ChronicLivingTherapy @ChronicLiving1
Directory of counsellors and therapists who understand the biomedical nature of ME/CFS, Long Covid, Fibromyalgia and other similar chronic illnesses. chroniclivingtherapy.com Joined March 2025-
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This! Exactly this! (Historical context: Asthma, stomach ulcers, MS, Parkinson’s, epilepsy, myasthenia gravis, endometriosis, migraine, SLE, coeliac disease, pernicious anaemia, hypothyroidism, ME, long COVID … )
today they are using the word "neuroplastic" yesterday is was "functional neurological disorder" the day before it was "somatization disorder" before that it was "conversion disorder" before that it was "hysteria" the evolution of "it's all in your mind" (or uterus)
POTS - Salt and water Whenever I diagnose a pt with POTS, I explain how POTS affects their body (but in particular their gut). I then show how this leads to the development of symptoms. And how to treat. For every disease we should always discuss treatments
Fantastic thread on #POTS and fluid and salt intake...
POTS - Salt and water Whenever I diagnose a pt with POTS, I explain how POTS affects their body (but in particular their gut). I then show how this leads to the development of symptoms. And how to treat. For every disease we should always discuss treatments
University of oxford are doing a study #MECFS #LongCovid #pwME #pwLC
@NeleHelena @Fionas_Story Wishing everyone success with their treatments and cures - people should try whatever they wish to. Also happy to pick up the pieces and offer support if it doesn't work, or at any stage of the journey. chroniclivingtherapy.com
Have added the LC/ME Data project's extensive list of UK doctors working on #MECFS #LongCovid #POTS to the resources page of our website along with resources such as the #NHS free training modules, @StripyLightCIC training and more. @liamsLCjourney chroniclivingtherapy.com/resources/
@potsuk Are you aware of this brilliant list? Might be useful for your members/followers
Helpful and informative list (useful overview info, prices, contact details etc) in this list of #MECFS and #LongCovid and #POTS drs in the #UK - highly recommend bookingmarking it and also following @liamsLCjourney (Thanks, Liam, for including our therapist directory!)
Helpful and informative list (useful overview info, prices, contact details etc) in this list of #MECFS and #LongCovid and #POTS drs in the #UK - highly recommend bookingmarking it and also following @liamsLCjourney (Thanks, Liam, for including our therapist directory!)
Until now, there has not been a list of recommended UK Long COVID and ME doctors all in one place... so we decided to make one! lcmedata.org/ukdocs 🇬🇧 We painstakingly collated hundreds of comments from Reddit, Twitter, and group chats with only the most-rated doctors,
Thankyou so much @BBCBreakfast for covering the story of the urgent need for compensation for women harmed by #pelvicmesh Huge thanks to Mandy for sharing her story and to the Patient Safety Commissioner for continuing to put pressure on the government youtu.be/R_B87_cROg0?si…
📰 Excellent article on the mass media tendency to psychologise Long Covid. 👏 "Levinovitz is straining mightily to interpret patients’ experiences in ways that conform to a preferred narrative.”
NEW ARTICLE from me in @FAIRmediawatch: "The Media Won't Stop Psychologizing Long Covid." An overview of this unfortunate propaganda trend in the media since 2020, including where it comes from and what it gets wrong. Link in next post.
Despite more than 30 years of research confirming the biological mechanisms involved in #ME which are acknowledged by the CDC—experts are often drowned out in the media by a cadre of psychiatrists and others determined to frame it as a mental health issue. fair.org/home/media-won…
This is a very useful list. Thank you to all involved in collating the information! I've bookmarked it for future reference.
Until now, there has not been a list of recommended UK Long COVID and ME doctors all in one place... so we decided to make one! lcmedata.org/ukdocs 🇬🇧 We painstakingly collated hundreds of comments from Reddit, Twitter, and group chats with only the most-rated doctors,
@patrickc Big congrats, an amazing and timely initiative! 👏👏 If successful it will also help to reduce the incidences of myalgic encephalomyelitis (ME), which most commonly has an infectious onset and has a truly devastating impact on tens of millions globally. crunchme.org/visuals/2025-1…
@Naomi_D_Harvey @MEResearchUK Donated and RT'ed, thank you so much for all your contributions to this community! Happy birthday! 🎈 And if anyone with ME is seeing this and haven't done one before, I really encourage you to try a birthday fundraiser if you can!
