Patient Centred Outcomes Research (PCOR) @POGWeb
Leading applied research across a wide portfolio of cancer studies | quality of life | patient reported outcome measures (PROMs) | University of Leeds, UK pcor.org.uk Leeds Joined January 2013-
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Following589
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Interested in economic evaluations of using patient reported outcome measures (PROMs) in cancer? Check out our paper on the eRAPID intervention in chemotherapy. Findings indicate potential cost benefit when online symptom monitoring is added to usual care ascopubs.org/doi/10.1200/OP…
....in recognition of her research into the long-term wellbeing and functioning of people affected by low-grade glioma. Read more here: academic.oup.com/neuro-oncology…
We've been quiet on here so time for some updates- first off: Congratulations to our colleague @DrFlorienBoele for winning the European Association of Neuro-oncology @EANO Nurse & allied healthcare professionals research award 🏆
We are recruiting! Check out our vacancy: Research Fellow for @EORTC funded project exploring processes for selecting patient reported outcome (PRO) items for use in symptom monitoring within cancer trials and practice. ⭐️Deadline 26th Feb jobs.leeds.ac.uk/vacancy.aspx?r… ⭐️
Are you an NHS oncology nurse or a nurse working with cancer patients? Can you spare a few minutes to complete a survey exploring self-compassion & wellbeing at work? Click: lnkd.in/ecFvb4P9 to help us understand your experiences. @BPOSUK @UKONSmember
Calling all NHS oncology nurses or those who work with them - please consider completing or sharing this survey exploring self-compassion & wellbeing at work. lnkd.in/ecFvb4P9
Newly published study from @POGWeb: @DrFlorienBoele @DrKateAbsolom and colleagues on the reassurance gained from interval scanning for people living with high grade brain tumours despite the associated anxiety. Very interesting read.
Calling all NHS oncology nurses or those who work with them - please consider completing or sharing this survey exploring self-compassion & wellbeing at work. lnkd.in/ecFvb4P9
Interested in the use of patient reported outcome measures in radiotherapy? Listen to our colleagues @TrishHolch @GalinaVelikova2 discuss the future of ePROs in this great podcast. Thanks to @IJROBP for showcasing our research redjournal.org/pb-assets/Heal… @LeedsMedHealth
This month we have several authors making the case for PROs. March 2023 podcast "The Future of ePROs" with @KaitlynLapen @TrishHolch @GalinaVelikova2 AT: redjournal.org/pb-assets/Heal… New Masterclass! "When Patience is a Failing" from @DeborahWBruner1 AT: redjournal.org/article/S0360-…
Very excited to announce that @sheffielduni will be hosting #UKPROMS conference in 2023! More details to follow soon, but in the meantime "SAVE THE DATE"!! @ISOQOL @SCHARRSheffield @SCHARR_KE
Out today in @MASCC_JSCC funded by @yorkshirecancer "It made me feel part of the team, having my homework to do' women & specialist nurse experiences of remote follow‑up after ovarian cancer treatment doi.org/10.1007/s00520… @POGWeb @LeedsMedHealth @lshears_ @MarieH2211
Now out! Results from our pilot study of eRAPID remote patient monitoring in radiotherapy. redjournal.org/article/S0360-… We found: ▶️eRAPID was acceptable and feasible ▶️Online symptom report completion was particularly high in the prostate cancer group compared to the gynaecological
New #RedJournal paper on the feasibility of online reporting of adverse events in pelvic RT in 2 UK cancer centers @TrishHolch @DrKateAbsolom @GalinaVelikova2 @LeedJulia @OncologyLeedsTH @TheChristieNHS @POGWeb @LeedsMedHealth @LBUPsych bit.ly/3TiwYKZ
Read our latest @POGWeb paper here: rdcu.be/cQR88 A feasibility study of electronic patient‑reported monitoring during ovarian cancer follow-up @DrFionaRKennedy @MarieH2211 @lshears_ @yorkshirecancer
Our paper published online in BMC Cancer exploring feasibility of electronic patient-reported monitoring of symptoms during follow-up for ovarian cancer - available here ⬇️ rdcu.be/cQR88 @POGWeb @LeedsMedHealth @yorkshirecancer @lshears_ @MarieH2211
