Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

Chem-Bio/Biophysics • Allostery in drug development • She/her • Pan • #Autistic • #hEDS + Co-morbids & Intractable Pain • Play ESO & PoGo Georgia, USA Joined August 2017

Tweets

2K
Followers

1K
Following

1K
Likes

60K

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@amberjans @H2OhTwist @hEDStogether @jenbrea @Be_Kinderr @UntoNuggan @TinyWriterLaura @nhelfand @jeff_says_that @exceedhergrasp1 @CortDoesScience @bennessb @BluesteinLinda @danimorsberger @dysclinic @HMSACharity @DocZing Oh whoops. Sorry for my delayed reply elsewhere. Hope it went well!

1 0 3 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@amberjans @DrEReinhold My only other surgeon was not careful about sutures and my scars are massive. Dr. Ericson’s are barely visible. They healed really well. Here is that poster, btw. ericsonhand.com/ewExternalFile…

0 0 1 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@amberjans @DrEReinhold Dr. William Ericson is the only surgeon I had that knew about hEDS. He is very careful about sutures. In one of his posters, he references “absorbable monofilament sutures and steristrips.” I’m not an MD, so idk exactly what that means, but maybe good to bring up?

1 0 1 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@life_is_art___ She also wanted (wants?) to tax mg of opioids (1c per mg) without conversion to mme. So someone on a less potent opioid would pay more ($60/month for 200 mg of tramadol a day, in my case). Just ridiculous.

0 0 2 0 0

View Details

Life Is Art Carrie🐦‍⬛🔥 @life_is_art___

5 years ago

Please read through this important thread. I’ll be coming out with more info to add about #Klobuchar and her ties to Rummler and PROP, as well as evidence she took actions she admitted would result in rx opioid and OUD pts being forced to use illicit drugs.

7 28 48 0 4

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

Most cases I’ve read where a pain patient has sued for their right to access opioids have been based on the same principles. I’m afraid for us all if Roe gets overturned. I’m afraid we will have much more limited legal recourse. 2/2

0 0 1 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

The precedent set in Roe v Wade is not just about abortion rights. It is about medical freedom. Overturning it will have a chilling affect medical freedom in general. 1/2

1 1 2 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

Wish we could get stuff like this covered by insurance. It could really help ppl like me with tmj disorder (or other types of jaw pain/dysfunction).

Bloomberg Originals @bbgoriginals

5 years ago

🥦🍗🍎 “I just have to squish it with my tongue and it just melts away into your throat.” Having trouble chewing? Japan's $410 @DeliSofter machine is allowing people to enjoy home-cooked meals even in their later years. @rumireports from Kyoto trib.al/EtCtajF

55 314 1K 0 341

0 2 1 0 0

View Details

Ethan Brown @ethanbrown72

5 years ago

There were a record 100,000 overdose deaths last year. But the culprits are not the Sacklers or big pharma: opioid prescribing declined by 60 percent since its 2011 peak. The problem is a toxic drug supply one user told @ZachWritesStuff is "pure hell." 1/2 newrepublic.com/article/164531…

7 68 169 0 14

View Details

Ed Yong is not here @edyong209

5 years ago

Most medically trained long-haulers I interviewed were shocked at how quick their own peers were to disregard their medical expertise and tell them their symptoms were in their heads. Their status as patients completely subsumed their qualifications. 2/ theatlantic.com/health/archive…

23 409 1K 0 56

View Details

Bev Schechtman🇮🇱 @ibdgirl76

5 years ago

2) so now this 67 yr old man, who takes a schedule 3 controlled substance, is not only abandoned by pain dr due to DEA, but now is medically abandoned by his PCP. Why? All on the name of the “opioid crisis.” Great job @CDCInjury and @supportprop You should be proud.

11 41 135 0 1

View Details

National Pain Advocacy Center @national_pain

5 years ago

An in-depth look at the $7 million verdict after a disabled patient was suddenly #tapered off higher dose, long term #opioids by @DrewQJoseph w/ input from @speakingabtpain @BethDarnall @StefanKertesz & others statnews.com/2021/11/22/her…

5 33 57 0 5

View Details

TEEFRANKLIN.COM @MizTeeFranklin

5 years ago

Interesting. Doc called me & said she’s discharging me cuz they can’t manage my pain. Yet I’m here for my heart. We’re not redoing any tests since you got them done in May. The daughter and I got phone calls from both docs at the same time.

7 2 93 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@thesundaytimes Given we are moving towards using AI more often in healthcare, I really hope they will also look into bias in AI (and how to prevent it/what standards they should be held to). Bias in AI has the potential for great harm.

0 0 15 0 1

View Details

Kate Nicholson @speakingabtpain

5 years ago

With 100,000 dead from drug overdoses from April 2020-April 2021 isn't it time for a new approach?

20 41 201 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@SarahSaysHi2U @Hermes_3XGr8 It definitely works for some people! It helped my mom with cancer pain. But everyone is so different, which is why individualized care is *so* important. lol imagine if we tried to put everyone with depression on the same antidepressant. That would b absurd. Same with pain meds.

0 0 0 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

The paper found, “53% of successfully tapered [from opioids] patients and 42% of those transitioned onto buprenorphine reported elevated pain.” And this is not *incredibly concerning* to the authors? researchgate.net/profile/Paul-C…

10 14 50 0 4

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@StefanKertesz @Jinxthejjinx @ChadDKollas @OregonAdvocate @PainMedJournal @supportprop In case anyone sees this, but not my other tweets, here is a piece of data I want. It may not tell us anything about the patients as individuals. The # of patients with increased pain is likely the better metric. But it still bothers me that this is missing.

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@adfoxMD @ChadDKollas @PainMedJournal @supportprop 100% Also statements like this in the discussion: “There was not a significant difference in median pain intensity from baseline to follow-up among patients successfully transitioned to buprenorphine” But where is the median follow-up value?

2 2 14 0 0

0 0 2 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@StefanKertesz @Jinxthejjinx @ChadDKollas @OregonAdvocate @PainMedJournal @supportprop 1/Thank you for the work you do. I has a similar take-away. Other than some missing data (maybe changes nothing, but it’s weird to exclude), my main source of frustration was not the data itself, but rather that it seems acceptable to them that over half the patients are subject

2 0 3 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@StefanKertesz @Jinxthejjinx @ChadDKollas @OregonAdvocate @PainMedJournal @supportprop 3/ Which is one reason that, as pointed out here, the COIs are quite relevant. Readers should be allowed to be informed of the possibility of bias.

1 0 3 0 0

View Details

Chloe, PhD 🥽🧪🔬🦠🧫🧬 @LabGirl_Chloe

5 years ago

@StefanKertesz @Jinxthejjinx @ChadDKollas @OregonAdvocate @PainMedJournal @supportprop 2/ to increased suffering post-taper. Both in the article and elsewhere, their message seems to be that pain control is secondary to getting patients under a strict mme and/or on bup.