HemoHelper @HemoHelper
Dedicated to helping families affected by bleeding disorders. We feature tips, resources, news, products, humanitarian efforts, and more. hemohelper.com Joined July 2014-
Tweets156
-
Followers525
-
Following566
-
Likes46
It is so important to come together as a global bleeding disorder community right now. People suffer without proper access to care. We are continuing to do our best to provide resources, critical medical supplies,… instagram.com/p/CAIySXvg62X/…
Since last summer we’ve worked on some big projects impacting lives of hemophiliacs in the Phillipines, Guatemala, the United States, and now Mozambique. It is truly rewarding work when we receive reports back like… instagram.com/p/B-71LNuh9zE/…
Today marks our 5 year anniversary since launching HemoHelper. While we began in response to a close family member’s diagnosis, we continue today because there are still so many people suffering needlessly all over… instagram.com/p/B2fgzvDhq-m/…
With your help we were able to support bleeding disorder patients in the Phillipines this week by donating critical medical supplies and hundreds of identification bracelets/pendants. An estimated 10,000 bleeding… instagram.com/p/B2cmNTzhBHi/…
Happy #WorldHemophiliaDay! This year WHF is focusing on identifying new members of the bleeding disorders community: “Reaching out; The first step to care.” We couldn’t agree more. Many… instagram.com/p/BwXe9fnBiug/…
Happy #WorldHemophiliaDay! This year WHF is focusing on identifying new members of the bleeding disorders community: “Reaching out; The first step to care.” We couldn’t agree more. Many… instagram.com/p/BwXe9fnBiug/…
Our co-founder, Joslyn Olsen, received the Michael Davon Community Service Award for global volunteerism and charitable giving yesterday at the 2019 HFA Symposium! This honor is shared… instagram.com/p/Bv7ZctOhVUE/…
We spent the week cataloguing and shipping life-saving hemophilia medicine internationally because we know there are people suffering without access all over the world. Thank you all for… instagram.com/p/Bs1xANdh2dZ/…
Meet Santiago and Luz of Columbia. Yesterday we were able to make a HemoHelper donation of medical supplies and #bleedingdisorder medical identification bracelets. It is always so good to… instagram.com/p/Bp9_vETh3mo/…
“Helping one person might not change the whole world, but it could change the world for one person.” instagram.com/p/BmlnWS7AI-P/…
We recently coordinated another successful donation trip to Guatemala! Read how it went from the perspective of one of the teen volunteers who helped make it happen (link in profile). instagram.com/p/BmMBb0Lg9RV/…
These little HemoHelpers took time out of their busy summer schedules to raise money for hemophiliacs in Guatemala this month. They painted signs, made lemonade, waved balloons, and… instagram.com/p/Bl6AbqNA0nA/…
We’ve been excitedly preparing for another #HemoHelper trip to Guatemala. Our representatives are packed and ready to send some love/support to the Asociación Guatemalteca de #hemofilia… instagram.com/p/BlTvdV7gIpd/…
Happy #HemoHelper donation recipients in Pakistan 🇵🇰 ❤️ instagram.com/p/Bh9_o-Xjitb/
🎈It’s #WorldHemophiliaDay! 🎈We’re sorting some #medicalID pendants and bracelets that we’ve had… instagram.com/p/BhrqpB0jNnP/
Made a trip to Panama last week. Met some wonderful people working hard for people with… instagram.com/p/BhW9yTWgNrB/
We love getting to send our care packages to people with bleeding disorders in other parts of… instagram.com/p/BghNNK7ni4c/
Have you subscribed to the #HemoStoriesPodcast yet? It’s Bleeding Disorders Awareness Month and… instagram.com/p/Bf9Jc4nnyaE/
The HemoStories Podcast Episode 23 is now up! We interview Marisol de Monterosa, President of… instagram.com/p/Be_RNE3n38p/
This excerpt is from an upcoming HemoStories podcast episode we recorded over the holidays on a… instagram.com/p/BeQ4PLanKeN/
National Bleeding Dis... @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Laurence Woollard @TheWoollard
1K Followers 613 Following Director @PulseInSync | Advocacy & Policy in Rare Disease | Patient Research Team Leader @IMABQistudy @uniofeastanglia | MSc Health Policy @imperialcollege
IrishHaemophiliaSoc @HaemophiliaIRL
2K Followers 285 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrand disorder and other inherited bleeding disorders
Professor Beverley Hu... @bhwords
10K Followers 3K Following Passionate about thrombosis & bleeding care. Founder of Thrombosis UK but views are my own. Crazed cyclist.