It's nearly time for the @BPOSUK 2022 conference! Good luck to the @POGWeb team members presenting talks and posters describing our work using online patient reported outcome interventions in cancer care delegate-reg.co.uk/bpos2022/agenda @DrFionaRKennedy @KathleenS_Kane
Important new @myESMO guidance now published: The role of patient-reported outcome measures in the continuum of cancer clinical care, co-authored by @POGWeb @Lorrwarr annalsofoncology.org/article/S0923-…
Important review with fantastic PPI involvement from @J_vanOppen & A.Alshibani, @TJCoats, Blair Graham, @TrishHolch, J Lalesta @NicolaMackintos, V Richardson, P.Riley @josemvalderas @GERED_DOC doi.org/10.1186/s41687… @UOL_Health_Sci @MRCLHA @LBUPsych @ssspsycen
If you work in Paediatric, TYA #oncology and would like to pass our survey on to your colleagues, please email me at [email protected] Everyone in the UK working in Paediatric, TYA Oncology needs to know about this survey, please help us spread the word! 🏳️🌈🏳️⚧️🇬🇧
In case you missed it- final report from our @NIHRresearch eRAPID programme grant is now published ‘Electronic self-reporting of adverse events for patients undergoing cancer treatment: the eRAPID research programme including two RCTs’ tinyurl.com/28ufukp7
4/4 Quality of life after VATS lung resection and SABR for early-stage non-small cell lung cancer: A longitudinal study linkinghub.elsevier.com/retrieve/pii/S…
3/4 Patients' confidence in treatment decisions for early stage non-small cell lung cancer (NSCLC) hqlo.biomedcentral.com/articles/10.11…
We've been quiet on here for too long! Great to reignite our twitter profile to celebrate our colleague @pompili_cecilia following her long awaited PhD graduation on Monday. Congratulations Cecilia, we're very proud of all your achievements.
More than 2y later..#phdgraduation with my 9yo boy. Thanks @LeedsMedHealth for making me a better surgeon, a better mum and a better researcher and @POGWeb for making me a better person. #nevertoolate #WomenInSTEM @wis_italia @ests_womenThor
Jens Lehmann @JLehmann_IBK
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EORTC Quality of Life... @EORTC_QLG
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UK Society for Behavi... @UKSBM
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Prof Hilary Bekker (P... @BekkerHilary
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David Sebag (he/him) ... @MontefioreD
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Isabella Fornacon-Woo... @Isabellamfw
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Af Marseh @AfMarseh
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Danielle Musson @DanielleMusson4
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AEACaP @AEACaP
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Prof Ollie Minton @drol007
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Dr Mollie Price @MolliePrice94
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Jessica Pearce @Jess_Pearce_
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APPROACH RCT @ApproachRCT
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Jordan Curry, PhD @JordanCurry2
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Sharon Rowe @SharonRowe111
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Dr Lauren Matheson @dr_matheson
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Ella Steele @ESteeleNeuro
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hs @hhh7119
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Simon Fleming 🛠 @OrthopodReg
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Marilyn Owens @MarilynEO6164
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Markus Schuler @KajoSchuler
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Dr Anne-Marie Baird @BairdAM
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Codice Viola @CodiceViola
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OutcomesFacilitator (... @Outcomes_PROMs
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Pablo Munoz Schuffene... @pablomunozsch
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Anna @Linton_AG
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Dr Sahil Suleman @sahilsuleman
1K Followers 2K Following Consultant Clinical Psychologist & lead for Clinical Health & Cancer Psychology @bsmhft @uhbtrust Lover of food, music & social justice. Opinions my own.