I’ve setup a birthday fundraiser for @MEResearchUK as next month will be my 40th birthday and since I can’t celebrate with a party etc this seems like a good thing to do and I haven’t done one before! Please share it & donate only if you can 🙏🏻 🩵 justgiving.com/page/naomi-har…
@ThriftVIP @liamsLCjourney Thank you!
@TJerryfan @Loster @lammas_leaves Check this out! x.com/i/status/20701…
Until now, there has not been a list of recommended UK Long COVID and ME doctors all in one place... so we decided to make one! lcmedata.org/ukdocs 🇬🇧 We painstakingly collated hundreds of comments from Reddit, Twitter, and group chats with only the most-rated doctors,
Until now, there has not been a list of recommended UK Long COVID and ME doctors all in one place... so we decided to make one! lcmedata.org/ukdocs 🇬🇧 We painstakingly collated hundreds of comments from Reddit, Twitter, and group chats with only the most-rated doctors, pricing, and pros and cons from real patients. 25 doctors and clinics are listed, from NHS to private specialists, pharmacies for LDN and ketotifen, and even a link-out to @ChronicLiving1 for therapy options! This is a living document and will be continually updated. Suggestions and updates welcome!
Fritz is sick @ChronicFritz
707 Followers 4K Following Chronically ill academic, #pwME #Lyme #dysautonomia. Here to learn and amplify chronically ill, #disabled, and covid-cautious. #MaskUp. she/her.
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 4K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine ONLY POSTING ON UPSCROLLED NOW
Wild flowers and moun... @arranviews
49 Followers 682 Following Sea kayaking, mountaineering, cycling and native flowers. #longcovid since December ‘21
PFS/ME/CFS • Diagno... @Diagnose8E49
6 Followers 189 Following Postvirales Fatigue Syndrom (PFS), ICD-11-Code: 8E49, inkludiert: Myalgische Enzephalomyelitis (ME) + Chronisches Fatigue Syndrom (CFS)
Mdez @kleinesKind
247 Followers 2K Following
fizzy @wafmctfa
303 Followers 1K Following
Tora Hill 💤🥄♿ @FibroKnitter
345 Followers 1K Following A Fibromyalgia and ME sufferer, and mother to an awesome autistic 11 year old. Disabled and mostly housebound. Love knitting, crochet and all things crafty.
s a i 🍉 @_icantbesaved
165 Followers 864 Following Muslim | Millenial | Metalhead #MCAS #narcabuse #MECFS #chronicillness #LongCovid #pwLC #freePalestine 🇵🇸 #CleanAir 😷|📚36/80
Katarzyna Pollock @KatarzynaPolloc
13 Followers 183 Following
Bella Dubrov @BellaDubrov
45 Followers 7K Following
Rita Saujani @saujani_rita
84 Followers 2K Following
Mark the Hatter @moreofaswimmer1
2K Followers 3K Following The Luton. Fighting for better lives for ME/CFS sufferers.
LisaE @LisaE92853661
165 Followers 620 Following retired mom w/2 amazing daughters,2 awesome grandkids,1sassy grand dog,2 toy aussies,5 goats,11 chickens🐶🐐🐓FED UP WITH MAGA!
Loster @Loster
2K Followers 3K Following thinker and stuff. Claude Code and coding. lots of reading and films. bit of chronic illness.
