HemoTool @HemoTool
HemoTool is a non-branded mobile app designed to help those living with a Bleeding Disorder with the independent management of their care. hemotool.com Kansas City, MO Joined July 2014-
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Followers149
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Following174
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Just posted a photo instagram.com/p/CJ_PV91LM9E/…
Just posted a photo @ United States instagram.com/p/CI3JKL_h6Bl/…
Really proud to collaborate with my friends/peers @SustainableRich & @DRosenfelt on this highly relevant Letter to the Editor re: “Addressing #patienteducation priorities in the era of #genetherapy for #hemophilia” published in the #haemophilia journal👇🏻 onlinelibrary.wiley.com/doi/10.1111/ha…
Just posted a photo instagram.com/p/CG7X0MjLg31/…
Our upcoming #PatientStories episode features Chris Bombardier, the first person with #hemophilia to summit Mount Everest. New Patient Stories episodes can be found every other Tuesday @GreyGeneticsPod and you check out Chris’ story now at bombardierblood.com.
We celebrate this important day in America’s history!!! Stay safe and enjoy!!! 🇺🇸 #america #landofthefree #1776 #independenceday instagram.com/p/CCOT4bgBGX6/…
#ad #Bayer In the final episode of “Hemophilia Perspectives,” pro cyclist Pau Salva and HemoTool’s Dakota Rosenfelt discuss their “Tips” for staying well during the pandemic! The full discussion can be found on… instagram.com/p/CCLyK4LBWls/…
Coming soon! The 3rd edition of the WFH Guidelines for the Management of Hemophilia will offer up-to-date guidance and practical recommendations on the diagnosis and management of #hemophilia for health care providers and patients around the world. ow.ly/Y3b950A5pWT
Taking a moment to Thank ALL of you AMAZING nurses out there!!! As an RT, I worked with so many great nurses. We are blessed with the BEST that helped us manage Dakota’s #Hemophilia! -Kimberly 💕 #happynursesday (You all deserve a whole year!)😉 #nurseappreciation #gratitude
It takes a lot to surprise me these days, but this one did. Someone is conducting an RCT of prayer (by 5 different religions) vs no prayer in patients admitted to the intensive care unit with COVID-19. @RichardDawkins @FritsRosendaal #COVID__19 #Corona
It’s #WorldHemophiliaDay, did you remember your RED?! Who else has been in a slump during these uncertain times of COVID-19? In the next few weeks, HemoTool is joining some special guests for a Q&A to share experiences and tips for coping. Send in your Qs! #ad #bayer
The celebrations have come to an end, but our excitement will remain for years to come! We are beyond proud of our Kansas City Chiefs as it has been 50 years in the making! We have the youngest Quarterback, at just… instagram.com/p/B8OeoHyh0fW/…
This past week, HemoTool’s Dakota Rosenfelt had the opportunity to participate in the Global Health Advocacy Summit in Lisbon, Portugal 🇵🇹 hosted by the Hemophilia Advocacy Advisors (HAA) board, sponsored by Bayer… instagram.com/p/B7tE8jkB_yF/…
That emicizumab figure must be taken with a very large degree of caution because it may be very inaccurate. It is based on extrapolations from the data that Genentech supplies on the US website. Better emi data from prospective cohorts should start being available in 1-2 years.
Relative risk of Thrombotic events from EUHASS data. Noone @EHC_Haemophilia
Our board has named our Vice President of Advancement, Sharon Meyers, as interim president and CEO following the recent resignation of Kimberly Haugstad. Many in the community may already know Sharon, but we invite you to learn all about her at hemophiliafed.org/interimannounc….