Vinehealth @Vinehealth_
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Dr. Michael Baliousis @MBaliousis
109 Followers 213 Following Clinical Psychologist | Clinical Academic @NottmHospitals @UniofNottingham @mbaliousis.bsky.social #psychooncology #ClinicalResearch #Prehab
Abdelali (Ali) Majdi,... @alitimumab
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Dr Mark Jeffries @DrMarkJeffries
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Lorena Iabichella @litraducciones
139 Followers 874 Following Certified translator specialized in medical and pharmaceutical texts. English to Spanish +15 yr of experience ❤️#cardiology #hypertension 🧠 #CSFleak #SIH #FMD
Helle Pappot @Helle_PP
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Beth @BethCoops_
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Scott Pryde @ascottpryde
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Jens Lehmann @JLehmann_IBK
294 Followers 531 Following early career investigator @imed_tweets | current chair of ECI group at @EORTC_QLG & EORTC board member patient-reported outcomes | ePRO | cancer |
EORTC Quality of Life... @EORTC_QLG
1K Followers 897 Following The mission of the @EORTC QLG is to develop measures of PRO in #cancer, incl. #HRQoL, and promote and coordinate studies concerning the #QoL of cancer patients.
Samantha Sodergren @SCSodergren
413 Followers 310 Following Senior Research Fellow, Chartered Health Psychologist, University of Southampton, EORTC Quality of Life Group Member.
BPOS UK @BPOSUK
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Trisha Greenhalgh @trishgreenhalgh
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Dr Fiona Kennedy @DrFionaRKennedy
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Judy Wright @jmwleeds
535 Followers 393 Following *Also on BlueSky* Information specialist, interested in systematic reviews, syntheses, econ evaluations, realist reviews, research proposals. Views my own.
MCHP @ManHealthPsych
2K Followers 418 Following Manchester Centre for Health Psychology https://t.co/1NzO87GrFM
Andrew Bottomley @andrewbottom0
237 Followers 141 Following Psychologist and Researcher, Ph.D, Expert in Clinical Trials and PRO, Consultant, Oncology, Outcomes Researcher
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426 Followers 350 Following Professor of Health Outcomes Research, SCHARR Outcomes, University of Sheffield
Dr Pinkie Chambers @PinkieChambers
1K Followers 1K Following Applied Health research lead at UCLH / UCL | using data to improve cancer outcomes. Pharmacist | BOPA research committee member | love collaboration
UK Society for Behavi... @UKSBM
5K Followers 3K Following Tweets from various members of the UK Society for Behavioural Medicine executive committee. RT does not mean endorsement.
Prof Hilary Bekker (P... @BekkerHilary
897 Followers 866 Following Chair in Medical Decision Making, University of Leeds-UK. Views are personal.
David Sebag (he/him) ... @MontefioreD
3K Followers 814 Following Professor of Clinical Oncology University of Leeds & LTHT, Director CRUK RadNet Leeds Centre of Excellence, Clinical Director Leeds CRUK CTU
University of Leeds @UniversityLeeds
112K Followers 988 Following We no longer post on this account, but it remains active for monitoring purposes. See our pinned post below for other channels where you can find us.
Scott Pryde @ascottpryde
506 Followers 2K Following Outcomes & Registries | Health Data & Analytics | Medical Technology & Innovation | Healthcare Value Chains | Machine Learning & AI | Wearables & Fitness
Lotte Rodkjaer @LRodkjaer
43 Followers 66 Following
Julia @juliaclchan
37 Followers 98 Following PhD Candidate Psycho-Oncology/Behavioural Health @hkumed MSc Health Psychology @kingsioppn
Vicki Bolton @vicbolt
486 Followers 771 Following I'm here for data, policy and politics, vets (for work), Dutch things (especially cycle paths), quality of life, women & girls. Opinions my own, obviously.
Yuichiro Kikawa, MD, ... @u1rokikawa
690 Followers 442 Following Breast Oncologist / Kansai Medical University / QOL researcher / father of two kids / born in Tokushima / live in Kobe city / Love baseball / Orix Buffaloes
Jessica Mayes @JessicaEMayes
34 Followers 106 Following Researcher in the field of Psychology (BSc & MRes) - I'm interested in Health & Wellbeing Psychology, Women's Health and Body Image Research.