Frances Maxwell @Frances00494672
54 Followers 396 Following
Still Ill @shitthatzsays
226 Followers 7K Following #neisvoid I often delete old posts. Nothing personal.
WorkingAndNotWorkingW... @WorkingWithLC
597 Followers 923 Following All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler
Matthew Halma @MatthewHalma
962 Followers 682 Following Biophysicist | #Postviral syndromes, #longCOVID, #PACVS | Open Source Medicine Foundation | https://t.co/kWFDPz3ED2
Joanne Smith - Jo @_Joannesmith
835 Followers 1K Following ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs.Wildlife. Books. Bit of Politics. #pwme @joannesmith.bsky.social
NilsKraabe @NKraabe
28 Followers 445 Following
Barry Dorsey @barrydorsey
1K Followers 2K Following Long Covid March 2020 | Filmmaker | Screenwriter | The Citadel ‘91
MaskedMindfulTherapis... @Sanfranpixie
2K Followers 2K Following Psychology, Math, Chemical Engineering, meditation, human rights She/her Science..Logic..Caring
Apurba Aryan @ary_yandoctorX
62 Followers 1K Following
Sarah H @Sazzi91
2K Followers 4K Following creativity, baking👩🍳 tv 💻 podcasts 🎧 nature 🌷 chronically ill; M.E./CFS since 2002 🐌 🇪🇺 IG: @sazzi_crafts #MillionsMissing
Jackie Seidel, PhD @JackieSeidel1
5K Followers 8K Following Born 322ppm 🌎 ❤️ 😷 Poetry. Bees. Bikes. Eco/Justice/Climate curriculum. UofC Assoc Prof. PhD. Tweets mine. She/Her jackieseidel @ skyplace
Cathy Sergi @SergiCathy
419 Followers 737 Following ME since 2015 - 95% housebound now due to this debilitating life-shrinking illness 😔Still love music, films, TV &having a laugh.And 😺
Alex @c3vvno
910 Followers 672 Following Severe illness after Covid/Misdiagnosed polydrugged/catastrophic damage/fully disabled. 🦠 🧬 🧠
Jenny Collins @jmcollins502
0 Followers 104 Following
More about ME @dina_said_that
93 Followers 199 Following 31yo; (very) severe ME/CFS as a result of long COVID #MECFS #longCOVID
Illustrator Interrupt... @FranceyME
3K Followers 2K Following https://t.co/jrET531Men illustrator, writer, photographer. Career interrupted indefinitely by myalgic encephalomyelitis #MECFS @franceyme.bsky.social
Clare @ClrBlwrs
3K Followers 7K Following
Catherine Harris @oovChirrupvoo
2K Followers 5K Following Christian,socialist Catholic💙Ally.🏴. 🇹🇹. Long Covid, ME. Kidney cancer & DV survivor. Sometime HA NED, former Chair Haringey Pensions Committee.
Brenda Zen @Zen_Brenda5
600 Followers 3K Following I am not here to be perfect, I am here to be real. 🌍 Tweets are mostly #covid related. Pro containment. #CleanAir The occasional cat. 🐱
Thea @TheaKnudsen4
127 Followers 323 Following
JOwME @JohannaBorde
913 Followers 2K Following Designer・Architecture photographer・Art lover ・Mof2・ME/CFS since 2020
ALowerhouse @VertigoGrl
91 Followers 225 Following An unintentional collector of an alphabet soup of chronic illnesses #MECFS #EDS #MCAS #POTS. Pronouns: she/her
T @Yrrepmot
1K Followers 3K Following
GardenRebellion 🎗�... @NobleRingleader
888 Followers 635 Following I like anagrammes and the colour black. A thirst for life which is out of reach at times. Possibly ME/CFS and other things.
Wayside Scribbles @waysidescribble
969 Followers 438 Following Left by the wayside. Won't give up without a scribble. #longcovid #mecfs
Staffan @kalvfond
306 Followers 2K Following För tillfället kroniskt sjuk. Arbetar förtröttligt för att saker ska bli bättre. // Currently chronically ill. Tirefully working to improve things. #longcovid
Wwwtttooo @Kraaax123
12 Followers 652 Following
Vanessa Smith @normal_ness
2K Followers 2K Following We’re all normal to ourselves. I write. Hates hustle, loves shiny objects. Can’t even influence an ant. Anthropology & sociology graduate. Author of books.