Diagnosed at 18 months with Severe Hemophilia, @alexdowsett continues to inspire children, young adults and even us older adults through his accomplishments as one of the greatest cyclists in the world! Check out… instagram.com/p/B0gFEs7Ba--/…
Who better to collaborate with over the needs of a patient than patients and caregivers themselves? We were invited most recently to participate in a design innovation challenge to help solve tough problems within… instagram.com/p/BySZORABJUX/…
Real Fundación Victo... @RFVE_hemofilia
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Santosh Kumar Jaiswal @Santosh27465653
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FEDHEMO - Hemofilia @fedhemo
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ARJInfusionServices @ARJInfusion
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Curtiss Reid Coleman @CReidColeman
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Arizona Blood Allianc... @ArizonaBleed
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Ryanne @RyanneSiobhain
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SponsorMotion @SponsorMotion
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Northern California B... @NorCalBDF
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MOSONGOH @Hemophiliakenya
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Daniela's Little Wish @danilittlewish
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Hemophilia Federation... @HemoIndia
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Suresh Hanagavadi @SHanagavadi
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Kate Regling DO @KateRegling
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Arn @Arn55675274
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Ousmane T. Seck @ousmanet
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WAPPS-Hemo @WAPPS_Hemo
303 Followers 183 Following Empowering hemophilia treatment through facilitating simplified PK assessment and enhancing knowledge about the value of popPK methodology in hemophilia care.
Cathy Farrelly @CathyFarrelly
182 Followers 389 Following Consultant Haematologist. Director Liverpool Haemophilia CCC. Founder: The OnCall Room. Passionate about med education. All opinions my own.
Bailey Machek @bluegenebailey
492 Followers 689 Following actually three raccoons in a trench coat. (she/her/hers)
Midwest Hemophilia As... @MidwestHemophi1
74 Followers 115 Following A non-profit group with a mission to educate, advocate, & inform the world about bleeding disorders!
A-L @AnneLouiseCruic
33 Followers 225 Following
Urszula Fernandez Kol... @UKolczak
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BIOVIIIx @BIOVIIIx
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Ashley Gregory @ashley_gregory
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kev. @k_kriv
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Hugh Acosta @VicThorHugh23
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Tony Maynard @tonymaynard
437 Followers 2K Following pro Life, pro Choice • pro Democracy conservative.
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211 Followers 335 Following
Meadow Heiman @meadowheiman
307 Followers 817 Following Clinical and research genetic counselor specializing in all things hematology. Special interest in research ethics, education and the Plain Population.
MotivusHealthcare @Motivus
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Cindy Guzman @CindyGu02388670
17 Followers 90 Following Working at Brothers Healthcare. #Mom of 3 Boys #hemofilia #hemomom #hemostrong #hemophilia
Pau Salvà @TRAINING4BIKE
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Roche @Roche
237K Followers 220 Following We advance science so that we all have more time with the people we love. Read our community guidelines: https://t.co/7k1HdbdrYL
haemnet @haemnet
1K Followers 375 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
Vaughn Ripley @vripley
13K Followers 11K Following Business Strategy AI and ML Expert ~ Sr. DBA ~ Inspirational Speaker and Extreme Encourager
CascadeFNDN_AZ @CascadeFNDN_AZ
47 Followers 108 Following Non profit focused on providing a local support system for the bleeding disorder community in southern Arizona.
RPTH @RPTHjournal
11K Followers 5K Following RPTH will no longer have an active presence on X. While this account will remain available as an archive, we will no longer post new content or monitor comments
Laurence Woollard @TheWoollard
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Ghana Haemophilia Soc... @HemophiliaGH
40 Followers 44 Following Our Vision is to reach every Haemophilia patient in Ghana with treatment and care
Hemophilia of Iowa @hemophiliaofia
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HTTC at UC San Diego @httcatucsdh
76 Followers 258 Following Supporting research & providing services to patients with hemophilia, von Willebrand disease and other bleeding and thrombotic disorders.
Michael Makris @ProfMakris
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Buddy @CTHemophilia
207 Followers 92 Following CHS is dedicated to improving the quality of life of persons with bleeding disorders and their families through education and financial support
Orphanet @Orphanet
6K Followers 587 Following The reference portal and knowledge base for information on rare diseases and orphan drugs. Orphanet nomenclature, ORPHA codes, Orphanet RD Ontology @inserm
CORD @raredisorders
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Rare Diseases Clinica... @rarediseasesnet
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Fundraise Direct @FundraiseDirect
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soleohealth @soleohealth
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CoalitionHemoB @CoalitionHemoB
1K Followers 695 Following Our mission is to make quality of life the focal point of treatment for individuals with hemophilia B.