EAHAD @EAHADnews
3K Followers 461 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
HemophiliaofGA @HemophiliaofGA
1K Followers 255 Following A nationally recognized Hemophilia Treatment Center & nonprofit providing comprehensive care, pharmacy services, and support to people with bleeding disorders.
CoalitionHemoB @CoalitionHemoB
1K Followers 695 Following Our mission is to make quality of life the focal point of treatment for individuals with hemophilia B.
HFA @Haemophilia_Au
828 Followers 229 Following Haemophilia Foundation Australia (HFA) represents the Australian bleeding disorders community.
Hemophilia Ontario @HemoOntario
996 Followers 558 Following Hemophilia Ontario is committed to improving the health and quality of life for all people with a bleeding disorder, and to find a cure
Lynne Kinst @lynnekinst
519 Followers 1K Following Grateful recipient of grace, wife, mom, Exec Director for @bdcouncilca, Founder @DuranKinst - topics vary, opinions are mine.
Dr Kate Khair PhD @katekhair
1K Followers 859 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Hemophilia Federation... @hemophiliafed
6K Followers 1K Following Assisting and advocating for people living with a #bleedingdisorder and their families.🩸#hemophiliafed
Vaibhav Mandre @VaibhavMandre
77 Followers 2K Following
Sonia Owchariw 🇺�... @NewsReporterSOW
259 Followers 8K Following PNH Exploitation:#BurnedByBrodsky;💔 #ARseO; Dr. David Araten NYU Langone; MSK; AAMDS&IF; Oklahoma Research Medical Foundation; #Soliris; DNMT3A🧬R882 ✝️Erskine
FAIR Time for Women C... @fairtime4women
22 Followers 181 Following FAIR TIME for Women national coalition's goal is diagnosis, care and treatment for women, girls and those identified female at birth with bleeding disorders.
MOHAMMED A. ASAAD @mafsa20
22 Followers 571 Following
Santosh Kumar Jaiswal @Santosh27465653
329 Followers 4K Following Assistant Professor PA & Pol Sc, SSJDC SKMU Dumka Secretary, HSRC Ranchi Jh. Member SARC NHM Jh,HFI Delhi,JSCCW.,IRCS., For. EC Member HFI Delhi 🇮🇳
Seetec Hurry @HurrySeetec
113 Followers 2K Following
Personalize My Medici... @PMM_2022
86 Followers 1K Following Helping you make the most of Medical Innovation. This is our new account. Please follow our old account too @myprecisionmed. PMM is an Amazon Affiliate.
Sandra Le Quellec @SandraLeQuellec
143 Followers 256 Following MD PhD, #haemostasis lover/ Opinions are my own
HMSI @Hmsinitiative
189 Followers 1K Following Liberating the less privileged in our society, Hand in Hand in bringing Governmental primary dreams for the Nation FULL FLEDGED HUMANITARIAN SERVICES RT NT E
GreatLakesHemophilia @WIBloodDisorder
1K Followers 698 Following Improving the quality of life for the Wisconsin bleeding disorders community
RAVI GOLLA @GOLLARAVI0802
211 Followers 3K Following Don't chase others. Focus on improving yourself. People will find you.
Real Fundación Victo... @RFVE_hemofilia
827 Followers 484 Following Fundación cuyo objetivo es promover y divulgar investigaciones científicas en el campo de la Hemofilia y otras coagulopatías congénitas y patologías asociadas.
Maanum @maanum
128 Followers 573 Following Twin mom, potter, engineer. Working to stop the medical misdiagnosis of child abuse.
Iván rodellas garcí... @IvanRodellas
119 Followers 3K Following Ingeniero de redes. Hibrido extraterrestre, psiquico. Buen ingles y latín. AB+ rh negativo, anunnaki. Avanzado C/C++, Asperger y tdah, cinturón verde 3 estilos.
NVHP @NVHP_nl
399 Followers 81 Following De NVHP is er al meer dan 50 jaar voor haar patiënten. Tweets over de vereniging, hemofilie en andere stollingsstoornissen.
Red Movement Kenya�... @RedMovementKEN
43 Followers 27 Following Red movement is a voluntary group working with enthusiastic students and youths from multiple disciplines in healthcare at the University of Nairobi and beyond.