Lukas K. (zur Zeit ni... @einfachkaffee
948 Followers 678 Following Mensch. Wie Du. Normalverteilung bedingt Randerscheinungen #millionsmissing he/him Queer Poly @einfachkaffee.de on bsky @ 341ppm
Harshi Peiris, Ph.D. @Neuroscope_mp
10K Followers 747 Following NeuroScope: Clear, visual videos on Alzheimer’s, Parkinson’s & more. Understand the brain’s mysteries. Subscribe to stay informed.
Fritz is sick @ChronicFritz
707 Followers 4K Following Chronically ill academic, #pwME #Lyme #dysautonomia. Here to learn and amplify chronically ill, #disabled, and covid-cautious. #MaskUp. she/her.
Justine Barron @jewstein3000
10K Followers 3K Following Author, "They Killed Freddie Gray.” Host, Bubble People Pod. Journalism, media criticism, scripts, stories. Disability/Long Covid.
Wild flowers and moun... @arranviews
49 Followers 682 Following Sea kayaking, mountaineering, cycling and native flowers. #longcovid since December ‘21
Mdez @kleinesKind
247 Followers 2K Following
Sling the Mesh @MeshCampaign
6K Followers 3K Following When industry influences healthcare patient safety suffers. Raising awareness of surgical mesh harm #prolapse #hernia #rectopexy #breast #SUI @kathsansom
fizzy @wafmctfa
303 Followers 1K Following
Tora Hill 💤🥄♿ @FibroKnitter
345 Followers 1K Following A Fibromyalgia and ME sufferer, and mother to an awesome autistic 11 year old. Disabled and mostly housebound. Love knitting, crochet and all things crafty.
s a i 🍉 @_icantbesaved
165 Followers 864 Following Muslim | Millenial | Metalhead #MCAS #narcabuse #MECFS #chronicillness #LongCovid #pwLC #freePalestine 🇵🇸 #CleanAir 😷|📚36/80
Katarzyna Pollock @KatarzynaPolloc
13 Followers 183 Following
Rita Saujani @saujani_rita
84 Followers 2K Following
Mark the Hatter @moreofaswimmer1
2K Followers 3K Following The Luton. Fighting for better lives for ME/CFS sufferers.
Liam's LC/ME Journey @liamsLCjourney
2K Followers 255 Following Open sourcing my Long COVID/ME recovery journey: lab results, doctor's visit summaries, tricks I've found for getting treatments, etc.
Loster @Loster
2K Followers 3K Following thinker and stuff. Claude Code and coding. lots of reading and films. bit of chronic illness.
LisaE @LisaE92853661
165 Followers 620 Following retired mom w/2 amazing daughters,2 awesome grandkids,1sassy grand dog,2 toy aussies,5 goats,11 chickens🐶🐐🐓FED UP WITH MAGA!
Still Ill @shitthatzsays
226 Followers 7K Following #neisvoid I often delete old posts. Nothing personal.
Frances Maxwell @Frances00494672
54 Followers 396 Following
Matthew Halma @MatthewHalma
962 Followers 682 Following Biophysicist | #Postviral syndromes, #longCOVID, #PACVS | Open Source Medicine Foundation | https://t.co/kWFDPz3ED2
Joanne Smith - Jo @_Joannesmith
835 Followers 1K Following ME since 1991.Owned by Shih Tzu called Teddy 🐾 Interested in ME advocacy & research.Dogs.Wildlife. Books. Bit of Politics. #pwme @joannesmith.bsky.social
NilsKraabe @NKraabe
28 Followers 445 Following
Barry Dorsey @barrydorsey
1K Followers 2K Following Long Covid March 2020 | Filmmaker | Screenwriter | The Citadel ‘91
MaskedMindfulTherapis... @Sanfranpixie
2K Followers 2K Following Psychology, Math, Chemical Engineering, meditation, human rights She/her Science..Logic..Caring
Apurba Aryan @ary_yandoctorX
62 Followers 1K Following
Jackie Seidel, PhD @JackieSeidel1
5K Followers 8K Following Born 322ppm 🌎 ❤️ 😷 Poetry. Bees. Bikes. Eco/Justice/Climate curriculum. UofC Assoc Prof. PhD. Tweets mine. She/Her jackieseidel @ skyplace
Cathy Sergi @SergiCathy
