany Jay @bethanyjay
597 Followers 665 Following 26. London-based copywriter, cystic fibrosis blogger.
CF CANADA-LONDON @CFCanadaLondon
61 Followers 36 Following
the salty one @salatolife
95 Followers 93 Following So this is me. I'll go by Salato. It means salt in Italian. If you know the real me you'll see the connection. I've got CF. Love life & am there for a cure.
Jessica Marie @jesslapensee
95 Followers 84 Following Cystic Fibrosis fighter. Dogs are my true love.
Patty Burks @PattyBurks65
84 Followers 99 Following Director of Clinical Trial Affairs at the Cystic Fibrosis Foundation
Nicola Hurley @NicolaHurley_
315 Followers 336 Following PhD Researcher | Respiratory & Exercise Physiology | Cystic Fibrosis
Beam @beamfeelgood
3K Followers 2K Following Online platform for ppl w/ health needs. Working w/ clinicians, academics & charities to offer live & on-demand classes, motivational support & remote care.
she's a mess @strange_garbage
1K Followers 1K Following
Shad Haque @Quadrants
65 Followers 243 Following Cystic Fibrosis fighter. Doing the best I can. Learning to not give a damn what some others think.
Sue @suecameronbell
32 Followers 33 Following Married to Gav - Mum to Cam (as above) and wicked stepmum to Al, Nik & Loz - all gorgeous people :-)
Georgia Claire @OGeorgiaClaire
59 Followers 47 Following Jetsetter • airport ground agent • Photographer
Amos @_lordamighty
248 Followers 452 Following All I want is equal rights, a good flight of beer, and a cure for Cystic Fibrosis.
Marion Ferguson @Marion_Super
361 Followers 248 Following 'Mum to 4 great people and granny to eight little people. I raise awareness for CF & campaign for access to life saving medicines.
Stanley's Journey @StanleysJourney
321 Followers 553 Following our little boy Stanley was diagnosed with Cystic Fibrosis at 20 days old. follow our blog https://t.co/RvaGAS8NlV -raising funds for CF trust. 💜💛
Charlotte Hardaker @CharlieHardaker
742 Followers 796 Following Ventilation & Respiratory Physiotherapist. Interests: NIV, NMP, tracheotomies, cough augmentation & all things respiratory 🩺 she/her
Blue Caboose 4 CF @BlueCaboose4CF
198 Followers 633 Following Helping children & families living with Cystic Fibrosis. Currently serving families in our area at the CF Care Center at Children’s Medical Center, Dallas.
Project CF Spouse @ProjectCFSpouse
108 Followers 249 Following Are you the spouse or partner of someone with cystic fibrosis? Have you been looking to connect with other CF spouses and partners? Well, look no further!!
CF Discord @CFDiscord
193 Followers 33 Following A community for Cystic Fibrosis by people with Cystic Fibrosis. Join our server: https://t.co/mexqvRdQyI
Ashleigh Sladdin @Sladdo1977
226 Followers 574 Following Father of 2 special kids with Cystic Fibrosis🌹. Passionate paid up member of the Collingwood Football Club. LV Raiders and Arsenal fanatic. Lover of UFC.💪💪
Helen Harris @HEHarris68
139 Followers 218 Following FB Blog: “65 Roses of Loss and Love” @HarrisFund #book #cysticfibrosis in memory of my daughter (👦 👼 👧)
zee @Zee_london93
170 Followers 2K Following ✨Navigating through life with a warrior’s mentality and poet’s soul✨ “The ache in your heart is just as temporary as the world that caused it!” #FREEPALESTINE
Evan Scully @ev_runs
2K Followers 681 Following Worked with 36 Olympic Medalists. Running Coach & Therapist w/ Cystic Fibrosis. CF World Record holder 5k-Half Marathon.
Maz @mariuszgregory
152 Followers 3 Following “I know not all that may be coming, but be it what it will, I'll go to it laughing.”
Shaan 🛤️ @shaanthepenguin
2K Followers 5K Following the seasons go so fast, thinking this one was gonna last | ESC & local govt nerd | tired housing policy guy | ↙ ↙ ↙ he/him | 23 | 🐝 🛤🏏🏠 | 🍞🌹 (views own)
Chris Grainger @chris_grainger7
206 Followers 554 Following Proud Dad to my Amazing CF Warrior Darcy #Hope4ACure Liverpool Red. YNWA
Katie Fielding @KatieF
6K Followers 3K Following EdTech Geek | #ISTEcert Trainer | @VSTE Coach of the Year 2019 | #a11y | 🫁 @cf_foundation | She/Her
CF Yogi @YogaForCF
101 Followers 31 Following
Jess Meredith🐾 @jessicameredi16
2K Followers 3K Following Organ Donation | Sister of liver transplant recipient | We won the campaign for CF meds! | HMO Action Group | Animal rights | Adopt don't shop | Civil Engineer
Jessica J @jessica45qt
153 Followers 1K Following (🏳️🌈SHE/HER Pronouns) ASL-BSL suffer from cystic fibrosis,cvEDS,Pots,Mcas,Cancer and other health issues as well. Lesbihonest !!
Clark Roger Larsen @larsen_clark73
113 Followers 271 Following School teacher and author of "Wherever the Dart Lands." Spaghetti consumer, jogger and friend. Married to the prettiest red head around. Love meeting people
CF'sWife IVFLife @CFsWifeIVFLife
122 Followers 208 Following As the Wife of someone with Cystic Fibrosis starting their IVF process I want to share every moment both good and bad with you all 👶UK based.
Natasha Robinson R&R ... @rrcffighters
317 Followers 895 Following This is a page for raising awareness for CYSTIC FIBROSIS and also a fundraiser page on behalf of my son's Rhyan and Rhys who both suffer with CF.
Morgan Coxhead @MorganCoxhead
635 Followers 2K Following I am 20 and I am determined to be the first person with #CysticFibrosis to become a professional goalie! Help make my dream become reality and share my story!
CF Memes @CFmemes1
27 Followers 49 Following Hey y'all we're a sister and brother, ages 20 and 16, with the deltaF508 mutation here to make dank, relatable memes about growing up with CF.
Lily Harris @lilyfharris
882 Followers 1K Following ST holder at West Ham Utd for 20 years. Crap lungs. Love books. 33 & still going 🙌🏼 waiting for a double lung transplant since 18.03.19 #cysticfibrosis #COYI
Terrie Askham @terrieAskham
149 Followers 110 Following Happy Brat, slightly feral, engaged, working, CF warrior, not just surviving. I'm smashing life!Trends for United States
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