Arizona Blood Allianc... @ArizonaBleed
1K Followers 547 Following 501c3 Organization Dedicated to increasing life-enhancing opportunities for Arizonans living with inherited blood conditions #Hemophilia #VWD #BleedingDisorders
SponsorMotion @SponsorMotion
246 Followers 2K Following Search our directory of health and wellness events @ https://t.co/JzEltUetyQ
Yappersaurus Rex 🦖 @WambuiEff
538 Followers 589 Following Medical Doctor 👩🏾⚕️ • Groovist 💃🏽 • Otaku ♨️ • (っ´▽`)っ
BleedCEASE® @BleedCEASE
7 Followers 39 Following BleedCEASE is a natural bio-polymer, designed and manufactured with unique properties for the quick and convenient treatment of nosebleeds and topical bleeding.
Portal Hemofilia @PortalHemofilia
322 Followers 557 Following Toda la información que necesitas sobre la hemofilia. Noticias, tratamientos y artículos de especialistas.
Fozlay Rabby @FozlayRabby47
832 Followers 4K Following Hi, I am Fozlay Rabby a professional Graphic Designer from Bangladesh
Suresh Hanagavadi @SHanagavadi
981 Followers 3K Following Professor, Dept of Pathology, JJM Medical College, President, Karnataka Hemophilia Society, Davangere Advisor, State Commissioner, Disabililities, GoK
Miranda Maxwell @MirandaLinds15
80 Followers 248 Following James1:19 #IAmSecond #PRM #EQM #ERM #Attorney 📚 #CMorganMusic
Hemophilia Federation... @HemoIndia
837 Followers 350 Following Hemophilia Federation (India) is the only national umbrella organization in India established in 1983 for the comprehensive care of People with Hemophilia.
Frannie Haynes @FrannieH
7 Followers 90 Following
Phillip L Smith @Confutoprosapi1
80 Followers 667 Following Investor..Philosopher....Scientist..Hemophilia A patient & SDA Christian : follow me on my new twitter @confutoprosapi2
HaemophAmicus @HaemophAmicus
1K Followers 5K Following Haemophilia and Allied Disorders Slovenia/Europe 🇸🇮➡️🇪🇺➡️🌎
zakaria Bah @zakariaBah4
317 Followers 1K Following Talibé Cheikh Supply Chain manager Employé de magasin Rayonniste, gestionnaire d'administration Logisticien Mercaticien FC Barça
Paige Hughes @PaigeNHughes90
63 Followers 754 Following Single mom to 3 kids. Project Manager promoting common sense solutions to #AcessToCare.
Praveen Kennedy @KennedyPraveen
93 Followers 5K Following
Manis @Manis03562116
13 Followers 23 Following
lakhan verma @lakhanverma72
0 Followers 17 Following
Chris Mulak Bege Wesl... @ChrisMulak
1K Followers 5K Following Enterprenure, ICT consultant, Tourist, Live stock Farmer(Mhiship Integrated Farms). 08056066983, 08065521166, 08080944441. [email protected]
Rocky Williams @RockyJWilliams
60 Followers 84 Following Passionate community and education outreach professional, youth camp program director, Cardinals fan.
Flavio A. Grimaldo @grimaldogomez
1K Followers 4K Following Coagulation hematologist of INCICh Mexico. I like study haemostasis, bleeding and Thrombosis. Mexican Society of Thrombosis and hemostasis. SOMETH
BIOVIIIx @BIOVIIIx
2K Followers 5K Following BIOVIIIx è una biotech & pharmaceutical company operante nel campo delle Emocoagulopatie e delle malattie rare con particolare specializzazione nell'emofilia.
FAHEEM MOHMAND @FaheemMohmand3
254 Followers 3K Following WORKING AS VICE PRESIDENT OF HAEMOPHILIA FOUNDATION PAKISTAN. PHILANTHROPIST
FMRPAdvocacy @AdvocacyFmrp
4 Followers 39 Following
Urszula Fernandez Kol... @UKolczak
40 Followers 657 Following
Midwest Hemophilia As... @MidwestHemophi1
74 Followers 115 Following A non-profit group with a mission to educate, advocate, & inform the world about bleeding disorders!
Morgan Stowers @MorganStowers
88 Followers 303 Following I’m an elementary teacher in a small school. I teach a tri-grade combo with 4th, 5th, and 6th grade. I’m also a mom to a very energetic toddler.