419 Followers 737 Following ME since 2015 - 95% housebound now due to this debilitating life-shrinking illness 😔Still love music, films, TV &having a laugh.And 😺
Alex @c3vvno
910 Followers 672 Following Severe illness after Covid/Misdiagnosed polydrugged/catastrophic damage/fully disabled. 🦠 🧬 🧠
Justin McLachlan @justinmclachlan
19K Followers 5K Following I have a "slightly unhinged intensity" — Washington City Paper. Previously @wired, @popsci, @sdcitybeat. MS in Journalism. Signal: justin.658
More about ME @dina_said_that
93 Followers 199 Following 31yo; (very) severe ME/CFS as a result of long COVID #MECFS #longCOVID
Ramy2.0 @Ramyisback
2K Followers 1K Following Mecfs patient, in a happy relationship. Spreading awareness about this awful disease. Used to be a lawyer now I am a fish 🐟 in bed. Somebody get me Ampligen
Brenda Zen @Zen_Brenda5
600 Followers 3K Following I am not here to be perfect, I am here to be real. 🌍 Tweets are mostly #covid related. Pro containment. #CleanAir The occasional cat. 🐱
Catherine Harris @oovChirrupvoo
2K Followers 5K Following Christian,socialist Catholic💙Ally.🏴. 🇹🇹. Long Covid, ME. Kidney cancer & DV survivor. Sometime HA NED, former Chair Haringey Pensions Committee.
Thea @TheaKnudsen4
127 Followers 323 Following
ALowerhouse @VertigoGrl
91 Followers 225 Following An unintentional collector of an alphabet soup of chronic illnesses #MECFS #EDS #MCAS #POTS. Pronouns: she/her
GardenRebellion 🎗�... @NobleRingleader
888 Followers 635 Following I like anagrammes and the colour black. A thirst for life which is out of reach at times. Possibly ME/CFS and other things.
Staffan @kalvfond
306 Followers 2K Following För tillfället kroniskt sjuk. Arbetar förtröttligt för att saker ska bli bättre. // Currently chronically ill. Tirefully working to improve things. #longcovid
Vanessa Smith @normal_ness
2K Followers 2K Following We’re all normal to ourselves. I write. Hates hustle, loves shiny objects. Can’t even influence an ant. Anthropology & sociology graduate. Author of books.
Lukas K. (zur Zeit ni... @einfachkaffee
948 Followers 678 Following Mensch. Wie Du. Normalverteilung bedingt Randerscheinungen #millionsmissing he/him Queer Poly @einfachkaffee.de on bsky @ 341ppm
Aaron (Long Covid + M... @Aaronca11
797 Followers 1K Following @lcmebillboards with @alexsprackland suffering from severe nervous breakdown since Oct 2024. Advocacy on hold.
Ruth Brannan @RuthBrannan
92 Followers 549 Following here mostly for the long covid and me/cfs research
Sonja 🌈🌻 🌊�... @SonjaNomad
1K Followers 1K Following 🎶It's not how you spend the time it's if you waste it 🎵 Apparently a troll/witch because I don't believe in tabloid narratives 🤷♂️ 💙💚🧡❤️💛 NS - 18+
Moira Dillon @MoiraDillon_ME
1K Followers 1K Following Mostly tweet re Severe Myalgic Encephalomyelitis (ME) Founder member of @MEAdvocatesIre
mary dimmock @marydimmock
2K Followers 491 Following
Robert Saunders (aka ... @RobertHMcMullen
2K Followers 423 Following Now at @roberthmcmullen.bsky.social https://t.co/hdi3fMbIaf
Nina E. Steinkopf @Nina_Steinkopf
2K Followers 1K Following Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. 🇳🇴🏳️🌈🇵🇸😷 Anti-genocide
Leonard Jason @CenterRes
2K Followers 32 Following Leonard Jason is a Professor of Clinical and Community Psychology at DePaul University. He is also Director of the Center for Community Research
Timo Strotmann @TweetingTimo
4K Followers 392 Following Tech Enthusiast - Software Engineer - Health Advocate Co-Founder of https://t.co/0klWgSE1lRYou might like