Dose_Delay @dosedelay1
53 Followers 172 Following This national study aims to determine if delays in your chemotherapy can affect cancer #ovariancancer #breastcancer CI: @PinkieChambers Fellow: @rafeeki4
Prof Ollie Minton @drol007
6K Followers 4K Following Outnumbered 3:1 by ladies 🏠 at work 👨🏼⚕️ honorary professor 👨🏼🏫 & consultant palliative medicine @uhsussex , research #survonc #pallonc #fatigue #hpm
EORTC QLG Early Caree... @EORTC_QLG_ECI
278 Followers 279 Following Network of early career investigators involved in the EORTC Quality of Life Group | Views are not those of the EORTC QLG | This week handled by @
CHORAL @CHORAL_RESEARCH
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Busra Cangut, MD, MS @BusraCangutMD
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Beth @BethCoops_
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Abdelali (Ali) Majdi,... @alitimumab
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Dr. Michael Baliousis @MBaliousis
109 Followers 213 Following Clinical Psychologist | Clinical Academic @NottmHospitals @UniofNottingham @mbaliousis.bsky.social #psychooncology #ClinicalResearch #Prehab
Dr Anne-Marie Baird @BairdAM
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Markus Schuler @KajoSchuler
21 Followers 73 Following
Marilyn Owens @MarilynEO6164
8 Followers 88 Following
Simon Fleming 🛠 @OrthopodReg
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Ella Steele @ESteeleNeuro
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Dr Lauren Matheson @dr_matheson
190 Followers 656 Following Research Fellow - Supportive Cancer Care @OxInAHR @oxford_brookes #Qualitative #cancersurvivorship #selfmanagementinterventions #lifestyle #behaviorchange
APPROACH RCT @ApproachRCT
66 Followers 242 Following Trial to explore whether a support package including a mobile app can help cancer patients be more active @UCL @UniversityLeeds @AU_PrimaryCare @yorkshirecancer
Jordan Curry, PhD @JordanCurry2
1K Followers 1K Following PostDoc at @ColoradoStateU | Exercise Physiologist | Interests: ExOnc, Advanced Cancers & Digital Tech | Coffee Geek | Runner | FHEA | Views my own | He/Him
Jessica Pearce @Jess_Pearce_
197 Followers 410 Following NIHR Doctoral Research Fellow + Medical Oncology Registrar. Interest in frailty. Also 🪴🏃♀️🚴♀️
Rebecca Spencer @Rebecca_Spenc
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Dr Mollie Price @MolliePrice94
356 Followers 594 Following Research Fellow in Health Psychology @LBUPsych. The APPRAISE study @APPRAISE_study (she/her)
Anna @Linton_AG
28 Followers 101 Following PhD student at @UniversityLeeds | @LeedsMedAI_CDT | NLP | AI | Patient Reported data
OutcomesFacilitator (... @Outcomes_PROMs
1K Followers 958 Following PROMs Manager @NorthumbriaOrth Foot & Ankle, Shoulder/Elbow, Hand/Wrist, Hip & Knee preservation, Spine, Bone & Joint Infection. Views my own.
Kelly Baillie @kelly_baillie1
546 Followers 958 Following Pharmacist | NHS Lanarkshire | likes🏃♀️all views are my own
Pablo Munoz Schuffene... @pablomunozsch
1K Followers 1K Following MD. Radiation Oncologist. GI+Thoracic+Oligomets. Associate Professor @FacMedicinaUC @ucatolica 🇨🇱 . Tweets are my own
Richard Feltbower @rgfeltbower
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Abdulla Rashdan, MD, ... @RashdanAMD
179 Followers 240 Following Radiation Oncologist with interest in patient-reported outcomes & experience measures. Health Services Research. Views are my own
The PROTEUS Consortiu... @proteuspros
250 Followers 247 Following Helping you navigate the use of Patient Reported Outcomes (PRO) in clinical trials and clinical practice. RTs ≠ endorsements.
Dr Sahil Suleman @sahilsuleman
1K Followers 2K Following Consultant Clinical Psychologist & lead for Clinical Health & Cancer Psychology @bsmhft @uhbtrust Lover of food, music & social justice. Opinions my own.
Prema Naittee George @NaitteePrema
49 Followers 136 Following PhD candidate in AYA cancer survivorship/Health Psychologist/Psycho-oncologist
Vinehealth @Vinehealth_
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