Brenna C Kelly @BrennaCKelly1
17 Followers 75 Following Pop Health Data Science @ U of U | CRC @UofUSurgery
National Bleeding Dis... @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF
WFH @wfhemophilia
8K Followers 169 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Patrick James Lynch @pjlynch
3K Followers 876 Following Founder & CEO, https://t.co/kmRD091Ehf | filmmaker, content producer, and bleeding disorders advocate
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
ASH @ASH_hematology
73K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
IrishHaemophiliaSoc @HaemophiliaIRL
2K Followers 285 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrand disorder and other inherited bleeding disorders
Haemophilia Society @HaemoSocUK
5K Followers 708 Following For everyone with a bleeding disorder. We're a member organisation supporting the UK bleeding disorder community through information, events and advocacy.
Professor Beverley Hu... @bhwords
10K Followers 3K Following Passionate about thrombosis & bleeding care. Founder of Thrombosis UK but views are my own. Crazed cyclist.
HemophiliaofGA @HemophiliaofGA
1K Followers 255 Following A nationally recognized Hemophilia Treatment Center & nonprofit providing comprehensive care, pharmacy services, and support to people with bleeding disorders.
CoalitionHemoB @CoalitionHemoB
1K Followers 695 Following Our mission is to make quality of life the focal point of treatment for individuals with hemophilia B.
HFA @Haemophilia_Au
828 Followers 229 Following Haemophilia Foundation Australia (HFA) represents the Australian bleeding disorders community.
Hemophilia Ontario @HemoOntario
996 Followers 558 Following Hemophilia Ontario is committed to improving the health and quality of life for all people with a bleeding disorder, and to find a cure
haemnet @haemnet
1K Followers 375 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
Dr Kate Khair PhD @katekhair
1K Followers 859 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Hemophilia Federation... @hemophiliafed
6K Followers 1K Following Assisting and advocating for people living with a #bleedingdisorder and their families.🩸#hemophiliafed
J.K. Rowling @jk_rowling
13.8M Followers 1K Following Author, founder of Lumos and Beira's Place, surname rhymes with bowling, not growling.
LAFD 🔥 @LAFD
241K Followers 18 Following A full-spectrum life safety agency protecting the City of Los Angeles. To report an emergency, call or text 911.
UCSF Benioff SF @UCSFChildrens
29K Followers 3K Following UCSF Benioff Children's Hospital SF creates an environment where children and their families find compassionate care at the forefront of scientific discovery.
RareShare @RareShareOrg
5K Followers 2K Following RareShare is a social platform building communities for patients, families, and healthcare professionals affected by rare medical disorders.
Rare Disease Team @RareDxResearch
5K Followers 120 Following A Canadian research team focusing on rare disease policy.
Rare Disease Day US @RareDayUS
7K Followers 988 Following 2/28/19. #ShowYourStripes & join the movement in the US & around the world for #RareDiseaseDay. (Hosted in the US by @RareDiseases.)
Ron Westerveld @vWillebrandD
182 Followers 270 Following Raising funds for the sole purpose to donate to Erasmus MC for Research and development of better von Willebrand disease treatments. I am also on Instagram!
Chris Bombardier, MS ... @AdventureHemo
802 Followers 585 Following Bleeder, adventure seeker, mountain addict. Save One Life Executive Director
Jenn Jordan (she/her) @jennlynnjordan
3K Followers 2K Following Comicsmith. Medievalist. Media Librarian. Cohost of @SPLTurnthePage. Find me at @jennlynnjordan.bsky.social
Martin R. Lemieux @martin_lemieux
1K Followers 2K Following Founder and President of @ClotsMatter - #Thrombosis survivors. Patient Ambassador for @ThrombosisCan & @canVector , #Author of @PatientsHeart
NovartisClinicalTrial... @NovartisCT
13K Followers 0 Following The official Twitter for Novartis-sponsored clinical trials currently recruiting in the US only. See our community guidelines: https://t.co/fZJuthJmCT
Beyond the Diagnosis @BeyondtheDx
8K Followers 5K Following Beyond the Diagnosis unites art and science to raise awareness for children living with life-altering diseases.
Matthew H. Maschler a... @MattMaschler
1K Followers 325 Following The Best Real Estate Broker / Realtor in Florida. Welcome to the home of the Matthew Mania Podcast.
Michael A. Bosco @MichaelBosco
848 Followers 1K Following Chief Operating Officer and Co-Founder of National Millwork, Inc. located in Riviera Beach, Fl. I am your door guy! Cancer surviver!
Hemophilia_TN @TN_Hemophilia
161 Followers 84 Following Tennessee Hemophilia & Bleeding Disorders Foundation
Matthew H. Maschler @MatthewMaschler
2K Followers 2K Following The Best Real Estate Broker / Realtor in Boca Raton, Florida (Palm Beach County). Business, real estate, legal, fashion & computer expert!
Louise St. Germain @Lou_M_StGermain
817 Followers 1K Following Marketing & global PA Dir for #ISTH working in #thrombosis & #hemostasis; Lead @ThrombosisDay, #EUAffairs via #ETHA & #Edu initiatives. All thoughts are my own!
MyHemophiliaTeam @HemophiliaTeam
968 Followers 563 Following We are the private social network for those living with #hemophilia and other #bleedingdisorders. Join our community of 3000 members!
Seth Schneider @SethSchneids
2K Followers 3K Following Eternal optimist! Helping make things idiot proof.
HemovidaFator @hemofiliavida
140 Followers 64 Following
Haemophilia QLD @HaemophiliaQLD
110 Followers 22 Following HFQ provides support for people and their families affected by haemophilia, von Willebrand disorder and other inherited bleeding disorders.
STACI GARCIA @STACISMAIL
3K Followers 3K Following Mom of 3 sons 19, 21 & 22. My middle son has #sarcoma #cancer #Epithelioidsarcoma I’m on a mission. 🌻💛 Realtor• Boca Raton, FL
Garnet Foundation @garnetclassic
98 Followers 126 Following The Garnet Foundation raises awareness for those affected by both cancerous and non-cancerous genetic blood conditions and provides scholarships to students.
HFNZ @HaemophiliaNZ
397 Followers 104 Following Haemophilia Foundation New Zealand aim to ensure that people with bleeding disorders and their families receive the best possible knowledge, care and support.
Craig Agranoff @Lapp
9K Followers 4K Following TV Marketing Personality, Persuasion Marketing Consultant, Author of 3 Marketing Books & Adjunct Professor. My tweets are my own opinion.
Amy Bondy @amybondy
59 Followers 47 Following Full time real estate agent in Essex County. Wife and mom of 2 children. Hailey 3 and Noah 1. Noah has severe Factor X.
Amie @Amie_Amie1202
84 Followers 384 Following
sara @ifiwerearichgrl
85 Followers 232 Following coffee. music. kids. cheese. wine. diet coke. hemophilia advocacy. wit. humor. love. in a nutshell.
Bethyw @bethyw
9K Followers 10K Following Loving life in Cbus Ohio. Proud Mom of 4, Glammaw of 6, 1 son is a LEO. 👮Defeated pancreatic cancer 2005 my dad flew the P51 Mustang in WWII.
Maria Vetter @vetter1818
47 Followers 78 Following
Felix L. Garcia @FLGprohemo
233 Followers 328 Following Father, son, husband living with chronic illness. Advocate for the bleeding disorder community. Spartan warrior in a Hemophiliac body.
Kenya Haemophilia @HaemophiliaKe
125 Followers 122 Following
Vaughn Ripley @vripley
13K Followers 11K Following Business Strategy AI and ML Expert ~ Sr. DBA ~ Inspirational Speaker and Extreme Encourager
Khim Socheat @socheat26
57 Followers 926 Following
Nabila Husseni @Nabila7861
172 Followers 690 Following
Genetic Engineering &... @GENbio
90K Followers 3K Following Serving the biotech industry since 1981. EIC @johnsterling4; publisher @liebertpub Subscribe to GEN: https://t.co/KzqMccOt9Q
Biotechnology Innovat... @IAmBiotech
106K Followers 6K Following I Am Biotech is where biotech professionals and enthusiasts can come together and discuss the promise of biotech innovation. #Biotech
PharmTech Group @PharmTechGroup
17K Followers 578 Following Bringing you the latest news, trends, and insight circulating the global pharmaceutical development and manufacturing industry.
Life Sciences Report @SWLifeSciences
10K Followers 513 Following The Life Sciences Report, by Streetwise Reports, is the leading source of investment coverage of Biotech, Pharmaceuticals, Medical Devices, Tools & Diagnostics.
Gene Sciences @Gene_Medicines
13K Followers 14K Following Healthcare, Biotechnology, Gene Therapy enthusiast. Retweeting doesn't mean endorsement. Do your own due diligence. Not providing investment advice.
Biotech World @BiotechWorld
36K Followers 8 Following The latest news about the biotech and pharmaceutical industy.
Xtalks Webinars @Xtalks
26K Followers 15K Following Xtalks — The Life Science Community™ brings together professionals across pharma, biotech, medtech, healthcare and research. Join our community today.











